Co v\u0161echno obn\u00e1\u0161\u00ed \u017eivot s autistick\u00fdm d\u00edt\u011btem, jak\u00e9 p\u0159in\u00e1\u0161\u00ed \u00fatrapy a jak\u00e9 okam\u017eiky \u0161t\u011bst\u00ed, jak to v\u0161echno prom\u011bnila doba koronavirov\u00e1? Hostem CT24 je redaktor Respektu a otec \u010dtrn\u00e1ctilet\u00e9 Dorotky Petr T\u0159e\u0161\u0148\u00e1k, kter\u00fd se svou \u017eenu napsal o v\u00fdchov\u011b d\u00edt\u011bte s poruchou autistick\u00e9ho spektra knihu, nazvali ji Zvuky probouzen\u00ed. Report\u00e1\u017e CT24
moder\u00e1torka
Jak\u00e9 zvuky v\u00e1s probouzej\u00ed?
Petr T\u0158E\u0160\u0147\u00c1K, redaktor Respektu; autor knihy Zvuky probouzen\u00ed
Ten n\u00e1zev je takov\u00e1 metafora. V doslovn\u00e9m v\u00fdznamu to odkazuje ke zvuk\u016fm Dorot\u010dina sebepo\u0161kozov\u00e1n\u00ed, kter\u00fd jednu dobu m\u011blo pom\u011brn\u011b intenzivn\u00ed podobu. Ona tak jakoby fackovala sama sebe. A \u010dasto se s t\u00edm budila v noci, tak\u017ee n\u00e1s ty zvuky probouzely, to je vlastn\u011b ten doslovn\u00fd v\u00fdznam t\u00fd knihy. <\/p>\n\n\n\n
moder\u00e1torka
Vn\u00edm\u00e1 autista to, co se d\u011bje kolem Covidu 19 stejn\u011b jako my nebo jinak, nebo ho to \u00fapln\u011b m\u00edj\u00ed?
Petr T\u0158E\u0160\u0147\u00c1K,
On ten autismus je trochu o\u0161emetn\u00fd v tom, jak u\u017e ten ofici\u00e1ln\u00ed n\u00e1zev porucha autistick\u00e9ho spektra napov\u00edd\u00e1, \u017ee t\u011bch podob je skute\u010dn\u011b mnoho a jsou hodn\u011b rozli\u010dn\u00e9, tak\u017ee na\u0161e dcera, kter\u00e1 m\u00e1 typ autismu, jemu\u017e se d\u0159\u00edv \u0159\u00edkalo n\u00edzkofunk\u010dn\u00ed, znamen\u00e1 to v podstat\u011b jako komunikuje t\u00e9m\u011b\u0159 v\u016fbec, velmi omezen\u011b a m\u00e1 n\u011bjak\u00fd intelektu\u00e1ln\u00ed handicap, tak j\u00e1 si mysl\u00edm, \u017ee ona ten COVID zaznamenala jenom v t\u011bch n\u00e1sledn\u00fdch projevech, jako \u017ee p\u0159estala chodit do \u0161koly a byla v\u00edc s n\u00e1ma. A u lid\u00ed, kte\u0159\u00ed maj\u00ed t\u0159eba Asperger\u016fv syndrom a maj\u00ed norm\u00e1ln\u00ed inteligenci, tak samoz\u0159ejm\u011b to pro\u017e\u00edv\u00e1n\u00ed je \u00fapln\u011b jin\u00e9, proto\u017ee sleduj\u00ed zpr\u00e1vy a podobn\u011b jako my pro\u017e\u00edvaj\u00ed \u00fazkosti nebo strachy, tak\u017ee je to velmi rozd\u00edln\u00e9, ale Dorotce \u00fapln\u011b do hlavy nevid\u00edm, nicm\u00e9n\u011b se domn\u00edv\u00e1m, \u017ee sp\u00ed\u0161 vn\u00edm\u00e1 to, \u017ee se zm\u011bnil velmi v\u00fdrazn\u011b jej\u00ed denn\u00ed re\u017eim.
moder\u00e1torka
Vid\u011bla v\u00e1s t\u0159eba n\u011bkdy v rou\u0161ce, nem\u011bla s t\u00edm probl\u00e9m, neptala se nebo …
Petr T\u0158E\u0160\u0147\u00c1K,
Divila se.
moder\u00e1torka
Divila se?
Petr T\u0158E\u0160\u0147\u00c1K,
Nejv\u00edce se divila tomu, \u017ee jsme se sna\u017eili tu rou\u0161ku nasadit j\u00ed, co\u017e nebylo \u00fasp\u011b\u0161n\u00e9 a stejn\u011b tak se to neda\u0159ilo mnoh\u00fdm dal\u0161\u00edm rodi\u010d\u016fm, a proto jsme s na\u0161\u00ed organizac\u00ed postupn\u011b se n\u00e1m povedlo vylobbovat vlastn\u011b tu z\u00e1konnou, nebo z\u00e1konnou \u00fdjimku z no\u0161en\u00ed rou\u0161ek, ano.
moder\u00e1torka
Jak je to s jej\u00edm vyu\u010dov\u00e1n\u00ed v dob\u011b koronaviru? Je to tedy jin\u00e9 t\u00edm, \u017ee nechod\u00ed do \u0161koly, mus\u00ed se u\u010dit doma. Jak n\u00e1ro\u010dn\u00e9 to je pro v\u00e1s?
Petr T\u0158E\u0160\u0147\u00c1K,
ono s t\u00edm vyu\u010dov\u00e1n\u00edm u takhle v\u00e1\u017en\u011b posti\u017een\u00e9ho d\u00edt\u011bte je to trochu odli\u0161n\u00e9 t\u0159eba od d\u011bt\u00ed s autismem, kter\u00e9 chod\u00ed v r\u00e1mci inkluze do b\u011b\u017en\u00fdch \u0161kol. Dorotka chod\u00ed do speci\u00e1ln\u00ed \u0161koly a ten vzd\u011bl\u00e1vac\u00ed program se zam\u011b\u0159uje t\u0159eba na rozvoj jemn\u00e9 motoriky, tak\u017ee r\u016fzn\u011b d\u011bl\u00e1 takov\u00fd drobn\u00fd v\u011bci, d\u00e1 se to asi p\u0159irovnat k tomu, co t\u0159eba d\u011blaj\u00ed odrostl\u00e1 batolata nebo tak podobn\u011b. My jsme se o to u\u017e te\u010f moc nesna\u017eili, proto\u017ee jsme se o to sna\u017eili asi 10 let a do\u0161li jsme tak trochu na konec sv\u00fdch sil, ale sp\u00ed\u0161 jsme se v\u011bnovali tomu, aby byla v pohod\u011b, to znamen\u00e1, \u017ee jsme hodn\u011b s n\u00ed chodili na proch\u00e1zky a n\u011bjak jsme se sna\u017eili j\u00ed harmonizovat a to vzd\u011bl\u00e1v\u00e1n\u00ed jsme pro t\u011bch p\u00e1r t\u00fddn\u016f odlo\u017eil stranou. Spousta jin\u00fdch rodin se pokou\u0161ela d\u011blat to nejlep\u0161\u00ed.<\/p>\n\n\n\n
moder\u00e1torka
Kdy\u017e jste pochopil, vy a va\u0161e \u017eena, \u017ee s va\u0161\u00ed dcerou je n\u011bco jinak, ne\u017e by m\u011blo b\u00fdt?
Petr T\u0158E\u0160\u0147\u00c1K,
Moje \u017eena to pochopila mnohem d\u0159\u00edv nebo si to za\u010dla, sp\u00ed\u0161 za\u010dala m\u00edt podez\u0159en\u00ed mnohem d\u0159\u00edv, proto\u017ee Dorotka byla trochu odli\u0161n\u00e1 u\u017e jako miminko v takov\u00fdch velmi jemn\u00fdch projevech vztahov\u00e1n\u00ed se. N\u011bkdy kolem roku a p\u016fl se ten v\u00fdvoj celkem v\u00fdrazn\u011b odch\u00fdlil od t\u00e9 standardn\u00ed normy a \u0159ekl bych, \u017ee t\u00edm nejvarovn\u011bj\u0161\u00edm projevem, kter\u00fd n\u00e1m dal poc\u00edtit, \u017ee skute\u010dn\u011b to bude asi jinak, bylo to, \u017ee m\u011bla z\u00e1rodky \u0159e\u010di, tak\u017ee \u0159\u00edkala jednoslabi\u010dn\u00e1 slova a tuhle schopnost za\u010dala pak ztr\u00e1cet v jeden moment a tam u\u017e n\u00e1m do\u0161lo, \u017ee to skute\u010dn\u011b nen\u00ed jako n\u011bjak\u00e9 b\u011b\u017en\u00e9 opo\u017ed\u011bn\u00ed, kter\u00e9 se do\u017eene, ale je to n\u011bco zvl\u00e1\u0161tn\u00edho, n\u011bco v\u00e1\u017en\u011bj\u0161\u00edho.
moder\u00e1torka
Co v\u00e1s napadlo v tu prvn\u00ed chv\u00edli, kdy\u017e jste se dozv\u011bd\u011bl diagn\u00f3zu, prob\u011bhla tam takov\u00e1 ta v\u011bta, pro\u010d zrovna na\u0161e d\u00edt\u011b?
Petr T\u0158E\u0160\u0147\u00c1K,
Asi jo, ono je to docela dlouho, tak\u017ee ur\u010dit\u011b tuhle ot\u00e1zku si \u010dlov\u011bk klade. Sna\u017e\u00ed se zjistit v\u0161emo\u017en\u00e9 informace, aby si to n\u011bjak za\u0159adil do kontextu, ale zase ten autismus je takov\u00e1 zvl\u00e1\u0161tn\u00ed diagn\u00f3za, \u017ee ono i to d\u00edt\u011b, kter\u00e9 tu diagn\u00f3zu dostane, se m\u016f\u017ee relativn\u011b hodn\u011b rozvinout, \u010dili rodiny jako my pom\u011brn\u011b dlouho doufaj\u00ed v z\u00e1sadn\u00ed obrat, o \u010dem\u017e vypr\u00e1v\u00ed \u010d\u00e1st t\u00e9 knihy, kterou jsme napsali, tak\u017ee si mysl\u00edm, \u017ee v \u010dase, kdy j\u00ed byla p\u0159id\u011blena diagn\u00f3za, jsme furt doufali, \u017ee jej\u00ed v\u00fdvoj p\u016fjde v\u00edce dop\u0159edu, ne\u017e se nakonec potom uk\u00e1zala realita.
moder\u00e1torka
Vy v t\u00e9 knize knize p\u00ed\u0161ete, \u017ee sta\u010d\u00ed jen m\u00e1lo a zv\u00ed\u0159e ve v\u00e1s p\u0159evezme vl\u00e1du docela, z toho jde a\u017e strach, jak to ud\u011blat, aby to zv\u00ed\u0159e nezv\u00edt\u011bzilo?
Petr T\u0158E\u0160\u0147\u00c1K,
Tam k tomu jenom dod\u00e1m ten kontext, \u017ee Dorotka t\u00e9m\u011b\u0159 nespala n\u011bkolik let a do toho byla velice hyperaktivn\u00ed, neklidn\u00e1 a sebepo\u0161kozovala se, tak\u017ee vlastn\u011b to zv\u00ed\u0159e se dost\u00e1valo ke slovu postupn\u011b chronick\u00fdm vy\u010derp\u00e1n\u00edm a nevysp\u00e1n\u00edm, a to, na co jsme s moj\u00ed \u017eenou p\u0159i\u0161li, bylo, \u017ee tu p\u00e9\u010di pot\u0159ebujeme sd\u00edlet s d\u016fv\u011bryhodn\u00fdmi lidmi, tak\u017ee jsme potom vlastn\u011b nejenom \u0161kolka, \u0161kola, ale za\u0159adili jsme do na\u0161eho \u017eivota asistenty, dobrovoln\u00edky, odleh\u010dovac\u00ed pobyty a sna\u017eili jsme se si uchovat n\u011bjak\u00fd \u010das pro norm\u00e1ln\u00ed \u017eivot, abysme z\u016fstali v dobr\u00e9 kondici a nepodl\u00e9hali impuls\u016fm zv\u00ed\u0159ec\u00edm.
moder\u00e1torka
J\u00e1 jsem \u010detla, \u017ee zlep\u0161en\u00ed p\u0159inesla a\u017e va\u0161e \u00fa\u010dast na a\u017e indi\u00e1nsk\u00fdch n\u00e1bo\u017eensk\u00fdch ritu\u00e1lech, kter\u00e9 v\u00e1m pomohly va\u0161\u00ed situaci p\u0159ijmout. M\u016f\u017eete mi popsat, co p\u0159esn\u011b obn\u00e1\u0161\u00ed takov\u00fd ritu\u00e1l?
Petr T\u0158E\u0160\u0147\u00c1K,
V t\u00e9 knize je takov\u00e1 \u010d\u00e1st v\u011bnovan\u00e1 hled\u00e1n\u00ed uzdraven\u00ed Dorotky, kter\u00e9 potom bych \u0159ekl \u00fast\u00ed sp\u00ed\u0161 v n\u011bjak\u00e9 ne snad uzdraven\u00ed, ale l\u00e9\u010den\u00ed sv\u00fdch vlastn\u00edch pochybnost\u00ed a strach\u016f. V r\u00e1mci toho jsme se z\u00fa\u010dastnili takov\u00e9ho celono\u010dn\u00edho ritu\u00e1lu v t\u00fdp\u00ed s nava\u017esk\u00fdm, tradi\u010dn\u00edm nava\u017esk\u00fdm medicimanem, kter\u00fd obn\u00e1\u0161el hlavn\u011b zp\u011bv, bubnov\u00e1n\u00ed a modlitby. Byla to takov\u00e1 epizoda v tom na\u0161em hled\u00e1n\u00ed. A mn\u011b to tehdy p\u0159ineslo n\u011bjak\u00fd, \u0159ekl bych lep\u0161\u00ed vhled do toho, co vlastn\u011b kolem toho posti\u017een\u00ed pro\u017e\u00edv\u00e1m, co\u017e bych \u0159ekl, \u017ee je \u00fast\u0159edn\u00ed t\u00e9ma t\u00fd knihy. Ona nen\u00ed tolik o autismu, ale mysl\u00edm si, \u017ee ta hlavn\u00ed linka je ten rodi\u010dovsk\u00fd vnit\u0159n\u00ed sv\u011bt a takov\u00e1 dynamika v\u00fdvoje vedle v\u00e1\u017en\u011b posti\u017een\u00e9ho d\u00edt\u011bte, co\u017e bylo n\u011bco, co jsme cht\u011bli sd\u011blit prim\u00e1rn\u011b, proto\u017ee jsme m\u011bli dojem, \u017ee tohleto t\u00e9ma je takov\u00e9 trochu p\u0159ehl\u00ed\u017een\u00e9 v cel\u00e9m tom kontextu zdravotn\u00edho posti\u017een\u00ed.
moder\u00e1torka
Kdybyste m\u011bl \u0159\u00edct jednu z\u00e1sadn\u00ed v\u011bc, kter\u00e1 v\u00e1s obohatila d\u00edky tomu \u017eivotu s va\u0161\u00ed autistickou dcerou, je n\u011bco takov\u00e9ho, co v\u00e1m p\u0159ineslo vlastn\u011b n\u011bco, co byste do t\u00e9 doby nikdy neza\u017eil, ale je to pozitivn\u00ed?
Petr T\u0158E\u0160\u0147\u00c1K,
Toho pozitivn\u00edho je tam spousta, proto\u017ee Dorotka je jednak velice kouzeln\u00e1 speci\u00e1ln\u00ed bytost, tak\u017ee s n\u00ed za\u017eijete spoustu unik\u00e1tn\u00edch okam\u017eik\u016f, kter\u00e9, kter\u00e9 v\u00e1s b\u011b\u017en\u011b nepotkaj\u00ed. A co se t\u00fd\u010de toho m\u00e9ho pozn\u00e1n\u00ed, \u010dlov\u011bk se asi b\u011bhem toho \u017eivota u\u010d\u00ed postupn\u011b smi\u0159ovat s n\u011bjak\u00fdmi nevyhnuteln\u00fdm okolnostmi, kter\u00e9 p\u0159ich\u00e1zej\u00ed s v\u011bkem nebo s r\u016fzn\u00fdmi ud\u00e1lostmi. Ten autismus v\u00e1s do toho uvrhne tak n\u011bjak jako d\u0159\u00edv, ta v\u00e1\u017en\u00e1 nemoc vlastn\u00edho d\u00edt\u011bte je samoz\u0159ejm\u011b n\u011bco, s \u010d\u00edm se vyrovn\u00e1v\u00e1 t\u011b\u017eko, ale \u010dlov\u011bku nic jin\u00fdho moc nezb\u00fdv\u00e1, tak\u017ee bych \u0159ekl asi takov\u00fd p\u0159ij\u00edm\u00e1n\u00ed toho, co p\u0159ich\u00e1z\u00ed, ani\u017e by \u010dlov\u011bk rezignoval na snahu to n\u011bjak zm\u011bnit k lep\u0161\u00edmu a hledal n\u011bjak\u00fd balanc mezi t\u011bmito dv\u011bma principy.
<\/p>\n\n\n\n
moder\u00e1torka
Tak j\u00e1 p\u0159eju, aby se v\u00e1m da\u0159ilo po\u0159\u00e1d ten balanc nach\u00e1zet. D\u011bkuju za to, \u017ee jste byl hostem Ud\u00e1lost\u00ed, koment\u00e1\u0159\u016f. Na shledanou.
<\/p>\n","protected":false},"excerpt":{"rendered":"
Co v\u0161echno obn\u00e1\u0161\u00ed \u017eivot s autistick\u00fdm d\u00edt\u011btem, jak\u00e9 p\u0159in\u00e1\u0161\u00ed \u00fatrapy a jak\u00e9 okam\u017eiky \u0161t\u011bst\u00ed, jak to v\u0161echno prom\u011bnila doba koronavirov\u00e1? Hostem CT24 je redaktor Respektu […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21853,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,9],"tags":[],"class_list":["post-34802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34802"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34802\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21853"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}