Nevyl\u00e9\u010diteln\u00e1, ale zastaviteln\u00e1. S roztrou\u0161enou\nskler\u00f3zou se l\u00e9ka\u0159i dodnes nepopasovali. Modern\u00ed l\u00e9ky p\u0159esto dok\u00e1\u017eou pr\u016fb\u011bh a\nprojevy nemoci potla\u010dit nebo zastavit. Dos\u00e1hnout by pacienti m\u011bli i na\nlevn\u011bj\u0161\u00ed konop\u00ed. Lid\u00e9 tak mohou \u017e\u00edt kvalitn\u00ed \u017eivot i bez nep\u0159\u00edjemn\u00fdch\np\u0159\u00edznak\u016f.<\/p>\n\n\n\n
Roztrou\u0161en\u00e1 skler\u00f3za je nemoc\u00ed mlad\u00fdch lid\u00ed. Propuk\u00e1 obvykle\nmezi 20.\u2013 40. rokem v\u011bku, kdy cht\u011bj\u00ed budovat kari\u00e9ru a zalo\u017eit rodinu. Nemoc\u00ed\ncelosv\u011btov\u011b trp\u00ed asi 2,5 milionu pacient\u016f, v \u010cesku se jejich po\u010det odhaduje na\n17 tis\u00edc. K l\u00e9ka\u0159i se obvykle vyd\u00e1vaj\u00ed p\u0159i ne\u010dekan\u00fdch zdravotn\u00edch obt\u00ed\u017e\u00edch.\nTypick\u00e9 je zhor\u0161en\u00ed zraku, pocit zaml\u017een\u00ed, dvojit\u00e9 vid\u011bn\u00ed a bolest o\u010d\u00ed.<\/p>\n\n\n\n
Tradi\u010dn\u00edmi probl\u00e9my jsou zhor\u0161en\u00ed ch\u016fze, neobratn\u00e9 ruce,\nbrn\u011bn\u00ed poloviny t\u011bla, mraven\u010den\u00ed v kon\u010detin\u00e1ch, sn\u00ed\u017een\u00e1 citlivost, rychl\u00e1 \u00fanava\n\u010di z\u00e1vra\u0165. Psychick\u00e9 poruchy jsou m\u00e9n\u011b \u010dast\u00e9, m\u016f\u017ee b\u00fdt naru\u0161eno soust\u0159ed\u011bn\u00ed,\n\u010dlov\u011bk m\u016f\u017ee zapom\u00ednat nebo obt\u00ed\u017en\u011b \u0159e\u0161\u00ed v\u0161edn\u00ed \u00fakoly.<\/p>\n\n\n\n
Pozor byste m\u011bli d\u00e1t i na nezn\u00e1m\u00e9 pot\u00ed\u017ee s mo\u010den\u00edm, kter\u00fdmi\ntrp\u00ed dev\u011bt pacient\u016f z deseti. Probl\u00e9mem je i nemo\u017enost se vypr\u00e1zdnit. U mu\u017e\u016f se\nnav\u00edc m\u016f\u017ee objevit porucha erekce. A to u\u017e by mohlo z pohovky zvednout i\nnejv\u011bt\u0161\u00edho peciv\u00e1la.<\/p>\n\n\n\n
Roztrou\u0161en\u00e1 skler\u00f3za bohu\u017eel nem\u00e1 jednozna\u010dn\u00e9 projevy, je\u017e by\nbyly jej\u00edm jasn\u00fdm indik\u00e1torem. Pokud se u v\u00e1s objevily jak\u00e9koliv neurologick\u00e9\np\u0159\u00edznaky trvaj\u00edc\u00ed d\u00e9le ne\u017e 24 hodin, m\u011bli byste nav\u0161t\u00edvit l\u00e9ka\u0159e. V\u010dasn\u00e1 l\u00e9\u010dba\nz\u00e1sadn\u011b ovliv\u0148uje pr\u016fb\u011bh nemoci i zdravotn\u00ed kondici, choroba je nav\u00edc\novlivniteln\u00e1 pouze v \u010dasn\u00e9 f\u00e1zi.<\/p>\n\n\n\n
L\u00e9\u010dba do m\u011bs\u00edce<\/p>\n\n\n\n
C\u00edlem l\u00e9\u010dby je zpomalen\u00ed \u010di zastaven\u00ed rozvoje nemoci,\npom\u00e1haj\u00ed p\u0159itom nov\u00e9 biologick\u00e9 l\u00e9ky. \u201eVysoce inovativn\u00ed l\u00e9\u010div\u00e9 p\u0159\u00edpravky\np\u0159edstavuj\u00ed pr\u016flom v progn\u00f3ze pacient\u016f. Ve v\u00fdvoji je aktu\u00e1ln\u011b 40 l\u00e9k\u016f i pro\nvy\u0161\u0161\u00ed stadia choroby. Ve v\u00fdzkumu jsou nav\u00edc i ty, kter\u00e9 maj\u00ed \u201aspravit\u2018\npo\u0161kozen\u00e1 nervov\u00e1 vl\u00e1kna a jejich obaly,\u201c \u0159\u00edk\u00e1 Jakub Dvo\u0159\u00e1\u010dek, v\u00fdkonn\u00fd \u0159editel\nAsociace inovativn\u00edho farmaceutick\u00e9ho pr\u016fmyslu.<\/p>\n\n\n\n
Onemocn\u011bn\u00ed u v\u011bt\u0161iny pacient\u016f vede k invalidit\u011b a p\u0159ed\u010dasn\u00e9mu \u00famrt\u00ed. Dnes se lid\u00e9 l\u00e9\u010d\u00ed ve vysoce specializovan\u00fdch centrech a u nov\u011b diagnostikovan\u00fdch mus\u00ed b\u00fdt modern\u00ed l\u00e9\u010dba zah\u00e1jena do jednoho m\u011bs\u00edce. Ne\u010dek\u00e1 se u\u017e na projevy choroby.<\/p>\n\n\n\n
\u201eExistuje velk\u00e1 skupina lid\u00ed, u kter\u00fdch se nemoc projevila\nji\u017e p\u0159ed \u0159adou let. Tedy v dob\u011b, kdy biologick\u00e1 l\u00e9\u010dba nebyla dostupn\u00e1. Vzhledem\nk tomu, \u017ee na\u0161e organizace pom\u00e1h\u00e1 nemocn\u00fdm s roztrou\u0161enou skler\u00f3zou ji\u017e 27 let,\nje mezi na\u0161imi \u010dleny hodn\u011b takov\u00fdch pacient\u016f. Ti takov\u00e9 \u0161t\u011bst\u00ed nemaj\u00ed a nem\u011bli.\nPosti\u017een\u00ed jejich pohybov\u00e9ho apar\u00e1tu je zna\u010dn\u00e9,\u201c uv\u00e1d\u00ed na webu Inovace pro \u017eivot\nJi\u0159ina Landov\u00e1 z pacientsk\u00e9 organizace Unie Roska.<\/p>\n\n\n\n
\u00dasp\u011bchy v l\u00e9\u010db\u011b vedou ke krat\u0161\u00edm pobyt\u016fm v nemocnic\u00edch a\nd\u00edky v\u010dasn\u00e9mu nasazen\u00ed vhodn\u00fdch biologick\u00fdch l\u00e9\u010div lze navodit dlouhodob\u00fd\nklidov\u00fd stav, tzv. remisi. \u201eP\u0159esto\u017ee po\u010det pacient\u016f s roztrou\u0161enou skler\u00f3zou\nnar\u016fst\u00e1, po\u010det akutn\u00edch hospitalizac\u00ed pr\u016fb\u011b\u017en\u011b kles\u00e1. Jen v obdob\u00ed let 2012 a\u017e\n2018 do\u0161lo k v\u00edce ne\u017e 40procentn\u00edmu poklesu hospitaliza\u010dn\u00edch dn\u00ed,\u201c vysv\u011btluje\nprofesor Ladislav Du\u0161ek, \u0159editel \u00dastavu zdravotnick\u00fdch informac\u00ed a statistiky \u010cR.<\/p>\n\n\n\n
Lid\u00e9 m\u00e9n\u011b marod\u00ed, v\u00edce pracuj\u00ed a ne\u010derpaj\u00ed tolik invalidn\u00ed d\u016fchody a soci\u00e1ln\u00ed d\u00e1vky. V roce 2013 pracovalo pouze 53,5 procenta pacient\u016f s roztrou\u0161enou skler\u00f3zou pod 65 let, loni tento pod\u00edl narostl na 74,9 procenta. <\/p>\n\n\n\n
\u201eNa t\u011bch, kte\u0159\u00ed maj\u00ed p\u0159\u00edstup k inovativn\u00ed l\u00e9\u010db\u011b, vesm\u011bs na prvn\u00ed pohled nepozn\u00e1te, \u017ee jsou nemocn\u00ed. Pracuj\u00ed, sportuj\u00ed, maj\u00ed d\u011bti. Maj\u00ed to \u0161t\u011bst\u00ed, \u017ee mohou \u017e\u00edt \u201aoby\u010dejn\u00fd\u2018 \u017eivot jako zdrav\u00ed lid\u00e9. Nelze ale \u0159\u00edci, \u017ee by nem\u011bli \u017e\u00e1dn\u00e9 zdravotn\u00ed obt\u00ed\u017ee, jen nemus\u00ed b\u00fdt viditeln\u00e9,\u201c uv\u00e1d\u00ed Landov\u00e1.<\/p>\n\n\n\n
Konop\u00ed od ledna dostupn\u011bj\u0161\u00ed <\/p>\n\n\n\n
Blahod\u00e1rn\u00fd vliv na stav nemocn\u00fdch maj\u00ed relaxace a kvalitn\u00ed\nsp\u00e1nek. Na chronick\u00e9 bolesti, k\u0159e\u010de i deprese ale \u00fa\u010dinkuje l\u00e9\u010debn\u00e9 konop\u00ed. Lid\u00e9\ns invalidn\u00edm d\u016fchodem si je nemohli doned\u00e1vna dovolit, proto\u017ee jeden gram st\u00e1l\nokolo 180 korun. Pr\u016fm\u011brn\u00e1 spot\u0159eba na jednoho pacienta je p\u0159itom 10 gram\u016f m\u011bs\u00ed\u010dn\u011b.<\/p>\n\n\n\n
Od 1. ledna ale maj\u00ed l\u00e9\u010debn\u00e9 konop\u00ed hrazen\u00e9 z 90 procent. \u201eNov\u011b\nbude doplatek jen p\u00e1r stovek, jako u jin\u00fdch l\u00e9k\u016f na chronick\u00e1 onemocn\u011bn\u00ed.\nPacient\u016fm, kte\u0159\u00ed doposud museli za l\u00e9\u010debn\u00e9 konop\u00ed platit vysok\u00e9 \u010d\u00e1stky a bylo\nto pro n\u011b velmi zat\u011b\u017euj\u00edc\u00ed, se tak v\u00fdrazn\u011b ulev\u00ed,\u201c uvedl ministr zdravotnictv\u00ed\nAdam Vojt\u011bch.<\/p>\n\n\n\n
Aby bylo konop\u00ed pro \u010desk\u00e9 pacienty dostupn\u011bj\u0161\u00ed, chce ministerstvo zdravotnictv\u00ed otev\u0159\u00edt mo\u017enost jeho p\u011bstov\u00e1n\u00ed. Dosud ho mohl p\u011bstovat pouze jeden subjekt, kter\u00fd vze\u0161el z\u00a0v\u00fdb\u011brov\u00e9ho \u0159\u00edzen\u00ed. Ministerstvo si slibuje, \u017ee v\u00edce producent\u016f vytvo\u0159\u00ed tlak na sn\u00ed\u017een\u00ed ceny a z\u00e1rove\u0148 se nestane, \u017ee by l\u00e9\u010divo nebylo dostupn\u00e9. Pacienti tak mohou bez obav po\u017e\u00e1dat sv\u00e9ho neurologa, aby jim l\u00e9\u010div\u00fd p\u0159\u00edpravek p\u0159edepsal.\u00a0 <\/p>\n\n\n\n
Po\u010dty pacient\u016f s roztrou\u0161enou skler\u00f3zou<\/p>\n\n\n\n
2012 \u2013 12 541 p\u0159\u00edpad\u016f<\/p>\n\n\n\n
2018 \u2013 17 730 p\u0159\u00edpad\u016f<\/p>\n\n\n\n
Odhad 2030 \u2013 27 000 p\u0159\u00edpad\u016f<\/p>\n\n\n\n
Zdroj: N\u00e1rodn\u00ed zdravotnick\u00fd informa\u010dn\u00ed syst\u00e9m<\/p>\n\n\n\n
Denis Draho\u0161<\/p>\n\n\n\n
T\u0159eb\u00ed\u010dsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/trebicsky.denik.cz\/<\/a> Nevyl\u00e9\u010diteln\u00e1, ale zastaviteln\u00e1. S roztrou\u0161enou skler\u00f3zou se l\u00e9ka\u0159i dodnes nepopasovali. Modern\u00ed l\u00e9ky p\u0159esto dok\u00e1\u017eou pr\u016fb\u011bh a projevy nemoci potla\u010dit nebo zastavit. Dos\u00e1hnout by pacienti m\u011bli i na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15130,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34274","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34274","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34274"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34274\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15130"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34274"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34274"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34274"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
<\/p>\n","protected":false},"excerpt":{"rendered":"