Praha, 2. 12. 2020 \u2013 \u00daporn\u00e1 bolest hlavy, zvracen\u00ed nebo poruchy vid\u011bn\u00ed. I tak dok\u00e1\u017ee migr\u00e9na pacient\u016fm komplikovat \u017eivot klidn\u011b desetkr\u00e1t v m\u011bs\u00edci. Nepochopen\u00ed spole\u010dnosti \u010dasto nut\u00ed lidi s migr\u00e9nou nemoc tajit, ta p\u0159itom krom\u011b fyzick\u00e9 bolesti zp\u016fsobuje \u0159adu dal\u0161\u00edch probl\u00e9m\u016f \u2013 nap\u0159\u00edklad s hled\u00e1n\u00edm a udr\u017een\u00edm zam\u011bstn\u00e1n\u00ed. Pacient\u016fm v\u0161ak sv\u00edt\u00e1 nad\u011bje v podob\u011b modern\u00ed l\u00e9\u010dby, kter\u00e1 je od leto\u0161ka dostupn\u011bj\u0161\u00ed. I to zazn\u011blo na historicky prvn\u00ed pacientsk\u00e9 konferenci pro lidi s migr\u00e9nou, kterou po\u0159\u00e1dala pacientsk\u00e1 organizace Migr\u00e9na-help.<\/p>\n\n\n\n
V \u010cesku se s migr\u00e9nou pot\u00fdk\u00e1 p\u0159ibli\u017en\u011b milion lid\u00ed. Nemoc si vyb\u00edr\u00e1 t\u0159ikr\u00e1t \u010dast\u011bji \u017eeny ne\u017e mu\u017ee a bere jim cel\u00e9 dny \u2013 ti, kte\u0159\u00ed maj\u00ed t\u0159i z\u00e1chvaty m\u011bs\u00ed\u010dn\u011b, ztr\u00e1c\u00ed za deset let t\u00e9m\u011b\u0159 rok \u017eivota. Podle pr\u016fzkum\u016f ji nav\u00edc 60 % pacient\u016f taj\u00ed p\u0159ed sv\u00fdm okol\u00edm. \u201eMigr\u00e9na nen\u00ed oby\u010dejn\u00e1 bolest hlavy, ale chronick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 pacienty v\u00fdrazn\u011b omezuje v jejich \u017eivotech. Spole\u010dnost to tak bohu\u017eel mnohdy nech\u00e1pe, a proto se \u0159ada lid\u00ed s migr\u00e9nou c\u00edt\u00ed stigmatizovan\u00e1 a ve sv\u00e9 nemoci osam\u011bl\u00e1. I to jsme cht\u011bli prost\u0159ednictv\u00edm konference zm\u011bnit \u2013 uk\u00e1zat pacient\u016fm, \u017ee na to nejsou sami a \u017ee existuje i \u00fa\u010dinn\u00e1 pomoc,\u201c \u0159ekla R\u00fdza Bla\u017eejovsk\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Migr\u00e9na-help. <\/p>\n\n\n\n
Podle Eleny Ruiz de la Torre, \u0159editelky Evropsk\u00e9 aliance pro migr\u00e9nu a bolesti hlavy, jsou lid\u00e9 s migr\u00e9nou superhrdinov\u00e9, pln\u00ed v\u0161echny svoje povinnosti i p\u0159es ataky nemoci. \u201eV mnoha zem\u00edch se migr\u00e9na pova\u017euje jenom za v\u011bt\u0161\u00ed bolest hlavy a toto vn\u00edm\u00e1n\u00ed je t\u0159eba zm\u011bnit. Okol\u00ed migr\u00e9n\u011b nerozum\u00ed \u2013 vid\u00ed jen to, \u017ee ob\u010das chyb\u00edme v pr\u00e1ci nebo se nem\u016f\u017eeme z\u00fa\u010dastnit n\u011bjak\u00e9 aktivity,\u201c \u0159ekla \u010desk\u00fdm pacient\u016fm Elena Ruiz de la Torre, kter\u00e1 sama trp\u00ed migr\u00e9nou od dvan\u00e1cti let. Z pr\u016fzkumu, kter\u00fd provedla organizace European Migraine and Headache Alliance (EMHA) mezi 3 342 lidmi trp\u00edc\u00edch migr\u00e9nou p\u0159ev\u00e1\u017en\u011b ze sedmi evropsk\u00fdch zem\u00ed (\u0160pan\u011blsko, It\u00e1lie, Velk\u00e1 Brit\u00e1nie, Francie, Irsko, N\u011bmecko a Portugalsko) a nazvala jej \u201eMigr\u00e9na v pr\u00e1ci\u201c, vyplynulo, \u017ee 45 % respondent\u016f m\u011blo kv\u016fli migr\u00e9n\u011b pot\u00ed\u017ee s prodlou\u017een\u00edm pracovn\u00ed smlouvy, 43 % m\u011blo probl\u00e9m pr\u00e1ci v\u016fbec z\u00edskat a 33 % dokonce dostalo od sv\u00e9ho zam\u011bstnavatele v\u00fdtku, nap\u0159\u00edklad pr\u00e1v\u011b kv\u016fli tomu, \u017ee jim z\u00e1chvat migr\u00e9ny znemo\u017enil do pr\u00e1ce n\u011bkter\u00fd den p\u0159ij\u00edt. \u201eJe t\u0159eba zam\u011bstnavatele s nemoc\u00ed sezn\u00e1mit a vysv\u011btlit, \u017ee si v\u0161echny pracovn\u00ed povinnosti spln\u00edme \u2013 jen pot\u0159ebujeme ob\u010das trochu pochopen\u00ed,\u201c dod\u00e1v\u00e1 Ruiz de la Torre a doporu\u010duje lidem s migr\u00e9nou sdru\u017eovat se v pacientsk\u00fdch organizac\u00edch, a z\u00edsk\u00e1vat tak \u010derstv\u00e9 a spolehliv\u00e9 informace nejen o sv\u00e9 nemoci, ale p\u0159edev\u0161\u00edm o l\u00e9\u010db\u011b.<\/p>\n\n\n\n
A\u017e 40 % pacient\u016f v \u010cesku o sv\u00e9 diagn\u00f3ze ani nev\u00ed, p\u0159itom \u00fa\u010dinn\u00e1 pomoc je dob\u0159e dostupn\u00e1. Jak na konferenci prozradila neurolo\u017eka MUDr. Eva Medov\u00e1, u men\u0161\u00edch po\u010dt\u016f z\u00e1chvat\u016f sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba \u2013 b\u011b\u017en\u00e1 analgetika nebo tzv. triptany. P\u0159i \u010dty\u0159ech a v\u00edce z\u00e1chvatech m\u011bs\u00ed\u010dn\u011b je ji\u017e podle n\u00ed vhodn\u00e9 nasadit preventivn\u00ed l\u00e9\u010dbu, kterou pacientovi p\u0159edpisuje neurolog. Ten jej m\u016f\u017ee tak\u00e9 odeslat do specializovan\u00e9ho centra pro l\u00e9\u010dbu bolesti hlavy, kter\u00fdch je v \u010cesku ji\u017e p\u0159es 30. \u201ePreventivn\u00ed l\u00e9\u010dbou dnes dok\u00e1\u017eeme sn\u00ed\u017eit po\u010dty z\u00e1chvat\u016f a\u017e o 50 %, a to pomoc\u00ed p\u0159\u00edpravk\u016f, je\u017e byly p\u016fvodn\u011b vyvinuty pro jin\u00e1 onemocn\u011bn\u00ed, ale uk\u00e1zal se u nich pozitivn\u00ed \u00fa\u010dinek na migr\u00e9nu. Od leto\u0161ka poji\u0161\u0165ovny propl\u00e1c\u00ed i tzv. biologickou l\u00e9\u010dbu, specificky vyvinutou pro profylaxi migr\u00e9ny. Ta um\u00ed sn\u00ed\u017eit po\u010det z\u00e1chvat\u016f a\u017e o polovinu a v\u00edce, zkracuje trv\u00e1n\u00ed atak a zm\u00edr\u0148uje jejich intenzitu. Krom\u011b toho u biologick\u00fdch l\u00e9k\u016f pozorujeme minimum ne\u017e\u00e1douc\u00edch \u00fa\u010dink\u016f,\u201c \u0159ekla MUDr. Medov\u00e1. V Centrech pro l\u00e9\u010dbu bolesti podle n\u00ed pacient\u016fm s migr\u00e9nou krom\u011b l\u00e9k\u016f nab\u00edzej\u00ed i psychoterapii a fyzioterapii. Ty si vyzkou\u0161eli p\u0159\u00edmo i \u00fa\u010dastn\u00edci konference, a to na workshopu v podob\u011b technik pro uvol\u0148ov\u00e1n\u00ed svalov\u00e9ho nap\u011bt\u00ed, kter\u00e9 podle odborn\u00edk\u016f mohou pomoci odd\u00e1lit ataky nemoci, a na individu\u00e1ln\u00edch psychoterapeutick\u00fdch online sezen\u00edch.<\/p>\n\n\n\n
O svou zku\u0161enost se s \u00fa\u010dastn\u00edky konference pod\u011blila i here\u010dka a moder\u00e1torka Ester Jane\u010dkov\u00e1, kterou migr\u00e9na tr\u00e1p\u00ed u\u017e od ml\u00e1d\u00ed. \u201eChv\u00edli trvalo, ne\u017e lid\u00e9 v m\u00e9m okol\u00ed za\u010dali nemoc br\u00e1t opravdu v\u00e1\u017en\u011b. I m\u016fj man\u017eel musel pochopit, \u017ee to nen\u00ed jen tak a za\u010dal m\u00edt v\u011bt\u0161\u00ed ohledy. Ale m\u00e1m to \u0161t\u011bst\u00ed, \u017ee mi po\u010dty z\u00e1chvat\u016f s v\u011bkem sp\u00ed\u0161e ub\u00fdvaj\u00ed. Z\u00e1rove\u0148 u\u017e v\u00edm, jak se za\u0159\u00eddit, kdy\u017e c\u00edt\u00edm, \u017ee na m\u011b z\u00e1chvat p\u0159ich\u00e1z\u00ed t\u0159eba p\u0159i nat\u00e1\u010den\u00ed. A n\u011bkdy prost\u011b trp\u00edm p\u0159i n\u011bm,\u201c prozradila Jane\u010dkov\u00e1, kter\u00e1 n\u011bkdy pro \u00falevu vyu\u017e\u00edv\u00e1 i akupunkturu. <\/p>\n\n\n\n
\u00da\u010dastn\u00edci konference se tak\u00e9 sezn\u00e1mili s novou mobiln\u00ed aplikac\u00ed Migr\u00e9na Kompas, kter\u00e1 pom\u00e1h\u00e1 nemoc l\u00e9pe pochopit a zvl\u00e1dat. U\u017eivatel\u016fm aplikace umo\u017e\u0148uje zaznamenat jednotliv\u00e9 z\u00e1chvaty, jejich d\u00e9lku, intenzitu a u\u017eit\u00e9 l\u00e9ky. Aplikace tak\u00e9 nap\u0159\u00edklad nab\u00edz\u00ed tipy a triky, jak re\u017eimov\u00fdmi opat\u0159en\u00edmi z\u00e1chvat\u016fm p\u0159edch\u00e1zet. \u201eD\u00edky aplikaci pacienti l\u00e9pe porozum\u00ed sv\u00e9mu onemocn\u011bn\u00ed, mohou objevit nap\u0159\u00edklad spou\u0161t\u011b\u010de atak. Aplikace slou\u017e\u00ed i jako pomocn\u00edk p\u0159i rozhovoru pacienta s neurologem, ve\u0161ker\u00e1 data lze toti\u017e bezpe\u010dn\u00fdm zp\u016fsobem exportovat a l\u00e9ka\u0159i uk\u00e1zat,\u201c popsala Jitka Hrab\u00e1nkov\u00e1 z \u010desk\u00e9 spole\u010dnosti Pears Health Cyber, kter\u00e1 aplikaci vyv\u00edjela a testovala spole\u010dn\u011b s l\u00e9ka\u0159i a pacientskou organizac\u00ed Migr\u00e9na-help. V\u00fdvoj aplikace, kterou si do t\u00e9to doby nainstalovalo 1 637 u\u017eivatel\u016f, podpo\u0159ila spole\u010dnost Teva Pharmaceuticals.<\/p>\n\n\n\n
Z\u00e1znam konference\nje mo\u017en\u00e9 zhl\u00e9dnout na\nhttps:\/\/www.migrena-help.cz\/zaznam-konference\/<\/a>.\n<\/p>\n\n\n\n O\nMigr\u00e9na-help<\/strong><\/p>\n\n\n\n Organizace\nfunguje od listopadu 2018, kdy ji zalo\u017eila Bc. R\u00fdza Bla\u017eejovsk\u00e1,\nDiS., kter\u00e1 sama migr\u00e9nou trp\u00ed. Jej\u00edm posl\u00e1n\u00edm je zajistit\nlep\u0161\u00ed p\u0159\u00edstup k informac\u00edm lidem s migr\u00e9nou a pracovat na\nlep\u0161\u00edm porozum\u011bn\u00ed spole\u010dnosti v\u016f\u010di pot\u0159eb\u00e1m pacient\u016f. Svoj\u00ed\n\u010dinnost\u00ed chce vytvo\u0159it podm\u00ednky pro kvalitn\u00ed a plnohodnotn\u00fd\n\u017eivot lid\u00ed s migr\u00e9nou. V\u00edce informac\u00ed na www.migrena-help.cz<\/em><\/a>\na na www.migrena-kompas.cz<\/em>.<\/p>\n\n\n\n O\nl\u00e9\u010db\u011b migr\u00e9ny<\/strong><\/p>\n\n\n\n V\u00a0sou\u010dasn\u00e9 dob\u011b je na migr\u00e9nu k dispozici \u00fa\u010dinn\u00e1 l\u00e9\u010dba, kter\u00e1 se d\u011bl\u00ed na akutn\u00ed a preventivn\u00ed. V\u00a0p\u0159\u00edpad\u011b, \u017ee m\u00e1 pacient jen \u010dty\u0159i dny s\u00a0migr\u00e9nou (MMD) do m\u011bs\u00edce a pom\u016f\u017ee mu od bolesti tableta l\u00e9ku ze skupiny triptan\u016f, sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba a nen\u00ed t\u0159eba nasazovat preventivn\u00ed l\u00e9\u010dbu. Ov\u0161em p\u0159i vy\u0161\u0161\u00edm po\u010dtu dn\u016f s migr\u00e9nou \u2013 p\u011bt a v\u00edce do m\u011bs\u00edce, doch\u00e1z\u00ed k\u00a0v\u00fdrazn\u00e9mu sn\u00ed\u017een\u00ed kvality \u017eivota pacienta. Zde je vhodn\u00e9 nasadit preventivn\u00ed (tzv. profylaktickou) l\u00e9\u010dbu, jej\u00edm\u017e c\u00edlem je sn\u00ed\u017eit po\u010det a intenzitu z\u00e1chvat\u016f a omezit d\u00e9lku jejich trv\u00e1n\u00ed. <\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 2. 12. 2020 \u2013 \u00daporn\u00e1 bolest hlavy, zvracen\u00ed nebo poruchy vid\u011bn\u00ed. I tak dok\u00e1\u017ee migr\u00e9na pacient\u016fm komplikovat \u017eivot klidn\u011b desetkr\u00e1t v m\u011bs\u00edci. Nepochopen\u00ed spole\u010dnosti […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18738,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35428","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35428","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35428"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35428\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18738"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35428"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35428"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35428"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}