Za v\u00edce ne\u017e osm let pomohla organizace Dobr\u00fd and\u011bl sedmi a p\u016fl tis\u00edc\u016fm rodin\u00e1m. Jubilejn\u00ed st\u00e9 odesl\u00e1n\u00ed p\u0159\u00edsp\u011bvk\u016f prob\u011bhlo pr\u00e1v\u011b v\u010dera.
Dev\u00edtilet\u00fd Filip ze Semilska, t\u0159\u00edlet\u00fd Ad\u00e1mek z Liberecka a p\u011btilet\u00e1 Emi\u010dka z \u010ceskolipska. Co maj\u00ed spole\u010dn\u00e9ho?<\/p>\n\n\n\n
T\u011b\u017ek\u00e9 onemocn\u011bn\u00ed a tak\u00e9 dobr\u00e9ho and\u011bla, kter\u00fd pom\u00e1h\u00e1 jejich rodi\u010d\u016fm zvl\u00e1dat t\u011b\u017ekou \u017eivotn\u00ed situaci, je\u017e krom\u011b psychiky dol\u00e9h\u00e1 i na jejich rozpo\u010det. Dobr\u00fdm and\u011blem je stejnojmenn\u00e1 nadace, kter\u00e1 u\u017e osm let pom\u00e1h\u00e1 rodin\u00e1m s d\u011btmi, v nich\u017e se objevila z\u00e1va\u017en\u00e1, zpravidla onkologick\u00e1 nemoc. „M\u011bs\u00ed\u010dn\u011b registrujeme kolem stovky nov\u00fdch p\u0159\u00edpad\u016f,“ uvedla \u0159editelka nadace Dobr\u00fd and\u011bl \u0160\u00e1rka Proch\u00e1zkov\u00e1.<\/p>\n\n\n\n
D\u011bti s onkologickou diagn\u00f3zou tvo\u0159\u00ed kolem 20 procent pot\u0159ebn\u00fdch. Dobr\u00fd and\u011bl ale pom\u00e1h\u00e1 i rodin\u00e1m s d\u011btmi s dal\u0161\u00edmi nep\u0159\u00edzniv\u00fdmi diagn\u00f3zami. Zpravidla s t\u011bmi, kde v\u00fdhled na zlep\u0161en\u00ed z\u016fst\u00e1v\u00e1 zpravidla jen tou\u017eebn\u00fdm p\u0159\u00e1n\u00edm.
FILIP\u016eV P\u0158\u00cdB\u011aH
Jednou z takov\u00fdch je i rodina dev\u00edtilet\u00e9ho Filipa z Jablonce nad Jizerou. Narodil se p\u0159ed\u010dasn\u011b, v 35. t\u00fddnu s cytomegalovirusovou infekc\u00ed a v\u00e1hou 1450 gram\u016f. „V\u016fbec jsme netu\u0161ili, \u017ee syn bude v\u00e1\u017en\u011b nemocn\u00fd. Postupn\u011b n\u00e1m byly sd\u011blov\u00e1ny dal\u0161\u00ed diagn\u00f3zy a jin\u00e9 vady, co\u017e pokra\u010dovalo je\u0161t\u011b \u0159adu let,“ sv\u011b\u0159ila se Filipova matka Jana. „Nejt\u011b\u017e\u0161\u00ed na tom bylo, \u017ee kdy\u017e u\u017e jsme se s n\u011b\u010d\u00edm sm\u00ed\u0159ili, za kr\u00e1tk\u00fd \u010das p\u0159i\u0161lo n\u011bco nov\u00e9ho a museli jsme za\u010d\u00edt pracovat \u00fapln\u011b jinak, znovu od za\u010d\u00e1tku,“ popsala.<\/p>\n\n\n\n
Mal\u00fd Filip m\u00e1 diagnostikovanou t\u011b\u017ekou ment\u00e1ln\u00ed retardaci, hyperaktivitu, vrozenou oboustrannou hluchotu s implantovan\u00fdm kochle\u00e1rn\u00edm implant\u00e1tem, autismus a celiakii.<\/p>\n\n\n\n
Ten, kdo vzdoruje jen t\u00e9to jedn\u00e9 jedin\u00e9 nemoci z cel\u00e9ho spektra, kter\u00e9 postihlo Filipa, v\u00ed, jak je finan\u010dn\u011b n\u00e1ro\u010dn\u00e1 jen samotn\u00e1 p\u0159\u00edsn\u00e1 dieta.<\/p>\n\n\n\n
V p\u0159\u00edpad\u011b Filipa plynou dal\u0161\u00ed pen\u00edze na l\u00e9ky, pom\u016fcky do speci\u00e1ln\u00ed \u0161koly, ale tak\u00e9 na n\u00e1hradn\u00ed d\u00edly a baterie ke zm\u00edn\u011bn\u00e9mu implant\u00e1tu.
ADAM\u016eV P\u0158\u00cdB\u011aH
Rodin\u011b t\u0159\u00edlet\u00e9ho Ad\u00e1mka s t\u011b\u017ekou v\u00fdvojovou vadou mozku, zraku a pohybov\u00e9ho apar\u00e1tu z Mn\u00ed\u0161ku u Liberce zase nadace pom\u00e1h\u00e1 se zvl\u00e1dnut\u00edm n\u00e1kladn\u00e9 intenzivn\u00ed rehabilitace, kter\u00e1 syna v budoucnu \u010dek\u00e1.<\/p>\n\n\n\n
„Zat\u00edm pravideln\u011b doch\u00e1z\u00edme na cvi\u010den\u00ed k fyzioterapeutovi, na logopedii, \u010dek\u00e1 ho operace nohou a l\u00e1ze\u0148sk\u00e9 pobyty. Ned\u00e1vno jsme tak\u00e9 vyzkou\u0161eli cvi\u010den\u00ed v oble\u010dku Therasuit, kter\u00e9 nen\u00ed hrazeno zdravotn\u00ed poji\u0161\u0165ovnou, cena je p\u0159es dvacet tis\u00edc korun. Ad\u00e1mek je mal\u00fd, zat\u00edm m\u016f\u017ee cvi\u010dit. R\u00e1di bychom na to s pomoc\u00ed nadace na\u0161et\u0159ili,“ vysv\u011btlila Adamova matka Lenka.
EMIN P\u0158\u00cdB\u011aH
Zku\u0161enost s Dobr\u00fdm and\u011blem popsali i man\u017eel\u00e9 Suchop\u00e1rkovi. Jejich p\u011btilet\u00e1 Ema je toti\u017e jedn\u00edm ze 24 d\u011bt\u00ed, kter\u00fdm nadace pom\u00e1h\u00e1 na \u010ceskolipsku.<\/p>\n\n\n\n
Minul\u00fd rok na ja\u0159e diagnostikovali l\u00e9ka\u0159i jejich dce\u0159i Angelman\u016fv syndrom, vz\u00e1cnou genetickou poruchu. „Emi\u010dka m\u00e1 pot\u00ed\u017ee s ch\u016fz\u00ed, je plenov\u00e1na, nemluv\u00ed, m\u00e1 diagnostikov\u00e1nu epilepsii.<\/p>\n\n\n\n
Ment\u00e1ln\u011b je na \u00farovni dvoulet\u00e9ho d\u00edt\u011bte a v tomto ohledu se u\u017e situace do budoucna p\u0159\u00edli\u0161 nezm\u011bn\u00ed,“ popsala Emina matka Zuzana.<\/p>\n\n\n\n
S dcerkou denn\u011b doj\u00ed\u017ed\u011bj\u00ed do 37 kilometr\u016f vzd\u00e1len\u00e9 \u0161kolky v Liberci. V bli\u017e\u0161\u00edm okol\u00ed dceru kv\u016fli jej\u00edmu posti\u017een\u00ed nevzali. Dobr\u00fd and\u011bl pom\u00e1h\u00e1 s \u00fahradou n\u00e1klad\u016f, jako je rehabilitace, terapie, pot\u0159ebn\u00e9 pom\u016fcky, \u010di s b\u011b\u017en\u00fdm chodem dom\u00e1cnosti, proto\u017ee do zam\u011bstn\u00e1n\u00ed se pan\u00ed Zuzana zat\u00edm vr\u00e1tit nem\u016f\u017ee.
JAK Z\u00cdSKAT POMOC?
Pomoc od nadace Dobr\u00fd and\u011bl rodiny z\u00edskaj\u00ed zpravidla na z\u00e1klad\u011b doporu\u010den\u00ed l\u00e9ka\u0159e. „V p\u0159\u00edpad\u011b onkologick\u00e9ho onemocn\u011bn\u00ed u\u017e p\u0159\u00edmo v nemocnici,“ up\u0159esnila Mark\u00e9ta K\u0159\u00ed\u017eov\u00e1 z nadace. V ostatn\u00edch p\u0159\u00edpadech je pak sou\u010d\u00e1st\u00ed \u017e\u00e1dosti potvrzen\u00ed l\u00e9ka\u0159e o stanoven\u00e9 diagn\u00f3ze. V pr\u016fm\u011bru p\u0159isp\u00edv\u00e1 nadace rodin\u00e1m nemocn\u00fdch d\u011bt\u00ed \u0161est tis\u00edc korun m\u011bs\u00ed\u010dn\u011b. U d\u011bt\u00ed s rakovinou t\u0159i roky, u nel\u00e9\u010diteln\u00fdch nemoc\u00ed a t\u011b\u017ek\u00fdch v\u00fdvojov\u00fdch vad pak do 18 let jejich v\u011bku.
P\u0158\u00cdB\u011aH MARK\u00c9TY
Nadace Dobr\u00fd and\u011bl nepom\u00e1h\u00e1 jen p\u0159\u00edmo samotn\u00fdm d\u011btem, ale i tam, kde rakovinou onemocn\u00ed rodi\u010d. To je t\u0159eba p\u0159\u00edb\u011bh pan\u00ed Mark\u00e9ty z Mostu. P\u0159esn\u011b p\u0159ed rokem diagnostikovali l\u00e9ka\u0159i mlad\u00e9 mamince, kter\u00e1 se sama star\u00e1 o dceru, rakovinu prsu.<\/p>\n\n\n\n
„L\u00e9\u010d\u00edm se v pra\u017esk\u00e9 nemocnici, kam doj\u00ed\u017ed\u00edm na chemoterapii, biologickou a hormon\u00e1ln\u00ed l\u00e9\u010dbu. Na\u0161t\u011bst\u00ed m\u011b toto p\u0159\u00edli\u0161 neomezuje vedlej\u0161\u00edmi \u00fa\u010dinky a dok\u00e1\u017eu se starat o sebe i o dceru.<\/p>\n\n\n\n
S ohledem na \u010dasovou n\u00e1ro\u010dnost l\u00e9\u010dby ale nedok\u00e1\u017eu chodit do pr\u00e1ce a vyd\u011bl\u00e1vat, a\u010dkoliv jsem se do posledn\u00ed chv\u00edle sna\u017eila. Jsou dny, kdy jsem nabit\u00e1 energi\u00ed a moji diagn\u00f3zu mi p\u0159ipom\u00edn\u00e1 jen to, \u017ee nem\u00e1m vlasy, ale mus\u00edm p\u0159iznat, \u017ee jsou i jin\u00e9 dny,“ popsala mlad\u00e1 \u017eena.<\/p>\n\n\n\n
P\u0159\u00edsp\u011bvky Dobr\u00fdch and\u011bl\u016f j\u00ed pom\u00e1haj\u00ed dorovnat rozpo\u010det. „D\u00edky tomu se mohu i nad\u00e1le l\u00e9\u010dit v Praze, kde se specializuj\u00ed na \u017eeny, kter\u00e9 onemocn\u011bly karcinomem prsu do 35 let,“ dodala \u017eena.<\/p>\n\n\n\n
Dobr\u00fdm and\u011blem nen\u00ed jen samotn\u00e1 nadace, ale i lid\u00e9 z jejich\u017e p\u0159\u00edsp\u011bvk\u016f se rodin\u00e1m pomoci dost\u00e1v\u00e1. V\u011bt\u0161inou p\u0159isp\u00edvaj\u00ed anonymn\u011b, pomoc\u00ed se sv\u00e9mu okol\u00ed nechlub\u00ed. P\u0159ipad\u00e1 jim p\u0159irozen\u00e1. <\/p>\n\n\n\n
„M\u00e1m se dob\u0159e, nic mi nesch\u00e1z\u00ed, tohle je to nejmen\u0161\u00ed, co mohu ud\u011blat a jak to vracet,“ vysv\u011btlila motivaci pom\u00e1hat jedna z osloven\u00fdch.<\/p>\n\n\n\n
A jak pomoci? Podle \u0160\u00e1rky Proch\u00e1zkov\u00e9 je to jednoduch\u00e9. „Sta\u010d\u00ed se zaregistrovat na www.dobryandel.cz a zadat libovolnou v\u00fd\u0161i p\u0159\u00edsp\u011bvku.<\/p>\n\n\n\n
N\u00e1sleduj\u00edc\u00ed m\u011bs\u00edc uvid\u00edte konkr\u00e9tn\u00ed p\u0159\u00edb\u011bhy rodin, kter\u00fdm pom\u016f\u017eete,“ p\u0159ibl\u00ed\u017eila \u0159editelka nadace Dobr\u00fd and\u011bl. „Ve\u0161ker\u00e9 dary vybran\u00e9 v jednom m\u011bs\u00edci rozd\u011blujeme v\u017edy prvn\u00ed pracovn\u00ed den n\u00e1sleduj\u00edc\u00edho m\u011bs\u00edce pot\u0159ebn\u00fdm rodin\u00e1m. P\u0159\u00edsp\u011bvky rozd\u011bl\u00edme do posledn\u00edho hal\u00e9\u0159e,“ doplnila.
V kraji se pomoci dostalo 310 rodin\u00e1m
V Libereck\u00e9m kraji pomohli Dob\u0159\u00ed and\u011bl\u00e9 310 rodin\u00e1m s d\u011btmi. Aktu\u00e1ln\u011b m\u00ed\u0159\u00ed ka\u017ed\u00fd m\u011bs\u00edc pomoc mezi 182 z nich. V \u010cesk\u00e9 L\u00edp\u011b pomohli u\u017e 52 rodin\u00e1m, aktu\u00e1ln\u011b 24 z nich. V Jablonci nad Nisou pomohli u\u017e 75 rodin\u00e1m, aktu\u00e1ln\u011b p\u0159isp\u00edv\u00e1 55. V Liberci pomohli dohromady 139 rodin\u00e1m, v sou\u010dasnosti 82. Na Semilsku se pomoc dostala 44 rodin\u00e1m, aktu\u00e1ln\u011b pom\u00e1h\u00e1 21. Zdroj:Dobr\u00fd and\u011bl<\/p>\n\n\n\n
JANA \u0160VECOV\u00c1<\/p>\n\n\n\n
Libereck\u00fd den\u00edk<\/p>\n\n\n\n
http:\/\/www.liberecky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Za v\u00edce ne\u017e osm let pomohla organizace Dobr\u00fd and\u011bl sedmi a p\u016fl tis\u00edc\u016fm rodin\u00e1m. Jubilejn\u00ed st\u00e9 odesl\u00e1n\u00ed p\u0159\u00edsp\u011bvk\u016f prob\u011bhlo pr\u00e1v\u011b v\u010dera. Dev\u00edtilet\u00fd Filip ze Semilska, […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14711,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-33849","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33849","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=33849"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/33849\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14711"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=33849"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=33849"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=33849"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}