{"id":30900,"date":"2018-09-24T14:02:25","date_gmt":"2018-09-24T12:02:25","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30900"},"modified":"2018-09-24T14:02:25","modified_gmt":"2018-09-24T12:02:25","slug":"lide-s-epilepsii-bori-myty-vyrazeji-na-triatlon","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30900","title":{"rendered":"Lid\u00e9 s epilepsi\u00ed bo\u0159\u00ed m\u00fdty \u2013 vyr\u00e1\u017eej\u00ed na triatlon"},"content":{"rendered":"

Epilepsie \u2013 diagn\u00f3za, kter\u00e1 \u010dasto bud\u00ed v o\u010d\u00edch ve\u0159ejnosti rozpaky. Podle l\u00e9ka\u0159\u016f jsou v\u0161ak p\u0159edsudky zbyte\u010dn\u00e9, lid\u00e9 s epilepsi\u00ed mohou \u017e\u00edt kvalitn\u00ed \u017eivot, jeho\u017e sou\u010d\u00e1st\u00ed je i sportov\u00e1n\u00ed. To dokazuje aktivita organizace EpiStop, kter\u00e1 u p\u0159\u00edle\u017eitosti N\u00e1rodn\u00edho dne epilepsie po\u0159\u00e1d\u00e1 ji\u017e \u0161estn\u00e1ct\u00fd EPPI vod\u00e1ck\u00fd triatlon.<\/strong>
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\n\u201eL\u00e9ka\u0159i d\u0159\u00edve lidem s epilepsi\u00ed zakazovali sportovat. D\u011bti s epilepsi\u00ed nemohly v hodin\u011b t\u011blocviku cvi\u010dit, nem\u011bly p\u0159\u00edle\u017eitost vyrazit na letn\u00ed t\u00e1bor,\u201c \u0159\u00edk\u00e1 l\u00e9ka\u0159ka Centra pro epilepsie FN Motol MUDr. Jana Z\u00e1rubov\u00e1, kter\u00e1 je z\u00e1rove\u0148 p\u0159edsedkyn\u00ed spolku EpiStop, a dopl\u0148uje: \u201eNyn\u00ed u\u017e ale v\u00edme, a prokazuj\u00ed to i odborn\u00e9 studie, \u017ee fyzick\u00e1 aktivita je pro pacienty s epilepsi\u00ed bezpe\u010dn\u00e1, a dokonce zlep\u0161uje pr\u016fb\u011bh onemocn\u011bn\u00ed. \u201c<\/p>\n

Na to, \u017ee pohyb lidem s epilepsi\u00ed prosp\u00edv\u00e1, mysl\u00ed i pacientsk\u00e9 organizace, kter\u00e9 p\u0159ipravuj\u00ed osv\u011btov\u00e9 a sportovn\u00ed akce pro nemocn\u00e9. Jednou z nich je pr\u00e1v\u011b tradi\u010dn\u00ed EPPI vod\u00e1ck\u00fd triatlon. Z\u00e1vod je slo\u017een\u00edm discipl\u00edn p\u0159izp\u016fsoben\u00fd tak, aby se ho mohli z\u00fa\u010dastnit i pacienti s epilepsi\u00ed. \u00da\u010dastn\u00edci absolvuj\u00ed t\u0159i discipl\u00edny \u2013 b\u011bh, j\u00edzdu na horsk\u00e9m kole a p\u00e1dlov\u00e1n\u00ed na lodi. Pro d\u011bti je p\u0159ipraven b\u011b\u017eeck\u00fd z\u00e1vod. V r\u00e1mci doprovodn\u00e9ho programu odborn\u00edci z Kliniky d\u011btsk\u00e9 neurologie v Motole uk\u00e1\u017eou, jak zvl\u00e1dnout prvn\u00ed pomoc p\u0159i epileptick\u00e9m z\u00e1chvatu. Akce vypukne 28. z\u00e1\u0159\u00ed ve Vlkovsk\u00e9 p\u00edskovn\u011b u Vesel\u00ed nad Lu\u017enic\u00ed, spolek EpiStop p\u0159isp\u011bje ka\u017ed\u00e9mu pacientovi s epilepsi\u00ed na \u00fa\u010dast 500 K\u010d. V\u00edce informac\u00ed o z\u00e1vodu najdete na www.vodackytriatlon.cz<\/a>.<\/p>\n

Tv\u00e1\u0159\u00ed leto\u0161n\u00edho ro\u010dn\u00edku je herec a moder\u00e1tor Dalibor Gond\u00edk, kter\u00fd s\u00e1m epilepsii m\u00e1 a p\u0159itom n\u00e1ru\u017eiv\u011b sportuje. \u201eDenn\u011b b\u011bh\u00e1m, jezd\u00edm na kole a ob\u010das i plavu. V zim\u011b ly\u017euji a brusl\u00edm. Tan\u010d\u00edm a sk\u00e1\u010du na divadle. Sna\u017e\u00edm se, samoz\u0159ejm\u011b v r\u00e1mci dodr\u017eov\u00e1n\u00ed re\u017eimu a po dohod\u011b s m\u00fdm l\u00e9ka\u0159em, prost\u011b norm\u00e1ln\u011b \u017e\u00edt,\u201c popisuje s \u00fasm\u011bvem a dopl\u0148uje: \u201eA triatlon jako discipl\u00ednu obdivuji a ty, kte\u0159\u00ed ho absolvuj\u00ed s onemocn\u011bn\u00edm, dvojn\u00e1sob.\u201c<\/p>\n

Lid\u00e9 s epilepsi\u00ed se \u010dasto boj\u00ed sportu v\u011bnovat naplno. P\u0159itom se sta\u010d\u00ed poradit s l\u00e9ka\u0159em. Osv\u011btou v t\u00e9to oblasti se zab\u00fdvaj\u00ed i pacientsk\u00e9 organizace. \u201eVyjma rizikov\u00fdch sport\u016f, jako je pot\u00e1p\u011bn\u00ed, para\u0161utismus nebo horolezectv\u00ed, nezakazujeme pacient\u016fm, kte\u0159\u00ed maj\u00ed nemoc d\u00edky l\u00e9\u010db\u011b pod kontrolou, \u017e\u00e1dn\u00e9 pohybov\u00e9 aktivity. U t\u011bch, kde l\u00e9\u010dba nezab\u00edr\u00e1 tak dob\u0159e, je v\u017edy pot\u0159eba individu\u00e1ln\u00ed konzultace s l\u00e9ka\u0159em,\u201c vysv\u011btluje MUDr. Z\u00e1rubov\u00e1. V sou\u010dasn\u00e9 dob\u011b l\u00e9ka\u0159i p\u0159i spr\u00e1vn\u00e9 a v\u010dasn\u00e9 diagnostice a farmakologick\u00e9 l\u00e9\u010db\u011b dostanou nemoc pod kontrolu a\u017e u 70 % pacient\u016f.<\/p>\n

\u201ePacienti, kte\u0159\u00ed se h\u00fdbou, se c\u00edt\u00ed l\u00e9pe. Prosp\u00edv\u00e1 to jejich psychice a jsou sebev\u011bdom\u011bj\u0161\u00ed,\u201c popisuje MUDr. Z\u00e1rubov\u00e1 a dod\u00e1v\u00e1: \u201eJedna odborn\u00e1 studie dokonce uv\u00e1d\u00ed, \u017ee hodina aerobn\u00edho sportu denn\u011b nahrad\u00ed jedno antidepresivum.\u201c<\/p>\n

Sv\u00e9 o tom v\u00ed Dalibor Gond\u00edk: \u201ePopularizace sportu je velmi d\u016fle\u017eit\u00e1 pro v\u0161echny lidi nap\u0159\u00ed\u010d generacemi. A u sportu s hendikepem je to snad je\u0161t\u011b d\u016fle\u017eit\u011bj\u0161\u00ed. Net\u00fdk\u00e1 se to jenom epilepsie. O v\u0161em, co se n\u00e1m d\u011bje, se mus\u00ed mluvit. Nejhor\u0161\u00ed je uzav\u0159\u00edt se se svou nemoc\u00ed do sebe, b\u00e1t se okol\u00ed, styd\u011bt se za ni a ned\u011blat nic,\u201c \u0159\u00edk\u00e1 a dod\u00e1v\u00e1: \u201eProto jsou akce jako EPPI triatlon velmi d\u016fle\u017eit\u00e9 a j\u00e1 si moc v\u00e1\u017e\u00edm toho, \u017ee jej mohu letos podpo\u0159it.\u201c<\/p>\n

V\u00fdt\u011b\u017eek ze startovn\u00e9ho poputuje na pomoc 4,5let\u00e9mu M\u00ed\u0161ovi, chlapci s epilepsi\u00ed, kter\u00fd pot\u0159ebuje operaci mozku. P\u0159isp\u011bt jeho rodin\u011b m\u016f\u017ee ka\u017ed\u00fd, a to na \u00fa\u010det ob\u010dansk\u00e9ho sdru\u017een\u00ed EpiStop \u010d\u00edslo 111165369\/0800 a do zpr\u00e1vy pro p\u0159\u00edjemce napsat M\u00ed\u0161a.<\/p>\n

Epilepsie pat\u0159\u00ed mezi nej\u010dast\u011bj\u0161\u00ed mozkov\u00e1 onemocn\u011bn\u00ed a u d\u011bt\u00ed je nej\u010dast\u011bj\u0161\u00ed chronickou chorobou v\u016fbec. T\u0159i \u010dtvrtiny nemocn\u00fdch pro\u017eily prvn\u00ed z\u00e1chvat p\u0159ed dosa\u017een\u00edm dvaceti let. Dal\u0161\u00ed vrchol, kdy se nemoc objev\u00ed, je hranice t\u0159\u00ed let a tak\u00e9 kolem puberty. Chronickou epilepsii v aktivn\u00ed f\u00e1zi m\u00e1 v \u010cesk\u00e9 republice p\u0159ibli\u017en\u011b 80 000 lid\u00ed. Dal\u0161\u00edch nejm\u00e9n\u011b 160 000 osob se n\u011bkdy pro epilepsii l\u00e9\u010dilo nebo st\u00e1le l\u00e9\u010d\u00ed, ale jsou v\u00edce ne\u017e 5 let v klidov\u00e9 f\u00e1zi.<\/p>\n

O EpiStop<\/p>\n

Zapsan\u00fd spolek EpiStop vytv\u00e1\u0159\u00ed platformu pro setk\u00e1v\u00e1n\u00ed, spolupr\u00e1ci a aktivn\u00ed \u010dinnost v\u0161ech skupin a osob, kter\u00e9 maj\u00ed vztah k lidem s epilepsi\u00ed, tedy pacient\u016f, z\u00e1stupc\u016f pacientsk\u00fdch organizac\u00ed, zdravotn\u00edk\u016f, odborn\u00fdch spole\u010dnost\u00ed, soci\u00e1ln\u00edch poradc\u016f, \u00fa\u0159edn\u00edk\u016f st\u00e1tn\u00ed spr\u00e1vy \u010di z\u00e1stupc\u016f m\u00e9di\u00ed. Jejich c\u00edlem je zlep\u0161it postaven\u00ed lid\u00ed s epilepsi\u00ed ve spole\u010dnosti. Na webu www.epistop.cz<\/a> je \u0159ada voln\u011b dostupn\u00fdch eduka\u010dn\u00edch text\u016f, z\u00e1sady spr\u00e1vn\u00e9 prvn\u00ed pomoci a informace pro lidi s epilepsi\u00ed i jejich bl\u00edzk\u00e9.<\/p>\n

Aktivity k N\u00e1rodn\u00edmu dni epilepsie<\/p>\n

V z\u00e1\u0159\u00ed, v souvislosti s N\u00e1rodn\u00edm dnem epilepsie, prob\u00edh\u00e1 n\u011bkolik sportovn\u00edch a spole\u010densk\u00fdch aktivit vhodn\u00fdch pro pacienty s epilepsi\u00ed. Prvn\u00ed je b\u011bh pro epilepsii Epi\u00a9Run, kter\u00fd se v leto\u0161n\u00edm roce konal 12. 9. (https:\/\/www.epistop.cz\/archiv\/4-pro-sponzory\/405-epi-c-run-2018<\/a>). N\u00e1sleduje EPPI vod\u00e1ck\u00fd triatlon ve Vesel\u00ed nad Lu\u017enic\u00ed 28. 9. (www.vodackytriatlon.cz<\/a>). Koncem z\u00e1\u0159\u00ed bude ukon\u010dena v\u00fdtvarn\u00e1 sout\u011b\u017e pro d\u011bti s epilepsi\u00ed \u201eL\u00edb\u00ed se ti, mami?\u201c (www.libisetimami.cz<\/a>). V\u0161echna d\u00edla organiz\u00e1to\u0159i vystav\u00ed v t\u00fddnu od 27. 9. do 7. 10. v prostor\u00e1ch Europarku v pra\u017esk\u00fdch \u0160t\u011brboholech.<\/p>\n

O epilepsii<\/p>\n

Epilepsie je neurologick\u00e9 onemocn\u011bn\u00ed charakterizovan\u00e9 opakovan\u00fdm v\u00fdskytem neprovokovan\u00fdch epileptick\u00fdch z\u00e1chvat\u016f. Pat\u0159\u00ed mezi nej\u010dast\u011bj\u0161\u00ed mozkov\u00e1 onemocn\u011bn\u00ed a u d\u011bt\u00ed je nej\u010dast\u011bj\u0161\u00ed chronickou chorobou mozku v\u016fbec. Ke stanoven\u00ed diagn\u00f3zy epilepsie zpravidla doch\u00e1z\u00ed p\u0159i v\u00fdskytu dvou a v\u00edce epileptick\u00fdch z\u00e1chvat\u016f, v\u00fdjime\u010dn\u011b ji\u017e po jednom takov\u00e9m z\u00e1chvatu. Typ\u016f epilepsie je nyn\u00ed ur\u010deno ji\u017e v\u00edce ne\u017e 40. Hlavn\u00edm projevem jsou epileptick\u00e9 z\u00e1chvaty, kter\u00e9 mohou m\u00edt r\u016fznou podobu. Mohou se projevovat nap\u0159. pouh\u00fdm zahled\u011bn\u00edm, brn\u011bn\u00edm, v\u00fdpadkem pam\u011bti nebo pak zn\u00e1m\u00fdmi k\u0159e\u010demi kon\u010detin se ztr\u00e1tou v\u011bdom\u00ed. Vyskytuj\u00ed se jak v pr\u016fb\u011bhu dne, tak v noci b\u011bhem sp\u00e1nku. P\u0159esto\u017ee se epilepsie m\u016f\u017ee objevit v kter\u00e9mkoliv v\u011bku, jsou \u017eivotn\u00ed obdob\u00ed, ve kter\u00fdch je novy\u0301 v\u00fdskyt epileptick\u00fdch z\u00e1chvat\u016f \u010dast\u011bj\u0161\u00ed ne\u017e v jin\u00fdch \u2013 hlavn\u00edmi vrcholy jsou prvn\u00ed rok \u017eivota a obdob\u00ed st\u00e1\u0159\u00ed. P\u0159\u00ed\u010diny vzniku nemoci se s \u010dasem m\u011bn\u00ed, d\u0159\u00edve mezi nimi dominoval komplikovan\u00fd porod \u010di infek\u010dn\u00ed onemocn\u011bn\u00ed, nyn\u00ed nab\u00fdvaj\u00ed na s\u00edle \u00farazy z adrenalinov\u00fdch sport\u016f \u010di nehod. Ve sv\u011bt\u011b trp\u00ed epilepsi\u00ed v\u00edce ne\u017e 50 milion\u016f lid\u00ed, v Evrop\u011b p\u0159es 6 milion\u016f lid\u00ed, z toho p\u0159ibli\u017en\u011b 2 miliony d\u011bt\u00ed.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

Epilepsie \u2013 diagn\u00f3za, kter\u00e1 \u010dasto bud\u00ed v o\u010d\u00edch ve\u0159ejnosti rozpaky. Podle l\u00e9ka\u0159\u016f jsou v\u0161ak p\u0159edsudky zbyte\u010dn\u00e9, lid\u00e9 s epilepsi\u00ed mohou \u017e\u00edt kvalitn\u00ed \u017eivot, jeho\u017e sou\u010d\u00e1st\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":30904,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-30900","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30900","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30900"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30900\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/30904"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30900"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30900"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30900"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}