Otoky kloub\u016f a obli\u010deje, modr\u00e1n\u00ed kon\u010detin, neschopnost cokoli udr\u017eet v ruce, pohybov\u00e9 pot\u00ed\u017ee, du\u0161nost \u2013 tyto probl\u00e9my za\u010daly 48letou Lenku su\u017eovat p\u0159ed p\u011bti lety.
V t\u00e9 dob\u011b nav\u00edc proch\u00e1zela t\u011b\u017ek\u00fdm rozvodem.<\/p>\n\n\n\n
Posti\u017een\u00ed k\u016f\u017ee se zpo\u010d\u00e1tku projevuje zejm\u00e9na na rukou, kter\u00e9 ot\u00e9kaj\u00ed, tuhnou a ztlu\u0161\u0165uje se na nich k\u016f\u017ee. Poko\u017eka p\u016fsob\u00ed leskle, je napjat\u00e1 a tuh\u00e1. Na po\u010d\u00e1tku mohou tyto projevy p\u0159ipom\u00ednat rann\u00ed ztuhlosti p\u0159i artritid\u011b.<\/p>\n\n\n\n
„Bylo to pro m\u011b velmi komplikovan\u00e9 obdob\u00ed. \u0158e\u0161ila jsem rozvod a do toho najednou p\u0159i\u0161ly zdravotn\u00ed probl\u00e9my. Nejd\u0159\u00edv jsem si \u0159\u00edkala, \u017ee je to asi stresem, ale st\u00e1le se to zhor\u0161ovalo,“ vzpom\u00edn\u00e1 Lenka. Nav\u0161t\u00edvila proto sv\u00e9ho praktick\u00e9ho l\u00e9ka\u0159e, kter\u00fd j\u00ed sd\u011blil, \u017ee m\u00e1 s nejv\u011bt\u0161\u00ed pravd\u011bpodobnost\u00ed revmatoidn\u00ed artritidu. Jej\u00ed stav se ale ani po nasazen\u00ed l\u00e9k\u016f nezlep\u0161il.<\/p>\n\n\n\n
PO\u010cTY<\/p>\n\n\n\n
V \u010cesku nemoc\u00ed trp\u00ed 600\u2013800 pacient\u016f. Nemoc se m\u016f\u017ee projevit v jak\u00e9mkoli v\u011bku, ale nej\u010dast\u011bji to b\u00fdv\u00e1 u \u017een mezi 30. a 50. rokem.<\/p>\n\n\n\n
Ro\u010dn\u011b u n\u00e1s l\u00e9ka\u0159i objev\u00ed a\u017e dva nov\u00e9 pacienty na 100 000 obyvatel.<\/p>\n\n\n\n
„Sta\u010dilo, abych vy\u0161la schody do bytu, a u\u017e jsem nemohla popadnout dech. M\u011bla jsem otekl\u00fd obli\u010dej a ruce, kone\u010dky prst\u016f mi zmodraly, zhor\u0161ila se mi jemn\u00e1 motorika, \u0161patn\u011b se mi pohybovalo, vst\u00e1v\u00e1n\u00ed a sed\u00e1n\u00ed byl probl\u00e9m, m\u011bla jsem bolesti. Pracovala jsem v textiln\u00ed firm\u011b, tak\u017ee ruce byly m\u00fdm hlavn\u00edm pracovn\u00edm n\u00e1strojem, kter\u00fd mi ale vypov\u011bd\u011bl slu\u017ebu. Skon\u010dila jsem proto na neschopence.“<\/p>\n\n\n\n
Kv\u016fli du\u0161nosti a \u0161patn\u00e9 pohyblivost\u00ed p\u0159estala sportovat, za\u010dala p\u0159ib\u00edrat, k tomu se p\u0159idaly probl\u00e9my se \u0161t\u00edtnou \u017el\u00e1zou. Nakonec se Lenka rozhodla p\u0159ej\u00edt k jin\u00e9mu l\u00e9ka\u0159i, kter\u00fd ji pro jistotu poslal na podrobn\u011bj\u0161\u00ed vy\u0161et\u0159en\u00ed do Revmatologick\u00e9ho \u00fastavu v Praze. „Tam mi u\u017e na prvn\u00ed pohled revmatolog \u0159ekl, \u017ee m\u00e1m asi syst\u00e9movou sklerodermii, a rovnou m\u011b hospitalizovali. Po porovn\u00e1n\u00ed m\u00e9ho sou\u010dasn\u00e9ho vzhledu se star\u0161\u00edmi fotkami a po \u0159ad\u011b test\u016f mi po t\u0159\u00edt\u00fddenn\u00edm pobytu diagn\u00f3zu potvrdil,“ vypr\u00e1v\u00ed Lenka.<\/p>\n\n\n\n
„Vzhledem k tomu, jak se mi za rok zhor\u0161il zdravotn\u00ed stav, mi bylo jasn\u00e9, \u017ee se budu muset vzd\u00e1t v\u011bt\u0161iny v\u011bc\u00ed, kter\u00e9 jsem milovala. P\u0159estala jsem jezdit na kole, proto\u017ee nejsem schopn\u00e1 brzdit, musela jsem nechat lezen\u00ed, proto\u017ee na st\u011bn\u011b se rukama neudr\u017e\u00edm, vzd\u00e1t se dlouh\u00fdch proch\u00e1zek, kter\u00e9 neud\u00fdch\u00e1m. Musela jsem opustit pr\u00e1ci, kterou jsem m\u011bla r\u00e1da, a skon\u010dila v invalidn\u00edm d\u016fchodu. L\u00e9ky, kter\u00e9 u\u017e\u00edv\u00e1m, postup nemoci jen zpomaluj\u00ed, tak\u017ee p\u0159\u00edznak\u016f se u\u017e nezbav\u00edm. V\u011bci, kter\u00e9 byly d\u0159\u00edve samoz\u0159ejm\u00e9, jsou te\u010f pro m\u011b ka\u017edodenn\u00edm bojem, ale nevzd\u00e1v\u00e1m to.“ Velkou oporou jsou Lence jej\u00ed p\u0159\u00edtel a dv\u011b d\u011bti \u2013 \u0161estn\u00e1ctilet\u00fd syn a \u0161estadvacetilet\u00e1 dcera. „U\u017e jsem dokonce dvojn\u00e1sobnou babi\u010dkou,“ usm\u00edv\u00e1 se.<\/p>\n\n\n\n
N\u00e1zor l\u00e9ka\u0159e<\/p>\n\n\n\n
Doc. MUDr. Tom\u00e1\u0161 Soukup, Ph.D., Subkatedra revmatologie II. intern\u00ed gastroenterologick\u00e9 kliniky LF UK a FN Hradec Kr\u00e1lov\u00e9<\/p>\n\n\n\n
Jsme schopni \u00fasp\u011b\u0161n\u011b l\u00e9\u010dit jednotliv\u00e9 zasa\u017een\u00e9 org\u00e1ny. Pacient\u016fm proto \u0159\u00edk\u00e1m, \u017ee sklerodermie je l\u00e9\u010diteln\u00e1, ale nen\u00ed zcela vyl\u00e9\u010diteln\u00e1. \u010c\u00edm d\u0159\u00edv se n\u00e1m nemoc poda\u0159\u00ed odhalit, t\u00edm l\u00e9pe. Zjednodu\u0161en\u011b \u0159e\u010deno, org\u00e1ny jsou posti\u017eeny t\u0159emi z\u00e1kladn\u00edmi procesy: posti\u017een\u00edm men\u0161\u00edch c\u00e9v, z\u00e1n\u011btem a vazivovat\u011bn\u00edm (fibr\u00f3zou). Posti\u017een\u00ed c\u00e9v (zejm\u00e9na v oblasti plicn\u00ed arterie a prst\u016f) se l\u00e9\u010d\u00ed l\u00e9ky se schopnost\u00ed roz\u0161i\u0159ovat neboli dilatovat. Vzniku z\u00e1n\u011btu a vazivovat\u011bn\u00ed v oblasti k\u016f\u017ee, plic, \u0161lach \u010di kloub\u016f br\u00e1n\u00edme pomoc\u00ed l\u00e9k\u016f tlum\u00edc\u00edch imunitn\u00ed syst\u00e9m. Jejich vedlej\u0161\u00edm \u00fa\u010dinkem je sn\u00ed\u017een\u00ed obranyschopnosti pacienta proti infekci. P\u0159es l\u00e9\u010dbu ur\u010dit\u00fd pod\u00edl z\u00e1n\u011btu p\u0159ech\u00e1z\u00ed ve vazivovat\u011bn\u00ed\/fibrotizaci tk\u00e1n\u00ed. Nov\u011b budou k dispozici l\u00e9ky, kter\u00e9 zpomaluj\u00ed p\u0159\u00edmo proces fibrotizace plic, tzv. antifibrotika. Diagnostika a zejm\u00e9na l\u00e9\u010dba se za posledn\u00edch 20 let velmi zlep\u0161ila.<\/p>\n\n\n\n
Informace o nemoci<\/p>\n\n\n\n
* Sklerodermie je vz\u00e1cn\u00e9 autoimunitn\u00ed chronick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje cel\u00e9 t\u011blo tak, \u017ee doch\u00e1z\u00ed k tuhnut\u00ed pojivov\u00fdch tk\u00e1n\u00ed.
* Po\u0161kozuje k\u016f\u017ei, tr\u00e1vic\u00ed trakt a pl\u00edce, m\u016f\u017ee ale postihovat i ledviny.
* Doch\u00e1z\u00ed k nadprodukci kolagenu a tak\u00e9 k vazivovat\u011bn\u00ed a zu\u017eov\u00e1n\u00ed a\u017e zanik\u00e1n\u00ed c\u00e9vek.
* Posti\u017een\u00ed k\u016f\u017ee se zpo\u010d\u00e1tku projevuje zejm\u00e9na na rukou, kter\u00e9 ot\u00e9kaj\u00ed, tuhnou a ztlu\u0161\u0165uje se na nich k\u016f\u017ee. Poko\u017eka p\u016fsob\u00ed leskle, je napjat\u00e1 a tuh\u00e1. Na po\u010d\u00e1tku mohou tyto projevy p\u0159ipom\u00ednat rann\u00ed ztuhlosti p\u0159i artritid\u011b.
* Prozat\u00edm neexistuje l\u00e9k, kter\u00fd by mohl nemocn\u00e9 vyl\u00e9\u010dit.
* P\u0159\u00ed\u010diny onemocn\u011bn\u00ed nejsou zn\u00e1m\u00e9, roli m\u016f\u017ee hr\u00e1t genetika i vliv vn\u011bj\u0161\u00edho prost\u0159ed\u00ed.<\/p>\n\n\n\n
Tipy pro zdrav\u00ed <\/p>\n\n\n\n
Pro pacienty se syst\u00e9movou sklerodermi\u00ed je d\u016fle\u017eit\u00e9 nevystavovat se stresu a chladu a tak\u00e9 n\u00e1hl\u00fdm zm\u011bn\u00e1m teploty. Nem\u011bli by rovn\u011b\u017e zapom\u00ednat na pohyb, kter\u00fd chr\u00e1n\u00ed svaly p\u0159ed atrofi\u00ed a umo\u017e\u0148uje zachovat dostate\u010dn\u00fd pohyb v kloubech. Pohyb nav\u00edc p\u016fsob\u00ed i proti z\u00e1n\u011btu, a to je pro v\u0161echny osoby s t\u00edmto onemocn\u011bn\u00edm d\u016fle\u017eit\u00e9. Odborn\u00edci rad\u00ed, \u017ee i v p\u0159\u00edpad\u011b velk\u00e9 \u00fanavy, kter\u00e1 b\u00fdv\u00e1 \u010dast\u00e1, je nejlep\u0161\u00ed p\u0159ekonat s\u00e1m sebe a pravideln\u011b se h\u00fdbat. Vhodn\u00e9 jsou tak\u00e9 meditace, relaxa\u010dn\u00ed cvi\u010debn\u00ed metody a v n\u011bkter\u00fdch p\u0159\u00edpadech i n\u00e1v\u0161t\u011bva zku\u0161en\u00e9ho psychoterapeuta.
Alena Ben\u00ed\u0161kov\u00e1 <\/p>\n\n\n\n
Libereck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/liberecky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Otoky kloub\u016f a obli\u010deje, modr\u00e1n\u00ed kon\u010detin, neschopnost cokoli udr\u017eet v ruce, pohybov\u00e9 pot\u00ed\u017ee, du\u0161nost \u2013 tyto probl\u00e9my za\u010daly 48letou Lenku su\u017eovat p\u0159ed p\u011bti lety. V […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":13142,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34810","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34810","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34810"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34810\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/13142"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34810"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34810"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34810"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}