V dobov\u00e9m oble\u010den\u00ed jak za star\u00fdch \u010das\u016f si v sobotu vyrazili \u010dlenov\u00e9 folkloristickorecesistick\u00e9ho uskupen\u00ed Ba\u0148a Babice aneb Babi\u010dt\u00ed nad\u0161enci vychutnat u\u017e t\u0159in\u00e1ct\u00fd ro\u010dn\u00edk Sva\u0159\u00e1kov\u00e9ho pochodu p\u0159\u00e1telstv\u00ed.<\/p>\n\n\n\n
Jak jinak, ne\u017e jak u\u017e je tradic\u00ed a ud\u011blat po zimn\u00edch sv\u00e1tc\u00edch pohybem v p\u0159\u00edrod\u011b radost nejen sob\u011b, nav\u0161t\u00edvit starostky sousedn\u00edch obc\u00ed, ale p\u0159edev\u0161\u00edm pot\u011b\u0161it t\u0159in\u00e1ctiletou Barunku Volfovou z Hu\u0161t\u011bnovic. Ta od sv\u00fdch t\u0159\u00ed m\u011bs\u00edc\u016f s velkou ob\u011btavost\u00ed sv\u00fdch rodi\u010d\u016f state\u010dn\u011b bojuje se spin\u00e1ln\u00ed atrofi\u00ed, nemoc\u00ed charakterizovanou z\u00e1nikem \u010d\u00e1sti motorick\u00fdch bun\u011bk p\u0159edn\u00edch roh\u016f m\u00ed\u0161n\u00edch s n\u00e1slednou atrofi\u00ed sval\u016f.<\/p>\n\n\n\n
„Barun\u010din\u011b mamince, Alen\u011b Volfov\u00e9, jsme p\u0159edali \u010dist\u00fd finan\u010dn\u00ed v\u00fdt\u011b\u017eek z lo\u0148sk\u00e9ho X. ro\u010dn\u00edku burzy kroj\u016f, po\u0159\u00e1dan\u00e9 v na\u0161\u00ed re\u017eii, kter\u00e1 p\u0159il\u00e1kala do babick\u00e9ho kulturn\u00edho domu za vz\u00e1cn\u00fdmi krojov\u00fdmi skvosty, jejich \u010d\u00e1stmi a dopl\u0148ky 320 lid\u00ed z r\u016fzn\u00fdch kout\u016f Zl\u00ednsk\u00e9ho kraje,“ informuje Marie \u0160uransk\u00e1, kronik\u00e1\u0159ka babick\u00e9 Ban\u011b a organiz\u00e1torka Sva\u0159\u00e1kov\u00e9ho pochodu p\u0159\u00e1telstv\u00ed. Hendikepovan\u00e9 Barunce Ba\u0148\u00e1ci i s jej\u00edmi rodi\u010di a prarodi\u010di zazp\u00edvali n\u011bkolik p\u00edsni\u010dek, za co\u017e se jim dostalo bohat\u00e9ho poho\u0161t\u011bn\u00ed.
D\u00cdVENKA POT\u0158EBUJE NEUST\u00c1LOU P\u00c9\u010cI
Babi\u010dt\u00ed nad\u0161enci m\u011bli radost z toho, \u017ee u\u017e pon\u011bkolik\u00e1t\u00e9 mohli rodi\u010d\u016fm Barunky p\u0159edat finan\u010dn\u00ed dar a zah\u0159\u00e1lo je u srdce, \u017ee jako zdrav\u00ed lid\u00e9 mohou b\u00fdt d\u00edvence, kter\u00e1 pomoc pot\u0159ebuje, alespo\u0148 trochu prosp\u011b\u0161n\u00ed.<\/p>\n\n\n\n
„Barunka se narodila jako zdrav\u00e9 miminko. Ve t\u0159ech m\u011bs\u00edc\u00edch ale p\u0159estala kopat no\u017ei\u010dkami, zvedat hlavi\u010dku a celkov\u011b se zhor\u0161ila jej\u00ed pohyblivost. Proto jsme s n\u00ed zajeli na neurologick\u00e9 vy\u0161et\u0159en\u00ed do D\u011btsk\u00e9 fakultn\u00ed nemocnice v Brn\u011b, kde j\u00ed l\u00e9ka\u0159i diagnostikovali spin\u00e1ln\u00ed svalovou atrofii,“ posteskne si Barun\u010dina miminka Alena Volfov\u00e1. Jej\u00ed \u017eivot se po skon\u010den\u00e9m vy\u0161et\u0159en\u00ed dcery a stanoven\u00e9 diagn\u00f3ze, \u017ee jde o nemoc nervov\u00e9ho syst\u00e9mu, obr\u00e1til vzh\u016fru nohama. O dceru, kter\u00e1 je napojen\u00e1 na plicn\u00ed ventil\u00e1tor, je\u017e za ni d\u00fdch\u00e1 a do b\u0159\u00ed\u0161ka m\u00e1 zavedenu sondu, p\u0159es n\u00ed\u017e je j\u00ed pod\u00e1v\u00e1na mixovan\u00e1 strava, mus\u00ed pe\u010dovat 24 hodin denn\u011b. <\/p>\n\n\n\n
„A\u010dkoliv n\u00e1m l\u00e9ka\u0159i v Brn\u011b tvrdili, \u017ee se d\u011bti trp\u00edc\u00ed zm\u00edn\u011bnou nemoc\u00ed nedo\u017eij\u00ed v\u00edce ne\u017e dvou let, bojujeme i s Baru\u0161kou s jej\u00ed chorobou state\u010dn\u011b u\u017e t\u00e9m\u011b\u0159 13 rok\u016f,“ sv\u011b\u0159\u00ed se Alena Volfov\u00e1. Zdravotn\u00ed stav jej\u00ed dcery se na\u0161t\u011bst\u00ed dr\u017e\u00ed po\u0159\u00e1d na stejn\u00e9 \u00farovni a nezhor\u0161uje se. Barunka sn\u00e1\u0161\u00ed sv\u00e9 posti\u017een\u00ed velmi dob\u0159e, v\u011bt\u0161inu \u010dasu je spokojen\u00e1. Pl\u00e1\u010de opravdu jen m\u00e1lokdy.<\/p>\n\n\n\n
„Dcera komunikuje pouze o\u010dima. M\u00e1lokdo na n\u00ed pozn\u00e1, \u017ee se t\u0159eba sm\u011bje, proto\u017ee jej\u00ed mimika nefunguje. Ale my rodi\u010de a bl\u00edzc\u00ed \u010dlenov\u00e9 rodiny to pozn\u00e1me hlavn\u011b na jej\u00edch o\u010d\u00edch,“ dod\u00e1v\u00e1 Barun\u010dina maminka.<\/p>\n\n\n\n
„P\u0159i leto\u0161n\u00edm Sva\u0159\u00e1kov\u00e9m pochodu p\u0159\u00e1telstv\u00ed jsme se stejn\u011b jako v p\u0159edch\u00e1zej\u00edc\u00edch ro\u010dn\u00edc\u00edch v\u00fdborn\u011b bavili. P\u0159\u00edv\u011btiv\u00ed a pohostinn\u00ed byli nejen u Volf\u016f v Hu\u0161t\u011bnovic\u00edch, ale tak\u00e9 starostky Babic, Su\u0161ic a Kudlovic, Martina Hor\u0148\u00e1kov\u00e1, Ladislava Vlachynsk\u00e1 a Renata \u010cechm\u00e1nkov\u00e1 s b\u00fdval\u00fdm prvn\u00edm mu\u017eem obce Zde\u0148kem Jab\u016frkem,“ zhodnotila Marie \u0160uransk\u00e1 akci na restart t\u011bla po v\u00e1no\u010dn\u00edch a novoro\u010dn\u00edch sv\u00e1tc\u00edch.<\/p>\n\n\n\n
ZDEN\u011aK SKALI\u010cKA<\/p>\n\n\n\n
Krom\u011b\u0159\u00ed\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
http:\/\/kromerizsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V dobov\u00e9m oble\u010den\u00ed jak za star\u00fdch \u010das\u016f si v sobotu vyrazili \u010dlenov\u00e9 folkloristickorecesistick\u00e9ho uskupen\u00ed Ba\u0148a Babice aneb Babi\u010dt\u00ed nad\u0161enci vychutnat u\u017e t\u0159in\u00e1ct\u00fd ro\u010dn\u00edk Sva\u0159\u00e1kov\u00e9ho pochodu […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":11952,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-33041","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33041","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=33041"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33041\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/11952"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=33041"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=33041"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=33041"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}