{"id":36104,"date":"2021-04-19T09:32:53","date_gmt":"2021-04-19T07:32:53","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=36104"},"modified":"2021-04-19T09:32:55","modified_gmt":"2021-04-19T07:32:55","slug":"hemofilici-jsou-pri-pandemii-pod-tlakem-pribehy-pacientu","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=36104","title":{"rendered":"Hemofilici jsou p\u0159i pandemii pod tlakem – p\u0159\u00edb\u011bhy pacient\u016f"},"content":{"rendered":"\n

Stres a psychick\u00e9 vy\u010derp\u00e1n\u00ed, kter\u00e9 lid\u00e9 za\u017e\u00edvaj\u00ed p\u0159i pandemii, se t\u00fdkaj\u00ed a\u017e 20 % pacient\u016f s hemofili\u00ed. Vypl\u00fdv\u00e1 to z pr\u016fzkumu \u010cesk\u00e9ho svazu hemofilik\u016f. Stres p\u0159itom m\u016f\u017ee pr\u016fb\u011bh hemofilie zhor\u0161ovat. Pacient\u016fm ve slo\u017eit\u00e9m obdob\u00ed pom\u00e1haj\u00ed modern\u00ed l\u00e9ky, kter\u00e9 si dokonce v pr\u016fb\u011bhu pandemie s pomoc\u00ed pacientsk\u00fdch organizac\u00ed sami rozv\u00e1\u017eeli. <\/strong><\/p>\n\n\n\n

\u201eV pr\u016fb\u011bhu pandemie se hemofilici b\u00e1li, zda nebude onemocn\u011bn\u00ed koronavirem u osoby s krv\u00e1civou poruchou prob\u00edhat v\u00fdznamn\u011b h\u016f\u0159e, co\u017e se zat\u00edm nepotvrdilo. Obavy tak\u00e9 plynuly z nejistoty, zda bude i nad\u00e1le dostatek l\u00e9k\u016f,\u201c<\/em> \u0159\u00edk\u00e1 MUDr. Ester Z\u00e1potock\u00e1 z Kliniky d\u011btsk\u00e9 hematologie a onkologie ve Fakultn\u00ed nemocnici v Motole. P\u011btina pacient\u016f v\u00a0pr\u016fzkumu dokonce uvedla, \u017ee se c\u00edt\u00ed p\u0159et\u00ed\u017eena stresem a je vy\u010derp\u00e1na jak psychicky a fyzicky, tak finan\u010dn\u011b. <\/p>\n\n\n\n

Takov\u00e9 vy\u010derp\u00e1n\u00ed p\u0159itom u hemofilik\u016f m\u016f\u017ee\nv\u00e9st ke zhor\u0161en\u00ed nemoci. \u201eStres obecn\u011b sni\u017euje imunitu a sami pacienti mi\n\u0159\u00edkaj\u00ed, \u017ee pokud nejsou v psychick\u00e9 pohod\u011b a c\u00edt\u00ed na sob\u011b p\u0159ehnan\u00fd tlak, mohou\nsn\u00e1z krv\u00e1cet, maj\u00ed v\u00edce zdravotn\u00edch komplikac\u00ed a h\u016f\u0159e je sn\u00e1\u0161\u00ed. Pokud se jedn\u00e1\no d\u011bti, kter\u00e9 jsou v dne\u0161n\u00ed dob\u011b v psychick\u00e9 nepohod\u011b velmi \u010dasto,\npak se stres p\u0159en\u00e1\u0161\u00ed i na zbytek rodiny,\u201c <\/em>\u0159\u00edk\u00e1 Mgr. Petra Bu\u010dkov\u00e1, klinick\u00e1\npsycholo\u017eka z Odd\u011blen\u00ed klinick\u00e9 psychologie Fakultn\u00ed nemocnice Brno a spoluautorka\npr\u016fzkumu.<\/p>\n\n\n\n

Pr\u016fzkum tak\u00e9 uk\u00e1zal, \u017ee hemofilik\u016fm tolik ne\u0161kod\u00ed strach z covidu, ale sp\u00ed\u0161e omezen\u00ed spojen\u00e1 s\u00a0pandemi\u00ed. \u201eJsou limitov\u00e1ni sv\u00fdm onemocn\u011bn\u00edm a ka\u017ed\u00e1 dal\u0161\u00ed omezen\u00ed, jak\u00e1 panuj\u00ed nyn\u00ed, je pro n\u011b mnohem t\u011b\u017e\u0161\u00ed sn\u00e1\u0161et. Obzvl\u00e1\u0161\u0165 pro star\u0161\u00ed pacienty je soci\u00e1ln\u00ed kontakt velmi d\u016fle\u017eit\u00fd, proto\u017ee jsou \u010dasto invalidn\u00ed a je to pro n\u011b jeden z m\u00e1la zp\u016fsob\u016f tr\u00e1ven\u00ed voln\u00e9ho \u010dasu,\u201c<\/em> popisuje Kate\u0159ina Altmanov\u00e1, p\u0159edsedkyn\u011b sdru\u017een\u00ed Hemojunior.<\/p>\n\n\n\n

Pacienti dost\u00e1vaj\u00ed i nejnov\u011bj\u0161\u00ed l\u00e9\u010dbu \u2013 tzv. nefaktorovou, kterou sta\u010d\u00ed aplikovat pouze podko\u017en\u011b. L\u00e9ky si hemofilici sami aplikuj\u00ed v pohodl\u00ed domova, d\u00edky \u010demu\u017e se nemus\u00ed stresovat nap\u0159\u00edklad n\u00e1v\u0161t\u011bvou nemocnic.<\/p>\n\n\n\n

V\u00fdznamnou starost\u00ed byla pro hemofiliky pr\u00e1v\u011b dostupnost l\u00e9k\u016f. \u201ePoda\u0159ilo se n\u00e1m hned ze za\u010d\u00e1tku pandemie spustit projekt tzv. home delivery, kdy jsme ve spolupr\u00e1ci s certifikovanou kur\u00fdrn\u00ed firmou a l\u00e9ka\u0159i hemofilick\u00fdch center doru\u010dovali l\u00e9ky do domov\u016f hemofilik\u016f i na odlehl\u00fdch m\u00edstech,\u201c <\/em>vysv\u011btluje Martin Boh\u016fn, p\u0159edseda \u010cesk\u00e9ho svazu hemofilik\u016f. <\/p>\n\n\n\n

P\u0159\u00edb\u011bhy pacient\u016f<\/strong>

Hr\u00e1t s kartami, kter\u00e9 mi \u017eivot rozd\u00e1 \u2013 to je \u017eivotn\u00ed kr\u00e9do pana Zde\u0148ka B\u0159eziny (70) z Brna. A karty to byly pom\u011brn\u011b slab\u00e9, cel\u00fd \u017eivot se toti\u017e pot\u00fdk\u00e1 s hemofili\u00ed. Kv\u016fli t\u00e9to vrozen\u00e9 nemoci se mu krev t\u00e9m\u011b\u0159 nesr\u00e1\u017e\u00ed, a dennodenn\u011b tak od d\u011btstv\u00ed \u010del\u00ed riziku krv\u00e1cen\u00ed nap\u0159\u00edklad do kloub\u016f a jejich nevratn\u00e9mu po\u0161kozen\u00ed. Nyn\u00ed m\u00e1 d\u016fvod k optimismu, ned\u00e1vno se kone\u010dn\u011b do\u010dkal l\u00e9\u010dby, kter\u00e1 skute\u010dn\u011b pom\u00e1h\u00e1, a jak s\u00e1m \u0159\u00edk\u00e1 \u2013 ud\u011blala z n\u011bj jin\u00e9ho \u010dlov\u011bka. <\/strong><\/p>\n\n\n\n

Prvn\u00ed z mnoha krv\u00e1cen\u00ed do\nkloubu za\u017eil pan Zden\u011bk asi ve \u010dty\u0159ech letech. \u201eVe \u0161kolce m\u011b jedno d\u00edt\u011b\npra\u0161tilo kostkou do kolene a to mi extr\u00e9mn\u011b nateklo. Nicm\u00e9n\u011b l\u00e9ka\u0159i\nv m\u00edstn\u00ed nemocnici bohu\u017eel nepoznali, o jak\u00fd probl\u00e9m se jedn\u00e1. Poch\u00e1z\u00edm z Uhersk\u00e9ho\nHradi\u0161t\u011b a v t\u00e9 dob\u011b tady takov\u00e9 mo\u017enosti diagnostiky nem\u011bli,\u201c<\/em>\npopisuje.<\/p>\n\n\n\n

To, \u017ee spont\u00e1nn\u00ed krv\u00e1cen\u00ed do kloub\u016f\nm\u00e1 na sv\u011bdom\u00ed hemofilie, se tak dozv\u011bd\u011bl a\u017e v \u0161esti letech, kdy jej l\u00e9ka\u0159i\ns neust\u00e1vaj\u00edc\u00edmi pot\u00ed\u017eemi poslali na vy\u0161et\u0159en\u00ed do brn\u011bnsk\u00e9 gakultn\u00ed nemocnice.\n<\/p>\n\n\n\n

\u201eV prvn\u00ed t\u0159\u00edd\u011b jsem po krv\u00e1cen\u00ed\nv\u017edy asi 10 t\u00fddn\u016f chyb\u011bl, proto\u017ee kloub, a\u0165 u\u017e koleno, kotn\u00edk nebo loket, nejen\nbolel, ale byl i \u00fapln\u011b znehybn\u011bl\u00fd. Pak m\u011b na doporu\u010den\u00ed m\u00e9 l\u00e9ka\u0159ky maminka\nrad\u011bji poslala do \u00dastavu soci\u00e1ln\u00ed p\u00e9\u010de na Koci\u00e1nce v Brn\u011b, abych byl alespo\u0148\npod kontrolou l\u00e9ka\u0159\u016f,\u201c<\/em> vypr\u00e1v\u00ed. Tam se nakonec vyu\u010dil p\u00e1nsk\u00fdm krej\u010d\u00edm \u2013 a\n\u0161it\u00ed se v\u011bnoval cel\u00fd \u017eivot. Dokonce se ve \u0161kole sezn\u00e1mil se svou budouc\u00ed \u017eenou,\nse kterou nakonec str\u00e1vil 42 let \u017eivota, p\u0159ed p\u011bti lety bohu\u017eel zem\u0159ela. <\/p>\n\n\n\n

Tehdej\u0161\u00ed l\u00e9\u010dba p\u0159ipom\u00ednala sp\u00ed\u0161e\nza\u010darovan\u00fd kruh. \u201eNa otoky jsem dost\u00e1val maxim\u00e1ln\u011b obklady, p\u0159\u00edpadn\u011b se\nje\u0161t\u011b d\u00e1valy klouby do s\u00e1dry, aby se znehybn\u011bly. Pak se samoz\u0159ejm\u011b musely\nrozh\u00fdb\u00e1vat, co\u017e ale vedlo k dal\u0161\u00edmu krv\u00e1cen\u00ed, a mohlo se za\u010d\u00edt znovu,\u201c<\/em>\npopisuje Zden\u011bk. Neust\u00e1l\u00fdm opakov\u00e1n\u00edm krv\u00e1cen\u00ed se v\u0161ak nevratn\u011b po\u0161kozovaly\nklouby. \u201eNa kloubn\u00ed chrupavky p\u016fsob\u00ed krev jako \u017e\u00edravina \u2013 extr\u00e9mn\u011b je\nopot\u0159ebov\u00e1v\u00e1, tak\u017ee s m\u00fdm \u010dast\u00fdm krv\u00e1cen\u00edm jsem je m\u011bl skute\u010dn\u011b\nv havarijn\u00edm stavu,\u201c <\/em>\u0159\u00edk\u00e1. <\/p>\n\n\n\n

U\u017e ve 42 letech tak musel na prvn\u00ed\nv\u00fdm\u011bnu kloubu v ky\u010dli. N\u00e1sledoval i druh\u00fd ky\u010deln\u00ed kloub, koleno a nakonec\ni druh\u00e9 koleno. Po\u0161kozen\u00e9 m\u00e1 v\u0161ak tak\u00e9 ramenn\u00ed klouby nebo kotn\u00edky.\nV ohro\u017een\u00ed \u017eivota byl Zden\u011bk dvakr\u00e1t a dvakr\u00e1t jej zachr\u00e1nily \u017eeny, kter\u00e9\nm\u011bl nabl\u00edzku. \u201ePoprv\u00e9 to bylo n\u011bkdy ve 14 letech, kdy\u017e jsem si zlomil nohu a\nl\u00e9ka\u0159i m\u011b cht\u011bli operovat. Tady m\u011b zachr\u00e1nila maminka, kter\u00e1 to nedovolila.\nVzhledem k tehdej\u0161\u00edmu vybaven\u00ed bych jim pravd\u011bpodobn\u011b vykrv\u00e1cel,\u201c <\/em>popisuje.\n\u201ePodruh\u00e9 to byla moje \u017eena, kdy\u017e sama v m\u00fdch 53 letech poznala, \u017ee\npravd\u011bpodobn\u011b krv\u00e1c\u00edm do mozku, a p\u0159esto\u017ee j\u00e1 jsem necht\u011bl, zavolala z\u00e1chranku.\nD\u00edky tomu jsem se dostal v\u010das do nemocnice a hematom mi ods\u00e1li,\u201c<\/em> \u0159\u00edk\u00e1 pan\nZden\u011bk. <\/p>\n\n\n\n

Proto\u017ee za\u017eil dobu, kdy se hemofilie l\u00e9\u010dila obklady nebo krevn\u00ed plazmou, je nad\u0161en\u00fd ze sou\u010dasn\u00fdch mo\u017enost\u00ed medic\u00edny. Pacienti s\u00a0hemofili\u00ed maj\u00ed dnes k\u00a0dispozici profylaktickou l\u00e9\u010dbu, kter\u00e1 spo\u010d\u00edv\u00e1 v nitro\u017eiln\u00edm dopl\u0148ov\u00e1n\u00ed koagula\u010dn\u00edho (sr\u00e1\u017eliv\u00e9ho) faktoru, nebo l\u00e9\u010dbu tzv. nefaktorovou, kterou sta\u010d\u00ed aplikovat pouze podko\u017en\u011b. Ob\u011b pak sr\u00e1\u017elivost krve upravuj\u00ed tak, aby nedoch\u00e1zelo ke spont\u00e1nn\u00edm krv\u00e1cen\u00edm. I d\u00edky jeho zku\u0161enostem se stal p\u0159edlohou pro jednu z\u00a0postav v tzv. Medikomiksu<\/a>, kter\u00fd \u010dten\u00e1\u0159e kreslenou formou seznamuje se \u017eivotem hemofilik\u016f a principem jejich l\u00e9\u010dby.

\u201eDo\u017eil jsem se doby, kdy je hemofilie sice st\u00e1le nevyl\u00e9\u010diteln\u00e1, ale u\u017e je l\u00e9\u010diteln\u00e1. S\u00a0l\u00e9\u010dbou u\u017e u m\u011b ke krv\u00e1cen\u00ed prakticky nedoch\u00e1z\u00ed, co\u017e je rozhodn\u011b velk\u00e1 \u00faleva. Klouby sice m\u00e1m nen\u00e1vratn\u011b po\u0161kozen\u00e9 a bol\u00ed m\u011b prakticky po\u0159\u00e1d, ale na to si \u010dlov\u011bk zvykne,\u201c <\/em>vysv\u011btluje. K\u00a0pohybu tak v\u011bt\u0161inou vyu\u017e\u00edv\u00e1 elektrick\u00fd voz\u00edk.<\/p>\n\n\n\n

Ve voln\u00e9m \u010dase se tak\u00e9 r\u00e1d potk\u00e1v\u00e1\ns mladou generac\u00ed hemofilik\u016f, kte\u0159\u00ed maj\u00ed profylaktickou l\u00e9\u010dbu odmali\u010dka a\nt\u00edm p\u00e1dem nemus\u00ed za\u017e\u00edvat to, co Zden\u011bk. \u201eSna\u017e\u00edm se jim uk\u00e1zat, jak l\u00e9\u010dba\nvypadala d\u0159\u00edve a jak\u00e9 to m\u00e1 n\u00e1sledky. T\u00edm je chci motivovat, aby to nebrali na\nlehkou v\u00e1hu a cenili si mo\u017enost\u00ed, kter\u00e9 dne\u0161n\u00ed medic\u00edna m\u00e1. A mysl\u00edm, \u017ee to\nfunguje,\u201c <\/em>uzav\u00edr\u00e1. <\/p>\n\n\n\n

Petr (16) z Prahy se s hemofili\u00ed u\u017e narodil. A pr\u00e1v\u011b kv\u016fli t\u00e9to nemoci, kter\u00e1 zp\u016fsobuje poruchu sr\u00e1\u017elivosti krve, jej u\u017e od mali\u010dka rodi\u010de vychov\u00e1vali k opatrnosti. Proto\u017ee v\u011bd\u011bli, \u017ee ka\u017ed\u00fd, i relativn\u011b ban\u00e1ln\u00ed \u00faraz pro n\u011bj m\u016f\u017ee m\u00edt v\u00e1\u017en\u00e9 zdravotn\u00ed n\u00e1sledky. D\u00edky modern\u00ed l\u00e9\u010db\u011b ale Petr mohl pro\u017e\u00edt tak\u0159ka \u00fapln\u011b norm\u00e1ln\u00ed d\u011btstv\u00ed a nyn\u00ed dosp\u00edv\u00e1n\u00ed \u2013 a dob\u0159e si uv\u011bdomuje, jak\u00e9 m\u00e1 \u0161t\u011bst\u00ed. <\/strong><\/p>\n\n\n\n

Na Petrovi by nikdo v\u00e1\u017enou nemoc na prvn\u00ed pohled nepoznal.
\u201eM\u016f\u017ee to zn\u00edt zvl\u00e1\u0161tn\u011b, ale nem\u00e1m pocit, \u017ee by m\u011b hemofilie v\u00a0n\u011b\u010dem omezovala. S\u00a0nemoc\u00ed jsem se narodil, nic jin\u00e9ho nezn\u00e1m, tak\u017ee mi ani nep\u0159ijde, \u017ee by se mnou bylo n\u011bco v\u00a0nepo\u0159\u00e1dku,\u201c <\/em>popisuje.

U\u017e od mali\u010dka v\u0161ak \u2013 zpo\u010d\u00e1tku s\u00a0pomoc\u00ed rodi\u010d\u016f a pak i s\u00e1m \u2013 musel d\u00e1vat p\u0159i pohybu pozor. V\u00a0p\u0159\u00edpad\u011b \u00farazu m\u016f\u017ee b\u00fdt i pro l\u00e9\u010den\u00e9 hemofiliky velk\u00fd probl\u00e9m zastavit krv\u00e1cen\u00ed. Sta\u010d\u00ed, aby se v\u00edce \u201epra\u0161tili\u201c nap\u0159\u00edklad do kolene, krev se vylije do kloubu a m\u016f\u017ee jej nen\u00e1vratn\u011b po\u0161kodit. \u201eDo kloubu jsem krv\u00e1cel jen jednou, kdy\u017e jsem byl mal\u00fd. \u017d\u00e1dn\u00e9 n\u00e1sledky to na\u0161t\u011bst\u00ed nezanechalo. Od t\u00e9 doby se mi to d\u00edky l\u00e9k\u016fm a tak\u00e9 opatrnosti nestalo,\u201c <\/em>vypr\u00e1v\u00ed. <\/p>\n\n\n\n

Hemofilie Petra nau\u010dila\nzodpov\u011bdnosti a p\u00e9\u010di o sebe u\u017e v \u00fatl\u00e9m v\u011bku. V osm\u00e9m roce si um\u011bl s\u00e1m\nnitro\u017eiln\u011b podat l\u00e9k \u2013 sr\u00e1\u017eliv\u00fd faktor, kter\u00fd pom\u00e1h\u00e1 jeho krvi reagovat tak,\njak m\u00e1, a zabr\u00e1nit krv\u00e1cen\u00ed. Brzy tak\u00e9 musel v\u011bd\u011bt a rozli\u0161ovat, kter\u00e9 aktivity\npro n\u011bj mohou b\u00fdt potenci\u00e1ln\u011b nebezpe\u010dn\u00e9. \u201eKe sport\u016fm m\u011b to nikdy moc\nnet\u00e1hlo, tak\u017ee v tomhle m\u00e1m tro\u0161ku v\u00fdhodu. Ale i kdyby ano, tak v\u00edm, \u017ee nap\u0159\u00edklad\nn\u011bjak\u00e9 bojov\u00e9 sporty, kter\u00e9 jsou te\u010f popul\u00e1rn\u00ed, by pro m\u011b ur\u010dit\u011b nebyly. Obecn\u011b\njsem na to asi tro\u0161ku citliv\u011bj\u0161\u00ed, ob\u010das kdy\u017e vid\u00edm, co n\u011bkte\u0159\u00ed kolem m\u011b vyv\u00e1d\u00ed,\ntak si \u0159\u00edk\u00e1m, \u017ee tohle u\u017e bych si asi nedovolil. Ale l\u00edto mi to nen\u00ed,\u201c <\/em>vypr\u00e1v\u00ed\nPetr, kter\u00fd studuje St\u0159edn\u00ed odbornou \u0161kolu v oboru staro\u017eitn\u00edk. <\/p>\n\n\n\n

I p\u0159es omezen\u00ed, kter\u00e1 jeho nemoc\np\u0159edstavuje, nikdy neza\u017eil ze strany sv\u00fdch vrstevn\u00edk\u016f posm\u011b\u0161ky nebo negativn\u00ed\nreakce. \u201eAsi m\u00e1m \u0161t\u011bst\u00ed na lidi kolem sebe. Nemoc\u00ed se nijak netaj\u00edm, naopak\nv\u011bt\u0161inou kdy\u017e p\u0159ijdu do nov\u00e9ho kolektivu, pov\u00edm o hemofilii ostatn\u00edm. Je to tak\nbezpe\u010dn\u011bj\u0161\u00ed, aby v\u0161ichni v\u011bd\u011bli, co a jak, kdyby se n\u00e1hodou n\u011bco stalo. A to se\npak v\u011bt\u0161inou sp\u00ed\u0161e zaj\u00edmaj\u00ed o nemoc samotnou,\u201c<\/em> popisuje Petr.<\/p>\n\n\n\n

Cenn\u00e9 jsou podle n\u011bj i zku\u0161enosti,\nkter\u00e9 z\u00edsk\u00e1v\u00e1 od star\u0161\u00edch pacient\u016f s hemofili\u00ed. \u201eJe hodn\u011b zaj\u00edmav\u00e9\nposlouchat, jak to m\u011bli oni v ml\u00e1d\u00ed t\u011b\u017ek\u00e9, kdy je\u0161t\u011b l\u00e9\u010dba nebyla na\ntakov\u00e9 \u00farovni jako dnes. Nemoc jim d\u011blala mnohem v\u011bt\u0161\u00ed probl\u00e9my a hodn\u011b\nz nich m\u00e1 trval\u00e9 n\u00e1sledky. Ur\u010dit\u011b si pak \u010dlov\u011bk uv\u011bdom\u00ed, jak\u00e9 m\u00e1 vlastn\u011b\n\u0161t\u011bst\u00ed, \u017ee ho nemoc skoro neomezuje, a v\u00edc si zdrav\u00ed v\u00e1\u017e\u00ed,\u201c <\/em>\u0159\u00edk\u00e1 Petr. \u201eNemoc\nje odmali\u010dka moj\u00ed sou\u010d\u00e1st\u00ed a neberu ji jako n\u011bjak\u00fd handicap. D\u00edky l\u00e9\u010db\u011b o n\u00ed\nvlastn\u011b ani nev\u00edm,\u201c<\/em> uzav\u00edr\u00e1. Na p\u0159\u00edb\u011bhy podobn\u00e9 tomu jeho upozor\u0148uje i Medikomiks\n\u201eHemofilie \u2013 d\u0159\u00edve a nyn\u00ed<\/a>\u201c, kter\u00fd \u010dten\u00e1\u0159e kreslenou formou seznamuje se\n\u017eivotem hemofilik\u016f a vykresluje, jak obrovsk\u00e9ho pokroku l\u00e9\u010dba hemofilie\ndos\u00e1hla.  <\/p>\n\n\n\n

Cenn\u00e9 jsou podle n\u011bj i zku\u0161enosti, kter\u00e9 z\u00edsk\u00e1v\u00e1 od star\u0161\u00edch pacient\u016f s\u00a0hemofili\u00ed. \u201eJe hodn\u011b zaj\u00edmav\u00e9 poslouchat, jak to m\u011bli oni v\u00a0ml\u00e1d\u00ed t\u011b\u017ek\u00e9, kdy je\u0161t\u011b l\u00e9\u010dba nebyla na takov\u00e9 \u00farovni jako dnes. Nemoc jim d\u011blala mnohem v\u011bt\u0161\u00ed probl\u00e9my a hodn\u011b z\u00a0nich m\u00e1 trval\u00e9 n\u00e1sledky. Ur\u010dit\u011b si pak \u010dlov\u011bk uv\u011bdom\u00ed, jak\u00e9 m\u00e1 vlastn\u011b \u0161t\u011bst\u00ed, \u017ee ho nemoc skoro neomezuje, a v\u00edc si zdrav\u00ed v\u00e1\u017e\u00ed,\u201c <\/em>\u0159\u00edk\u00e1 Petr. \u201eNemoc je odmali\u010dka moj\u00ed sou\u010d\u00e1st\u00ed a neberu ji jako n\u011bjak\u00fd handicap. D\u00edky l\u00e9\u010db\u011b o n\u00ed vlastn\u011b ani nev\u00edm,\u201c<\/em> uzav\u00edr\u00e1. Na p\u0159\u00edb\u011bhy podobn\u00e9 tomu jeho upozor\u0148uje i Medikomiks \u201eHemofilie \u2013 d\u0159\u00edve a nyn\u00ed<\/a>\u201c, kter\u00fd \u010dten\u00e1\u0159e kreslenou formou seznamuje se \u017eivotem hemofilik\u016f a vykresluje, jak obrovsk\u00e9ho pokroku l\u00e9\u010dba hemofilie dos\u00e1hla.<\/p>\n\n\n\n


V tuzemsku \u017eije s touto nemoc\u00ed p\u0159ibli\u017en\u011b tis\u00edc pacient\u016f. <\/strong> \u00a0 <\/p>\n","protected":false},"excerpt":{"rendered":"

Stres a psychick\u00e9 vy\u010derp\u00e1n\u00ed, kter\u00e9 lid\u00e9 za\u017e\u00edvaj\u00ed p\u0159i pandemii, se t\u00fdkaj\u00ed a\u017e 20 % pacient\u016f s hemofili\u00ed. Vypl\u00fdv\u00e1 to z pr\u016fzkumu \u010cesk\u00e9ho svazu hemofilik\u016f. Stres […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19818,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-36104","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36104","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36104"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36104\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19818"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36104"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36104"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36104"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}