\u010cesk\u00e1 asociace paraplegik\u016f – CZEPA u p\u0159\u00edle\u017eitosti 30 let v\u00fdro\u010d\u00ed sv\u00e9ho zalo\u017een\u00ed zmapovala, jak se zm\u011bnil \u017eivot voz\u00ed\u010dk\u00e1\u0159\u016f nejen po \u00farazu m\u00edchy p\u0159ed 30 lety a dnes. A to v\u00a0oblastech l\u00e9ka\u0159sk\u00e9 p\u00e9\u010de, rehabilitace, m\u011bstsk\u00e9 i d\u00e1lkov\u00e9 dopravy, bezbari\u00e9rovosti \u00fa\u0159ad\u016f, studia \u010di z\u00e1bavy. <\/p>\n\n\n\n
V roce 2018 \u017eilo v \u010cesk\u00e9 republice 14420 lid\u00ed s diagn\u00f3zou paraplegie a tetraplegie (zdroj: \u00daZIS). Ka\u017ed\u00fd rok p\u0159ib\u00fdv\u00e1 cca 250 lid\u00ed po poran\u011bn\u00ed m\u00edchy, z nich\u017e pr\u016fm\u011brn\u011b 170 se bude pohybovat pouze na voz\u00edku. V roce 1990 byla bezbari\u00e9rovost, kter\u00e1 je pro integraci voz\u00ed\u010dk\u00e1\u0159e kl\u00ed\u010dov\u00e1, tak\u0159ka nezn\u00e1m\u00fdm pojmem. Situace se zlep\u0161ila p\u0159edev\u0161\u00edm ve velk\u00fdch m\u011bstech. <\/p>\n\n\n\n
V Praze je dle tabulky DPP n\u00edzkopodla\u017en\u00edch cca 74 % tramvaj\u00ed a autobus\u016f z jejich vozov\u00e9ho parku a 74 % stanic metra (45 z 61), v Brn\u011b je 75 % v\u0161ech spoj\u016f MHD n\u00edzkopodla\u017en\u00edch, v Ostrav\u011b 71 %. <\/p>\n\n\n\n
Voz\u00ed\u010dk\u00e1\u0159i na rozd\u00edl od minulosti p\u016fsob\u00ed na voln\u00e9m trhu pr\u00e1ce, roste bezbari\u00e9rovost \u0161kol, kin, divadel, \u00fa\u0159ad\u016f. N\u011bkter\u00e1 \u010d\u00edsla u\u017e nejsou tak \u201eslavn\u00e1\u201c. 70 % spoj\u016f, kter\u00e9 vyprav\u00ed \u010cesk\u00e9 dr\u00e1hy, je sice bezbari\u00e9rov\u00fdch, ale to sam\u00e9 plat\u00ed dle S\u017dDC jen o 54 % n\u00e1dra\u017e\u00ed a p\u0159epravu prov\u00e1z\u00ed v praxi komplikace. \u010cesk\u00e1 po\u0161ta m\u00e1 dle \u00fadaj\u016f idnes.cz z konce roku 2019 jen 39 % bezbari\u00e9rov\u00fdch pobo\u010dek. 997 m\u00edst je p\u0159\u00edstupno tzv. eurokl\u00ed\u010dem, v\u011bt\u0161inou jde o ve\u0159ejn\u00e9 WC pro voz\u00ed\u010dk\u00e1\u0159e. <\/p>\n\n\n\n
\u201eZa t\u0159icet let jsme se samoz\u0159ejm\u011b velice posunuli. Ur\u010dit\u011b v bezbari\u00e9rovosti, i kdy\u017e tam z\u016fst\u00e1vaj\u00ed velk\u00e9 mezery. Vyhl\u00e1\u0161ku o p\u0159\u00edstupnosti ve\u0159ejn\u00fdch staveb m\u00e1me ji\u017e od roku 1994, av\u0161ak \u010dasto se nedodr\u017euje a ned\u011bl\u00e1 se maximum pro to, aby bezbari\u00e9rovost byla standardn\u00edm \u0159e\u0161en\u00edm. Nerozum\u00edm tomu, \u017ee po t\u0159iceti letech od revoluce jsou bezbari\u00e9rov\u00e9 toalety pou\u017e\u00edvan\u00e9 jako \u00faklidov\u00e9 m\u00edstnosti. M\u00e1m to br\u00e1t jako d\u016fkaz, \u017ee se s voz\u00ed\u010dk\u00e1\u0159i v na\u0161\u00ed spole\u010dnosti nepo\u010d\u00edt\u00e1?\u201c pt\u00e1 se Alena Jan\u010d\u00edkov\u00e1, \u0159editelka \u010cesk\u00e9 asociace paraplegik\u016f \u2013 CZEPA, sama 25 let na voz\u00edku.<\/p>\n\n\n\n
\u201eVelk\u00fd posun vid\u00edm p\u0159edev\u0161\u00edm ve zdravotn\u00ed p\u00e9\u010di, ve v\u00fdvoji a dostupnosti kompenza\u010dn\u00edch pom\u016fcek. Pokud se stal \u010dlov\u011bku \u00faraz m\u00edchy p\u0159ed t\u0159iceti lety, um\u00edral \u010dasto v kr\u00e1tk\u00e9 dob\u011b nikoli na ochrnut\u00ed, ale na komplikace s t\u00edm spojen\u00e9 \u2013 uroinfekce a dekubity (prole\u017eeniny). V dne\u0161n\u00ed dob\u011b se voz\u00ed\u010dk\u00e1\u0159i c\u00e9vkuj\u00ed, co\u017e pom\u00e1h\u00e1 p\u0159edch\u00e1zet smrteln\u00fdm komplikac\u00edm. Kvalitn\u00ed zdravotn\u00ed, kompenza\u010dn\u00ed a sportovn\u00ed pom\u016fcky se slo\u017eit\u011b sh\u00e1n\u011bly ze zahrani\u010d\u00ed, dnes jsou dostupn\u00e9 na \u010desk\u00e9m trhu. D\u00edky internetu jsou dostupn\u00e9 informace, m\u016f\u017eeme z domu komunikovat i pracovat, vy\u0159izovat osobn\u00ed z\u00e1le\u017eitosti. Ochrnut\u00ed lid\u00e9 na voz\u00edku maj\u00ed dnes vlastn\u00ed d\u011bti, elektronick\u00e1 doba nab\u00edz\u00ed nap\u0159. hlasov\u00e9 ovl\u00e1d\u00e1n\u00ed po\u010d\u00edta\u010de, dokonce i dom\u00e1cnosti,\u201c pokra\u010duje Jan\u010d\u00edkov\u00e1 a dod\u00e1v\u00e1: \u201eNen\u00ed ostuda se na voz\u00edk posadit, je ostuda \u201ez\u016fstat sed\u011bt\u201c \u2013 z\u016fstat pasivn\u00ed p\u0159i dne\u0161n\u00edch mo\u017enostech.\u201c<\/p>\n\n\n\n
Mise: p\u0159e\u017e\u00edt <\/p>\n\n\n\n
Nejv\u011bt\u0161\u00ed v\u00fdzvou pro osobu, kter\u00e1 v minulosti utrp\u011bla \u00faraz m\u00edchy, bylo bez nads\u00e1zky p\u0159e\u017e\u00edt. Nam\u00edsto \u201ep\u00e9\u010de\u201c v okresn\u00edch nemocnic\u00edch jsou dnes k dispozici 4 specializovan\u00e9 spin\u00e1ln\u00ed jednotky a p\u0159i spr\u00e1vn\u00e9 p\u00e9\u010di se d\u00e9lka \u017eivota voz\u00ed\u010dk\u00e1\u0159e neli\u0161\u00ed od v\u011bt\u0161inov\u00e9 spole\u010dnosti. Na situaci vzpom\u00edn\u00e1 jedna ze zakladatelek CZEPA (d\u0159\u00edve Svaz paraplegik\u016f, zalo\u017een v roce 1990), spin\u00e1ln\u00ed specialistka Zde\u0148ka Falt\u00fdnkov\u00e1. <\/p>\n\n\n\n
\u201eM\u00e1m v\u00a0\u017eiv\u00e9 pam\u011bti situaci v\u00a0ran\u00fdch devades\u00e1t\u00fdch letech. Kdy\u017e jsme se v\u00a0organizaci dozv\u011bd\u011bli o \u010dlov\u011bku po \u00faraze, kter\u00fd um\u00edral ve sp\u00e1dov\u00e9 nemocnici, kde bohu\u017eel nedost\u00e1val \u2013 ani to nebylo v\u00a0tehdej\u0161\u00edch mo\u017enostech \u2013 pot\u0159ebnou p\u00e9\u010di, organizovali jsme doslova z\u00e1chrann\u00e9 mise a \u017eadonili o p\u0159esun na jedinou tehdej\u0161\u00ed spin\u00e1ln\u00ed jednotku p\u0159i \u00darazov\u00e9 nemocnici v\u00a0Brn\u011b. Jsem p\u0159esv\u011bd\u010dena, \u017ee jsme takto zachr\u00e1nili \u017eivot mnoha lidem. Dnes vysoce odbornou zdravotn\u00ed p\u00e9\u010di dostane t\u00e9m\u011b\u0159 ka\u017ed\u00fd \u010dlov\u011bk s\u00a0poran\u011bn\u00edm m\u00edchy. I kdy\u017e to neznamen\u00e1, \u017ee nedoch\u00e1z\u00ed ke komplikac\u00edm, pokrok je to neuv\u011b\u0159iteln\u00fd,\u201c\u00a0uvedla Falt\u00fdnkov\u00e1. <\/p>\n\n\n\n
Velk\u00e1 sl\u00e1va: Prvn\u00ed spin\u00e1ln\u00ed jednotka v\u00a0roce 1992<\/p>\n\n\n\n
U zrodu prvn\u00ed specializovan\u00e9 spin\u00e1ln\u00ed jednotky p\u0159i \u00darazov\u00e9 nemocnici v Brn\u011b st\u00e1l a jej spoluinicioval profesor MUDr. Peter Wendsche, CSc. \u201eDne 16. dubna 1992 se poda\u0159ilo spole\u010dn\u00fdm \u00fasil\u00edm MZ \u010cR a \u00darazov\u00e9 nemocnice v\u00a0Brn\u011b p\u0159iv\u00e9st po 3let\u00e9 stavebn\u00ed \u00faprav\u011b k\u00a0\u017eivotu ojedin\u011bl\u00e9 zdravotnick\u00e9 za\u0159\u00edzen\u00ed \u2013 Spin\u00e1ln\u00ed jednotku. Dal\u0161\u00ed jednotky pozd\u011bji n\u00e1sledovaly na podklad\u011b tzv. Spin\u00e1ln\u00edho programu pro \u010cR, na kter\u00e9m jsme intenzivn\u011b spolupracovali s MZ \u010cR a dal\u0161\u00edmi. Lid\u00e9 s poran\u011bn\u00edm nebo onemocn\u011bn\u00edm m\u00edchy neum\u00edrali na vlastn\u00ed poran\u011bn\u00ed, ale na komplikace, kter\u00e9 se v pr\u016fb\u011bhu jednotliv\u00fdch f\u00e1z\u00ed (akutn\u00ed, postakutn\u00ed, chronick\u00e1) vyskytly. Jsou to hlavn\u011b plicn\u00ed, urologick\u00e9, kardiovaskul\u00e1rn\u00ed a ko\u017en\u00ed komplikace (dekubity). T\u011bmto komplikac\u00edm lze p\u0159edch\u00e1zet jedin\u011b tak, \u017ee v\u0161ichni specialist\u00e9 spolupracuj\u00ed u l\u016f\u017eka, kde pacient le\u017e\u00ed, a ne, aby byl pacient p\u0159emis\u0165ov\u00e1n z\u00a0jednoho specializovan\u00e9ho odd\u011blen\u00ed do druh\u00e9ho. Ruku v ruce s vyvinut\u00edm t\u00e9to ucelen\u00e9, tzv. komprehenzivn\u00ed p\u00e9\u010de \u0161el pokrok opera\u010dn\u00edch metod \u00faraz\u016f nebo n\u00e1dorov\u00fdch onemocn\u011bn\u00ed,\u201c uvedl. <\/p>\n\n\n\n
\u017d\u00e1dn\u00e9 pom\u016fcky, ani hygienick\u00e9 <\/p>\n\n\n\n
Jeden z klient\u016f tehdej\u0161\u00ed p\u00e9\u010de, Ladislav Kratina, kter\u00e9mu se stal \u00faraz v roce 1989, vzpom\u00edn\u00e1: \u201eP\u0159ed 30 lety byla p\u00e9\u010de o lidi na voz\u00edku hrozn\u00e1. Um\u00edrali na zdravotn\u00ed komplikace, kter\u00fdm se dalo p\u0159edej\u00edt. Kompenza\u010dn\u00ed i hygienick\u00e9 pom\u016fcky byly nedostupn\u00e9. Ve\u0159ejnost nebyla na lidi na voz\u00edku zvykl\u00e1, proto\u017ee \u010dasto \u017eili v \u00fastavech, a nev\u011bd\u011bla, jak se k nim m\u00e1 chovat. Nedalo se dostat t\u00e9m\u011b\u0159 do \u017e\u00e1dn\u00fdch ve\u0159ejn\u00fdch budov a obchod\u016f a nev\u00edm o tom, \u017ee by existovala jak\u00e1koliv bezbari\u00e9rov\u00e1 doprava. Tu dobu jsem doslova p\u0159e\u017eil jen d\u00edky neuv\u011b\u0159iteln\u00e9 ob\u011btavosti sv\u00fdch rodi\u010d\u016f. Nyn\u00ed m\u00e1me specializovan\u00e1 pracovi\u0161t\u011b i spr\u00e1vn\u011b c\u00edlenou l\u00e9\u010dbu a rehabilitaci. Ve\u0159ejnost v\u011bt\u0161inou v\u00ed, \u017ee m\u00e1me fyzick\u00fd handicap, ale hlavu v po\u0159\u00e1dku. Bezbari\u00e9rovost ve v\u011bt\u0161\u00edch m\u011bstech existuje, i kdy\u017e je na mal\u00fdch m\u011bstech (nato\u017e pak na vesnic\u00edch) st\u00e1le nedostate\u010dn\u00e1. Soci\u00e1ln\u00ed slu\u017eby a d\u00e1vky jsou na dobr\u00e9 \u00farovni a z\u00e1t\u011b\u017e pro rodinu, kter\u00e1 se rozhodne o sv\u00e9ho \u010dlena postarat, je p\u0159ijateln\u00e1. Hor\u0161\u00ed je to pro ty, kte\u0159\u00ed jsou zcela fyzicky nesob\u011bsta\u010dn\u00ed, ale to je asi pochopiteln\u00e9 \u2013 neum\u00edm si p\u0159edstavit, \u017ee by to bylo v budoucnu mo\u017en\u00e9 v\u00fdrazn\u011b zlep\u0161it a ufinancovat.<\/p>\n\n\n\n
Historie \u010cesk\u00e9 asociace paraplegik\u016f \u2013 pom\u00e1h\u00e1me t\u0159icet let <\/p>\n\n\n\n
Byla zalo\u017eena v \u00fanoru roku 1990 jako Svaz paraplegik\u016f, h\u00e1j\u00edc\u00ed pr\u00e1va lid\u00ed po poran\u011bn\u00ed m\u00edchy. V roce 1994 Svaz paraplegik\u016f zalo\u017eil Centrum Paraple. Od za\u010d\u00e1tku sv\u00e9 existence Svaz paraplegik\u016f usiloval o kvalitn\u00ed zdravotn\u00ed p\u00e9\u010di \u2013 spin\u00e1ln\u00ed program a otev\u0159en\u00ed spin\u00e1ln\u00edch jednotek. V roce 2010 se Centrum Paraple osamostatnilo a v roce 2011 se organizace p\u0159ejmenovala na \u010ceskou asociaci paraplegik\u016f\u2013CZEPA. Mezi dlouhodob\u00e9 slu\u017eby pat\u0159\u00ed odborn\u00e9 zdravotn\u00ed a soci\u00e1ln\u00ed poradenstv\u00ed; k nov\u011bj\u0161\u00edm slu\u017eb\u00e1m pat\u0159\u00ed nap\u0159\u00edklad startovac\u00ed byty, tr\u00e9ninkov\u00e9 bydlen\u00ed pro tetraplegiky, VozejkMap \u2013 aplikace mapuj\u00edc\u00ed bezbari\u00e9rov\u00e9 m\u00edsta v \u010cR, komunitn\u00ed a informa\u010dn\u00ed port\u00e1l Vozejkov.cz, Hv\u011bzdn\u00fd bazar \u2013 tr\u00e9ninkov\u00e9 pracovi\u0161t\u011b \u010di preventivn\u00ed program pro ml\u00e1de\u017e BanalFatal! V roce2018 vznikla slu\u017eba Peer mentoring \u2013 zku\u0161en\u00ed voz\u00ed\u010dk\u00e1\u0159i prov\u00e1zej\u00ed lidi po poran\u011bn\u00ed m\u00edchy v nov\u00e9 t\u011b\u017ek\u00e9 \u017eivotn\u00ed situaci. V\u00edce o projektech na str\u00e1nk\u00e1ch www.czepa.cz<\/a>.<\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va \u010cesk\u00e9 asociace paraplegik\u016f \u2013 CZEPA <\/p>\n","protected":false},"excerpt":{"rendered":" \u010cesk\u00e1 asociace paraplegik\u016f – CZEPA u p\u0159\u00edle\u017eitosti 30 let v\u00fdro\u010d\u00ed sv\u00e9ho zalo\u017een\u00ed zmapovala, jak se zm\u011bnil \u017eivot voz\u00ed\u010dk\u00e1\u0159\u016f nejen po \u00farazu m\u00edchy p\u0159ed 30 lety […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":33756,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-33753","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33753","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=33753"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33753\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/33756"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=33753"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=33753"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=33753"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}