{"id":31658,"date":"2019-05-20T14:55:49","date_gmt":"2019-05-20T12:55:49","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=31658"},"modified":"2019-05-20T14:55:49","modified_gmt":"2019-05-20T12:55:49","slug":"uleky-a-nepochopeni-na-problemy-s-postizenim-vzhledu-upozornuje-nova-kampan","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=31658","title":{"rendered":"\u00daleky a nepochopen\u00ed. Na probl\u00e9my s posti\u017een\u00edm vzhledu upozor\u0148uje nov\u00e1 kampa\u0148"},"content":{"rendered":"

Pohledy stranou, zakr\u00fdv\u00e1n\u00ed o\u010d\u00ed d\u011btem \u010di nepochopen\u00ed. To je \u010dasto smutn\u00e1 realita prov\u00e1zej\u00edc\u00ed \u017eivoty t\u011bch, kdo maj\u00ed genetick\u00e9 \u010di z\u00edskan\u00e9 posti\u017een\u00ed vzhledu. M\u016f\u017ee j\u00edt nap\u0159\u00edklad o velk\u00e1 znam\u00e9nka, pigmentov\u00e9 skvrny, Treacher-Collins syndrom, pop\u00e1leniny, ichty\u00f3zu \u010di jin\u00e1 onemocn\u011bn\u00ed k\u016f\u017ee. A pr\u00e1v\u011b na tuto citlivou problematiku chce upozornit Mezin\u00e1rodn\u00ed t\u00fdden rovnosti tv\u00e1\u0159\u00ed, jeho\u017e ambasadorkou je Tamara Klusov\u00e1.<\/strong> <\/p>\n

Mezin\u00e1rodn\u00ed t\u00fdden rovnosti tv\u00e1\u0159\u00ed prob\u011bhne v \u010cesk\u00e9 republice v\u016fbec poprv\u00e9, a to od 17. do 25. kv\u011btna. Organiz\u00e1torem je pobo\u010dn\u00fd spolek Asociace rodi\u010d\u016f a p\u0159\u00e1tel zdravotn\u011b posti\u017een\u00fdch d\u011bt\u00ed v \u010cR Be Treacher Collins (Be TCS).<\/p>\n

Zapoj\u00ed se tak\u00e9 spolek Ichty\u00f3za a organizace pom\u00e1haj\u00edc\u00ed lidem po pop\u00e1leninov\u00fdch \u00farazech. Ambasadorka Be Treacher Collins Tamara Klusov\u00e1 p\u0159edstavuje kr\u00e1tk\u00e9 emotivn\u00ed video, b\u011bhem jeho\u017e nat\u00e1\u010den\u00ed si d\u00edky speci\u00e1ln\u00ed realistick\u00e9 masce pro\u017eila den s „jinou“ tv\u00e1\u0159\u00ed.<\/p>\n

„Kdy\u017e jsem p\u0159em\u00fd\u0161lela, jak moj\u00ed spolupr\u00e1ci pojmout, zrodil se mi v hlav\u011b n\u00e1pad, \u017ee chci pro\u017e\u00edt den v jin\u00e9 tv\u00e1\u0159i, a bezmy\u0161lenkovit\u011b jsem se do toho vrhla a netu\u0161ila jsem, co za pro\u017eitek p\u0159ijde. P\u0159ed nat\u00e1\u010den\u00edm jsem vyrazila na sraz lid\u00ed s Treacher-Collins syndromem, kde jsem vyposlechla se slzami v o\u010d\u00edch jejich \u017eivotn\u00ed p\u0159\u00edb\u011bhy a z nich tak sestavila s Michalem Bud\u00ednsk\u00fdm sc\u00e9n\u00e1\u0159 tohoto minutov\u00e9ho spotu. Mezi sc\u00e9nami jsem sama v masce proch\u00e1zela m\u011bstem a za\u017e\u00edvala na vlastn\u00ed k\u016f\u017ei, co v\u0161ichni lid\u00e9 se znetvo\u0159en\u00edm za\u017e\u00edvaj\u00ed ka\u017ed\u00fd, ka\u017edi\u010dk\u00fd den,“ \u0159\u00edk\u00e1 Tamara Klusov\u00e1.<\/p>\n

„Moc si p\u0159eju, aby tohle video vyvolalo v ka\u017ed\u00e9m z n\u00e1s ot\u00e1zku, jak moc laskav\u00ed jsme my sami za sebe. Jak se v takov\u00fdch situac\u00edch chov\u00e1me a co bychom m\u011bli zlep\u0161it k tomu, aby se t\u011bmhle lidem \u017eilo co mo\u017en\u00e1 nejleh\u010deji. Jejich znetvo\u0159en\u00ed na povrchu toti\u017e odkr\u00fdv\u00e1 na\u0161e znetvo\u0159en\u00e9 du\u0161e,“ dod\u00e1v\u00e1.<\/p>\n

Kampa\u0148 ve 20 zem\u00edch<\/p>\n

Mezin\u00e1rodn\u00ed kampa\u0148 pob\u011b\u017e\u00ed zhruba ve dvaceti zem\u00edch, nap\u0159\u00edklad v Belgii, \u0160v\u00fdcarsku, Velk\u00e9 Brit\u00e1nii, Taiwanu \u010di Jihoafrick\u00e9 republice. Spole\u010dn\u00fdm z\u00e1m\u011brem n\u00e1rodn\u00edch iniciativ jsou v prvn\u00edm roce zejm\u00e9na propagace Mezin\u00e1rodn\u00edho t\u00fddne rovnosti tv\u00e1\u0159\u00ed jako takov\u00e9ho a usilov\u00e1n\u00ed o vytvo\u0159en\u00ed General Media Standardu \u2013 „kodexu“ pro m\u00e9dia, kter\u00fd by definoval, jak mluvit o lidech se znetvo\u0159en\u00edm.<\/p>\n

Aliance usiluje tak\u00e9 o nav\u00e1z\u00e1n\u00ed spolupr\u00e1ce s platformami Facebook, Instagram a Twitter a ujednocen\u00ed postupu p\u0159i nahl\u00e1\u0161en\u00ed \u0161ikany \u010di obt\u011b\u017eov\u00e1n\u00ed na n\u011bkter\u00e9 z t\u011bchto s\u00edt\u00ed.<\/p>\n

Ke kampani se m\u016f\u017ee p\u0159ipojit kdokoliv, koho se tato problematika t\u00fdk\u00e1, tedy trp\u00ed onemocn\u011bn\u00edm ovliv\u0148uj\u00edc\u00edm vzhled. A v\u00edt\u00e1ni jsou tak\u00e9 ti, kte\u0159\u00ed se cht\u011bj\u00ed dozv\u011bd\u011bt v\u00edce o pocitech a zku\u0161enostech lid\u00ed, jen\u017e se zm\u00edn\u011bn\u00fdmi onemocn\u011bn\u00edmi pro\u017e\u00edvaj\u00ed ka\u017ed\u00fd den.<\/p>\n

Video a odkazy naleznete ZDE<\/a><\/p>\n

https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Pohledy stranou, zakr\u00fdv\u00e1n\u00ed o\u010d\u00ed d\u011btem \u010di nepochopen\u00ed. To je \u010dasto smutn\u00e1 realita prov\u00e1zej\u00edc\u00ed \u017eivoty t\u011bch, kdo maj\u00ed genetick\u00e9 \u010di z\u00edskan\u00e9 posti\u017een\u00ed vzhledu. M\u016f\u017ee j\u00edt nap\u0159\u00edklad […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-31658","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31658","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=31658"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31658\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=31658"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=31658"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=31658"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}