Se zelen\u00fdm z\u00e1kalem a spole\u010dn\u011b s nevidom\u00fdm man\u017eelem vychov\u00e1v\u00e1 B\u00e1ra Mirgov\u00e1 dv\u011b dcery. A jak ukazuje, jde to.
Maminka B\u00e1ry Mirgov\u00e9 m\u011bla vz\u00e1cn\u00fd syndrom, v d\u016fsledku kter\u00e9ho j\u00ed selhal organismus. A B\u00e1ra se tak narodila p\u0159ed\u010dasn\u011b, c\u00edsa\u0159em, v osm\u00e9m m\u011bs\u00edci. <\/p>\n\n\n\n
„Postihlo mi to o\u010di. U\u017e v jednom roce mi l\u00e9ka\u0159i operovali \u0161ed\u00fd z\u00e1kal, ze kter\u00e9ho se sekund\u00e1rn\u011b vyvinul ten zelen\u00fd.“<\/p>\n\n\n\n
Jak B\u00e1ra vid\u00ed? „P\u0159edstavte si, jako byste se koukali do mlhy. Takhle j\u00e1 vid\u00edm \u010d\u00e1st dne. N\u011bkdy je to hor\u0161\u00ed, jindy trochu lep\u0161\u00ed. M\u00e1m velk\u00e9 v\u00fdkyvy vid\u011bn\u00ed. M\u00e1m nerovnou rohovku, nezaost\u0159uji. Na d\u00e1lku nerozpozn\u00e1m lidi. A br\u00fdle nos\u00edm jen proto, \u017ee mi slou\u017e\u00ed jako lupa,“ popisuje t\u0159iat\u0159icetilet\u00e1 B\u00e1ra.<\/p>\n\n\n\n
B\u00e1ra chodila jak na mate\u0159skou, tak i z\u00e1kladn\u00ed \u0161kolu pro zrakov\u011b posti\u017een\u00e9 do Brna. A zp\u011btn\u011b je r\u00e1da, \u017ee nebyla v inkluzi. „M\u011bla jsem nevidomou kamar\u00e1dku, kter\u00e1 chodila na b\u011b\u017enou z\u00e1kladn\u00ed \u0161kolu, ale nebylo to ono. Nebylo dost materi\u00e1l\u016f v Braillov\u011b p\u00edsmu. J\u00e1 jsem za \u201aspeci\u00e1ln\u00ed\u2018 v\u00fdchovu r\u00e1da. M\u011bla jsem zv\u011bt\u0161ovac\u00ed lupu, psali jsme do se\u0161it\u016f fixem na tlust\u00e9 linky. Dostala jsem kvalitn\u00ed v\u00fduku a nemusela jsem se tr\u00e1pit.“ <\/p>\n\n\n\n
B\u00e1ra m\u00e1 dv\u011b dcery \u2013 dvouletou a \u010dty\u0159letou. Ob\u011b u\u017e chod\u00ed do \u0161kolky. A jsou vzhledem k B\u00e1\u0159in\u011b zrakov\u00e9mu handicapu velmi samostatn\u00e9. „Mus\u00ed b\u00fdt. Man\u017eel nevid\u00ed v\u016fbec, holky tedy pochopily u\u017e v ran\u00e9m v\u011bku, \u017ee kdy\u017e n\u011bco cht\u011bj\u00ed, musej\u00ed si o to \u0159\u00edct. Mohly by toti\u017e na v\u011bci ukazovat klidn\u011b p\u016fl hodiny, ale bylo by jim to platn\u00e9 asi jako mrtv\u00e9mu zimn\u00ed kab\u00e1t. I ta mlad\u0161\u00ed dcera, kdy\u017e mi chce n\u011bco uk\u00e1zat, vezme moji ruku, polo\u017e\u00ed mi ji na danou v\u011bc a \u0159ekne: Maminko, pod\u00edvej!“ <\/p>\n\n\n\n
B\u00e1ra m\u00e1 zelen\u00fd z\u00e1kal, jej\u00edho mu\u017ee postihlo v devaten\u00e1cti letech stejn\u00e9 onemocn\u011bn\u00ed. A oslepnul. B\u00e1la se B\u00e1ra, \u017ee n\u011bkter\u00e1 z nemoc\u00ed postihne o\u010di i jejich dcer?<\/p>\n\n\n\n
„Moje o\u010dn\u00ed vada nen\u00ed genetick\u00e1, mamka m\u011bla otravu v t\u011bhotenstv\u00ed. M\u016fj mu\u017e to d\u011bdi\u010dn\u00e9 m\u00e1, ale u\u017e m\u00e1 jednu zdravou hol\u010di\u010dku, tak\u017ee jsme si nenech\u00e1vali d\u011blat testy. Ani jsme neuva\u017eovali o tom, \u017ee by holky m\u011bly o\u010dn\u00ed vadu. A i kdybych se to dozv\u011bd\u011bla u\u017e b\u011bhem t\u011bhotenstv\u00ed, stejn\u011b bych si d\u00edt\u011b nechala.“<\/p>\n\n\n\n
S p\u0159edsudkem, \u017ee by se jako zrakov\u011b handicapovan\u00e1 nedok\u00e1zala postarat o dcery, se nesetkala. Jen jednou, n\u00e1znakem, v porodnici.<\/p>\n\n\n\n
„Vrchn\u00ed sestra m\u011b upozor\u0148ovala po porodu, \u017ee m\u00edt miminko, to je 24hodinov\u00e1 p\u00e9\u010de. Na to jsem j\u00ed \u0159ekla, \u017ee o tom samoz\u0159ejm\u011b v\u00edm,“ popisuje B\u00e1ra, kter\u00e1 v \u017eivot\u011b nikdy nic neponech\u00e1v\u00e1 n\u00e1hod\u011b. A mo\u017en\u00e1 pr\u00e1v\u011b pro jej\u00ed trp\u011blivou povahu se v\u0161emi vych\u00e1z\u00ed. A j\u00ed v\u0161ichni vych\u00e1z\u00ed vst\u0159\u00edc.
<\/p>\n\n\n\n
„Kdy\u017e jsem nap\u0159\u00edklad \u010dekala dcery, v\u0161e jsem si dop\u0159edu zji\u0161\u0165ovala. Dop\u0159edu jsem kontaktovala porodnici, d\u011btskou pediatri\u010dku. V\u0161echno je to o domluv\u011b. Kdy\u017e \u010dlov\u011bk \u0159e\u0161\u00ed s p\u0159edstihem, klidem a \u00fasm\u011bvem, v\u0161echno jde. Ale samoz\u0159ejm\u011b, \u017ee blbce m\u016f\u017eete potkat v\u0161ude,“ sm\u011bje se B\u00e1ra.
—
Sv\u011btlu\u0161ka ve zkratce
– Sv\u011btlu\u0161ka je projekt Nada\u010dn\u00edho fondu \u010cesk\u00e9ho rozhlasu. Funguje ji\u017e sedmn\u00e1ct let.
– Prov\u00e1z\u00ed t\u011b\u017ece zrakov\u011b posti\u017een\u00e9 ve v\u0161ech kl\u00ed\u010dov\u00fdch etap\u00e1ch jejich \u017eivota a p\u0159isp\u00edv\u00e1 nap\u0159\u00edklad na speci\u00e1ln\u00ed technologick\u00e9 pom\u016fcky, slu\u017eby, asistenci d\u011btem i senior\u016fm a podporuje rozvoj talentu.
– Sv\u011btlu\u0161ka po\u0159\u00e1d\u00e1 ka\u017edoro\u010dn\u011b pravideln\u011b n\u011bkolik kl\u00ed\u010dov\u00fdch projekt\u016f \u2013 nap\u0159. No\u010dn\u00ed b\u011bh pro Sv\u011btlu\u0161ku, Kav\u00e1rnu POTM\u011a nebo benefi\u010dn\u00ed koncert Sv\u011btlo pro Sv\u011btlu\u0161ku.
– V minul\u00e9m roce putovalo do sb\u00edrky Sv\u011btlu\u0161ky z uskute\u010dn\u011bn\u00fdch projekt\u016f p\u0159es 22 milion\u016f korun.<\/p>\n\n\n\n
VERONIKA C\u00c9ZOV\u00c1<\/p>\n\n\n\n
Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
http:\/\/www.prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Se zelen\u00fdm z\u00e1kalem a spole\u010dn\u011b s nevidom\u00fdm man\u017eelem vychov\u00e1v\u00e1 B\u00e1ra Mirgov\u00e1 dv\u011b dcery. A jak ukazuje, jde to. Maminka B\u00e1ry Mirgov\u00e9 m\u011bla vz\u00e1cn\u00fd syndrom, v […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":783,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-34954","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34954","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34954"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/34954\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/783"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34954"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=34954"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=34954"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}