D\u00edky darovan\u00e9 Domovence vyslechnou odborn\u00edci z nov\u011b zalo\u017een\u00e9 poradny pot\u0159eby pacienta s roztrou\u0161enou skler\u00f3zou a pe\u010duj\u00edc\u00ed osoby a pomohou jim vy\u0159e\u0161it v\u00fdzvy, se kter\u00fdmi se pot\u00fdkaj\u00ed. Pomohou jim zvl\u00e1dnout nemoc v dom\u00e1c\u00edm prost\u0159ed\u00ed.
„\u017d\u00edt doma je pro ka\u017ed\u00e9ho z n\u00e1s norm\u00e1ln\u00ed. Pro \u010dlov\u011bka s roztrou\u0161enou skler\u00f3zou je to v\u0161ak \u010dasto ne\u0159e\u0161iteln\u00fd probl\u00e9m. V \u010cesk\u00e9 republice \u017eije 20.000 lid\u00ed s roztrou\u0161enou skler\u00f3zou. P\u011bt tis\u00edc z nich je v pokro\u010dil\u00e9m st\u00e1diu t\u00e9to nemoci a jsou odk\u00e1z\u00e1ni na invalidn\u00ed voz\u00edk a pe\u010duj\u00edc\u00ed osobu. Na l\u00e9\u010dbu se \u010dek\u00e1 t\u00fddny i m\u011bs\u00edce a zdravotn\u00ed poji\u0161\u0165ovny nepodporuj\u00ed terapeutick\u00e9 slu\u017eby. To je bludn\u00fd kruh pro pacienty i jejich pe\u010duj\u00edc\u00ed. V dom\u00e1c\u00ed p\u00e9\u010di zoufale chyb\u00ed ter\u00e9nn\u00ed pracovn\u00edci. Chyb\u00ed podpora pe\u010duj\u00edc\u00edm osob\u00e1m, kter\u00e9 jsou \u010dasto na pokraji fyzick\u00fdch i psychick\u00fdch sil. V\u0161e je\u0161t\u011b umoc\u0148uje aktu\u00e1ln\u00ed koronavirov\u00e1 situace. K t\u011blesn\u00e9mu hendikepu se tak p\u0159id\u00e1v\u00e1 strach, samota a soci\u00e1ln\u00ed izolace. Domov sv. Josefa m\u00e1 \u0159e\u0161en\u00ed.
D\u00edky darovan\u00e9 Domovence vyslechnou odborn\u00edci z nov\u011b zalo\u017een\u00e9 poradny pot\u0159eby pacienta a pe\u010duj\u00edc\u00ed osoby a pomohou jim vy\u0159e\u0161it v\u00fdzvy, se kter\u00fdmi se pot\u00fdkaj\u00ed. Pomohou jim zvl\u00e1dnout nemoc doma.<\/p>\n\n\n\n
Up\u0159\u00edmn\u011b, cht\u011bla jsem vysko\u010dit z okna
<\/p>\n\n\n\n
„Bylo mi osmn\u00e1ct let a studovala jsem S\u0160 zdravotnickou, kdy\u017e se dostavila m\u00e1 prvn\u00ed ataka. Ochrnul mi l\u00edcn\u00ed nerv. Ve dvaceti letech, kdy\u017e jsem pracovala jako zdravotn\u00ed sestra v Plze\u0148sk\u00e9 nemocnici, mi v pr\u016fb\u011bhu dvou m\u011bs\u00edc\u016f ochrnula lev\u00e1 p\u016flka t\u011bla. P\u0159i\u0161el koloto\u010d vy\u0161et\u0159en\u00ed, diagn\u00f3za, roztrou\u0161en\u00e1 skler\u00f3za. Zastavil se mi \u017eivot. Nevid\u011bla jsem \u017e\u00e1dn\u00fd smysl z\u016fstat na \u017eivu s t\u00edmto onemocn\u011bn\u00edm. M\u016fj smutek z diagn\u00f3zy byl nezvladateln\u011b velik\u00fd. Up\u0159\u00edmn\u011b, cht\u011bla jsem vysko\u010dit z okna. Musela jsem vyhledat pomoc psychiatra. Po \u010dtvrt roce u\u017e\u00edv\u00e1n\u00ed antidepresiv a doch\u00e1zen\u00ed na skupinov\u00e9 sezen\u00ed jsem z\u00edskala novou s\u00edlu d\u00e1le ve sv\u00e9m \u017eivot\u011b bojovat.<\/p>\n\n\n\n
Nyn\u00ed \u017eiji s man\u017eelem Honzou, mou sp\u0159\u00edzn\u011bnou du\u0161\u00ed. M\u00e1me \u00fa\u017easn\u00fd vztah a jeden druh\u00e9ho si velmi v\u00e1\u017e\u00edme. Bez man\u017eela, rodiny, pe\u010dovatelek a odborn\u00e9 pomoci terapeut\u016f bych to asi nezvl\u00e1dla. Jezd\u00edm na pravideln\u00e9 zdravotn\u00ed pobyty do Domova sv. Josefa v \u017dir\u010di, kde to m\u00e1m moc r\u00e1da. Sna\u017e\u00edm se pom\u00e1hat dal\u0161\u00edm nemocn\u00fdm roztrou\u0161enou skler\u00f3zou, proto\u017ee v\u00edm, jak je t\u011b\u017ek\u00e9 b\u00fdt na to sama. \u201d vypr\u00e1v\u00ed sv\u016fj p\u0159\u00edb\u011bh Kate\u0159ina K\u0159iv\u00e1nkov\u00e1 z Plzn\u011b.<\/p>\n\n\n\n
P\u0159\u00edb\u011bh pan\u00ed Kate\u0159iny je jedn\u00edm z tis\u00edc\u016f. Ne v\u0161echny kon\u010d\u00ed dob\u0159e.<\/p>\n\n\n\n
V \u010cesk\u00e9 republice je jedin\u00e9 l\u016f\u017ekov\u00e9 za\u0159\u00edzen\u00ed s komplexn\u00ed terapeutickou p\u00e9\u010d\u00ed pro nemocn\u00e9 roztrou\u0161enou skler\u00f3zou, Domov sv. Josefa v \u017dir\u010di u Dvora Kr\u00e1lov\u00e9 nad Labem. Na kr\u00e1tkodob\u00fd pobyt se zde \u010dek\u00e1 n\u011bkolik m\u011bs\u00edc\u016f. Po\u0159adn\u00edk na dlouhodob\u00e9 pobyty \u010d\u00edt\u00e1 p\u0159es 130 z\u00e1jemc\u016f, 95% z nich v\u0161ak nebude z d\u016fvodu kapacity vysly\u0161eno. Mezi \u010dekaj\u00edc\u00edmi jsou i star\u0161\u00ed lid\u00e9, jejich\u017e nap\u0159. 80 let\u00ed rodi\u010de u\u017e o n\u011b nedok\u00e1\u017eou pe\u010dovat. Nebo zamilovan\u00e9 p\u00e1ry, lid\u00e9, kte\u0159\u00ed by se cht\u011bli vz\u00edt, ale hendikep jim neumo\u017e\u0148uje, aby spolu \u017eili.<\/p>\n\n\n\n
Domovenka je \u0159e\u0161en\u00ed<\/p>\n\n\n\n
V Domov\u011b sv. Josefa maj\u00ed \u0159e\u0161en\u00ed. Pr\u00e1v\u011b v t\u011bchto dnech spou\u0161t\u00ed po p\u016flro\u010dn\u00edm zku\u0161ebn\u00edm provozu novou slu\u017ebu odborn\u00e9 poradny. M\u00e1 za c\u00edl dostat pomoc p\u0159\u00edmo k nemocn\u00fdm dom\u016f, a to zejm\u00e9na k lidem s roztrou\u0161enou skler\u00f3zou v pokro\u010dilej\u0161\u00edm stadiu nemoci a jejich pe\u010duj\u00edc\u00edm osob\u00e1m. „Vyslechneme pot\u0159eby pacienta i pe\u010duj\u00edc\u00ed osoby a propoj\u00edme je s odborn\u00edkem z na\u0161eho t\u00fdmu nebo v m\u00edst\u011b bydli\u0161t\u011b. Pom\u016f\u017eeme jim tak vy\u0159e\u0161it v\u00fdzvy, se kter\u00fdmi se pot\u00fdkaj\u00ed“, \u0159\u00edk\u00e1 o poradn\u011b jej\u00ed zakladatel, vedouc\u00ed Domova sv. Josefa, Dominik Melichar. <\/p>\n\n\n\n
Vzhledem k zanedban\u00e9 podpo\u0159e terapi\u00ed ze strany zdravotn\u00edch poji\u0161\u0165oven se v\u0161ak toto slu\u017eba neobejde bez zapojen\u00ed d\u00e1rc\u016f. \u0158e\u0161en\u00edm je DOMOVENKA. Domovenka je 1 hodina odborn\u00e9ho poradenstv\u00ed pro 1 pacienta s roztrou\u0161enou skler\u00f3zou za 286 darovan\u00fdch K\u010d. D\u00edky darovan\u00e9 Domovence m\u016f\u017ee Domov sv. Josefa poskytnout nemocn\u00fdm poradenstv\u00ed v oblasti fyzioterapie, zdravotn\u00ed p\u00e9\u010de, logopedie, psychoterapie, soci\u00e1ln\u00ed a dal\u0161\u00ed poradenstv\u00ed. Pokud se poda\u0159\u00ed z\u00edskat dostatek financ\u00ed, pom\u016f\u017eeme stovk\u00e1m lid\u00ed v jejich nep\u0159\u00edzniv\u00e9 situaci. Pom\u016f\u017eeme jim k v\u011bt\u0161\u00ed sob\u011bsta\u010dnosti.<\/p>\n\n\n\n
V\u0161ichni si pot\u0159ebujeme pom\u00e1hat, ale n\u011bkte\u0159\u00ed to prost\u011b pot\u0159ebuj\u00ed v\u00edc. Pokud si mysl\u00edte, \u017ee pom\u00e1hat je spr\u00e1vn\u00e9, pak je to tak\u00e9 V\u00e1\u0161 p\u0159\u00edb\u011bh. Pom\u00e1hejte s n\u00e1mi na: www.domovenka.cz. <\/p>\n\n\n\n
Kate\u0159ina F\u00fcrbacherov\u00e1<\/p>\n\n\n\n
N\u00e1chodsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/nachodsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" D\u00edky darovan\u00e9 Domovence vyslechnou odborn\u00edci z nov\u011b zalo\u017een\u00e9 poradny pot\u0159eby pacienta s roztrou\u0161enou skler\u00f3zou a pe\u010duj\u00edc\u00ed osoby a pomohou jim vy\u0159e\u0161it v\u00fdzvy, se kter\u00fdmi se […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14726,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35362","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35362"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35362\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14726"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35362"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35362"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35362"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}