{"id":31952,"date":"2019-07-15T11:10:16","date_gmt":"2019-07-15T09:10:16","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=31952"},"modified":"2019-07-15T11:10:16","modified_gmt":"2019-07-15T09:10:16","slug":"optimismus-je-pri-lecbe-dulezity-rika-sef-rosky","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=31952","title":{"rendered":"Optimismus je p\u0159i l\u00e9\u010db\u011b d\u016fle\u017eit\u00fd, \u0159\u00edk\u00e1 \u0161\u00e9f Rosky"},"content":{"rendered":"

Organizace Roska Teplice, kter\u00e1 sdru\u017euje lidi s roztrou\u0161enou skler\u00f3zou (RS), letos slav\u00ed 25 let sv\u00e9ho fungov\u00e1n\u00ed. V jej\u00edm \u010dele je u\u017e patn\u00e1ct let Vladim\u00edr Fr\u00fchauf.<\/strong> <\/p>\n

„Jsem u\u017e trochu na odst\u0159el, ale st\u00e1le m\u011b to bav\u00ed,“ \u0159\u00edk\u00e1 s \u00fasm\u011bvem \u0161\u00e9f region\u00e1ln\u00ed Rosky. Fr\u00fchauf bojuje s „ereskou“ u\u017e 34 let. Stejnou nemoc\u00ed trp\u00ed v cel\u00e9m \u00dasteck\u00e9m kraji p\u0159es 1 600 lid\u00ed.<\/p>\n

Mezi kraji mu v t\u00e9to statistice pat\u0159\u00ed \u010dtvrt\u00e1 p\u0159\u00ed\u010dka. D\u00edky modern\u00ed l\u00e9\u010db\u011b se nemoc da\u0159\u00ed zpomalit, ale ne zcela vyl\u00e9\u010dit. Roztrou\u0161en\u00e1 skler\u00f3za je nej\u010dast\u011bj\u0161\u00ed neurologick\u00e9 onemocn\u011bn\u00ed vedouc\u00ed k trval\u00e9 invalidit\u011b. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (EpsteinBarrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n

– Kdy v\u00e1m diagnostikovali roztrou\u0161enou skler\u00f3zu?<\/p>\n

Ve 22 letech na vysok\u00e9 \u0161kole. Musel jsem p\u0159estat hr\u00e1t hokej a omezit dal\u0161\u00ed v\u011bci. Nebylo to nic p\u0159\u00edjemn\u00e9ho, ale co nad\u011bl\u00e1te. Je to \u017eivot. Mus\u00edte tu nemoc p\u0159ijmout za partnera, ne ji br\u00e1t jako nep\u0159\u00edtele.<\/p>\n

– Roska sdru\u017euje lidi s RS. Kter\u00e9 slu\u017eby jim va\u0161e organizace nab\u00edz\u00ed?<\/p>\n

Jsou to r\u016fzn\u00e9 rekondice, hipoterapie, rehabilita\u010dn\u00ed cvi\u010den\u00ed, plav\u00e1n\u00ed \u010di odborn\u00e9 p\u0159edn\u00e1\u0161ky. N\u011bkter\u00e9 akce pouze zast\u0159e\u0161ujeme, n\u011bkter\u00e9 p\u0159\u00edmo organizujeme. Velmi obl\u00edben\u00e9 jsou rekondice.<\/p>\n

– Kam jezd\u00edte nejrad\u011bji?<\/p>\n

U\u017e jsme star\u0161\u00ed a hlavn\u011b \u0159ada z n\u00e1s je na voz\u00ed\u010dku, tak\u017ee mus\u00edme vyb\u00edrat bezbari\u00e9rov\u00e9 ubytov\u00e1n\u00ed. Ned\u00e1vno jsme byli o v\u00edkendu v \u00da\u0161t\u011bku v hotelu Racek. Jezd\u00edme tam 12 let a je to tam rok od roku lep\u0161\u00ed. Majitel dokonce nechal ud\u011blat plo\u0161inu na schodi\u0161ti, tak\u017ee se voz\u00ed\u010dk\u00e1\u0159i dostanou bez v\u011bt\u0161\u00edch probl\u00e9m\u016f do pokoj\u016f v prvn\u00edm pat\u0159e.<\/p>\n

– Zapojuj\u00ed se do va\u0161ich akc\u00ed i mlad\u00ed „eresk\u00e1\u0159i“?<\/p>\n

S t\u00edm je trochu probl\u00e9m, proto\u017ee oni jsou v\u00fdkonn\u011bj\u0161\u00ed ne\u017e my, tak\u017ee to, co zvl\u00e1dnou na\u0161lapat na kole \u010di nachodit, pro n\u00e1s u\u017e nen\u00ed. Nav\u00edc si nem\u016f\u017eou \u00fapln\u011b dovolit vz\u00edt si t\u00fdden dovolenou v pr\u00e1ci a n\u011bkam s n\u00e1mi vyjet. D\u00edky lep\u0161\u00ed l\u00e9\u010db\u011b si velmi pravd\u011bpodobn\u011b udr\u017e\u00ed dobrou v\u00fdkonnost a\u017e do d\u016fchodu, co\u017e jim samoz\u0159ejm\u011b p\u0159eji.<\/p>\n

– Ned\u00e1vno jste zas\u00e1zeli slune\u010dnice v are\u00e1lu teplick\u00e9 nemocnice na podporu lid\u00ed s RS. Jde o celorepublikovou akci. Minul\u00e9 roky zdobily rostliny miluj\u00edc\u00ed slunce park u hlavn\u00edho teplick\u00e9ho n\u00e1dra\u017e\u00ed. Pro\u010d ta zm\u011bna m\u00edsta?<\/p>\n

Par\u010d\u00edk u n\u00e1dra\u017e\u00ed je moc exponovan\u00fd a slune\u010dnice byly l\u00e1kadlem pro vandaly. Te\u010f rostou p\u0159\u00edmo pod okny pan\u00ed prim\u00e1\u0159ky neurologick\u00e9ho odd\u011blen\u00ed teplick\u00e9 nemocnice Marty Vachov\u00e9. V\u011b\u0159\u00edm, \u017ee si na n\u011b nikdo nedovol\u00ed a \u017ee tam budou d\u011blat radost v\u0161em, kte\u0159\u00ed p\u016fjdou okolo.<\/p>\n

– A pro\u010d se vysazuj\u00ed pr\u00e1v\u011b slune\u010dnice?<\/p>\n

Optimistick\u00fd kv\u011bt slune\u010dnice, kter\u00e1 od r\u00e1na ot\u00e1\u010d\u00ed hlavu za sluncem, vyjad\u0159uje nad\u011bji pacient\u016f s RS. Dobr\u00e1 psychika je p\u0159i l\u00e9\u010db\u011b st\u011b\u017eejn\u00ed.<\/p>\n

————–<\/p>\n

Co je roztrou\u0161en\u00e1 skler\u00f3za?<\/p>\n

Roztrou\u0161en\u00e1 skler\u00f3za mozkom\u00ed\u0161n\u00ed je chronick\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu \u2013 mozku a m\u00edchy. Onemocn\u011bn\u00ed se m\u016f\u017ee v z\u00e1vislosti na m\u00edst\u011b posti\u017een\u00ed nervov\u00e9 tk\u00e1n\u011b projevovat nejr\u016fzn\u011bj\u0161\u00edmi p\u0159\u00edznaky. P\u0159\u00edznaky onemocn\u011bn\u00ed mohou b\u00fdt nap\u0159.: zaml\u017een\u00e9 vid\u011bn\u00ed, ztr\u00e1ta rovnov\u00e1hy, \u0161patn\u00e1 koordinace, nez\u0159eteln\u00e1 \u0159e\u010d, sn\u00ed\u017een\u00e1 citlivost, t\u0159es, svalov\u00e1 slabost a k\u0159e\u010de, obt\u00ed\u017ee s mo\u010den\u00edm, st\u0159evn\u00ed probl\u00e9my, extr\u00e9mn\u00ed \u00fanava, probl\u00e9my s koncentrac\u00ed a pam\u011bt\u00ed. P\u0159\u00edznaky mohou b\u00fdt kr\u00e1tkodob\u00e9 nebo trval\u00e9, v z\u00e1vislosti na jedinci a na st\u00e1diu nemoci. P\u0159\u00edznaky nelze p\u0159edv\u00eddat, onemocn\u011bn\u00ed m\u016f\u017ee prob\u00edhat u r\u016fzn\u00fdch pacient\u016f odli\u0161n\u011b.<\/p>\n

MARTIN KO\u0160\u0164\u00c1L
\nLitom\u011b\u0159ick\u00fd den\u00edk
\nhttp:\/\/www.litomericky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Organizace Roska Teplice, kter\u00e1 sdru\u017euje lidi s roztrou\u0161enou skler\u00f3zou (RS), letos slav\u00ed 25 let sv\u00e9ho fungov\u00e1n\u00ed. V jej\u00edm \u010dele je u\u017e patn\u00e1ct let Vladim\u00edr Fr\u00fchauf.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-31952","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31952","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=31952"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/31952\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=31952"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=31952"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=31952"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}