Praha, 17. 12. 2020 \u2013 P\u0159ibl\u00ed\u017eit p\u00e9\u010di k pacient\u016fm, nadchnout l\u00e9ka\u0159e pro obor a dostat je do m\u00edst, kde zat\u00edm chyb\u00ed, \u010di upustit od l\u00e9k\u016f, kter\u00e9 nezab\u00edraj\u00ed. To jsou c\u00edle, kter\u00e9 si na ned\u00e1vn\u00e9m webin\u00e1\u0159i o dostupnosti p\u00e9\u010de v oblasti revmatologie v \u010cR vytkli ti, kte\u0159\u00ed na to maj\u00ed re\u00e1ln\u00fd vliv. Tedy z\u00e1stupci odborn\u00e9 l\u00e9ka\u0159sk\u00e9 spole\u010dnosti, zdravotn\u00edch poji\u0161\u0165oven, farmakoekonom\u016f a pacient\u016f. <\/p>\n\n\n\n
V \u010cesku trp\u00ed revmatoidn\u00ed artritidou (RA) p\u0159ibli\u017en\u011b 95 000 lid\u00ed, ro\u010dn\u011b p\u0159ib\u00fdv\u00e1 dal\u0161\u00edch 6 400. Autoimunitn\u00ed nemoc \u00fato\u010d\u00ed nejv\u00edce na klouby, ty ot\u00e9kaj\u00ed, tuhnou a bol\u00ed. B\u011b\u017en\u00e9 denn\u00ed \u010dinnosti, jako je otev\u00edr\u00e1n\u00ed za\u0161roubovan\u00e9 l\u00e1hve, zapnut\u00ed ko\u0161ile nebo zav\u00e1z\u00e1n\u00ed tkani\u010dek, se v pod\u00e1n\u00ed revmatik\u016f m\u011bn\u00ed v bolestn\u00e9 drama. P\u0159esto\u017ee jde o nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed, v\u010das zah\u00e1jen\u00e1 l\u00e9\u010dba dok\u00e1\u017ee zm\u00edrnit projevy, a odd\u00e1lit tak invaliditu. <\/p>\n\n\n\n
Za posledn\u00ed dva roky se v\u00fdznamn\u011b zv\u00fd\u0161il po\u010det center biologick\u00e9 l\u00e9\u010dby stejn\u011b jako jejich rozpo\u010dty. P\u0159ibli\u017en\u011b37 % pacient\u016f v\u0161ak st\u00e1le nem\u00e1 \u017e\u00e1dnou l\u00e9\u010dbu a na biologickou l\u00e9\u010dbu dos\u00e1hne jen asi 6\u20137% nemocn\u00fdch.<\/p>\n\n\n\n
\u201eV 55 specializovan\u00fdch centrech pro biologickou l\u00e9\u010dbou se s revmatoidn\u00ed artritidou l\u00e9\u010d\u00ed pouze 6-7 % nemocn\u00fdch. To znamen\u00e1, \u017ee u v\u00edce ne\u017e 90 % pacient\u016f se pohybuje mimocentra, a na ty se mus\u00edme v\u00a0n\u00e1sleduj\u00edc\u00edch letech soust\u0159edit. C\u00edlem pro nejbli\u017e\u0161\u00ed roky by m\u011blo b\u00fdt nav\u00fd\u0161en\u00ed na alespo\u0148 10 %,\u201c \u0159ekl farmakoekonom MUDr. Tom\u00e1\u0161 Dole\u017eal. Podle z\u00e1stupc\u016f zdravotn\u00edch poji\u0161\u0165oven Davida \u0160mehl\u00edka za VZP a Renaty Knorov\u00e9 z\u00a0\u010cesk\u00e9 pr\u016fmyslov\u00e9 zdravotn\u00ed poji\u0161\u0165ovny nen\u00ed rozhodn\u011b na vin\u011b cena biologick\u00e9 l\u00e9\u010dby. Ta se v\u00a0posledn\u00edch letech d\u00edky p\u0159\u00edchodu biosimilars zna\u010dn\u011b sn\u00ed\u017eila. \u201eVid\u00edme zn\u00e1mky obratu k\u00a0lep\u0161\u00edmu. Rozpo\u010dty center jsou navy\u0161ov\u00e1ny dle po\u010dtu pacient\u016f, sna\u017e\u00edme se podporovat vznik nov\u00fdch center a za posledn\u00ed dva roky se n\u00e1m zv\u00fd\u0161ily po\u010dty \u00favazk\u016f ambulantn\u00edch revmatolog\u016f t\u00e9m\u011b\u0159 o 10%, kdy\u017e p\u0159edt\u00edm jen klesaly. \u00dazce spolupracujeme jak s\u00a0odbornou spole\u010dnost\u00ed, tak s\u00a0pacientskou organizac\u00ed na zm\u011bn\u011b,\u201c prohl\u00e1sil David \u0160mehl\u00edk, n\u00e1m\u011bstek pro zdravotn\u00ed p\u00e9\u010di VZP.<\/p>\n\n\n\n
Obor trp\u00ed nerovnom\u011brn\u00fdm rozlo\u017een\u00edm revmatolog\u016f, a tak\u00e9 jejich nedostatkem. \u201eRevmatologie je n\u00e1ro\u010dn\u00e1, a ne p\u0159\u00edli\u0161 dob\u0159e ohodnocen\u00e1. Pro l\u00e9ka\u0159e proto nen\u00ed obor finan\u010dn\u011b tak atraktivn\u00ed, jako \u0159ada jin\u00fdch specializac\u00ed. St\u00e1vaj\u00edc\u00ed centra jsou p\u0159et\u00ed\u017eena, \u017ee u\u017e nov\u00e9 pacienty neberou a pokud ano, prodlu\u017euj\u00ed se \u010dekac\u00ed doby na prohl\u00eddky. V n\u011bkter\u00fdch m\u00edstech republiky, nap\u0159\u00edklad v Havl\u00ed\u010dkov\u011b Brod\u011b se n\u00e1m dlouhodob\u011b neda\u0159\u00ed sehnat revmatologa v\u016fbec,\u201c poznamenal p\u0159edseda \u010cesk\u00e9 revmatologick\u00e9 spole\u010dnosti \u010cLS JEP prof. MUDr. Ji\u0159\u00ed Vencovsk\u00fd, DrSc. Pr\u00e1v\u011b rovnom\u011brn\u00e9 zas\u00ed\u0165ov\u00e1n\u00ed republiky revmatology pova\u017euje za jeden z nejd\u016fle\u017eit\u011bj\u0161\u00edch \u00fakol\u016f, kter\u00fd p\u0159ed sebou obor m\u00e1. <\/p>\n\n\n\n
Ke zmapov\u00e1n\u00ed sou\u010dasn\u00e9ho stavu poslou\u017e\u00ed mimo jin\u00e9 Revma mapa, kterou ve spolupr\u00e1ci s nejv\u011bt\u0161\u00ed \u010deskou zdravotn\u00ed poji\u0161\u0165ovnou VZP sestavuje pacientsk\u00e1 organizace Revma Liga \u2013 ta tak\u00e9 setk\u00e1n\u00ed expert\u016f zorganizovala. \u201eChceme, aby pacienti nemuseli cestovat des\u00edtky kilometr\u016f k nejbli\u017e\u0161\u00edmu, a nav\u00edc p\u0159et\u00ed\u017een\u00e9mu revmatologovi. Nel\u00edb\u00ed se n\u00e1m ani fakt, \u017ee o 80 % pacient\u016f s RA po\u0159\u00e1dn\u011b nic nev\u00edme, proto\u017ee nejsou ani v registru, ani ve specializovan\u00fdch centrech,\u201c \u0159ekla Edita M\u00fcllerov\u00e1, p\u0159edsedkyn\u011b Revma Ligy \u010cR. <\/p>\n\n\n\n
Podle dat zdravotn\u00edch poji\u0161\u0165oven i revmatologick\u00e9 spole\u010dnosti chyb\u00ed specialist\u00e9 p\u0159edev\u0161\u00edm na Vyso\u010din\u011b, na M\u011blnicku, v Teplic\u00edch nebo v D\u011b\u010d\u00edn\u011b. \u201ePacient m\u00e1 pr\u00e1vo m\u00edt sv\u00e9ho revmatologa do 60 minut od bydli\u0161t\u011b, a podle na\u0161ich \u00fadaj\u016f tomu tak je. Bohu\u017eel ne v\u0161ichni pacienti n\u00e1m \u0159eknou, kde opravdu bydl\u00ed,\u201c doplnila MUDr. Renata Knorov\u00e1, p\u0159edsedkyn\u011b zdravotn\u00ed sekce Svazu zdravotn\u00edch poji\u0161\u0165oven. \u201eData \u0159\u00edkaj\u00ed, \u017ee \u0161patn\u00e1 dostupnost je na Jesenicku, D\u011b\u010d\u00ednsku a v Rakovn\u00edku, ale na\u0161i klienti se na n\u00e1s mohou obr\u00e1tit nap\u0159\u00edmo, pokud pot\u0159ebn\u00e9ho l\u00e9ka\u0159e nemohou sehnat \u2013 m\u00e1lokdo v\u0161ak o t\u00e9to mo\u017enosti v\u00ed.\u201c<\/p>\n\n\n\n
Pacienti, poji\u0161\u0165ovny i l\u00e9ka\u0159i by tak\u00e9 ocenili, kdyby v\u011bd\u011bli, jak moc kvalitn\u00ed p\u00e9\u010de se v\u00a0konkr\u00e9tn\u00edm m\u00edst\u011b pacient\u016fm dost\u00e1v\u00e1. Indik\u00e1tory kvality by podle expert\u016f m\u011bly vzniknout v\u00a0nejbli\u017e\u0161\u00edch letech. \u201eNejnov\u011bj\u0161\u00ed n\u00e1zory nap\u0159\u00edklad poukazuj\u00ed na l\u00e9\u010dbu glukokortikoidy, kter\u00e1 je kr\u00e1tkodob\u011b efektivn\u00ed, ale p\u0159i dlouhodob\u00e9m u\u017e\u00edv\u00e1n\u00ed m\u00e1 naopak neblah\u00fd dopad na organismus. Kvalitu l\u00e9\u010dby v\u00a0ambulanc\u00edch tak lze do jist\u00e9 m\u00edry odvozovat i z\u00a0toho, v\u00a0jak\u00e9 m\u00ed\u0159e se glukokortikoidy pou\u017e\u00edvaj\u00ed,\u201c dopl\u0148uje prof. Vencovsk\u00fd. <\/p>\n\n\n\n
P\u0159ipomn\u011bl tak\u00e9, \u017ee po\u010det pacient\u016f na biologick\u00e9 l\u00e9\u010db\u011b rok od roku stoup\u00e1. D\u016fle\u017eit\u00e9 ale je, aby se pacient dostal do p\u00e9\u010de odborn\u00edka v\u010das. \u201eZ dotazn\u00edku mezi na\u0161imi \u010dleny bohu\u017eel vyplynulo, \u017ee ne\u017e se nemocn\u00fd dostane k\u00a0revmatologovi, uplyne 3 a\u017e 5 m\u011bs\u00edc\u016f,\u201c reagovala Edita M\u00fcllerov\u00e1 z\u00a0Revma Ligy. Podle farmakoekonoma Dole\u017eala p\u0159ipad\u00e1 ro\u010dn\u011b na jednu ordinaci v\u00a0pr\u016fm\u011bru 496 pacient\u016f s\u00a0revmatoidn\u00ed artritidou. <\/p>\n\n\n\n
O nemoci<\/p>\n\n\n\n
Revmatick\u00e1\nonemocn\u011bn\u00ed (revma) postihuj\u00ed pohybov\u00fd apar\u00e1t (klouby, kosti, p\u00e1te\u0159, ale i\nsvaly, vazy, \u0161lachov\u00e9 \u00fapony), mnohdy i n\u011bkter\u00e9 jin\u00e9 org\u00e1ny. Rozd\u011bluj\u00ed se do\nn\u011bkolika z\u00e1kladn\u00edch skupin: revmatick\u00e1 onemocn\u011bn\u00ed z\u00e1n\u011btliv\u00e1 (revmatoidn\u00ed\nartritida, tzv. syst\u00e9mov\u00e9 nemoci a dal\u0161\u00ed), degenerativn\u00ed revmatick\u00e9 nemoci\n(artr\u00f3za), infek\u010dn\u00ed artritidy, metabolick\u00e9 a endokrinn\u00ed choroby spojen\u00e9 s\nrevmatick\u00fdmi stavy (dna) a mimokloubn\u00ed revmatismus. Mezi nej\u010dast\u011bj\u0161\u00ed a\nnejzn\u00e1m\u011bj\u0161\u00ed pat\u0159\u00ed zejm\u00e9na revmatoidn\u00ed artritida, Becht\u011brevova nemoc a dna.<\/p>\n\n\n\n
O Revma Lize \u010cR <\/p>\n\n\n\n
Revma Liga \u010cR je spole\u010dnost lid\u00ed s revmatismem, jejich rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f a p\u0159\u00e1tel. C\u00edlem spole\u010dnosti je ji\u017e v\u00edce ne\u017e 27 let zvy\u0161ovat pov\u011bdom\u00ed o revmatick\u00fdch chorob\u00e1ch a pom\u00e1hat nemocn\u00fdm. Jej\u00ed \u010dlenov\u00e9 bojuj\u00ed za plnohodnotn\u00fd a rovnopr\u00e1vn\u00fd \u017eivot zdravotn\u011b posti\u017een\u00fdch a vytv\u00e1\u0159ej\u00ed pro n\u011b region\u00e1ln\u00ed kluby po cel\u00e9 \u010cesk\u00e9 republice. Revma Liga \u010cR spolupracuje s mezin\u00e1rodn\u00edmi organizacemi stejn\u00e9ho zam\u011b\u0159en\u00ed, je vyhled\u00e1van\u00fdm a rovnocenn\u00fdm partnerem pro pacienty, l\u00e9ka\u0159e, zdravotn\u00edky i st\u00e1tn\u00ed spr\u00e1vu. Svou \u010dinnost\u00ed motivuje pacienty a ukazuje zdrav\u00e9 populaci sv\u011bt o\u010dima revmatik\u016f. Heslem ligy je: Revma si nevyb\u00edr\u00e1, ale spolu to zvl\u00e1dneme. V\u00edce informac\u00ed na www.revmaliga.cz<\/a>. <\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 17. 12. 2020 \u2013 P\u0159ibl\u00ed\u017eit p\u00e9\u010di k pacient\u016fm, nadchnout l\u00e9ka\u0159e pro obor a dostat je do m\u00edst, kde zat\u00edm chyb\u00ed, \u010di upustit od l\u00e9k\u016f, […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14164,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35585","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35585","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35585"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35585\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14164"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35585"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35585"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35585"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}