Praha, 22.2.2021 \u2013 T\u00e9m\u011b\u0159 250 pacient\u016f si loni p\u0159i\u0161lo vy\u0161et\u0159it sv\u00e9 pl\u00edce, aby vyvr\u00e1tili podez\u0159en\u00ed na smrtelnou plicn\u00ed nemoc \u2013 idiopatickou plicn\u00ed fibr\u00f3zu (IPF). Dvan\u00e1ct z\u00a0nich l\u00e9ka\u0159i odeslali k\u00a0dal\u0161\u00edm vy\u0161et\u0159en\u00edm, proto\u017ee se u nich podez\u0159en\u00ed potvrdila. Vz\u00e1cnou nemoc, p\u0159i kter\u00e9 lid\u00e9 nemohou d\u00fdchat a maj\u00ed pocit, jako by se topili, si l\u00e9ka\u0159i p\u0159ipom\u00ednaj\u00ed u p\u0159\u00edle\u017eitosti Dne vz\u00e1cn\u00fdch onemocn\u011bn\u00ed, kter\u00fd letos p\u0159ipad\u00e1 na 28. \u00fanora. Bez v\u010dasn\u00e9ho z\u00e1chytu a l\u00e9\u010dby pacienti s IPF do n\u011bkolika let um\u00edraj\u00ed. Pot\u00ed\u017ee s\u00a0d\u00fdch\u00e1n\u00edm by proto nem\u011bli podce\u0148ovat ani p\u0159i sou\u010dasn\u00e9 koronavirov\u00e9 pandemii. I p\u016flro\u010dn\u00ed odklad vy\u0161et\u0159en\u00ed m\u016f\u017ee b\u00fdt fat\u00e1ln\u00ed.<\/p>\n\n\n\n
Pneumologov\u00e9 proto nab\u00eddli loni na podzim lidem, a\u0165 se nechaj\u00ed zdarma a bez objedn\u00e1n\u00ed vy\u0161et\u0159it v\u00a0r\u00e1mci Dne otev\u0159en\u00fdch plicn\u00edch ambulanc\u00ed. Pl\u00edce si nechalo zkontrolovat v\u00a0t\u00e9m\u011b\u0159 60 ordinac\u00edch 245 pacient\u016f, co\u017e je o polovinu m\u00e9n\u011b ne\u017e v\u00a0roce 2019. Pokles z\u00e1jemc\u016f o vy\u0161et\u0159en\u00ed zap\u0159\u00ed\u010dinila podle l\u00e9ka\u0159\u016f koronavirov\u00e1 pandemie. <\/p>\n\n\n\n
\u201ePr\u016fb\u011bh IPF m\u016f\u017ee b\u00fdt nep\u0159edv\u00eddateln\u00fd. Jsme proto vd\u011b\u010dn\u00ed za ka\u017ed\u00e9ho pacienta, kter\u00fd se i p\u0159es pandemii covidu dne otev\u0159en\u00fdch dve\u0159\u00ed z\u00fa\u010dastnil. Stejn\u011b tak by lid\u00e9 nem\u011bli podce\u0148ovat pravideln\u00e9 kontroly. I p\u016flro\u010dn\u00ed pose\u010dk\u00e1n\u00ed m\u016f\u017ee b\u00fdt opravdu dlouh\u00e9 a l\u00e9\u010dba, kter\u00e1 by pacientovi p\u0159ed \u0161esti m\u011bs\u00edci zabrala, u\u017e dnes nemus\u00ed sta\u010dit,\u201c \u0159\u00edk\u00e1 prof. MUDr. Martina Va\u0161\u00e1kov\u00e1, Ph.D., p\u0159edsedkyn\u011b \u010cesk\u00e9 pneumologick\u00e9 a ftizeologick\u00e9 spole\u010dnosti (\u010cPFS). <\/p>\n\n\n\n
Jej\u00ed slova potvrzuje ambulantn\u00ed pneumolog MUDr. Ale\u0161 Tauchman z \u010cesk\u00e9ho Krumlova. \u201eKa\u017edodenn\u00ed praxe ukazuje, \u017ee se k n\u00e1m pacienti \u010dasto dost\u00e1vaj\u00ed a\u017e v pokro\u010dil\u00fdch f\u00e1z\u00edch nemoci (co\u017e bohu\u017eel plat\u00ed i pro jin\u00e9 z\u00e1va\u017en\u00e9 nemoci, nap\u0159. chronickou obstruk\u010dn\u00ed plicn\u00ed nemoc), kdy jsou mo\u017enosti l\u00e9\u010dby a hlavn\u011b jej\u00ed v\u00fdsledky zna\u010dn\u011b limitovan\u00e9. P\u0159i podez\u0159en\u00ed na IPF pos\u00edl\u00e1me pacienta ihned do specializovan\u00e9ho centra, kde je podez\u0159en\u00ed na diagn\u00f3zu potvrzeno (\u010di vyvr\u00e1ceno) a je stanovena vhodn\u00e1 l\u00e9\u010dba. V\u00a0na\u0161em p\u0159\u00edpad\u011b je t\u00edmto centrem Plicn\u00ed odd\u011blen\u00ed Nemocnice v\u00a0\u010cesk\u00fdch Bud\u011bjovic\u00edch,\u201c \u0159\u00edk\u00e1 MUDr. Tauchman. <\/p>\n\n\n\n
Po\u010det lid\u00ed, kte\u0159\u00ed plicn\u00ed l\u00e9ka\u0159e nav\u0161t\u00edvili, oproti roku 2019 podle zku\u0161enost\u00ed pneumolog\u016f kles\u00e1. P\u0159isuzuj\u00ed to pr\u00e1v\u011b koronavirov\u00e9 pandemii. IPF toti\u017e postihuje osoby star\u0161\u00ed 60 let, kter\u00e9 pat\u0159\u00ed mezi ohro\u017eenou skupinu nemoc\u00ed covid-19. Pacienti se boj\u00ed, \u017ee se p\u0159i n\u00e1v\u0161t\u011bv\u011b pneumologa virem nakaz\u00ed. Podle l\u00e9ka\u0159\u016f jsou jejich obavy zbyte\u010dn\u00e9. \u201eNev\u00edm o nikom, kdo by se nakazil v ordinaci, kde dodr\u017eujeme p\u0159\u00edsn\u00e1 protiepidemick\u00e1 opat\u0159en\u00ed. Po\u010det na\u0161ich pacient\u016f, kte\u0159\u00ed onemocn\u011bli koronavirem, naopak dramaticky stoupl p\u0159es V\u00e1noce, kdy se setk\u00e1vali s p\u0159\u00edbuzn\u00fdmi,\u201c vysv\u011btluje MUDr. Martina \u0160terclov\u00e1, Ph.D., p\u0159edsedkyn\u011b Sekce pro interstici\u00e1ln\u00ed plicn\u00ed procesy (SIPP) \u010cPFS. <\/p>\n\n\n\n
Apeluje proto na rodinn\u00e9 p\u0159\u00edslu\u0161n\u00edky, aby zdravotn\u00ed stav pacient\u016f s IPF nebo jin\u00fdmi plicn\u00edmi nemocemi nepodce\u0148ovali, dodr\u017eovali opat\u0159en\u00ed a nechali se p\u0159ed jejich n\u00e1v\u0161t\u011bvou testovat. \u201eJedna pan\u00ed s\u00a0IPF n\u00e1m bohu\u017eel takto po V\u00e1noc\u00edch zem\u0159ela a dal\u0161\u00edmu pacientovi se v\u00fdrazn\u011b zhor\u0161ily plicn\u00ed funkce. Rozhodn\u011b ale nelze \u0159\u00edci, \u017ee by pacient s\u00a0IPF a nemoc\u00ed covid-19 musel zem\u0159\u00edt. Na druhou stranu lze o\u010dek\u00e1vat komplikace a p\u0159\u00edpadnou hospitalizaci, proto nab\u00e1d\u00e1m k\u00a0ohleduplnosti,\u201c popisuje MUDr. \u0160terclov\u00e1. Pacienti by se podle n\u00ed rovn\u011b\u017e nem\u011bli b\u00e1t o\u010dkov\u00e1n\u00ed proti koronaviru, ba pr\u00e1v\u011b naopak. IPF nen\u00ed jedin\u00fdm z\u00e1va\u017en\u00fdm onemocn\u011bn\u00edm plic, se kter\u00fdm se pneumologov\u00e9 setk\u00e1vaj\u00ed. Podobn\u00fd pr\u016fb\u011bh jako IPF mohou m\u00edt i dal\u0161\u00ed plicn\u00ed fibr\u00f3zy, kter\u00e9 se vyskytuj\u00ed \u010dast\u011bji. <\/p>\n\n\n\n
Pat\u0159\u00ed k nim nap\u0159\u00edklad tzv. holub\u00e1\u0159sk\u00e9 pl\u00edce. \u201eNemoc se objevuje u pacient\u016f po kontaktu s prachem a pta\u010d\u00edm pe\u0159\u00edm. Vyskytuje se \u010dasto na farm\u00e1ch. Podobn\u011b jako u IPF se pacient\u016fm jizv\u00ed plicn\u00ed tk\u00e1n\u011b, ale funkce neklesaj\u00ed tak rapidn\u011b. Na rozd\u00edl od IPF ale postihuje i mlad\u0161\u00ed ro\u010dn\u00edky v produktivn\u00edm v\u011bku,\u201c vysv\u011btluje MUDr. \u0160terclov\u00e1.Podle dostupn\u00fdch dat pacienti s r\u016fzn\u00fdmi typy plicn\u00edch fibr\u00f3z dob\u0159e reaguj\u00ed na modern\u00ed antifibrotickou l\u00e9\u010dbu. <\/p>\n\n\n\n
\u201eL\u00e9ky um\u00ed v\u00fdrazn\u011b zpomalit pokles plicn\u00edch funkc\u00ed, efekt je tedy podobn\u00fd jako u IPF a l\u00e9\u010dba m\u016f\u017ee pacientovi a\u017e dvojn\u00e1sobn\u011b prodlou\u017eit \u017eivot,\u201c popisuje prof. Va\u0161\u00e1kov\u00e1. Pacient\u016fm l\u00e9\u010dbu t\u00e9m\u011b\u0159 v\u017edy hrad\u00ed zdravotn\u00ed poji\u0161\u0165ovny. Roz\u010darov\u00e1n\u00ed v\u0161ak \u010dekalo na Jaroslavu Polenovou, kter\u00e9 V\u0161eobecn\u00e1 zdravotn\u00ed poji\u0161\u0165ovna (VZP) l\u00e9\u010dbu odm\u00edtla uhradit, p\u0159esto\u017ee se l\u00e9ka\u0159sk\u00e9 konzilium shodlo, \u017ee by pro ni byla vhodn\u00e1. <\/p>\n\n\n\n
\u201eKdy\u017e mi l\u00e9k zam\u00edtli, myslela jsem si, \u017ee se zbl\u00e1zn\u00edm. Ten pocit beznad\u011bje a ztr\u00e1ty vidiny budouc\u00edho \u017eivota se t\u011b\u017eko popisuje. Nev\u00edm, co bude d\u00e1l, v noci se bud\u00edm a m\u00e1m strach, co se se mnou stane. M\u016fj \u017eivot je te\u010f v\u00a0rukou \u00fapln\u011b ciz\u00edch lid\u00ed,\u201c \u0159\u00edk\u00e1 Polenov\u00e1. Krom\u011b odvol\u00e1n\u00ed na VZP psala o pomoc tak\u00e9 ministerstvu zdravotnictv\u00ed, Kancel\u00e1\u0159i prezidenta republiky i ombudsmanovi. Ofici\u00e1ln\u00ed dopis zaslali VZP, kter\u00e1 m\u00e1 nejv\u011bt\u0161\u00ed pod\u00edl na tuzemsk\u00e9m trhu poji\u0161\u0165oven, tak\u00e9 l\u00e9ka\u0159i. <\/p>\n\n\n\n
\u201eP\u0159esto\u017ee pacient\u016fm schvaluj\u00ed ostatn\u00ed poji\u0161\u0165ovny l\u00e9\u010dbu bez probl\u00e9mu, VZP ji zat\u00edm v\u0161em \u017eadatel\u016fm zam\u00edtla. Na odpov\u011b\u010f poji\u0161\u0165ovny st\u00e1le \u010dek\u00e1me, nen\u00ed ov\u0161em \u017e\u00e1dn\u00fd smyslupln\u00fd d\u016fvod, pro\u010d pacient\u016fm l\u00e9\u010dbu odm\u00edt\u00e1 proplatit. U plicn\u00edch fibr\u00f3z p\u0159itom opravdu hrajeme o \u010das a ka\u017ed\u00e1 prodleva nasazen\u00ed vhodn\u00e9 l\u00e9\u010dby m\u016f\u017ee pacientovi zabr\u00e1nit v\u00a0pro\u017eit\u00ed kvalitn\u00edho \u017eivota,\u201c uzav\u00edr\u00e1 prof. Va\u0161\u00e1kov\u00e1.<\/p>\n\n\n\n
O idiopatick\u00e9 plicn\u00ed fibr\u00f3ze<\/p>\n\n\n\n
Idiopatick\u00e1 plicn\u00ed fibr\u00f3za po\u0161kozuje plicn\u00ed skl\u00edpky, jizv\u00ed je \u2013 bere plochu k\u00a0d\u00fdch\u00e1n\u00ed, pl\u00edce tuhnou a \u010dlov\u011bk se nem\u016f\u017ee nadechnout. Postup nemoci zpomaluje l\u00e9\u010dba, kter\u00e1 v\u00a0tuzemsku existuje pouh\u00fdch sedm let. Pacienti se k\u00a0n\u00ed v\u0161ak \u010dasto nedostanou, proto\u017ee se nemoc odhal\u00ed pozd\u011b. Projevy idiopatick\u00e9 plicn\u00ed fibr\u00f3zy l\u00e9ka\u0159i \u010dasto zam\u011b\u0148uj\u00ed za chronickou obstruk\u010dn\u00ed plicn\u00ed nemoc \u010di srde\u010dn\u00ed selh\u00e1n\u00ed. Nemoc se ohla\u0161uje zprvu nen\u00e1padn\u011b, \u010dlov\u011bk se za\u010dne zad\u00fdch\u00e1vat do schod\u016f, pozd\u011bji i p\u0159i ch\u016fzi \u010di hovoru, v\u00a0pokro\u010dil\u00e9m stadiu m\u00e1 pocit nedostatku vzduchu p\u0159i b\u011b\u017en\u00fdch denn\u00edch \u010dinnostech a v\u00a0z\u00e1v\u011bru v\u011bnuje ve\u0161kerou energii tomu, aby se nadechl. Bez spr\u00e1vn\u00e9 l\u00e9\u010dby p\u0159itom idiopatick\u00e1 plicn\u00ed fibr\u00f3za v\u00fdrazn\u011b zkracuje \u017eivot pacienta. S\u00a0l\u00e9\u010dbou se pr\u016fm\u011brn\u00e9 p\u0159e\u017eit\u00ed nemocn\u00fdch m\u016f\u017ee prodlou\u017eit na dvojn\u00e1sobek. V\u00edce informac\u00ed na www.plicnifibroza.cz<\/em><\/a>.<\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 22.2.2021 \u2013 T\u00e9m\u011b\u0159 250 pacient\u016f si loni p\u0159i\u0161lo vy\u0161et\u0159it sv\u00e9 pl\u00edce, aby vyvr\u00e1tili podez\u0159en\u00ed na smrtelnou plicn\u00ed nemoc \u2013 idiopatickou plicn\u00ed fibr\u00f3zu (IPF). Dvan\u00e1ct […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27563,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35905","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35905","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35905"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35905\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27563"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35905"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35905"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35905"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}