Lid\u00e9 v Jihlav\u011b vys\u00e1zeli v parku za radnic\u00ed\nslune\u010dnice jako symbol nad\u011bje pro pacienty s roztrou\u0161enou skler\u00f3zou (RS).\nAkci uspo\u0159\u00e1dal spolek Roska Jihlava ve spolupr\u00e1ci s Nada\u010dn\u00edm fondem\nIMPULS. Nemocn\u00e9 p\u0159i\u0161li podpo\u0159it jejich bl\u00edzc\u00ed, l\u00e9ka\u0159i, z\u00e1stupci m\u011bsta a kraje\ni \u0161irok\u00e1 ve\u0159ejnost.<\/p>\n\n\n\n
\u201eJednou z my\u0161lenek leto\u0161n\u00edho Sv\u011btov\u00e9ho dne roztrou\u0161en\u00e9 skler\u00f3zy,\nk jeho\u017e p\u0159\u00edle\u017eitosti akci Rozsvi\u0165me \u010ceskou republiky po\u0159\u00e1d\u00e1me, je, \u017ee s\nroztrou\u0161enou skler\u00f3zou \u017eivot nekon\u010d\u00ed. To se t\u00fdk\u00e1 nejenom pacient\u016f, kte\u0159\u00ed se s\nnemoc\u00ed mus\u00ed nau\u010dit \u017e\u00edt a nevzd\u00e1vat to, ale tak\u00e9 lid\u00ed v jejich okol\u00ed,\u201c\nvysv\u011btluje Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS. \u201eSlune\u010dnice ka\u017ed\u00e9 r\u00e1no\not\u00e1\u010d\u00ed hlavu za sluncem vst\u0159\u00edc nov\u00e9 nad\u011bji \u2013 stejn\u011b jako lid\u00e9 s roztrou\u0161enou\nskler\u00f3zou. D\u011bkujeme proto v\u0161em, kte\u0159\u00ed n\u00e1s p\u0159i\u0161li vysazen\u00edm t\u011bchto \u017elut\u00fdch\nkv\u011btin podpo\u0159it. D\u00edky nim v\u00edme, \u017ee v tom nejsme sami,\u201c dod\u00e1v\u00e1 Jitka Ve\u010de\u0159ov\u00e1,\np\u0159edsedkyn\u011b spolku Unie Roska Jihlava.<\/p>\n\n\n\n
V parku za jihlavskou radnic\u00ed vysadili pacienti a jejich\npodporovatel\u00e9 slune\u010dnice u\u017e po\u010dtvrt\u00e9. Na podzim na s\u00e1zen\u00ed \u017elut\u00fdch kv\u011bt\u016f nav\u00e1\u017ee\ntradi\u010dn\u00ed v\u00fdtvarn\u00e1 sout\u011b\u017e, kter\u00e9 se ka\u017edoro\u010dn\u011b \u00fa\u010dastn\u00ed i d\u011bti z jihlavsk\u00e9\nmate\u0159sk\u00e9 \u0161kolky Ma\u0161inka.<\/p>\n\n\n\n
Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed\ncentr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu. P\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1m\u00e1. Propuk\u00e1 v\u011bt\u0161inou v\nmlad\u0161\u00edm v\u011bku, obvykle ji\u017e kolem t\u0159ic\u00e1t\u00e9ho roku \u017eivota. \u010cast\u011bji postihuje \u017eeny.\nProjevy RS jsou r\u016fznorod\u00e9, nej\u010dast\u011bji se objevuj\u00ed poruchy hybnosti a\ncitlivosti, posti\u017een\u00ed zraku, poruchy rovnov\u00e1hy, \u00fanava a bolest. Typick\u00e9 je\nst\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je\nnep\u0159edv\u00eddateln\u00fd, a proto je t\u011b\u017ek\u00e1 i l\u00e9\u010dba \u010di prevence. Nemoc se vyskytuje\np\u0159edev\u0161\u00edm ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory\nnemoci jsou krom\u011b genetick\u00e9 dispozice Epsteina-Barrov\u00e9 virus, kou\u0159en\u00ed a\nnedostatek vitaminu D. V \u010cesku se odhaduje po\u010det pacient\u016f s RS na dvaadvacet\ntis\u00edc.<\/p>\n\n\n\n
O Nada\u010dn\u00edm fondu IMPULS<\/p>\n\n\n\n
Nada\u010dn\u00ed fond IMPULS vznikl v roce 2000. Jeho c\u00edlem je\npodporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou\nskler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii,\nkter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e\nvzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU\nje z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS)\na jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na\nwww.nfimpuls.cz.<\/p>\n\n\n\n
O Unii ROSKA<\/p>\n\n\n\n
Posl\u00e1n\u00edm Unie ROSKA je pom\u00e1hat lidem s roztrou\u0161enou skler\u00f3zou\n\u017e\u00edt kvalitn\u00ed, d\u016fstojn\u00fd a plnohodnotn\u00fd \u017eivot. Unie ROSKA ve sv\u00e9 \u010dinnosti\nnav\u00e1zala na spolky Roska, kter\u00e9 v \u010cR vznikaly od roku 1983. Jako \u010cesk\u00e1 multiple\nsclerosis (MS) spole\u010dnost je aktivn\u00edm \u010dlenem mezin\u00e1rodn\u00ed federace MSIF a jej\u00ed\nevropsk\u00e9 platformy EMSP p\u0159i EU. Velice efektivn\u00ed je sv\u00e9pomoc posti\u017een\u00fdch,\nkterou realizuje \u0161estadvacet samostatn\u00fdch region\u00e1ln\u00edch spolk\u016f Roska. Unie ROSKA\nm\u00e1 celorepublikovou p\u016fsobnost ve v\u0161ech kraj\u00edch \u010cR a m\u00e1 asi tis\u00edc p\u011bt set \u010dlen\u016f.<\/p>\n\n\n\n
Veronika Ostr\u00e1<\/p>\n\n\n\n
Jihlavsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/jihlavsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Lid\u00e9 v Jihlav\u011b vys\u00e1zeli v parku za radnic\u00ed slune\u010dnice jako symbol nad\u011bje pro pacienty s roztrou\u0161enou skler\u00f3zou (RS). Akci uspo\u0159\u00e1dal spolek Roska Jihlava ve spolupr\u00e1ci s Nada\u010dn\u00edm fondem IMPULS. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":28428,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34535","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34535","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34535"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34535\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/28428"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34535"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34535"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}