Dev\u00edtilet\u00e1 Krist\u00fdna Va\u0148kov\u00e1 z jiho\u010desk\u00e9 Budislavi nem\u00e1\noby\u010dejn\u00e9 p\u0159\u00e1n\u00ed jako d\u00edvky v jej\u00edm v\u011bku. Nechce ani tablet, hra\u010dky \u010di\ndom\u00e1c\u00edho mazl\u00ed\u010dka. Kdy\u017e m\u011bla nakreslit sv\u016fj sen, odevzdala \u010dtvrtku\ns obr\u00e1zkem invalidn\u00edho voz\u00edku. Trp\u00ed toti\u017e vrozenou vadou, tzv. svalovou\ndystrofi\u00ed.<\/p>\n\n\n\n
Narodila se po nekomplikovan\u00e9m porodu jako vytou\u017een\u00e9 a\nzdrav\u00e9 d\u00edt\u011b. Doma na ni \u010dekala star\u0161\u00ed sestra Tereza. Vyv\u00edjela se bez\nzdravotn\u00edch komplikac\u00ed, nebyla ani \u010dasto nemocn\u00e1. Jak zm\u00ednila matka Petra\nVa\u0148kov\u00e1, od za\u010d\u00e1tku se projevovala velmi inteligentn\u011b. \u201eU\u017e\u00edvali jsme si s\nman\u017eelem b\u011b\u017en\u00e9 starosti, kter\u00fdm se dnes u\u017e smutn\u011b sm\u011bjeme,\u201c zhodnotila, jak\nbyly ve srovn\u00e1n\u00ed se sou\u010dasnost\u00ed ban\u00e1ln\u00ed.<\/p>\n\n\n\n
Viditeln\u00e9 zm\u011bny a diagn\u00f3za<\/p>\n\n\n\n
Krist\u00fdna se toti\u017e postupn\u011b za\u010dala m\u011bnit p\u0159ed o\u010dima. \u201eKolem\np\u00e1t\u00e9ho roku jsem zpozorovala zhor\u0161uj\u00edc\u00ed se ch\u016fzi,\u201c vzpom\u00edn\u00e1 Petra Va\u0148kov\u00e1.\n\u201eKrist\u00fdnka se kol\u00e9bala a ze zem\u011b \u010di d\u0159epu vst\u00e1vala zvl\u00e1\u0161tn\u00edm zp\u016fsobem, \u010dasto\npadala a probl\u00e9my j\u00ed d\u011blaly i schody \u010di n\u00e1stup do dopravn\u00edho prost\u0159edku,\u201c\np\u0159ibl\u00ed\u017eila po\u010d\u00e1te\u010dn\u00ed p\u0159\u00edznaky onemocn\u011bn\u00ed.<\/p>\n\n\n\n
Ustaran\u00ed rodi\u010de proto nav\u0161t\u00edvili \u0159adu l\u00e9ka\u0159\u016f, a nakonec\ngenetick\u00e9 testy odhalily vrozenou vadu. \u201eJde o takzvanou pletencovou svalovou\ndystrofii. Zp\u016fsobuje postupn\u00e9 ochabov\u00e1n\u00ed svalstva, hlavn\u011b doln\u00edch kon\u010detin.\nNemoc ale postupn\u011b \u00fato\u010d\u00ed i na trupov\u00e9 a b\u0159i\u0161n\u00ed svalstvo. \u010casem m\u016f\u017ee zas\u00e1hnout i\nd\u00fdchac\u00ed a srde\u010dn\u00ed svaly,\u201c popsala mo\u017en\u00fd v\u00fdvoj dce\u0159iny diagn\u00f3zy.<\/p>\n\n\n\n
Rychl\u00fd sp\u00e1d<\/p>\n\n\n\n
Nejt\u011b\u017e\u0161\u00ed ranou bylo sd\u011blen\u00ed odborn\u00edk\u016f, \u017ee \u00fa\u010dinn\u00e1 l\u00e9\u010dba\nneexistuje a nemoc m\u00e1 rychl\u00fd sp\u00e1d. Na slzy a zoufalstv\u00ed nebyl \u010das. Rodina\np\u0159ehodnotila pl\u00e1ny i vize do budoucnosti. \u201eZe v\u0161eho nejd\u016fle\u017eit\u011bj\u0161\u00ed je pro n\u00e1s\nzpomalen\u00ed nemoci,\u201c upozornila Petra Va\u0148kov\u00e1. \u201eK tomu je t\u0159eba ka\u017edodenn\u00ed\nposilov\u00e1n\u00ed svalstva, p\u0159edev\u0161\u00edm Achillov\u00fdch \u0161lach. Doch\u00e1z\u00edme na fyzioterapii a\nergoterapii. Cvi\u010d\u00edme Vojtovu metodu, pom\u00e1h\u00e1 i plav\u00e1n\u00ed \u010di hipoterapie,\u201c\nvyjmenovala mo\u017enosti.<\/p>\n\n\n\n
I p\u0159es anga\u017eovanost rodi\u010d\u016f je Krist\u00fdna z\u00e1visl\u00e1 na pomoci\ndruh\u00fdch. \u201eCht\u011bli bychom s man\u017eelem T\u00fdnce dop\u0159\u00e1t tro\u0161ku samostatnosti alespo\u0148 v\ntom, aby se doma mohla svobodn\u011b pohybovat pomoc\u00ed elektrick\u00e9ho voz\u00edku,\u201c podotkla\nPetra Va\u0148kov\u00e1. V\u00fddaje za rehabilitaci a cvi\u010den\u00ed s v\u011bkem stoupaj\u00ed, ne v\u0161echno je\nhrazeno z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed. \u201ePracuji na zkr\u00e1cen\u00fd \u00favazek, jen\ndopoledne, kdy\u017e je Krist\u00fdnka ve \u0161kole,\u201c up\u0159esnila s t\u00edm, \u017ee si finan\u010dn\u011b takovou\npom\u016fcku nemohou dovolit. Elektrick\u00fd voz\u00edk za t\u00e9m\u011b\u0159 80 tis\u00edc je nad s\u00edly\nrodinn\u00e9ho rozpo\u010dtu.<\/p>\n\n\n\n
Podpora od p\u0159\u00edtelkyn\u011b<\/p>\n\n\n\n
Hol\u010di\u010dka s odzbrojuj\u00edc\u00edm \u00fasm\u011bvem na\u0161la spojence a kamar\u00e1dku\nv Han\u011b Guidov\u00e9. \u201eZn\u00e1m ji od narozen\u00ed, s maminkou se p\u0159\u00e1tel\u00edme l\u00e9ta,\u201c uvedla\nvazbu. \u201eStrach o vlastn\u00ed d\u00edt\u011b je nep\u0159enosn\u00fd, ale i tak s nimi v\u0161e pro\u017e\u00edv\u00e1m.\nKrist\u00fdnka samoz\u0159ejm\u011b netu\u0161\u00ed, jak k\u0159ehk\u00e1 je jej\u00ed budoucnost. Je nesm\u00edrn\u011b mil\u00e1,\nskromn\u00e1 a sna\u017eiv\u00e1. Miluje u\u010den\u00ed a v\u0161e ji zaj\u00edm\u00e1. Nyn\u00ed m\u011bla na vysv\u011bd\u010den\u00ed sam\u00e9\njedni\u010dky. Svoje postupuj\u00edc\u00ed zdravotn\u00ed omezen\u00ed ve sv\u00e9m v\u011bku p\u0159ij\u00edm\u00e1 s neb\u00fdvalou\npokorou,\u201c shrnula.<\/p>\n\n\n\n
Z t\u011bchto d\u016fvod\u016f se Hana Guidov\u00e1 rozhodla st\u00e1t se jej\u00ed\npatronkou a podpo\u0159it mat\u010dinu \u017e\u00e1dost o pomoc v charitativn\u00edm projektu zalo\u017een\u00e9m\nNadac\u00ed Sirius. Na str\u00e1nk\u00e1ch Patron d\u011bt\u00ed byl zve\u0159ejn\u011bn jej\u00ed p\u0159\u00edb\u011bh a nyn\u00ed m\u016f\u017ee\n\u0161irok\u00e1 ve\u0159ejnost Krist\u00fdnce pomoci splnit jej\u00ed sen a p\u0159isp\u011bt j\u00ed na voz\u00edk. \u201eD\u00edky\nn\u011bmu by mohla b\u00fdt sob\u011bsta\u010dn\u011bj\u0161\u00ed a svobodn\u011bj\u0161\u00ed, co\u017e si rozhodn\u011b zaslou\u017e\u00ed,\u201c m\u00edn\u00ed\nHana Guidov\u00e1. Sb\u00edrka na webu potrv\u00e1 je\u0161t\u011b m\u011bs\u00edc, zat\u00edm se poda\u0159ilo d\u00edky \u0161t\u011bdr\u00fdm\nd\u00e1rc\u016fm vybrat \u010d\u00e1stku 23 055 korun.<\/p>\n\n\n\n
ODKAZ NA SB\u00cdRKU<\/p>\n\n\n\n
Patron d\u011bt\u00ed<\/p>\n\n\n\n
Je online charitativn\u00ed projekt zalo\u017een\u00fd Nadac\u00ed Sirius, kter\u00fd\npom\u00e1h\u00e1 rodin\u00e1m s nezletil\u00fdmi d\u011btmi se zdravotn\u00edm a soci\u00e1ln\u00edm znev\u00fdhodn\u011bn\u00edm. Od\nsv\u00e9ho vzniku v roce 2017 podpo\u0159il v\u00edce ne\u017e 2 876 d\u011btsk\u00fdch p\u0159\u00edb\u011bh\u016f, na kter\u00e9 se\nslo\u017eilo t\u00e9m\u011b\u0159 20 000 lid\u00ed \u010d\u00e1stkou p\u0159evy\u0161uj\u00edc\u00ed 37,2 milionu korun. Jakmile je\nvypsan\u00e1 c\u00edlov\u00e1 \u010d\u00e1stka napln\u011bna, po\u0159\u00edd\u00ed za ni Patron d\u011bt\u00ed v\u011bcn\u00fd dar nebo slu\u017ebu,\nna kterou se d\u00e1rci skl\u00e1dali. Rodina tedy nez\u00edsk\u00e1v\u00e1 pen\u00edze, ale dar, o kter\u00fd\npo\u017e\u00e1dala. Na pomoc konkr\u00e9tn\u00edmu d\u00edt\u011bti jde p\u0159itom 100 procent vybran\u00fdch\nprost\u0159edk\u016f. Provoz projektu je pln\u011b hrazen Nadac\u00ed Sirius. V\u0161ichni \u017eadatel\u00e9,\npatroni i dodavatel\u00e9 jsou p\u0159itom pe\u010dliv\u011b prov\u011b\u0159ov\u00e1ni odd\u011blen\u00ed risku, aby se\npomoc dostala skute\u010dn\u011b jen k pot\u0159ebn\u00fdm. V sou\u010dasn\u00e9 dob\u011b poskytuje Patron d\u011bt\u00ed\nrovn\u011b\u017e mimo\u0159\u00e1dnou pomoc rodin\u00e1m s d\u011btmi do 18 let, kter\u00e9 jsou zasa\u017eeny\nkoronavirovou kriz\u00ed.<\/p>\n\n\n\n
Lenka Posp\u00ed\u0161ilov\u00e1<\/p>\n\n\n\n
Prachatick\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/prachaticky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Dev\u00edtilet\u00e1 Krist\u00fdna Va\u0148kov\u00e1 z jiho\u010desk\u00e9 Budislavi nem\u00e1 oby\u010dejn\u00e9 p\u0159\u00e1n\u00ed jako d\u00edvky v jej\u00edm v\u011bku. Nechce ani tablet, hra\u010dky \u010di dom\u00e1c\u00edho mazl\u00ed\u010dka. Kdy\u017e m\u011bla nakreslit sv\u016fj sen, odevzdala […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24717,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34553","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34553","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34553"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34553\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24717"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34553"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34553"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34553"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}