Charitativn\u00ed iniciativa na podporu pacient\u016fm s nemoc\u00ed\nmot\u00fdl\u00edch k\u0159\u00eddel je tu – B\u011b\u017e NADOTEK. Jste du\u0161\u00ed sportovec a r\u00e1di b\u011bh\u00e1te? Nebo\nm\u00e1te nutk\u00e1n\u00ed jenom ud\u011blat dobr\u00fd skutek? Tak nev\u00e1hejte a zapojte se.<\/p>\n\n\n\n
Virtu\u00e1ln\u00ed z\u00e1vod B\u011b\u017e NADOTEK po\u0159\u00e1d\u00e1 organizace DEBRA \u010cR,\nkter\u00e1 u\u017e 17 let podporuje pacienty s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel. Odborn\u00fd n\u00e1zev\nEpidermolysis bullosa (EB) ozna\u010duje vz\u00e1cn\u00e9 vrozen\u00e9 onemocn\u011bn\u00ed, se kter\u00fdm u n\u00e1s\n\u017eije asi 350 lid\u00ed. EB se projevuje p\u0159edev\u0161\u00edm na k\u016f\u017ei, kter\u00e1 je extr\u00e9mn\u011b\nzraniteln\u00e1 a lehce se na n\u00ed tvo\u0159\u00ed puch\u00fd\u0159e a od\u011brky. Posti\u017een\u00e9 jsou ale tak\u00e9\nsliznice, pohybov\u00fd apar\u00e1t a sekund\u00e1rn\u011b pak cel\u00e9 t\u011blo.<\/p>\n\n\n\n
Pacient\u016fm se u n\u00e1s u\u017e 20 let dost\u00e1v\u00e1 \u0161pi\u010dkov\u00e9 zdravotnick\u00e9\np\u00e9\u010de v tzv. klinick\u00e9m EB Centru ve Fakultn\u00ed nemocnici Brno. Staraj\u00ed se tu o n\u011b\nl\u00e9ka\u0159i a dal\u0161\u00ed odborn\u00edci, kte\u0159\u00ed p\u0159esn\u011b v\u011bd\u00ed, jak s nimi zach\u00e1zet, aby jim\nl\u00e9ka\u0159sk\u00fd z\u00e1krok paradoxn\u011b neubl\u00ed\u017eil je\u0161t\u011b v\u00edc. Vedle speci\u00e1ln\u00ed zdravotn\u00ed p\u00e9\u010de\npot\u0159ebuj\u00ed pacienti i jejich rodiny dal\u0161\u00ed podporu v soci\u00e1ln\u00ed, psychologick\u00e9 a\nnutri\u010dn\u00ed oblasti. Tu zaji\u0161\u0165uje pr\u00e1v\u011b DEBRA \u010cR.<\/p>\n\n\n\n
Trat\u011b:<\/p>\n\n\n\n
D\u011btsk\u00fd b\u011bh za mot\u00fdlky – 350m<\/p>\n\n\n\n
B\u011b\u017e\u00edm s p\u00e9\u010d\u00ed – 2001m<\/p>\n\n\n\n
B\u011bh pro l\u00e9ka\u0159e – 4 km<\/p>\n\n\n\n
B\u011b\u017e\u00edm bez starost\u00ed – 9 km<\/p>\n\n\n\n
B\u011bh patronky – 14\n km<\/p>\n\n\n\n
B\u011bh vd\u011b\u010dnosti – 20 km<\/p>\n\n\n\n
Ch\u016fze pro l\u00e9ka\u0159e – 4 km<\/p>\n\n\n\n
Ch\u016fze vd\u011b\u010dnosti – 20 km<\/p>\n\n\n\n
Kol\u00ednsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/kolinsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Charitativn\u00ed iniciativa na podporu pacient\u016fm s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel je tu – B\u011b\u017e NADOTEK. Jste du\u0161\u00ed sportovec a r\u00e1di b\u011bh\u00e1te? Nebo m\u00e1te nutk\u00e1n\u00ed jenom ud\u011blat […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14151,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36083","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36083","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36083"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36083\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14151"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36083"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36083"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36083"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}