Kdy\u017e p\u0159ed v\u00edce ne\u017e rokem zakl\u00e1dala spolek Roska, kter\u00fd pom\u00e1h\u00e1 lidem s roztrou\u0161enou skler\u00f3zou, bylo to hlavn\u011b kv\u016fli jej\u00ed vlastn\u00ed zku\u0161enosti s touto nemoc\u00ed. Prvn\u00ed velkou ataku t\u00e9to nemoci Chomutovanka \u0160\u00e1rka Hnili\u010dkov\u00e1 Vargov\u00e1 poc\u00edtila p\u0159ed dvan\u00e1cti lety, i kdy\u017e p\u0159\u00edznaky se hl\u00e1sily roky p\u0159edt\u00edm.<\/p>\n\n\n\n
„Jsem p\u0159esv\u011bd\u010den\u00e1, \u017ee spou\u0161t\u011b\u010dem byl druh\u00fd porod. Ob\u010das m\u011b brn\u011bla ruka, noha, n\u011bkdy jsem c\u00edtila jako by mi od krku po p\u00e1te\u0159i p\u0159eb\u011bhl elektrick\u00fd v\u00fdboj. Nep\u0159ikl\u00e1dala jsem tomu ale v\u00fdznam,“ uvedla \u0160\u00e1rka Hnili\u010dkov\u00e1 Vargov\u00e1. „Myslela jsem, \u017ee m\u00e1m jen p\u0159ele\u017een\u00e1 z\u00e1da a zablokovan\u00fd nerv. Nav\u00edc to rychle odezn\u011blo,“ doplnila.<\/p>\n\n\n\n
Po prvn\u00ed atace, kter\u00e1 se dostavila t\u011bsn\u011b p\u0159ed V\u00e1nocemi, nec\u00edtila pravou \u010d\u00e1st t\u011bla od pasu dol\u016f. Kdy\u017e l\u00e9ka\u0159i vyslovili diagn\u00f3zu, zd\u011bsila se. Roztrou\u0161enou skler\u00f3zu m\u011bla i jej\u00ed babi\u010dka, kter\u00e1 kv\u016fli tomu skon\u010dila na voz\u00edku. „Nakonec byla le\u017e\u00e1k a j\u00e1 si myslela, \u017ee stejn\u00fd osud nevyhnuteln\u011b \u010dek\u00e1 i m\u011b,“ pod\u011blila se o sv\u00e9 tehdej\u0161\u00ed obavy. „Nev\u011bd\u011bla jsem ale, \u017ee jsou \u010dty\u0159i typy t\u00e9to nemoci a j\u00e1 m\u00e1m na\u0161t\u011bst\u00ed leh\u010d\u00ed pr\u016fb\u011bh,“ doplnila. <\/p>\n\n\n\n
Druh\u00e1 velk\u00e1 ataka n\u00e1sledovala po n\u011bkolika letech mezi sv\u00e1tky. Op\u011bt m\u011bla zasa\u017eenou pravou \u010d\u00e1st t\u011bla a k tomu i zrak. „P\u0159es jedno oko jsme vid\u011bla jako p\u0159es igelit, nav\u00edc mi vypadla \u010d\u00e1st zorn\u00e9ho pole,“ popsala pan\u00ed Hnili\u010dkov\u00e1. V t\u00e9 dob\u011b j\u00ed chyb\u011bla mo\u017enost sd\u00edlet sv\u00e9 z\u00e1\u017eitky a zku\u0161enosti s dal\u0161\u00edmi lidmi, kte\u0159\u00ed se s roztrou\u0161enou skler\u00f3zou pot\u00fdkaj\u00ed. <\/p>\n\n\n\n
To se ale neda\u0159ilo, a tak si usmyslela, \u017ee zalo\u017e\u00ed spolek. Poda\u0159ilo se to ale a\u017e ve chv\u00edli, kdy mohla vystoupit z pln\u00e9ho pracovn\u00edho nasazen\u00ed. Bohu\u017eel se tak stalo kv\u016fli dal\u0161\u00ed nemoci, s n\u00ed\u017e je te\u010f v invalidn\u00edm d\u016fchodu. Aterioskler\u00f3ze. <\/p>\n\n\n\n
„R\u00f3za mi prost\u011b byla souzen\u00e1,“ sm\u011bje se blond\u00fdnka sm\u00ed\u0159en\u011b.<\/p>\n\n\n\n
D\u00edky tomu, \u017ee mohla vystoupit z koloto\u010de pracovn\u00edch povinnost\u00ed, z\u00edskala \u010das, aby uskute\u010dnila sv\u00e9 p\u0159\u00e1n\u00ed a zalo\u017eila spolek Roska. Ten dnes sdru\u017euje na dvacet lid\u00ed s roztrou\u0161enou skler\u00f3zou, kte\u0159\u00ed jsou z Chomutovska, \u017datecka a Mostecka. Dal\u0161\u00ed se mohou se spolkem spojit p\u0159es jeho facebookov\u00e9 str\u00e1nky.<\/p>\n\n\n\n
Miroslava \u0160ebestov\u00e1<\/p>\n\n\n\n
Chomutovsk\u00fd den\u00edk<\/p>\n\n\n\n
http:\/\/www.chomutovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Kdy\u017e p\u0159ed v\u00edce ne\u017e rokem zakl\u00e1dala spolek Roska, kter\u00fd pom\u00e1h\u00e1 lidem s roztrou\u0161enou skler\u00f3zou, bylo to hlavn\u011b kv\u016fli jej\u00ed vlastn\u00ed zku\u0161enosti s touto nemoc\u00ed. Prvn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35346","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35346","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35346"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35346\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35346"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35346"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35346"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}