So\u0148a Bene\u0161ov\u00e1 z Horn\u00edho Slavkova onemocn\u011bla ve sv\u00fdch\nt\u0159ia\u010dty\u0159iceti letech c\u00e9vn\u00ed mozkovou p\u0159\u00edhodou a ochrnula. Velkou nad\u011bj\u00ed je pro\nni l\u00e9\u010dba kmenov\u00fdmi bu\u0148kami.<\/p>\n\n\n\n
\u010ctrn\u00e1ctilet\u00fd Mat\u011bj \u017didlick\u00fd z Ostrova trp\u00ed vz\u00e1cn\u00fdm\nAngelmanov\u00fdm syndromem. Ke zlep\u0161en\u00ed jeho stavu m\u016f\u017ee p\u0159isp\u011bt intenzivn\u00ed\nrehabilitace, b\u011bhem n\u00ed\u017e je vyu\u017e\u00edv\u00e1na metoda Therasuit. Karlovarsk\u00fd kraj se\nrozhodl ob\u011bma pomoci a vypsal sb\u00edrku.<\/p>\n\n\n\n
So\u0148u Bene\u0161ovou z Horn\u00edho Slavkova potkal velice t\u011b\u017ek\u00fd osud.\nPot\u00e9, co onemocn\u011bla a ochrnula, podlehl jej\u00ed man\u017eel rakovin\u011b. O mal\u00e9ho,\np\u011btilet\u00e9ho syna, kter\u00e9ho spole\u010dn\u011b vychov\u00e1vali, se nyn\u00ed star\u00e1 jej\u00ed sestra\nHelena. \u201eTa mne tak\u00e9 kontaktovala s t\u00edm, \u017ee jej\u00ed sest\u0159e hroz\u00ed, \u017ee ji p\u0159esunou\nna soci\u00e1ln\u00ed l\u016f\u017eko bez pot\u0159ebn\u00e9 zdravotn\u00ed p\u00e9\u010de. Proto jsem se domluvila s\nveden\u00edm REHOS v Nejdku na um\u00edst\u011bn\u00ed pan\u00ed Soni do na\u0161eho za\u0159\u00edzen\u00ed. D\u00edky tomu\nmohla za\u010d\u00edt v\u010das rehabilitovat a jej\u00ed zdravotn\u00ed stav se za\u010dal postupn\u011b\nzlep\u0161ovat. V\u00fdrazn\u011b pomoci by pak m\u011bla mlad\u00e9 mamince l\u00e9\u010dba kmenov\u00fdmi bu\u0148kami,\nkterou si ov\u0161em mus\u00ed zaplatit sama. V\u011b\u0159\u00edme proto, \u017ee i d\u00edky na\u0161\u00ed sb\u00edrce se pan\u00ed\nSo\u0148a op\u011bt brzy postav\u00ed na nohy a bude moci b\u00fdt se sv\u00fdm chlape\u010dkem,\u201c uvedla\nn\u00e1m\u011bstkyn\u011b hejtmana Karlovarsk\u00e9ho kraje Jana Mra\u010dkov\u00e1 Vildumetzov\u00e1.<\/p>\n\n\n\n
Ka\u017ed\u00fd, kdo bude cht\u00edt p\u0159isp\u011bt, m\u016f\u017ee libovoln\u00fd obnos vhodit do pokladni\u010dky,\nkter\u00e1 bude um\u00edst\u011bna na recepci krajsk\u00e9ho \u00fa\u0159adu. Pokladni\u010dka bude\nk dispozici rovn\u011b\u017e na akc\u00edch po\u0159\u00e1dan\u00fdch Karlovarsk\u00fdm krajem. Pen\u00edze lze\nodk\u00e1zat i na transparentn\u00ed bankovn\u00ed \u00fa\u010det, jeho\u017e \u010d\u00edslo je\n123-1774900277\/0100.<\/p>\n\n\n\n
Druh\u00e1 vyhl\u00e1\u0161en\u00e1 sb\u00edrka je v\u011bnov\u00e1na t\u011b\u017ece nemocn\u00e9mu Mat\u011bji \u017didlick\u00e9mu. Na\nsv\u011bt p\u0159i\u0161el v roce 2005 po bezprobl\u00e9mov\u00e9m t\u011bhotenstv\u00ed jako zcela\nzdrav\u00e9 miminko. Postupem \u010dasu v\u0161ak jeho rodi\u010de za\u010dali zji\u0161\u0165ovat, \u017ee s n\u00edm\nnen\u00ed \u00fapln\u011b v\u0161echno v po\u0159\u00e1dku. Po s\u00e9rii vy\u0161et\u0159en\u00ed byl Mat\u011bjovi\ndiagnostikov\u00e1n Angelman\u016fv syndrom, kter\u00fd pat\u0159\u00ed mezi vz\u00e1cn\u00e1 onemocn\u011bn\u00ed a\nv \u010cesk\u00e9 republice j\u00edm v sou\u010dasnosti trp\u00ed zhruba 40 d\u011bt\u00ed. Jedn\u00e1\nse o formu vrozen\u00e9ho genetick\u00e9ho onemocn\u011bn\u00ed, je\u017e sice nelze \u00fapln\u011b vyl\u00e9\u010dit,\nale jeho projevy se da\u0159\u00ed prost\u0159ednictv\u00edm vhodn\u00e9 p\u00e9\u010de a rehabilitace v\u00fdrazn\u011b\nzm\u00edr\u0148ovat.<\/p>\n\n\n\n
A\u00a0pr\u00e1v\u011b metoda Therasuit pat\u0159\u00ed mezi ty velmi \u00fa\u010dinn\u00e9. \u201eJedn\u00e1 se o\u00a0intenzivn\u00ed rehabilitaci, kter\u00e1 je vhodn\u00e1 pro pacienty s\u00a0neurologick\u00fdm posti\u017een\u00edm. Z\u00e1kladn\u00edm prvkem rehabilitace je speci\u00e1ln\u00ed oble\u010dek Therasuit. Umo\u017e\u0148uje pohyb ve v\u0161ech os\u00e1ch a zvy\u0161uje \u00fa\u010dinek cvi\u010den\u00ed. S\u00a0kolegy ve veden\u00ed kraje jsme se proto rozhodli, \u017ee Mat\u011bjovi pom\u016f\u017eeme a vyhl\u00e1s\u00edme pro n\u011bj ve\u0159ejnou sb\u00edrku. Stejn\u011b jako v\u00a0p\u0159edchoz\u00edm p\u0159\u00edpad\u011b mohou z\u00e1jemci nav\u0161t\u00edvit recepci krajsk\u00e9ho \u00fa\u0159adu, kde bude p\u0159ipravena pokladni\u010dka. Vozit ji budeme tak\u00e9 po krajsk\u00fdch akc\u00edch. Z\u0159\u00eddili jsme i\u00a0transparentn\u00ed \u00fa\u010det s\u00a0\u010d\u00edslem 123-1568640267\/0100, kam lze ji\u017e nyn\u00ed odes\u00edlat pen\u00edze. V\u0161em d\u00e1rc\u016fm ze srdce velice d\u011bkujeme,\u201c uzav\u0159ela Jana Mra\u010dkov\u00e1 Vildumetzov\u00e1. <\/p>\n\n\n\n
Roman Cichocki<\/p>\n\n\n\n
Chebsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/chebsky.denik.cz\/<\/a> So\u0148a Bene\u0161ov\u00e1 z Horn\u00edho Slavkova onemocn\u011bla ve sv\u00fdch t\u0159ia\u010dty\u0159iceti letech c\u00e9vn\u00ed mozkovou p\u0159\u00edhodou a ochrnula. Velkou nad\u011bj\u00ed je pro ni l\u00e9\u010dba kmenov\u00fdmi bu\u0148kami. \u010ctrn\u00e1ctilet\u00fd Mat\u011bj \u017didlick\u00fd […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19889,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34511","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34511","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34511"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34511\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19889"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34511"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34511"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34511"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
<\/p>\n","protected":false},"excerpt":{"rendered":"