{"id":31475,"date":"2019-04-03T16:18:17","date_gmt":"2019-04-03T14:18:17","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=31475"},"modified":"2019-04-03T16:18:17","modified_gmt":"2019-04-03T14:18:17","slug":"mama-autisty-mezi-ostatni-deti-nemuzeme","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=31475","title":{"rendered":"M\u00e1ma autisty: Mezi ostatn\u00ed d\u011bti nem\u016f\u017eeme"},"content":{"rendered":"

Na \u017eivot se slo\u017eitou poruchou upozor\u0148uje kampa\u0148 Autismus…? Respekt!<\/strong> <\/p>\n

Vset\u00edn \u2013 Jeden\u00e1ctilet\u00fd Luk\u00e1\u0161 je autista. Zpo\u010d\u00e1tku mu l\u00e9ka\u0159i diagnostikovali t\u011b\u017ekou ment\u00e1ln\u00ed poruchu. Te\u010f u\u017e dos\u00e1hl st\u0159edn\u00ed. D\u00edky organizac\u00edm, ve kter\u00fdch tr\u00e1v\u00ed \u010das, a tak\u00e9 d\u00edky \u0161kole, kterou nav\u0161t\u011bvuje.<\/p>\n

D\u011bl\u00e1 velk\u00e9 pokroky. Rodina ale krom\u011b z\u00e1ludn\u00e9 nemoci bojuje tak\u00e9 s okol\u00edm. Ne v\u0161echny reakce lid\u00ed na chov\u00e1n\u00ed nemocn\u00e9ho klu\u010diny jsou zdvo\u0159il\u00e9.<\/p>\n

Autismus se za\u010dal u Luk\u00e1\u0161e, kter\u00fd s rodinou bydl\u00ed v Jabl\u016fnce, projevovat ve \u010dty\u0159ech letech. „Nebral hra\u010dky, nemluvil, v\u016fbec s n\u00e1mi nekomunikoval. O nic se nezaj\u00edmal, byl zak\u0159iknut\u00fd a b\u00e1l se ostatn\u00edch lid\u00ed i okol\u00ed. Ani jsme nemohli vych\u00e1zet ven,“ popisuje nelehk\u00e9 za\u010d\u00e1tky maminka Bohdana \u0160\u0165astn\u00e1.<\/p>\n

Te\u010f je Luk\u00e1\u0161ovi jeden\u00e1ct. V dev\u00edti za\u010dal \u017evatlat, v deseti opakovat. „Te\u010f u\u017e rozj\u00ed\u017ed\u00edme komunikaci. Nikdy bychom toho nedos\u00e1hli neb\u00fdt organizac\u00ed, kter\u00e9 pom\u00e1haj\u00ed, a \u0161koly. Z Auxilia jsme \u0161li do \u0161koly v Turkmensk\u00e9. Tam jsme za\u010dali se socializac\u00ed, zkou\u0161eli jsme hlazen\u00ed, \u010des\u00e1n\u00ed, tyto v\u011bci jsou pro n\u00e1s bolestiv\u00e9, Luk\u00e1\u0161ek nesn\u00e1\u0161\u00ed ani st\u0159\u00edh\u00e1n\u00ed,“ p\u0159ipom\u00edn\u00e1 starostliv\u00e1 matka.<\/p>\n

Z ka\u0161i\u010dkov\u00e9 stravy u\u017e dok\u00e1\u017ee mal\u00fd pacient spo\u0159\u00e1dat j\u00eddlo nakr\u00e1jen\u00e9 na kosti\u010dky. „Moc jsme pokro\u010dili. Te\u010f sm\u011b\u0159ujeme, aby si \u0159ekl, \u017ee chce j\u00edt na z\u00e1chod. To, co d\u011bl\u00e1me ve \u0161kole, rozv\u00edj\u00edme v Auxiliu, tak aby Luk\u00e1\u0161ek nevypadl z re\u017eimu. Jinak bychom museli za\u010d\u00edt od za\u010d\u00e1tku,“ vysv\u011btlila \u0160\u0165astn\u00e1 a doplnila, \u017ee doma m\u00e1 syn re\u017eim jin\u00fd, s odli\u0161n\u00fdm \u0159\u00e1dem. „Nem\u016f\u017eeme moc mezi ostatn\u00ed d\u011bti. Zasekl by se a ode\u0161el by. M\u00e1me p\u0159ed domem vlastn\u00ed houpa\u010dku, skluzavku a trampol\u00ednu, na kter\u00e9 je s\u00e1m. P\u0159estali jsme jezdit v autobuse,“ popsala \u00faskal\u00ed autismu a posteskla si nad reakc\u00ed n\u011bkter\u00fdch lid\u00ed ve spole\u010dnosti.<\/p>\n

Maminka Luk\u00e1\u0161e si uv\u011bdomuje, \u017ee okol\u00ed nem\u016f\u017ee v\u011bd\u011bt o jejich probl\u00e9mech, ale vy\u010d\u00edtav\u00e9 pohledy a mnohdy nad\u00e1vky nejsou p\u0159\u00edjemn\u00e9.<\/p>\n

„Jeden p\u00e1n v autobusu se zakuckal a syn to za\u010dal opakovat. Jen\u017ee to opakoval je\u0161t\u011b p\u016fl hodiny. Ten \u010dlov\u011bk se ot\u00e1\u010del s v\u00fdrazem \u2013 jak si to dovolujeme? Dal\u0161\u00ed pan\u00ed Luk\u00e1\u0161 sundal \u010depici, proto\u017ee p\u0159es ni nevid\u011bl. Za\u010dala k\u0159i\u010det. Mus\u00edte b\u00fdt po\u0159\u00e1d p\u0159ipraven\u00ed se omlouvat a v r\u00e1mci slu\u0161nosti br\u00e1nit,“ posteskla si Bohdana \u0160\u0165astn\u00e1.<\/p>\n

Na Z\u00e1kladn\u00ed \u0161kole, Mate\u0159sk\u00e9 \u0161kole a Praktick\u00e9 \u0161kole Turkmensk\u00e1 ve Vset\u00edn\u011b je asi t\u0159icet procent d\u011bt\u00ed autist\u016f. Mezi nimi i Luk\u00e1\u0161. „To je premiant \u0161koly. Moc pokro\u010dil. Z\u00e1kladem je ale rodina, pokud \u00fazce spolupracujeme a vz\u00e1jemn\u011b si \u0159\u00edk\u00e1me na rovinu i citliv\u00e9 v\u011bci, tak to funguje,“ \u0159\u00edk\u00e1 z\u00e1stupkyn\u011b \u0159editele \u0161koly Vlasta Kov\u00e1\u0159ov\u00e1.<\/p>\n

D\u011bti pot\u0159ebuj\u00ed sv\u016fj \u0159\u00e1d, pravidla a d\u016fslednost. Speci\u00e1ln\u00ed u\u010ditel\u00e9 na vzd\u011bl\u00e1v\u00e1n\u00ed autist\u016f s nimi komunikuj\u00ed pomoc\u00ed obr\u00e1zk\u016f, fotek, piktogram\u016f i model\u016f. „Nejt\u011b\u017e\u0161\u00ed je to, \u017ee d\u011bti jsou ka\u017ed\u00e9 \u00fapln\u011b jin\u00e9 a ke ka\u017ed\u00e9mu mus\u00edme p\u0159istupovat individu\u00e1ln\u011b.<\/p>\n

D\u016fle\u017eit\u00fd je sn\u00ed\u017een\u00fd po\u010det \u017e\u00e1k\u016f a nezbytn\u00e1 nutnost pedagoga a a\u017e dvou asistent\u016f. Spole\u010dn\u011b vym\u00fd\u0161l\u00ed \u00fakoly, vyr\u00e1b\u00ed pom\u016fcky, to v\u0161e ve spolupr\u00e1ci s rodi\u010di,“ vysv\u011btluje z\u00e1stupkyn\u011b.<\/p>\n

Nezbytn\u00e1 je d\u016fslednost.<\/p>\n

„Nikdy nic ned\u011bl\u00e1me za d\u00edt\u011b, v\u017edy s pomoc\u00ed jeho rukou, chytneme je a pom\u016f\u017eeme jim. Vy\u017eaduje to hodn\u011b trp\u011blivosti a \u010dasu. \u0158\u00edd\u00edme se heslem \u2013 Kde je v\u016fle, tam je cesta. Nejd\u016fle\u017eit\u011bj\u0161\u00ed je pro n\u00e1s \u0161\u0165astn\u00e9 d\u00edt\u011b ve \u0161kole,“ dod\u00e1v\u00e1 Vlasta Kov\u00e1\u0159ov\u00e1.<\/p>\n

Na v\u010derej\u0161\u00edm setk\u00e1n\u00ed lid\u00ed, kter\u00fdch se autismus t\u00fdk\u00e1 \u2013 nemocn\u00fdch, jejich rodin, u\u010ditel\u016f i organizac\u00ed, kter\u00e9 se o n\u011b staraj\u00ed, upozornila p\u0159ed m\u011bstsk\u00fdm \u00fa\u0159adem \u0159editelka Auxilia Bo\u017eena Mikul\u00edkov\u00e1 na tuto skupinu lid\u00ed, jej\u00ed velikost, mo\u017enosti podpory i pozitivn\u00ed zku\u0161enosti se sd\u00edlen\u00edm spole\u010dn\u00e9ho sv\u011bta.<\/p>\n

Auxilium prov\u00e1z\u00ed d\u011bti s handicapem a jejich rodiny u\u017e v\u00edce ne\u017e dvacet let. „Kdy\u017e jsme za\u010d\u00ednali, byly mezi p\u011bta\u010dty\u0159iceti rodinami dv\u011b, kter\u00e9 pe\u010dovaly o d\u00edt\u011b s autismem. P\u0159ed p\u011bti lety jsme prov\u00e1zeli p\u0159es sto dvacet rodin a polovina z nich pe\u010dovala o autisty. K dne\u0161n\u00edmu dni je po\u010det rodin zhruba stejn\u00fd, ale d\u011bt\u00ed s autismem je t\u0159i \u010dtvrtiny. Co bude za p\u011bt let?“ ptala se \u0159editelka organizace, kter\u00e1 podporuje rodiny pe\u010duj\u00edc\u00ed o osoby s nejt\u011b\u017e\u0161\u00edm stupn\u011bm zdravotn\u00edho posti\u017een\u00ed.<\/p>\n

Jejich pr\u00e1ce p\u0159in\u00e1\u0161\u00ed ovoce. „Kdysi dok\u00e1zalo jen deset procent autist\u016f komunikovat s okol\u00edm a devades\u00e1t ne. Dnes je to opa\u010dn\u011b. To vn\u00edm\u00e1m jako velkou nad\u011bji. Pokud se vylad\u00edme navz\u00e1jem, objev\u00edme schopnosti lid\u00ed s autismem a nav\u00e1\u017eeme sv\u00e9 dovednosti na jejich, m\u016f\u017ee n\u00e1m b\u00fdt spolu velmi dob\u0159e,“ uzav\u0159ela \u0159editelka Auxilia Bo\u017eena Mikul\u00edkov\u00e1.<\/p>\n

„Statistiky ukazuj\u00ed, \u017ee ka\u017ed\u00fd osmdes\u00e1t\u00fd \u010dlov\u011bk je autista. Na Vset\u00ednsku jich \u017eije v\u00edce ne\u017e sto. Podporu d\u011btem s autismem a jejich rodin\u00e1m vyjad\u0159ujeme p\u0159ipojen\u00edm ke kampani \u010cesko sv\u00edt\u00ed mod\u0159e nasv\u00edcen\u00edm vset\u00ednsk\u00e9ho kostela. Modr\u00e1 je barva komunikace, co\u017e je jedna z oblast\u00ed, s n\u00ed\u017e maj\u00ed autist\u00e9 nejv\u011bt\u0161\u00ed pot\u00ed\u017e.“ Simona Hlav\u00e1\u010dov\u00e1, m\u00edstostarostka Vset\u00edna<\/p>\n

——————<\/p>\n

Autismus nen\u00ed volba, porozum\u011bn\u00ed ano<\/p>\n

– Jednou z aktivit, kter\u00e1 p\u0159ibli\u017euje autismus, je v\u00fdstava (Ne)rozum\u00edm ti. Na vset\u00ednsk\u00e9m z\u00e1mku je k vid\u011bn\u00ed do 23. \u010dervna (viz n\u00ed\u017ee)<\/p>\n

– Od 28. b\u0159ezna do 7. dubna se m\u011bsto Vset\u00edn p\u0159ipojuje k osv\u011btov\u00e9 kampani \u010cesko sv\u00edt\u00ed mod\u0159e, a to nasv\u00edcen\u00edm vset\u00ednsk\u00e9ho kostela<\/p>\n

– Ke Dni porozum\u011bn\u00ed autismu se ji\u017e tradi\u010dn\u011b hl\u00e1s\u00ed i Vset\u00ednsk\u00e1 nemocnice, kde jsou po cel\u00fd duben k dispozici informa\u010dn\u00ed materi\u00e1ly vztahuj\u00edc\u00ed se k \u017eivotu s autismem<\/p>\n

MARTIN MRLINA
\nVala\u0161sk\u00fd den\u00edk
\nhttps:\/\/valassky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Na \u017eivot se slo\u017eitou poruchou upozor\u0148uje kampa\u0148 Autismus…? Respekt!<\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-31475","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31475","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=31475"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31475\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=31475"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=31475"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=31475"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}