{"id":32192,"date":"2019-09-10T15:46:33","date_gmt":"2019-09-10T13:46:33","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=32192"},"modified":"2019-09-10T17:02:41","modified_gmt":"2019-09-10T15:02:41","slug":"smrtelne-nemocnym-plicni-fibrozou-ulevi-vcasna-lecba-k-te-se-ale-dostavaji-pozde","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=32192","title":{"rendered":"Smrteln\u011b nemocn\u00fdm plicn\u00ed fibr\u00f3zou ulev\u00ed v\u010dasn\u00e1 l\u00e9\u010dba \u2013 k t\u00e9 se ale dost\u00e1vaj\u00ed pozd\u011b"},"content":{"rendered":"<p><strong>Smrteln\u00fdm onemocn\u011bn\u00edm plic, p\u0159i kter\u00fdm se pl\u00edce postupn\u011b jizv\u00ed a \u010dlov\u011bk se st\u00e1le h\u016f\u0159e nadechuje, trp\u00ed v\u00a0\u010cesku asi 2 000 lid\u00ed. V\u00edce ne\u017e \u010dtvrtin\u011b z\u00a0nich se ale nedost\u00e1v\u00e1 spr\u00e1vn\u00e9 p\u00e9\u010de.<\/strong><br \/>\n<!--more--><br \/>\nJako ch\u016fze po zmrzl\u00e9m sn\u011bhu nebo rozep\u00edn\u00e1n\u00ed such\u00e9ho zipu \u2013 tak zn\u00ed p\u0159i poslechu plic dech pacient\u016f s\u00a0idiopatickou plicn\u00ed fibr\u00f3zou (IPF).<\/p>\n<p>V\u00edce ne\u017e \u010dtvrtin\u011b pacient\u016f s\u00a0idiopatickou plicn\u00ed fibr\u00f3zou se nedost\u00e1v\u00e1 spr\u00e1vn\u00e9 p\u00e9\u010de. L\u00e9\u010dbu toti\u017e poji\u0161\u0165ovny plat\u00ed pouze t\u011bm, kter\u00fdm nemoc ji\u017e pokro\u010dila a jejich\u017e plicn\u00ed kapacita klesla pod stanovenou hranici. V\u010dasn\u00e1 l\u00e9\u010dba p\u0159itom m\u016f\u017ee nemocn\u00fdm v\u00fdrazn\u011b zkvalitnit \u017eivot a prodlou\u017eit jej o v\u00edce ne\u017e polovinu. Na tento probl\u00e9m upozor\u0148uj\u00ed pneumologov\u00e9 u p\u0159\u00edle\u017eitosti T\u00fddne IPF, kter\u00fd za\u010d\u00edn\u00e1 v\u00a0pond\u011bl\u00ed 16. z\u00e1\u0159\u00ed.<\/p>\n<p>\u201e<strong>Ned\u00e1v\u00e1 to smysl. \u010ctvrtina nemocn\u00fdch nedos\u00e1hne na nejnov\u011bj\u0161\u00ed l\u00e9\u010dbu, proto\u017ee se jejich nemoc se zat\u00edm \u201edostate\u010dn\u011b nezhor\u0161ila\u201c. Tedy jejich plicn\u00ed funkce a kapacita plic nen\u00ed zat\u00edm tak zl\u00e1. Pacienti v\u00ed, co je \u010dek\u00e1, p\u0159esto mus\u00ed \u010dekat, a\u017e se jejich nemoc zhor\u0161\u00ed natolik, aby mohli b\u00fdt vhodn\u011b l\u00e9\u010deni. Je proto nutn\u00e9 zm\u011bnit syst\u00e9m \u00fahrad l\u00e9\u010dby ze strany zdravotn\u00edch poji\u0161\u0165oven, aby se nemocn\u00ed dostali k\u00a0l\u00e9\u010db\u011b d\u0159\u00edve<\/strong>,\u201c \u0159\u00edk\u00e1 <strong>MUDr. Martina \u0160terclov\u00e1<\/strong>, Ph.D., p\u0159edsedkyn\u011b Sekce pro interstici\u00e1ln\u00ed plicn\u00ed procesy \u010cesk\u00e9 pneumologick\u00e9 a ftizeologick\u00e9 spole\u010dnosti, a dod\u00e1v\u00e1: \u201ePacienta s\u00a0IPF sice nejsme schopni zcela uzdravit, ale d\u00edky modern\u00edm l\u00e9k\u016fm um\u00edme zpomalit rozvoj nemoci.\u201c<\/p>\n<p>IPF je onemocn\u011bn\u00ed, kter\u00e9 po\u0161kozuje plicn\u00ed skl\u00edpky. Jemn\u00e1 tk\u00e1\u0148 se m\u011bn\u00ed na hust\u00e9 vazivo a kv\u016fli tomu pl\u00edce tuhnou. Zm\u011bna je nevratn\u00e1. Nemoc se nej\u010dast\u011bji projevuje du\u0161nost\u00ed a ka\u0161lem. Pacienti p\u0159est\u00e1vaj\u00ed sta\u010dit sv\u00fdm vrstevn\u00edk\u016fm a ani v klidu se nemohou nadechnout. Jedn\u00edm z p\u0159\u00edznak\u016f IPF jsou i pali\u010dkovit\u00e9 prsty a nehty ve tvaru hodinov\u00fdch skl\u00ed\u010dek. Bez modern\u00ed l\u00e9\u010dby <strong>nemocn\u00ed do 3 let um\u00edraj\u00ed<\/strong>.<\/p>\n<p>\u201eDa\u0159\u00ed se n\u00e1m, p\u0159edev\u0161\u00edm d\u00edky osv\u011bt\u011b mezi odbornou ve\u0159ejnost\u00ed, zachycovat pacienty i v\u00a0ran\u00e9m stadiu nemoci. Tak\u00e9 \u00fasp\u011b\u0161n\u011b bojujeme s\u00a0nespr\u00e1vnou diagnostikou. Kdy\u017e jsme s\u00a0l\u00e9\u010dbou IPF v\u00a0tuzemsku za\u010d\u00ednali, lid\u00e9 chodili do center pozd\u011b. Te\u010f \u0159e\u0161\u00edme opa\u010dn\u00fd probl\u00e9m, chod\u00ed v\u010das, ale my jim kv\u016fli nastaven\u00e9mu syst\u00e9mu \u00fahrad l\u00e9\u010dby nejsme schopni pomoct,\u201c vysv\u011btluje MUDr. Martina \u0160terclov\u00e1, Ph.D.<\/p>\n<p>Diagnostiku a p\u0159edev\u0161\u00edm komunikaci se specializovan\u00fdmi centry pro diagnostiku a l\u00e9\u010dbu IPF m\u016f\u017ee pneumolog\u016fm a radiolog\u016fm usnadnit i aplikace IPFchecker. Aplikace cel\u00fd proces zjednodu\u0161uje a urychluje. Pneumolog nap\u0159\u00edklad do IPFcheckeru zad\u00e1 \u00fadaje z vy\u0161et\u0159en\u00ed a obratem zjist\u00ed, zda je t\u0159eba pacienta poslat do specializovan\u00e9ho pracovi\u0161t\u011b. Rovn\u011b\u017e si m\u016f\u017ee p\u0159es tuto usnadnit odesl\u00e1n\u00ed nemocn\u00e9ho do n\u011bkter\u00e9ho ze specializovan\u00fdch center, kde nemocn\u00e9 l\u00e9\u010d\u00ed.<\/p>\n<p>D\u016fle\u017eitou roli p\u0159i zachycov\u00e1n\u00ed nov\u00fdch pacient\u016f s\u00a0IPF hraje tak\u00e9 den otev\u0159en\u00fdch dve\u0159\u00ed ve vybran\u00fdch plicn\u00edch ambulanc\u00edch. Lid\u00e9 si mohou bez doporu\u010den\u00ed praktick\u00e9ho l\u00e9ka\u0159e a bez objedn\u00e1n\u00ed nechat prov\u011b\u0159it stav sv\u00fdch plic p\u0159\u00edmo u odborn\u00edk\u016f \u2013 plicn\u00edch l\u00e9ka\u0159\u016f. Letos se dve\u0159e 61 ambulanc\u00ed po cel\u00e9m \u010cesku<strong> otev\u0159ou 18. z\u00e1\u0159\u00ed.<\/strong> Kompletn\u00ed seznam zapojen\u00fdch pracovi\u0161\u0165 je dostupn\u00fd na www.plicnifibroza.cz.<\/p>\n<p>\u201eP\u0159ed 2 lety jsem p\u0159i dnu otev\u0159en\u00fdch dve\u0159\u00ed u jedn\u00e9 z\u00a0pacientek objevila podez\u0159en\u00ed na IPF a odeslala ji do specializovan\u00e9ho centra. Po nasazen\u00ed l\u00e9\u010dby v centru jsem vid\u011bla, jak se kvalita jej\u00edho \u017eivota zlep\u0161uje. Kdy\u017e jsme se setkaly poprv\u00e9, neust\u00e1le ka\u0161lala a musela omezit spoustu aktivit, kter\u00e9 ji d\u0159\u00edve napl\u0148ovaly. Ned\u00e1vno jsem ji potkala na koncert\u011b, kde si u\u017e\u00edvala 2hodinov\u00fd p\u0159ednes hudby bez jedin\u00e9ho zaka\u0161l\u00e1n\u00ed. Takov\u00e9 p\u0159\u00edhody m\u011b utvrzuj\u00ed v\u00a0tom, \u017ee osv\u011bta o IPF m\u00e1 smysl. Nemocn\u00ed se spr\u00e1vnou l\u00e9\u010dbou by mohli \u017e\u00edt \u00fapln\u011b jin\u00fd \u017eivot,\u201c \u0159\u00edk\u00e1 prim. MUDr. Ivana \u010cierna Peterov\u00e1, m\u00edstop\u0159edsedkyn\u011b \u010cPFS a p\u0159edsedkyn\u011b Sekce ambulantn\u00edch pneumolog\u016f.<\/p><\/div>\n<p>redakce invArena<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Smrteln\u00fdm onemocn\u011bn\u00edm plic, p\u0159i kter\u00fdm se pl\u00edce postupn\u011b jizv\u00ed a \u010dlov\u011bk se st\u00e1le h\u016f\u0159e nadechuje, trp\u00ed v\u00a0\u010cesku asi 2 000 lid\u00ed. V\u00edce ne\u017e \u010dtvrtin\u011b z\u00a0nich <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=32192\" title=\"Smrteln\u011b nemocn\u00fdm plicn\u00ed fibr\u00f3zou ulev\u00ed v\u010dasn\u00e1 l\u00e9\u010dba \u2013 k t\u00e9 se ale dost\u00e1vaj\u00ed pozd\u011b\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21911,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-32192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/32192","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=32192"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/32192\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21911"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=32192"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=32192"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=32192"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}