Osudem t\u011b\u017ece zkou\u0161en\u00e1 rodina z Milovic m\u00e1 za sou\u010dasn\u00e9ho stavu dal\u0161\u00ed z\u00e1sadn\u00ed probl\u00e9my. Je t\u00e9m\u011b\u0159 nemo\u017en\u00e9 jejich dva syny donutit nosit rou\u0161ku. Nav\u00edc reakce okol\u00ed na jejich \u010dasto hlu\u010dn\u00e9 chov\u00e1n\u00ed nen\u00ed tak\u00e9 v\u017edy \u00fapln\u011b p\u0159\u00edv\u011btiv\u00e1. Ale i v sou\u010dasn\u00e9 situaci p\u0159es vy\u010derp\u00e1n\u00ed d\u00e1le bojuj\u00ed.
V\u0161e za\u010dalo p\u0159ed \u010dty\u0159mi lety, kdy n\u011bkolik p\u0159\u00e1tel domluvilo setk\u00e1n\u00ed dv\u011bma lidem, kter\u00fdm \u017eivot p\u0159ipravil t\u011b\u017ekou zkou\u0161ku. Barbora i Josef oba sami pe\u010dovali o syny s t\u011b\u017ekou formou autismu. „Pro n\u00e1s bylo t\u011b\u017ek\u00e9 naj\u00edt si partnera, kter\u00fd by na\u0161i situaci zvl\u00e1dl. Setk\u00e1n\u00ed pro n\u00e1s bylo osudov\u00e9, zamilovali jsme se, vzali a od t\u00e9 doby v\u0161emu \u010del\u00edme spole\u010dn\u011b,“ za\u010d\u00ednaj\u00ed sv\u00e9 vypr\u00e1v\u011bn\u00ed man\u017eel\u00e9 z Milovic.<\/p>\n\n\n\n
P\u00e9\u010de o d\u00edt\u011b s autismem nen\u00ed jednoduch\u00e1, proto\u017ee pro okol\u00ed nemus\u00ed b\u00fdt na prvn\u00ed pohled v\u00e1\u017en\u00e1 diagn\u00f3za z\u0159ejm\u00e1. „M\u016fj desetilet\u00fd syn Tonda komunikuje, ale h\u016f\u0159e rozum\u00ed. Pot\u0159ebuje m\u00edt sv\u016fj \u0159\u00e1d, n\u011bkdy m\u00e1 sklony k sebepo\u0161kozov\u00e1n\u00ed a v afektu dok\u00e1\u017ee b\u00fdt velmi hlu\u010dn\u00fd. Jeho nevlastn\u00ed bratr, \u010dtrn\u00e1ctilet\u00fd Pepa, je na tom podobn\u011b,“ vysv\u011btluje pan\u00ed Barbora. S man\u017eelem nav\u00edc vychov\u00e1vaj\u00ed je\u0161t\u011b t\u0159\u00edlet\u00e9ho Bohou\u0161ka a \u010dty\u0159m\u011bs\u00ed\u010dn\u00edho Huga.
Tondovi s Pepou pom\u00e1haj\u00ed pravideln\u00e9 terapie, v r\u00e1mci kter\u00fdch prob\u00edh\u00e1 nap\u0159\u00edklad n\u00e1cvik soci\u00e1ln\u00edch dovednost\u00ed nebo se detailn\u011b \u0159e\u0161\u00ed konkr\u00e9tn\u00ed situace, kter\u00e9 pro\u017eili. „N\u00e1\u0161 \u017eivot se to\u010d\u00ed podle \u0159\u00e1du, ze kter\u00e9ho se nesm\u00ed vybo\u010dit, jinak to m\u00e1 na syny obrovsk\u00fd dopad,“ \u0159\u00edk\u00e1 pan\u00ed Barbora.<\/p>\n\n\n\n
Pom\u00e1haj\u00ed Dob\u0159\u00ed and\u011bl\u00e9<\/p>\n\n\n\n
S \u00fahradou terapi\u00ed pom\u00e1haj\u00ed Dob\u0159\u00ed and\u011bl\u00e9, d\u00e1rci nadace Dobr\u00fd and\u011bl. Ti pos\u00edlaj\u00ed pravideln\u00e9 finan\u010dn\u00ed p\u0159\u00edsp\u011bvky rodin\u00e1m s d\u011btmi, kter\u00e9 zas\u00e1hla v\u00e1\u017en\u00e1 nemoc. Rodi\u010de Barbora a Josef z nich hrad\u00ed tak\u00e9 pot\u0159ebnou osobn\u00ed asistenci \u010di odleh\u010dovac\u00ed slu\u017eby. Vzhledem k uzav\u0159en\u00ed \u0161kol a dal\u0161\u00edch instituc\u00ed je ale nyn\u00ed v\u0161e jinak. „Nejprve jsem kv\u016fli zdravotn\u00edm obt\u00ed\u017e\u00edm man\u017eela z\u016fstala s d\u011btmi do\u010dasn\u011b sama. Doj\u00edt na n\u00e1kup pro m\u011b znamenalo vz\u00edt je s sebou. Motivovat autisty k no\u0161en\u00ed rou\u0161ky je nadlidsk\u00fd v\u00fdkon. Oslovila jsem p\u0159\u00e1tele, ale i nezn\u00e1m\u00e9 lidi na soci\u00e1ln\u00edch s\u00edt\u00edch, zda by mi n\u011bkdo neu\u0161il rou\u0161ku s motivem hasi\u010d\u016f \u010di hry Minecraft a doufala, \u017ee sv\u00e9 obl\u00edbence budou kluci hrd\u011b nosit. Ozvaly se mi dv\u011b mil\u00e9 pan\u00ed z Milovic a dal\u0161\u00ed lid\u00e9 s nab\u00eddkou pomoci s n\u00e1kupem. Byla jsem v \u0161oku, kolik lid\u00ed n\u00e1m nab\u00eddlo pomoc,“ popisuje aktu\u00e1ln\u00ed zku\u0161enosti pan\u00ed Barbora.
Krom\u011b podpory se ale bohu\u017eel rodina setkala i s negativn\u00edmi reakcemi z okol\u00ed. „Aktu\u00e1ln\u00ed stav je nep\u0159\u00edjemn\u00fd i pro na\u0161e sousedy. Tedy nejsp\u00ed\u0161e pro v\u0161echny, v jejich\u017e sousedstv\u00ed bydl\u00ed d\u00edt\u011b \u010di dosp\u011bl\u00fd s t\u011b\u017ekou formou autismu. A\u010dkoliv se sna\u017e\u00edme chovat jako obvykle a dodr\u017eovat re\u017eim, jako kdy\u017e se chod\u00ed do \u0161koly, autist\u00e9 nesou zm\u011bny t\u011b\u017ece,“ vysv\u011btluje matka posti\u017een\u00fdch chlapc\u016f.<\/p>\n\n\n\n
Naru\u0161en\u00ed zvyk\u016f zp\u016fsob\u00ed v hlav\u011b \u010dlov\u011bka s autismem \u0161\u00edlen\u00fd zmatek, paniku a strach. Afektivn\u00ed z\u00e1chvaty jsou \u010dast\u011bj\u0161\u00ed, hlu\u010dn\u011bj\u0161\u00ed a del\u0161\u00ed. Je pochopiteln\u00e9, \u017ee tyto projevy okol\u00ed ru\u0161\u00ed. „Jsme si v\u011bdomi, \u017ee jsou d\u011bti s autismem extr\u00e9mn\u011b hlu\u010dn\u00e9, ale v\u011bt\u0161inou tomu nelze zabr\u00e1nit. Pros\u00edm o toleranci v\u0161echny, kte\u0159\u00ed jsou n\u011b\u010demu podobn\u00e9mu na bl\u00edzku. A\u017e se situace kolem koronaviru uklidn\u00ed, d\u011bti p\u016fjdou zase do \u0161kol, stacion\u00e1\u0159\u016f \u010di jin\u00fdch instituc\u00ed. Moment\u00e1ln\u011b \u017e\u00e1dn\u00e1 z t\u011bchto slu\u017eeb nefunguje a autist\u00e9 i jejich rodi\u010de jsou na pokraji sil,“ zakon\u010dila pan\u00ed Barbora.
Nymbursk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/nymbursky.denik.cz\/<\/a> Osudem t\u011b\u017ece zkou\u0161en\u00e1 rodina z Milovic m\u00e1 za sou\u010dasn\u00e9ho stavu dal\u0161\u00ed z\u00e1sadn\u00ed probl\u00e9my. Je t\u00e9m\u011b\u0159 nemo\u017en\u00e9 jejich dva syny donutit nosit rou\u0161ku. Nav\u00edc reakce okol\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18795,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34178","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34178","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34178"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34178\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18795"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34178"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34178"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34178"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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