Praha, 16. 3. 2021 \u2013 J\u00f3gu, pilates nebo ch\u016fzi po venku \u2013 to v\u0161e si vyzkou\u0161\u00ed \u00fa\u010dastn\u00edci leto\u0161n\u00edho 24hodinov\u00e9ho Maratonu s roztrou\u0161enou skler\u00f3zou (MaRS). Jubilejn\u00ed 10. ro\u010dn\u00edk startuje v p\u00e1tek 19. b\u0159ezna v 17 hodin a potrv\u00e1 a\u017e do soboty. Kv\u016fli koronavirov\u00e9 pandemii bude cvi\u010den\u00ed oproti minul\u00fdm let\u016fm nekontaktn\u00ed. Z\u00e1jemci se mohou zapojit nap\u0159\u00ed\u010d \u010ceskou republikou, s pohybem jim pom\u016f\u017ee \u0159ada instrukt\u00e1\u017en\u00edch vide\u00ed se cvi\u010den\u00edm nebo tip\u016f na vych\u00e1zkov\u00e9 trasy.<\/p>\n\n\n\n
\u201eLeto\u0161n\u00ed ro\u010dn\u00edk je vzhledem k\u00a0protiepidemick\u00fdm opat\u0159en\u00edm hodn\u011b odli\u0161n\u00fd. Ponese se v duchu individu\u00e1ln\u00edho cvi\u010den\u00ed na p\u0159edem p\u0159ipraven\u00e1 videa, proto\u017ee nem\u016f\u017eeme sportovat ve skupin\u00e1ch. C\u00edlem je pacienty s\u00a0roztrou\u0161enou skler\u00f3zou povzbudit, aby neklesali na mysli a nerezignovali na pohyb, kter\u00fd je pro jejich zdrav\u00ed tolik d\u016fle\u017eit\u00fd,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd celou akci organizuje. Lid\u00e9 s\u00a0roztrou\u0161enou skler\u00f3zou (RS) se s\u00a0pomoc\u00ed po\u010d\u00edta\u010de, mobiln\u00edho telefonu nebo iPadu p\u0159ipoj\u00ed na webovou str\u00e1nku www.maratonmars.cz<\/em><\/a>, kde pro n\u011b organiz\u00e1to\u0159i p\u0159ipravili n\u011bkolik instrukt\u00e1\u017en\u00edch vide\u00ed rozd\u011blen\u00fdch podle n\u00e1ro\u010dnosti. Na sv\u00e9 si tak p\u0159ijdou i pacienti s\u00a0v\u011bt\u0161\u00edmi pohybov\u00fdmi omezen\u00edmi. <\/p>\n\n\n\n \u201eChyst\u00e1me videa s lekc\u00ed j\u00f3gy, ch\u016fze s h\u016flkami, ale i cvi\u010den\u00ed s ko\u010d\u00e1rkem. Zapojit se mohou tak\u00e9 zdrav\u00ed lid\u00e9, kte\u0159\u00ed RS netrp\u00ed. Videa jsou p\u0159ipravov\u00e1na tak, aby cvi\u010d\u00edc\u00ed nepot\u0159ebovali \u017e\u00e1dn\u00e9 speci\u00e1ln\u00ed pom\u016fcky \u2013 tedy krom\u011b lekce nordic walking, p\u0159i kter\u00e9 je pot\u0159eba m\u00edt h\u016flky,\u201c vysv\u011btluje fyzioterapeutka Lucie Such\u00e1 a dod\u00e1v\u00e1: \u201eLetos se do maratonu zapojuj\u00ed i j\u00f3gov\u00e1 a pilates studia, kter\u00e1 budou do budoucna pacient\u016fm s RS nab\u00edzet lekce. Sna\u017e\u00edme se, aby vznikla s\u00ed\u0165 spolupracuj\u00edc\u00edch sportovi\u0161\u0165, kam m\u016f\u017eeme pacienty s RS poslat s t\u00edm, \u017ee se jim bude v\u011bnovat n\u011bkdo, kdo m\u00e1 o jejich nemoci pov\u011bdom\u00ed.\u201c <\/p>\n\n\n\n Do p\u0159\u00edpravy akce MaRS se letos krom\u011b sportovi\u0161\u0165 zapojuj\u00ed i studenti Fakulty t\u011blesn\u00e9 v\u00fdchovy a sportu Univerzity Karlovy v Praze (UK FTVS). Studenti oboru Aplikovan\u00e1 t\u011blesn\u00e1 v\u00fdchova a sport osob se specifick\u00fdmi pot\u0159ebami p\u0159ipravuj\u00ed videa, kter\u00e1 budou postupn\u011b ka\u017edou hodinu sd\u00edlet na YouTube. Odkazy najdou z\u00e1jemci ve facebookov\u00e9 ud\u00e1losti MaRS \u2013 Maraton s roztrou\u0161enou skler\u00f3zou s APA FTVS. \u201eP\u0159ipravili jsme tak\u00e9 10 km dlouhou trasu orienta\u010dn\u00edho z\u00e1vodu mezi budovou fakulty na Veleslav\u00edn\u011b a Tyr\u0161ov\u00fdm domem, kterou mohou \u00fa\u010dastnici maratonu zdolat samostatn\u011b podle mapy a QR k\u00f3d\u016f jako orienta\u010dn\u00ed b\u011bh, rodinnou proch\u00e1zku nebo celodenn\u00ed v\u00fdlet, p\u0159\u00edpadn\u011b i jet na voz\u00edku, kole \u010di handbiku,“ \u0159\u00edk\u00e1 PhDr. Jitka Va\u0159ekov\u00e1, Ph.D., z UK FTVS.<\/p>\n\n\n\n Loni se cvi\u010den\u00ed p\u0159i akci MaRS z\u00fa\u010dastnilo v\u00edce ne\u017e 2 000 lid\u00ed z 29 m\u011bst \u010cesk\u00e9 republiky. <\/p>\n\n\n\n Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, kter\u00fdm trp\u00ed v\u00a0\u010cesk\u00e9 republice p\u0159ibli\u017en\u011b 20 000 pacient\u016f. Pravideln\u00fd pohyb je pro n\u011b naprosto st\u011b\u017eejn\u00ed, a to v jak\u00e9mkoli stadiu nemoci. \u201eKoronavirov\u00e1 pandemie bohu\u017eel ovliv\u0148uje spole\u010dn\u00e9 aktivity, a pacienti s\u00a0RS tak \u010dasto ztr\u00e1c\u00ed motivaci cvi\u010dit. Samoz\u0159ejm\u011b jim tak\u00e9 chyb\u00ed soci\u00e1ln\u00ed kontakt s\u00a0ostatn\u00edmi. Doporu\u010duji v\u0161em pacient\u016fm alespo\u0148 ch\u016fzi venku. Ide\u00e1ln\u00ed je ale cvi\u010den\u00ed, proto\u017ee vznikaj\u00edc\u00ed endorfiny pozitivn\u011b ovliv\u0148uj\u00ed imunitn\u00ed syst\u00e9m nemocn\u00fdch,\u201c vysv\u011btluje prof. MUDr. Eva Kubala Havrdov\u00e1, CSc., vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a VFN v\u00a0Praze. <\/p>\n\n\n\n Pacienti se letos mohli krom\u011b MaRS zapojit i do sedmit\u00fddenn\u00ed sout\u011b\u017ee Seven Summits, p\u0159i kter\u00e9 se spole\u010dn\u00fdmi silami pokou\u0161eli zdolat sedmvrchol\u016f sv\u011btov\u00fdch kontinent\u016f. Des\u00edtky sportovc\u016f m\u011bly za \u00fakol uj\u00edt tolik metr\u016f, kolik m\u011b\u0159\u00ed nejvy\u0161\u0161\u00ed vrcholky sv\u011bta.<\/p>\n\n\n\n O roztrou\u0161en\u00e9 skler\u00f3ze<\/p>\n\n\n\n Roztrou\u0161en\u00e1 skler\u00f3za (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed\ncentr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto\nonemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je\ntypick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces\nje nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence jsou t\u011b\u017ek\u00e9. Na cel\u00e9m sv\u011bt\u011b trp\u00ed\nRS 2,5 milionu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 20 tis\u00edc. Nemoc\nse vyskytuje p\u0159edev\u0161\u00edm ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch.\nRizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus\n(Epsteina-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D. Informace o\nroztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz<\/a> a\nwww.aktivnizivot.cz. <\/p>\n\n\n\n O Nada\u010dn\u00edm fondu IMPULS<\/p>\n\n\n\n Nada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho registru pacient\u016f s RS (ReMuS) a jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz<\/a>.<\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va Praha, 16. 3. 2021 \u2013 J\u00f3gu, pilates nebo ch\u016fzi po venku \u2013 to v\u0161e si vyzkou\u0161\u00ed \u00fa\u010dastn\u00edci leto\u0161n\u00edho 24hodinov\u00e9ho Maratonu s roztrou\u0161enou skler\u00f3zou (MaRS). Jubilejn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":35983,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-35982","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35982","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=35982"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/35982\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/35983"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=35982"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=35982"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=35982"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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