{"id":30777,"date":"2018-08-14T15:16:08","date_gmt":"2018-08-14T13:16:08","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30777"},"modified":"2018-08-14T15:16:08","modified_gmt":"2018-08-14T13:16:08","slug":"70-byvalych-detskych-onkologickych-pacientu-se-potyka-se-zdravotnimi-problemy-rozeznat-je-umi-malokdo","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30777","title":{"rendered":"70 % b\u00fdval\u00fdch d\u011btsk\u00fdch onkologick\u00fdch pacient\u016f se pot\u00fdk\u00e1 se zdravotn\u00edmi probl\u00e9my. Rozeznat je um\u00ed m\u00e1lokdo"},"content":{"rendered":"

S rakovinou se Lucie setkala v 10 letech, kdy j\u00ed l\u00e9ka\u0159i zjistili malign\u00ed karcinoid jater s metast\u00e1zami. Onkologov\u00e9 ji l\u00e9\u010dili 5 let n\u011bkolikr\u00e1t se ocitla v termin\u00e1ln\u00edm st\u00e1diu. D\u00edky profesoru Jaroslavu \u0160t\u011brbovi mohla podstoupit transplantaci jater, kde je pravd\u011bpodobnost \u00fasp\u011b\u0161nosti pouze 50 %. Transplantace se povedla a zachr\u00e1nila j\u00ed \u017eivot. Lucie se ale st\u00e1le pot\u00fdk\u00e1, stejn\u011b jako stovky vyl\u00e9\u010den\u00fdch onkologick\u00fdch d\u011bt\u00ed, s n\u00e1sledky prod\u011blan\u00e9 l\u00e9\u010dby. Spole\u010dn\u011b s ostatn\u00edmi, d\u0159\u00edve d\u011btsk\u00fdmi pacienty v organizaci Spole\u010dn\u011b k \u00fasm\u011bvu upozor\u0148uj\u00ed na to, \u017ee v \u010cesku je m\u00e1lo l\u00e9ka\u0159\u016f, kte\u0159\u00ed by se n\u00e1slednou p\u00e9\u010d\u00ed o takov\u00e9 pacienty zab\u00fdvali. A podporuje jedin\u00e9 dv\u011b ambulance, kter\u00e9 to nyn\u00ed d\u011blaj\u00ed.<\/strong>
\n
\nV sou\u010dasn\u00e9 dob\u011b funguj\u00ed v tuzemsku 2 kliniky zab\u00fdvaj\u00edc\u00ed se pozdn\u00edmi n\u00e1sledky onkologick\u00e9 l\u00e9\u010dby \u2013 v pra\u017esk\u00e9m Motole a v Brn\u011b u sv. Anny. Zhoubn\u00fdm n\u00e1dorem v \u010cesku ro\u010dn\u011b onemocn\u00ed asi 350 d\u011bt\u00ed, br\u00e1ny nemocnic opust\u00ed po uzdraven\u00ed v\u00edce ne\u017e 80 % z nich. Pro v\u011bt\u0161inu z nich v\u0161ak boj d\u00e1le pokra\u010duje. Mus\u00ed se vyrovnat s n\u00e1sledky l\u00e9\u010dby nap\u0159\u00edklad v podob\u011b po\u0161kozen\u00e9ho sluchu, sn\u00ed\u017een\u00e9 mo\u017enosti m\u00edt d\u011bti, \u00fanavou, endokrinologick\u00fdmi pot\u00ed\u017eemi, \u010di s obt\u00ed\u017eemi za\u010dlenit se do kolektivu a strachem, \u017ee se nemoc vr\u00e1t\u00ed.<\/p>\n

\u201ePom\u00e1h\u00e1 n\u00e1m nov\u011b zalo\u017een\u00e1 klinika pozdn\u00edch n\u00e1sledk\u016f v Brn\u011b, kde p\u016fsob\u00ed jak onkologov\u00e9, tak specialist\u00e9, je\u017e znaj\u00ed na\u0161i zdravotn\u00ed historii. Nez\u00e1visl\u00ed specialist\u00e9 a praktici se boj\u00ed, \u010dasto n\u00e1s proh\u00e1n\u00ed nadbyte\u010dn\u00fdmi vy\u0161et\u0159en\u00edmi, kter\u00e1 sp\u00ed\u0161e zat\u011b\u017euj\u00ed a n\u011bkdy n\u00e1s ani necht\u011bj\u00ed vz\u00edt z d\u016fvodu na\u0161\u00ed p\u0159edchoz\u00ed nemoci. M\u00e9 kolegyni nyn\u00ed na\u0161li, mnoho let po prod\u011blan\u00e9 onkologick\u00e9 l\u00e9\u010db\u011b, zv\u00fd\u0161en\u00fd nespecifick\u00fd onkomarker, z\u00e1rove\u0148 s n\u00e1lezem na \u0161t\u00edtn\u00e9 \u017el\u00e1ze v oblasti, kde byla oza\u0159ovan\u00e1. Ve v\u0161ech brn\u011bnsk\u00fdch nemocnic\u00edch ji endokrinologov\u00e9 odm\u00edtli prohl\u00e9dnout d\u0159\u00edve, ne\u017e za 5 m\u011bs\u00edc\u016f. P\u0159itom zde hraje roli ka\u017ed\u00fd den, zvl\u00e1\u0161t\u011b s takovou histori\u00ed, jakou m\u00e1. Jedin\u00ed, kte\u0159\u00ed projevili ochotu vz\u00edt ji hned, byli l\u00e9ka\u0159i v brn\u011bnsk\u00e9 vojensk\u00e9 nemocnici,\u201c vysv\u011btluje Lucie.<\/p>\n

Podle MUDr. Tom\u00e1\u0161e Kep\u00e1ka, vedouc\u00edho l\u00e9ka\u0159e programu pozdn\u00edch n\u00e1sledk\u016f Kliniky d\u011btsk\u00e9 onkologie a z\u00e1rove\u0148 l\u00e9ka\u0159e ambulance dlouhodob\u00e9ho sledov\u00e1n\u00ed v nemocnici u sv. Anny v Brn\u011b, je velmi t\u011b\u017ek\u00e9 p\u0159edv\u00eddat budouc\u00ed zdravotn\u00ed pot\u00ed\u017ee vyl\u00e9\u010den\u00e9ho onkologick\u00e9ho pacienta. Zvl\u00e1\u0161t\u011b kdy\u017e l\u00e9ka\u0159 nezn\u00e1 jeho plnou historii a pou\u017eit\u00e9 l\u00e9\u010debn\u00e9 protokoly \u201eB\u011b\u017en\u00e9 prohl\u00eddky nemus\u00ed tyto n\u00e1sledky v\u017edy odhalit,\u201d \u0159\u00edk\u00e1 MUDr. Kep\u00e1k.<\/p>\n

V \u010cesk\u00e9 republice je nyn\u00ed 6\u20137 tis\u00edc d\u0159\u00edve d\u011btsk\u00fdch pacient\u016f, vyl\u00e9\u010den\u00fdch ze zhoubn\u00e9ho n\u00e1doru. S pozdn\u00edmi n\u00e1sledky l\u00e9\u010dby se pot\u00fdkaj\u00ed 2\/3 z nich. \u201eNej\u010dast\u011bji jde o kardiovaskul\u00e1rn\u00ed pot\u00ed\u017ee, probl\u00e9my s pl\u00edcemi, ledvinami, r\u016fstem, metabolick\u00fdm syndromem a s poruchami \u0161t\u00edtn\u00e9 \u017el\u00e1zy, se kter\u00fdmi se setk\u00e1 a\u017e 40 % p\u016fvodn\u011b onkologick\u00fdch pacient\u016f. Nemal\u00e1 \u010d\u00e1st na\u0161ich pacient\u016f pak trp\u00ed \u00fazkostmi a chronickou \u00fanavou. 10 % mlad\u00fdch vyl\u00e9\u010den\u00fdch lid\u00ed m\u00e1 poruchy plodnosti, co\u017e n\u011bkte\u0159\u00ed z nich nesou obzvl\u00e1\u0161\u0165 t\u011b\u017ece, \u201c \u0159\u00edk\u00e1 MUDr. Kep\u00e1k. Vyl\u00e9\u010den\u00ed lid\u00e9, kte\u0159\u00ed prod\u011blali l\u00e9\u010dbu cis platinou, je\u017e je obvyklou sou\u010d\u00e1st\u00ed chemoterapie, m\u00edvaj\u00ed pot\u00ed\u017ee se sluchem.<\/p>\n

\u201eV sou\u010dasn\u00e9 dob\u011b existuj\u00ed 2 ambulance, kter\u00e9 se na\u0161imi d\u011btsk\u00fdmi onkologick\u00fdmi pacienty d\u00e1le zab\u00fdvaj\u00ed. P\u0159imlouval bych se za to, aby jich bylo v\u00edce, nap\u0159\u00edklad p\u0159i komplexn\u00edch onkologick\u00fdch centrech, je\u017e v republice funguj\u00ed. A aby se tato aktivita stala sou\u010d\u00e1st\u00ed N\u00e1rodn\u00edho onkologick\u00e9ho programu,\u201c uv\u00e1d\u00ed prof. MUDr. Jaroslav \u0160t\u011brba, PhD., p\u0159ednosta Kliniky d\u011btsk\u00e9 onkologie FN Brno. Jak d\u00e1le uv\u00e1d\u00ed, l\u00e9ka\u0159i v takov\u00fdch ambulanc\u00edch jsou schopni p\u0159edv\u00eddat, co by dan\u00fd p\u0159\u00edznak konkr\u00e9tn\u00edho pacienta mohl znamenat a um\u00ed pohl\u00eddat probl\u00e9my, kter\u00e9 by l\u00e9ka\u0159 obvykle ne\u010dekal.<\/p>\n

\u201eNap\u0159\u00edklad screening na rakovinu prsu poji\u0161\u0165ovna hrad\u00ed a doporu\u010duje se po 40 roce v\u011bku. U d\u00edvek, kter\u00e9 v d\u011btstv\u00ed prod\u011blaly Hodgkin\u016fv lymfom, se m\u016f\u017ee tento n\u00e1dor objevit o 20, 30 let d\u0159\u00edve, proto by m\u011bly b\u00fdt sledov\u00e1ny u\u017e od 20 a\u017e 25 roku v\u011bku. V\u011bt\u0161ina b\u00fdval\u00fdch onkologick\u00fdch pacient\u016f trp\u00ed syndromem p\u0159ed\u010dasn\u00e9ho st\u00e1rnut\u00ed a objevuj\u00ed se u nich nemoci, kter\u00e9 jsou typick\u00e9 pro \u00fapln\u011b jinou v\u011bkovou kategorii,\u201c vysv\u011btluje prof. \u0160t\u011brba. S nejhor\u0161\u00edmi pozdn\u00edmi n\u00e1sledky se podle prof. \u0160t\u011brby setk\u00e1vaj\u00ed d\u011bti s n\u00e1dory centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, kter\u00e9 byly v \u00fatl\u00e9m v\u011bku l\u00e9\u010deny radioterapi\u00ed.<\/p>\n

Vyl\u00e9\u010den\u00ed d\u011bt\u0161t\u00ed pacienti nav\u00edc \u017eij\u00ed v neust\u00e1l\u00e9 obav\u011b, \u017ee se n\u00e1dor objev\u00ed n\u011bkde v t\u011ble znovu. \u201eP\u0159esto\u017ee jsem u\u017e 11 let vyl\u00e9\u010den\u00e1, p\u0159ed 2 lety jsem m\u011bla nov\u00fd n\u00e1lez v uzlin\u00e1ch, zachytili jsme jej v\u010das a l\u00e9ka\u0159i jej vyoperovali, ale to v\u011bdom\u00ed, \u017ee se n\u00e1dory mohou vr\u00e1tit, je tu po\u0159\u00e1d,\u201c potvrzuje Lucie.<\/p>\n

Sama h\u016f\u0159e sly\u0161\u00ed vysok\u00e9 t\u00f3ny, je\u0161t\u011b dnes se ob\u010das pot\u00fdk\u00e1 s \u00fanavou, jako n\u00e1sledkem l\u00e9\u010dby. Spole\u010dn\u011b s dal\u0161\u00edmi onkologick\u00fdmi d\u011btsk\u00fdmi pacienty zalo\u017eila sdru\u017een\u00ed Spole\u010dn\u011b k \u00fasm\u011bvu a sna\u017e\u00ed se podporovat jak rodiny, jejich\u017e d\u011bti pr\u00e1v\u011b nemoc\u00ed proch\u00e1zej\u00ed, tak nov\u011b vzniklou ambulanci pro l\u00e9\u010dbu pozdn\u00edch n\u00e1sledk\u016f v Brn\u011b, kde se vyl\u00e9\u010den\u00e9 d\u011bti do\u010dkaj\u00ed p\u00e9\u010de, kterou pot\u0159ebuj\u00ed.<\/p>\n

V Evrop\u011b je cca 400 \u2013 500 000 vyl\u00e9\u010den\u00fdch d\u011btsk\u00fdch onkologick\u00fdch pacient\u016f, s n\u00e1slednou p\u00e9\u010d\u00ed o tyto p\u016fvodn\u011b d\u011btsk\u00e9 pacienty je na tom nejl\u00e9pe Holandsko a n\u011bkter\u00e9 \u010d\u00e1sti Velk\u00e9 Brit\u00e1nie a USA.<\/p>\n

Spole\u010dn\u011b k \u00fasm\u011bvu<\/p>\n

Pacientsk\u00e1 organizace slo\u017een\u00e1 z vyl\u00e9\u010den\u00fdch onkologick\u00fdch pacient\u016f, l\u00e9ka\u0159\u016f a dal\u0161\u00edch partner\u016f. S pomoc\u00ed workshop\u016f a tvorbou osv\u011btov\u00fdch materi\u00e1l\u016f se sna\u017e\u00ed sehr\u00e1t roli v prevenci pozdn\u00edch n\u00e1sledk\u016f l\u00e9\u010dby, jako jsou nap\u0159\u00edklad metabolick\u00fd syndrom, psychosoci\u00e1ln\u00ed n\u00e1sledky, \u010di dent\u00e1ln\u00ed pot\u00ed\u017ee. K tomu vyu\u017e\u00edv\u00e1 unik\u00e1tn\u00ed spojen\u00ed sou\u010dasn\u00fdch profes\u00ed vyl\u00e9\u010den\u00fdch pacient\u016f jako jsou nutri\u010dn\u00ed specialista, zdravotn\u00ed laborant, \u010di psycholog.<\/p>\n

V r\u00e1mci projektu doch\u00e1z\u00ed vyl\u00e9\u010den\u00ed pacienti v podob\u011b Moudr\u00fdch pr\u016fvodc\u016f na d\u011btsk\u00e9 onkologick\u00e9 kliniky a jsou oporou sou\u010dasn\u00fdm d\u011btsk\u00fdm pacient\u016fm a jejich rodin\u00e1m. Svoje zku\u0161enosti s onkologickou l\u00e9\u010dbou sd\u00edlej\u00ed tak\u00e9 na webov\u00fdch str\u00e1nk\u00e1ch \u010di soci\u00e1ln\u00edch s\u00edt\u00edch. Po\u0159\u00e1daj\u00ed charitativn\u00ed akce na podporu projekt\u016f n\u00e1sledn\u00e9 p\u00e9\u010de onkologick\u00e9 l\u00e9\u010dby a aktu\u00e1ln\u011b l\u00e9\u010den\u00fdch d\u011bt\u00ed. Jednou z nich je koncert v brn\u011bnsk\u00e9m Sonu, 23. 9. V\u00edce informac\u00ed na www.spolecne-k-usmevu.cz<\/a>.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

S rakovinou se Lucie setkala v 10 letech, kdy j\u00ed l\u00e9ka\u0159i zjistili malign\u00ed karcinoid jater s metast\u00e1zami. Onkologov\u00e9 ji l\u00e9\u010dili 5 let n\u011bkolikr\u00e1t se ocitla […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21892,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,9],"tags":[],"class_list":["post-30777","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30777"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30777\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21892"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30777"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30777"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}