Odborn\u00e1 soci\u00e1ln\u00ed poradna pro nemocn\u00e9 roztrou\u0161enou skler\u00f3zou a jejich pe\u010duj\u00edc\u00ed osoby funguje p\u0159i Domov\u011b sv. Josefa v \u017dir\u010di d\u00edky Domovence od minul\u00e9ho roku.
„Panu Karlovi byla roztrou\u0161en\u00e1 skler\u00f3za diagnostikov\u00e1na v roce 2018. Musel ze zdravotn\u00edch d\u016fvod\u016f skon\u010dit v zam\u011bstn\u00e1n\u00ed. P\u0159esto\u017ee m\u011bl vst\u0159\u00edcn\u00e9ho zam\u011bstnavatele, kter\u00fd bych ochotn\u00fd jednat o nav\u00e1z\u00e1n\u00ed spolupr\u00e1ce v jin\u00e9m re\u017eimu, pr\u00e1ce byla pro nemocn\u00e9ho pana Karla fyzicky p\u0159\u00edli\u0161 n\u00e1ro\u010dn\u00e1. Od t\u00e9 doby je veden na \u00fa\u0159adu pr\u00e1ce a marn\u011b \u010dek\u00e1 na schv\u00e1len\u00ed invalidn\u00edho d\u016fchodu. V m\u00edst\u011b bydli\u0161t\u011b se setkal s neochotou u sv\u00e9ho praktick\u00e9ho l\u00e9ka\u0159e, kter\u00fd ho ve dve\u0159\u00edch poslal pry\u010d (bez d\u016fkladn\u00e9 prohl\u00eddky a vz\u00e1jemn\u00e9ho rozhovoru), \u017ee pr\u00fd na invalidn\u00ed d\u016fchod n\u00e1rok nem\u00e1. Pokusil se vyhledat pomoc u jin\u00e9ho l\u00e9ka\u0159e, kde mu byla p\u0159isl\u00edbena pomoc, ale i tak st\u00e1le se nic nezm\u011bnilo. Pana Karla opustila p\u0159\u00edtelkyn\u011b a maj\u00ed syna ve st\u0159\u00eddav\u00e9 p\u00e9\u010di. Syna m\u00e1 velmi r\u00e1d a nerad by o n\u011bj p\u0159i\u0161el. Pan Karel je u\u017e v\u0161ak t\u00e9m\u011b\u0159 2 roky bez finan\u010dn\u00ed podpory. Nyn\u00ed je v situaci, kdy ji\u017e nen\u00ed schopen finan\u010dn\u011b zajistit ani z\u00e1kladn\u00ed lidsk\u00e9 pot\u0159eby – nejen pro sebe, ale i pro sv\u00e9ho syna – o\u0161acen\u00ed, strava\u2026 Psychicky je velmi vy\u010derp\u00e1n, nev\u00ed kudy kam.\u201d<\/p>\n\n\n\n
To je jen jeden z mnoha p\u0159\u00edb\u011bh\u016f, ve kter\u00fdch Domovenka hraje svoji roli. Odborn\u00e1 soci\u00e1ln\u00ed poradna pro nemocn\u00e9 roztrou\u0161enou skler\u00f3zou a jejich pe\u010duj\u00edc\u00ed osoby funguje p\u0159i Domov\u011b sv. Josefa d\u00edky Domovence od minul\u00e9ho roku. Zeptali jsme se, co m\u016f\u017ee poradna v takov\u00e9mto p\u0159\u00edpad\u011b nab\u00eddnout?<\/p>\n\n\n\n
„V prvn\u00ed \u0159ad\u011b vyslechneme, co klienta tr\u00e1p\u00ed, s \u010d\u00edm pot\u0159ebuje pomoci. U pana Karla bylo pot\u0159eba vyslechnout cel\u00fd jeho p\u0159\u00edb\u011bh a zmapovat aktu\u00e1ln\u00ed situaci, abychom mu mohli navrhnout dal\u0161\u00ed postup. Doporu\u010dili jsme mu kontaktovat Ob\u010danskou poradnu v m\u00edst\u011b bydli\u0161t\u011b, Okresn\u00ed spr\u00e1vu soci\u00e1ln\u00edho zabezpe\u010den\u00ed a p\u0159edev\u0161\u00edm vytrvat v jedn\u00e1n\u00ed s l\u00e9ka\u0159em. D\u00e1le jsme ho spojili s na\u0161\u00ed psychoterapeutkou a fyzioterapeutkou. Samoz\u0159ejm\u011b s panem Karlem nad\u00e1le z\u016fst\u00e1v\u00e1me v kontaktu, proto\u017ee pro v\u011bt\u0161inu klient\u016f je nejd\u016fle\u017eit\u011bj\u0161\u00ed psychick\u00e1 podpora a v\u011bdom\u00ed, \u017ee na to nejsou sami\u201d, \u0159\u00edk\u00e1 Kate\u0159ina Zubrov\u00e1 z Odborn\u00e9 soci\u00e1ln\u00ed poradny v Domov\u011b sv. Josefa.<\/p>\n\n\n\n
Jak\u00e9 jsou nej\u010dast\u011bj\u0161\u00ed d\u016fvody, kv\u016fli kter\u00fdm v\u00e1m klienti volaj\u00ed?<\/p>\n\n\n\n
„Klienti, kte\u0159\u00ed do poradny volaj\u00ed, se zaj\u00edmaj\u00ed p\u0159edev\u0161\u00edm o mo\u017enosti rehabilitace v dom\u00e1c\u00edm prost\u0159ed\u00ed. Rehabilitace jsou jedn\u00edm z nejd\u016fle\u017eit\u011bj\u0161\u00edch faktor\u016f pro udr\u017een\u00ed nemoci pod kontrolou. Z\u00e1rove\u0148 jsou \u0161patn\u011b dostupn\u00e9, a p\u0159edev\u0161\u00edm nejsou hrazen\u00e9 poji\u0161\u0165ovnami. V sou\u010dasn\u00e9 situaci je nav\u00edc problematick\u00e9 absolvovat rehabilitace z d\u016fvodu mo\u017en\u00e9 n\u00e1kazy covidem. D\u00edky na\u0161emu t\u00fdmu jsme schopni klientovi poskytnout fyzioterapeutick\u00e9 rady na d\u00e1lku a pokud m\u00e1 technick\u00e9 vybaven\u00ed na videohovor, posta\u010d\u00ed i mobiln\u00ed telefon, m\u016f\u017eeme mu poradit i se spr\u00e1vn\u00fdm prov\u00e1d\u011bn\u00edm cvi\u010den\u00ed.\u201d vysv\u011btluje Mgr. Martina Kopeck\u00e1, vedouc\u00ed Odborn\u00e9 soci\u00e1ln\u00ed poradny, a dopl\u0148uje dal\u0161\u00ed d\u016fvody, pro\u010d se klienti na poradnu obracej\u00ed: „\u010casto hledaj\u00ed fyzickou dopomoc v dom\u00e1c\u00edm prost\u0159ed\u00ed, osobn\u00edho asistenta \u010di dobrovoln\u00edka, proto\u017ee je mnoho v\u011bc\u00ed, kter\u00e9 ji\u017e nedok\u00e1\u017eou sami zvl\u00e1dnout. Ptaj\u00ed se tak\u00e9 na mo\u017enosti pobytu u n\u00e1s, p\u0159edev\u0161\u00edm dlouhodob\u00e9ho, ale tady jsme velmi limitov\u00e1n\u00ed po\u010dtem l\u016f\u017eek a po\u010dtem evidovan\u00fdch \u017e\u00e1dost\u00ed.\u201d<\/p>\n\n\n\n
Tak\u017ee jak Domovenka pom\u00e1h\u00e1?<\/p>\n\n\n\n
Na to n\u00e1m odpov\u00edd\u00e1 mana\u017eer projektu, Jan Stan\u011bk: „D\u00edky p\u0159\u00edsp\u011bvk\u016fm v\u0161ech d\u00e1rc\u016f na www.domovenka.cz jsme schopni financovat hodiny jednotliv\u00fdch specialist\u016f, kte\u0159\u00ed pom\u00e1haj\u00ed lidem s roztrou\u0161enou skler\u00f3zou zvl\u00e1dnout nemoc doma. Na\u0161i terapeuti jsou k dispozici v r\u00e1mci pobytov\u00e9 slu\u017eby p\u0159\u00edmo v Domov\u011b sv. Josefa a tak\u00e9 prost\u0159ednictv\u00edm online poradensk\u00e9 slu\u017eby lidem v dom\u00e1c\u00edm prost\u0159ed\u00ed. Online poradna je dostupn\u00e1 telefonicky od pond\u011bl\u00ed do p\u00e1tku 8-15 hodin a na e-mailu i mimo tuto dobu. P\u0159ipravujeme i video platformu uzp\u016fsobenou pro jednoduch\u00e9 propojen\u00ed se s hendikepovan\u00fdm. Na telefonn\u00ed \u010d\u00edslo 491 610 620 m\u016f\u017ee zavolat ka\u017ed\u00fd, kdo m\u00e1 roztrou\u0161enou skler\u00f3zu, nebo ka\u017ed\u00fd, kdo pe\u010duje o nemocn\u00e9ho s touto nemoc\u00ed. Prim\u00e1rn\u011b se specializujeme na klienty v pokro\u010dilej\u0161\u00edm stadiu nemoci, pro kter\u00e9 v sou\u010dasn\u00e9m syst\u00e9mu prakticky neexistuje adekv\u00e1tn\u00ed slu\u017eba. Sna\u017e\u00edme se poskytnout maxim\u00e1ln\u00ed podporu a poradenstv\u00ed tak, aby na to nebyli sami.\u201d<\/p>\n\n\n\n
Domov svat\u00e9ho Josefa sv\u00fdmi pobytov\u00fdmi slu\u017ebami i odbornou poradnou dlouhodob\u011b usiluje o lep\u0161\u00ed \u017eivot lid\u00ed s roztrou\u0161enou skler\u00f3zou. V leto\u0161n\u00edm roce oslav\u00ed ji\u017e 20 let od sv\u00e9ho zalo\u017een\u00ed. V\u00edce informac\u00ed naleznete na www.domovsvatehojosefa.cz.<\/p>\n\n\n\n
Kate\u0159ina F\u00fcrbacherov\u00e1<\/p>\n\n\n\n
Krkono\u0161sk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/krkonossky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Odborn\u00e1 soci\u00e1ln\u00ed poradna pro nemocn\u00e9 roztrou\u0161enou skler\u00f3zou a jejich pe\u010duj\u00edc\u00ed osoby funguje p\u0159i Domov\u011b sv. Josefa v \u017dir\u010di d\u00edky Domovence od minul\u00e9ho roku. „Panu Karlovi […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18186,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35814","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35814","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35814"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35814\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18186"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35814"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35814"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35814"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}