Kdy\u017e maminku Andreu potk\u00e1te s \u0161estilet\u00fdm synem Ond\u0159ejem na proch\u00e1zce, m\u016f\u017eete na n\u011bm nechat o\u010di. M\u00e1 kr\u00e1sn\u00fd jemn\u00fd obli\u010dej, modr\u00e9 o\u010di a dlouh\u00e9 vlnit\u00e9 vlasy po ramena. Mal\u00e9ho p\u0159ed\u0161kol\u00e1\u010dka bav\u00ed \u010d\u00edsla a p\u00edsmena a od mala miluje a m\u00e1 cit pro hudbu. Fascinuj\u00ed ho auta, dopravn\u00ed prost\u0159edky obecn\u011b a tak\u00e9 dopravn\u00ed zna\u010dky.
„Nejspokojen\u011bj\u0161\u00ed ale je, kdy\u017e jsme jako rodina v\u0161ichni spolu. Pokud maj\u00ed v\u011bci \u0159\u00e1d, kter\u00fd o\u010dek\u00e1v\u00e1, je absolutn\u011b \u0161\u0165astn\u00fd“, za\u010d\u00edn\u00e1 sv\u00e9 vypr\u00e1v\u011bn\u00ed maminka. „Ondr\u00e1\u0161ek m\u00e1 je\u0161t\u011b jednu trochu netradi\u010dn\u00ed lib\u016fstku. V jak\u00e9mkoli vnit\u0159n\u00edm prostoru se po p\u0159\u00edchodu vyzuje, v\u010detn\u011b pono\u017eek a chod\u00ed bos,“ uzav\u00edr\u00e1 maminka jeho popis s \u00fasm\u011bvem. <\/p>\n\n\n\n
V \u017eivot\u011b ov\u0161em \u010dasto plat\u00ed, \u017ee nic nen\u00ed tak jednoduch\u00e9, jak se navenek jev\u00ed. Na prvn\u00ed pohled roztomil\u00fd, pohodov\u00fd chlape\u010dek se narodil p\u0159ed\u010dasn\u011b. V jeho necel\u00fdch t\u0159ech letech mu l\u00e9ka\u0159i diagnostikovali v\u00fdraznou poruchu autistick\u00e9ho spektra. O autizmu se u\u017e na\u0161t\u011bst\u00ed ve spole\u010dnosti mluv\u00ed st\u00e1le v\u00edc. Moment\u00e1ln\u011b b\u011b\u017e\u00ed v \u010desk\u00e9 televizi velmi popul\u00e1rn\u00ed seri\u00e1l Kuka\u010dky. Pojedn\u00e1v\u00e1 o dvou rodin\u00e1ch, kter\u00fdm v porodnici zam\u011bnili d\u011bti. Jedn\u00edm z mal\u00fdch hrdin\u016f je autistick\u00fd Jakub. I laikov\u00e9 tak aspo\u0148 trochu nahl\u00e9dnou do toho, co to pro rodi\u010de ale i prarodi\u010de obn\u00e1\u0161\u00ed tato porucha. \u017de autistick\u00e9 d\u011bti nesn\u00e1\u0161\u00ed zm\u011bny, reakce na nezn\u00e1m\u00e9 situace b\u00fdv\u00e1 vztek. Svoje posti\u017een\u00ed ov\u0161em na \u010dele „napsan\u00e9“ nemaj\u00ed. Na rodi\u010de, kte\u0159\u00ed jsou ve stresu i bez hodnocen\u00ed okol\u00ed , se v t\u011bchto momentech sn\u00e1\u0161\u00ed kritika o rozmazlenosti a \u0161patn\u00e9 v\u00fdchov\u011b. Ond\u0159ej m\u00e1 \u0161t\u011bst\u00ed, \u017ee maminka i tat\u00ednek v\u011bnuj\u00ed jeho pot\u0159eb\u00e1m maxim\u00e1ln\u00ed pozornost – a stejn\u011b jako seri\u00e1lov\u00e1 maminka – se Ond\u0159ejovi v\u011bnuj\u00ed natolik, \u017ee u\u017e se “ vztek\u00e1“ jen v\u00fdjime\u010dn\u011b. <\/p>\n\n\n\n
„Ondr\u00e1\u0161ek je \u010d\u00edtankov\u00e1 uk\u00e1zka autistick\u00e9ho d\u00edt\u011bte,“ bere si op\u011bt slovo maminka Andrea. „Obt\u00ed\u017en\u011b komunikuje s okol\u00edm. T\u011b\u017eko se adaptuje na novinky a je\u0161t\u011b h\u016f\u0159 navazuje soci\u00e1ln\u00ed vazby. Chce to dodr\u017eovat pravideln\u00e9 ritu\u00e1ly, den mus\u00ed m\u00edt p\u0159esn\u011b jasnou strukturu, v\u0161e b\u00fdt naprosto p\u0159edv\u00eddateln\u00e9. Pak je a\u017e neuv\u011b\u0159iteln\u00e9 jak se um\u00ed radovat z mali\u010dkost\u00ed a u\u017e\u00edvat si kouzlo p\u0159\u00edtomn\u00e9ho okam\u017eiku. Je to \u017eiv\u00fd a bystr\u00fd kluk s vlastn\u00edm vn\u00edm\u00e1n\u00edm okoln\u00edho sv\u011bta. My jsme tu pro n\u011bj, aby se dok\u00e1zal za\u0159adit i do b\u011b\u017en\u00e9ho \u017eivota.“<\/p>\n\n\n\n
Terapie ve specializovan\u00e9m centru pom\u00e1haj\u00ed<\/p>\n\n\n\n
Zachov\u00e1v\u00e1n\u00ed pevn\u00e9ho re\u017eimu a ritu\u00e1l\u016f je pro maminku Andreu o to n\u00e1ro\u010dn\u011bj\u0161\u00ed, \u017ee Ondr\u00e1\u0161k\u016fv star\u0161\u00ed br\u00e1\u0161ka Fil\u00edpek pro zm\u011bnu trp\u00ed od dvou let cukrovkou 1. typu. Je z\u00e1visl\u00fd na inzul\u00ednu, co\u017e sebou nese pro zm\u011bnu nutnost dodr\u017eovat p\u0159\u00edsn\u00e1 pravidla stravov\u00e1n\u00ed. V praxi to znamen\u00e1, \u017ee j\u00ed p\u00e9\u010de o oba syny vyt\u011b\u017euje natolik, \u017ee se nemohla vr\u00e1tit do zam\u011bstn\u00e1n\u00ed. Ve\u0161ker\u00e1 ob\u017eiva rodiny stoj\u00ed a pad\u00e1 na otci. <\/p>\n\n\n\n
V Ondr\u00e1\u0161kov\u011b zklidn\u011bn\u00ed a vybudov\u00e1n\u00ed pocitu bezpe\u010d\u00ed a milovanosti sehr\u00e1v\u00e1 roli, \u017ee od t\u0159\u00ed let nav\u0161t\u011bvuje pravideln\u011b ka\u017ed\u00fd t\u00fdden terapie ve specializovan\u00e9m centru pro autistick\u00e9 d\u011bti. Mimo to doch\u00e1z\u00ed u\u017e t\u0159et\u00ed \u0161koln\u00ed rok na dopoledne do mate\u0159sk\u00e9 \u0161kolky s asistentem. „Terapie a mo\u017enost b\u00fdt v kolektivu d\u011bt\u00ed jej skokov\u011b posunuj\u00ed dop\u0159edu v oblastech, ve kter\u00fdch pot\u0159ebuje nejv\u011bt\u0161\u00ed pomoc, jako je komunikace, rozvoj soci\u00e1ln\u00ed interakce a adaptace na zm\u011bny,“ bere si slovo velk\u00e1 Ondr\u00e1\u0161kova spojenkyn\u011b, poradkyn\u011b ran\u00e9 p\u00e9\u010de Jana Londinov\u00e1, kter\u00e1 jeho v\u00fdvoj sleduje. <\/p>\n\n\n\n
M\u00e1 to ale h\u00e1\u010dek. \u010cty\u0159\u010dlenn\u00e1 rodina \u017eije v sou\u010dasnosti jen z jednoho p\u0159\u00edjmu. K tomu si v\u0161echny aktivity a Ond\u0159ejovo vzd\u011bl\u00e1v\u00e1n\u00ed hrad\u00ed sama. \u010c\u00e1stky jsou svoj\u00ed v\u00fd\u0161\u00ed ve srovn\u00e1n\u00ed s v\u00fddaji na vzd\u011bl\u00e1n\u00ed zdrav\u00e9ho d\u00edt\u011bte n\u011bkolikan\u00e1sobn\u011b vy\u0161\u0161\u00ed. Rodinu n\u00e1klady na vzd\u011bl\u00e1v\u00e1n\u00ed a rozvoj syna finan\u010dn\u011b velmi vy\u010derp\u00e1vaj\u00ed.
„Pr\u00e1ce s d\u011btmi s poruchou autistick\u00e9ho centra je b\u011bh na dlouhou trasu,“ vysv\u011btluje laik\u016fm situaci Jana Londinov\u00e1. „A pr\u00e1v\u011b te\u010f v tuto chv\u00edli se za\u010dalo intenzivn\u00ed nasazen\u00ed rodi\u010d\u016f i terapeut\u016f z\u00faro\u010dovat. Chlape\u010dek p\u0159ekra\u010duje sv\u016fj st\u00edn. Na nov\u00e9 prost\u0159ed\u00ed, dosp\u011bl\u00e9 osoby i vrstevn\u00edky se kr\u00e1sn\u011b adaptoval. Vid\u00edme velk\u00fd pokrok v jeho dovednostech a bylo by smutn\u00e9, kdyby se v\u0161echno zastavilo, proto\u017ee by nemohl v doch\u00e1zce pokra\u010dovat. Bohu\u017eel poji\u0161\u0165ovna na tyto d\u011bti nemysl\u00ed. Proto se p\u0159imlouv\u00e1m o pomoc rodi\u010d\u016fm se \u0161koln\u00fdm. Jde o podporu vysok\u00e9ho potenci\u00e1lu d\u00edt\u011bte i rodiny, kter\u00e1 by bez zdravotn\u00edch pot\u00ed\u017e\u00ed sv\u00fdch d\u011bt\u00ed nikdy \u017e\u00e1dnou pomoc nepot\u0159ebovala. Budeme v\u00e1m velmi vd\u011b\u010dn\u00ed.“ Jana Londinov\u00e1 se stala Ond\u0159ejovou Patronkou. Spole\u010dn\u011b s maminkou si podali \u017e\u00e1dost u Patrona d\u011bt\u00ed. Zde m\u016f\u017eete odv\u00e1\u017en\u00e9mu Ondr\u00e1\u0161kovi sv\u00fdm p\u0159\u00edsp\u011bvkem pomoct i vy. Pro Ondr\u00e1\u0161ka se u\u017e vybralo 17 250 korun. Ve\u0161ker\u00fdch 100 procent vybran\u00fdch prost\u0159edk\u016f jde na jeho pomoc. Provoz projektu Patron d\u011bt\u00ed je pln\u011b hrazen Nadac\u00ed Sirius.<\/p>\n\n\n\n
O Patronovi d\u011bt\u00ed <\/p>\n\n\n\n
Patron d\u011bt\u00ed je charitativn\u00ed projekt, kter\u00fd zalo\u017eila Nadace Sirius v roce 2017. Je zam\u011b\u0159en na p\u0159\u00edmou pomoc pot\u0159ebn\u00fdm d\u011btem formou adresn\u00fdch ve\u0159ejn\u00fdch sb\u00edrek. Od sv\u00e9ho vzniku v roce 2017 podpo\u0159il v\u00edce ne\u017e 4 890 d\u011btsk\u00fdch p\u0159\u00edb\u011bh\u016f, na kter\u00e9 se slo\u017eilo t\u00e9m\u011b\u0159 23 528 lid\u00ed \u010d\u00e1stkou p\u0159evy\u0161uj\u00edc\u00ed 52, 3 mili\u00f3nu K\u010d. \u010c\u00edsla se ka\u017ed\u00fd den zvy\u0161uj\u00ed. Najdete je stejn\u011b jako d\u016fkazy ve form\u011b spln\u011bn\u00fdch p\u0159\u00edb\u011bh\u016f, kter\u00e9 si m\u016f\u017eete pro\u010d\u00edst. Jakmile je vypsan\u00e1 c\u00edlov\u00e1 \u010d\u00e1stka napln\u011bna, po\u0159\u00edd\u00ed za ni Patron d\u011bt\u00ed v\u011bcn\u00fd dar nebo slu\u017ebu, na kterou se d\u00e1rci mal\u00fdmi (t\u0159eba i pouhou stokorunou) i v\u011bt\u0161\u00edmi \u010d\u00e1stkami skl\u00e1dali. Rodina tedy nez\u00edsk\u00e1v\u00e1 pen\u00edze, ale dar, o kter\u00fd po\u017e\u00e1dala. Na pomoc konkr\u00e9tn\u00edmu d\u00edt\u011bti jde p\u0159itom 100 procent vybran\u00fdch prost\u0159edk\u016f. Provoz projektu je pln\u011b hrazen Nadac\u00ed Sirius.<\/p>\n\n\n\n
Bene\u0161ovsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/benesovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Kdy\u017e maminku Andreu potk\u00e1te s \u0161estilet\u00fdm synem Ond\u0159ejem na proch\u00e1zce, m\u016f\u017eete na n\u011bm nechat o\u010di. M\u00e1 kr\u00e1sn\u00fd jemn\u00fd obli\u010dej, modr\u00e9 o\u010di a dlouh\u00e9 vlnit\u00e9 vlasy […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14227,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35850","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35850","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35850"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35850\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14227"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35850"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35850"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35850"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}