Hemofilici, tedy lid\u00e9 s\u00a0d\u011bdi\u010dnou poruchou sr\u00e1\u017elivosti krve, museli po za\u010d\u00e1tku sou\u010dasn\u00e9 pandemie koronaviru \u0159e\u0161it v\u00e1\u017en\u00fd probl\u00e9m. V\u011bt\u0161ina z\u00a0nich si sama aplikuje chyb\u011bj\u00edc\u00ed sr\u00e1\u017eec\u00ed faktor, kv\u016fli mo\u017en\u00e9 n\u00e1kaze si jej ov\u0161em zejm\u00e9na ti star\u0161\u00ed z\u00a0nich ob\u00e1vali vyzvednout ve sv\u00e9m hemofilick\u00e9m centru. <\/p>\n\n\n\n
\u010cesk\u00fd svaz hemofilik\u016f spolu s organizac\u00ed Hemojunior jim proto nab\u00eddli kur\u00fdrn\u00ed slu\u017ebu, kter\u00e1 jim l\u00e9ky odveze a\u017e dom\u016f. I d\u00edky tomu mohou v klidu pro\u017e\u00edt leto\u0161n\u00ed Sv\u011btov\u00fd den hemofilie, kter\u00fd p\u0159ipad\u00e1 na 17. dubna<\/p>\n\n\n\n
Lid\u00e9 s poruchou sr\u00e1\u017elivosti krve si nemohou l\u00e9ky vyzvednout v l\u00e9k\u00e1rn\u011b, ale musej\u00ed pro n\u011b p\u0159\u00edmo do hemofilick\u00e9ho centra. \u201eV pr\u016fb\u011bhu pandemie koronaviru se objevily informace, \u017ee \u010d\u00e1st hemofilik\u016f za\u010dala s faktorem \u0161et\u0159it, p\u0159\u00edpadn\u011b l\u00e9\u010dbu vysazovat, to v\u0161ak nen\u00ed bezpe\u010dn\u00e9. Mohli by za\u010d\u00edt krv\u00e1cet, a nakonec by to vedlo k jejich hospitalizaci. Nav\u00edc n\u011bkte\u0159\u00ed hemofilici ve star\u0161\u00edm v\u011bku jsou na voz\u00ed\u010dku \u010di pou\u017e\u00edvaj\u00ed berle, tak\u017ee se nyn\u00ed dost\u00e1vali do skoro ne\u0159e\u0161iteln\u00e9 situace,\u201c \u0159\u00edk\u00e1 p\u0159edseda svazu Martin Boh\u016fn s t\u00edm, \u017ee nyn\u00ed rozvoz l\u00e9k\u016f na po\u017e\u00e1d\u00e1n\u00ed zaji\u0161\u0165uje certifikovan\u00e1 kur\u00fdrn\u00ed slu\u017eba. \u201eChceme v tom pokra\u010dovat, dokud epidemie nepolev\u00ed,\u201c zd\u016fraz\u0148uje Martin Boh\u016fn<\/p>\n\n\n\n
Hematolo\u017eka z Fakultn\u00ed nemocnice v Motole MUDr. Ester Z\u00e1potock\u00e1 potvrzuje, \u017ee v\u0161ichni lid\u00e9 s poruchou sr\u00e1\u017elivosti krve l\u00e9ky dost\u00e1vaj\u00ed. \u201eCentra funguj\u00ed, jen odkl\u00e1d\u00e1me preventivn\u00ed prohl\u00eddky, pokud v\u00edme, \u017ee hemofilikovi, o kter\u00e9ho se star\u00e1me, nic nehroz\u00ed. Prepar\u00e1ty si mohou vyzvednout p\u0159\u00edmo v centru, nebo jim jsou ve spolupr\u00e1ci se svazem hemofilik\u016f dopraveny a\u017e dom\u016f. Nen\u00ed proto \u017e\u00e1dn\u00fd d\u016fvod, aby se l\u00e9\u010dba n\u011bjak\u00fdm zp\u016fsobem omezila,\u201c zd\u016fraz\u0148uje<\/p>\n\n\n\n
Pom\u00e1h\u00e1 i aplikace<\/p>\n\n\n\n
Hemofilici d\u0159\u00edve p\u0159ed\u010dasn\u011b um\u00edrali a kv\u016fli spont\u00e1nn\u00edmu krv\u00e1cen\u00ed do kloub\u016f\nbyla v\u011bt\u0161ina z nich invalidn\u00ed. Podle Ester Z\u00e1potock\u00e9 ov\u0161em l\u00e9\u010dba\nv posledn\u00edch t\u0159ech dek\u00e1d\u00e1ch ud\u011blala velk\u00fd pokrok. \u201eZvl\u00e1\u0161t\u011b\nv posledn\u00edch zhruba deseti letech byl jej\u00ed pokrok opravdu obrovsk\u00fd.\nTakzvan\u00e1 profylaktick\u00e1 l\u00e9\u010dba, kdy pacient u\u017e\u00edv\u00e1 l\u00e9ky s c\u00edlem p\u0159edch\u00e1zet\nkrv\u00e1cen\u00ed, se uzp\u016fsobuje \u201ena m\u00edru\u201c dan\u00e9mu \u010dlov\u011bku,\u201c \u0159\u00edk\u00e1.<\/p>\n\n\n\n
Hemofilik si m\u016f\u017ee p\u0159edem upravovat d\u00e1vky l\u00e9ku tak, aby m\u011bl v krvi st\u00e1le\ndostatek sr\u00e1\u017eec\u00edho faktoru v r\u016fzn\u00fdch situac\u00edch, t\u0159eba kdy\u017e se chyst\u00e1\nsportovat. \u201eV nejbli\u017e\u0161\u00edch letech ur\u010dit\u011b ud\u011blaj\u00ed \u0159ad\u011b hemofilik\u016f velkou\nslu\u017ebu prepar\u00e1ty s prodlou\u017een\u00fdm polo\u010dasem, kter\u00e9 se mohou aplikovat m\u00e9n\u011b\n\u010dasto a zlep\u0161uj\u00ed tak kvalitu \u017eivota,\u201c dod\u00e1v\u00e1 Ester Z\u00e1potock\u00e1.<\/p>\n\n\n\n
Lidem s poruchou sr\u00e1\u017elivosti krve v tomto ohledu pom\u00e1h\u00e1 i speci\u00e1ln\u00ed mobiln\u00ed aplikace, d\u00edky n\u00ed\u017e si mohou sledovat, jak se sr\u00e1\u017eec\u00ed faktor chov\u00e1 v jejich t\u011ble a kdy je t\u0159eba jej aplikovat znovu. \u201eI to jim usnad\u0148uje \u017eivot, proto tyto technologie jako l\u00e9ka\u0159i podporujeme,\u201c vysv\u011btluje Ester Z\u00e1potock\u00e1. \u201eJe to velmi praktick\u00e9, l\u00e9pe se mi pl\u00e1nuj\u00ed r\u016fzn\u00e9 aktivity a m\u00e1m sv\u016fj zdravotn\u00ed stav l\u00e9pe pod kontrolou,\u201c pochvaluje si Martin Boh\u016fn.<\/p>\n\n\n\n
\u010cesk\u00e9mu svazu hemofilik\u016f se tak\u00e9 poda\u0159ilo prosadit sadu identifik\u00e1tor\u016f lid\u00ed s poruchou sr\u00e1\u017elivosti krve: jde o identifika\u010dn\u00ed n\u00e1ramek, pr\u016fkaz hemofilika, ozna\u010den\u00ed karty poji\u0161t\u011bnce, a nav\u00edc o takzvanou termota\u0161ku na uskladn\u011bn\u00ed sr\u00e1\u017eec\u00edho faktoru. \u201eSpolupracujeme se z\u00e1chrannou slu\u017ebou. Identifik\u00e1tor je toti\u017e d\u016fle\u017eit\u00fd nap\u0159\u00edklad p\u0159i dopravn\u00ed nehod\u011b, proto\u017ee hemofilik v p\u0159\u00edpad\u011b zran\u011bn\u00ed pot\u0159ebuje co nejd\u0159\u00edve dostat sr\u00e1\u017eec\u00ed faktor, aby nedo\u0161lo k rozs\u00e1hlej\u0161\u00edmu krv\u00e1cen\u00ed, p\u0159\u00edpadn\u011b \u017eivot ohro\u017euj\u00edc\u00edmu stavu,\u201c dod\u00e1v\u00e1 Martin Boh\u016fn<\/p>\n\n\n\n
V\u00e1clav Dvo\u0159\u00e1k<\/p>\n\n\n\n
\u00dasteck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ustecky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Hemofilici, tedy lid\u00e9 s\u00a0d\u011bdi\u010dnou poruchou sr\u00e1\u017elivosti krve, museli po za\u010d\u00e1tku sou\u010dasn\u00e9 pandemie koronaviru \u0159e\u0161it v\u00e1\u017en\u00fd probl\u00e9m. V\u011bt\u0161ina z\u00a0nich si sama aplikuje chyb\u011bj\u00edc\u00ed sr\u00e1\u017eec\u00ed faktor, kv\u016fli […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34212","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34212","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34212"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34212\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34212"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34212"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34212"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}