Praha, 15. 7. 2021 \u2013 V\u00edce ne\u017e 700 slune\u010dnic zasadili pacienti s\u00a0roztrou\u0161enou skler\u00f3zou (RS) na deseti m\u00edstech po cel\u00e9m\u00a0\u010cesku. Akc\u00ed Rozsvi\u0165me \u010ceskou republiku upozor\u0148uj\u00ed na svou nemoc, kterou v tuzemsku trp\u00ed v\u00edce ne\u017e 20\u00a0tis\u00edc lid\u00ed. <\/p>\n\n\n\n
\u201eLeto\u0161n\u00edm ro\u010dn\u00edkem jsme se sna\u017eili p\u0159edev\u0161\u00edm upozornit na d\u016fle\u017eitost psychoterapie pro pacienty s RS. Jej\u00ed dostupnost je bohu\u017eel st\u00e1le nedostate\u010dn\u00e1 a bylo by pot\u0159eba dvakr\u00e1t v\u00edce psychoterapeut\u016f, ne\u017e nyn\u00ed m\u00e1me. V\u00edme toti\u017e, \u017ee z\u00e1n\u011bt mozku negativn\u011b ovliv\u0148uje psychiku pacient\u016f a deprese mohou b\u00fdt pal\u010div\u00fdm pr\u016fvodn\u00edm jevem RS,\u201c vysv\u011btluje Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd akci organizoval ve spolupr\u00e1ci s region\u00e1ln\u00edmi pacientsk\u00fdmi organizacemi Roska. <\/em><\/p>\n\n\n\n Na podporu psychoterapie se prost\u0159ednictv\u00edm Rozsvi\u0165me \u010ceskou republiku poda\u0159ilo vybrat 120 tis\u00edc korun. Akce z\u00e1rove\u0148 upozor\u0148ovala na neviditeln\u00e9 p\u0159\u00edznaky nemoci, kter\u00e9 jsou pro druh\u00e9 \u010dasto obt\u00ed\u017en\u011b pochopiteln\u00e9.<\/p>\n\n\n\n \u201eNejproblemati\u010dt\u011bj\u0161\u00ed je \u00fanava, ale tak\u00e9 probl\u00e9my s jemnou motorikou. Pokud neza\u017eijete na vlastn\u00ed k\u016f\u017ei, jak n\u00e1ro\u010dn\u00e9 m\u016f\u017ee b\u00fdt pouh\u00e9 zapnut\u00ed knofl\u00ed\u010dku u ko\u0161ile, tak to v\u011bt\u0161inou nedok\u00e1\u017eete dob\u0159e pochopit,\u201c \u0159\u00edk\u00e1 B\u00e9mov\u00e1. <\/p>\n\n\n\n Pacienti spolu s l\u00e9ka\u0159i, zdravotn\u00edmi sestrami i sv\u00fdmi bl\u00edzk\u00fdmi zasadili v\u00edce ne\u017e 700 kv\u011btin. Symbolicky tak upozornili na to, \u017ee si diagn\u00f3zu RS ka\u017edoro\u010dn\u011b vyslechne p\u0159ibli\u017en\u011b 700 nov\u00fdch pacient\u016f. \u201eDo akce Rozsvi\u0165me \u010ceskou republiku se tradi\u010dn\u011b zapojuj\u00ed region\u00e1ln\u00ed organizace Roska. Nap\u0159\u00edklad v Hradci Kr\u00e1lov\u00e9 se pacient\u016fm poda\u0159ilo letos spole\u010dn\u011b vyp\u011bstovat 333 sazenic, kter\u00e9 jsme pot\u00e9 spole\u010dn\u011b zasadili. Cht\u011bla bych proto pod\u011bkovat v\u0161em aktivn\u00edm pacient\u016fm i jejich rodinn\u00fdm p\u0159\u00edslu\u0161n\u00edk\u016fm,\u201c dopl\u0148uje B\u00e9mov\u00e1.<\/p>\n\n\n\n Na akci Rozsvi\u0165me \u010ceskou republiku\nnavazuje v\u00fdtvarn\u00e1 a liter\u00e1rn\u00ed sout\u011b\u017e pro d\u011bti i dosp\u011bl\u00e9. T\u00e9matem leto\u0161n\u00edho\nro\u010dn\u00edku je motto \u201eCo o\u010di nevid\u00ed\u201c, kter\u00e9 odkazuje pr\u00e1v\u011b k neviditeln\u00fdm\np\u0159\u00edznak\u016fm RS. Z\u00e1jemci mohou sv\u00e1 d\u00edla pos\u00edlat do 30. z\u00e1\u0159\u00ed, pot\u00e9 sout\u011b\u017e vyhodnot\u00ed\njak internetov\u00e1, tak odborn\u00e1 porota. Ve v\u00fdtvarn\u00e9 kategorii sout\u011b\u017e\u00ed p\u0159ed\u0161kol\u00e1ci\na \u0161kol\u00e1ci prvn\u00edho a druh\u00e9ho stupn\u011b. Liter\u00e1rn\u00ed d\u00edla pak mohou krom\u011b \u0161kol\u00e1k\u016f a\nstudent\u016f st\u0159edn\u00edch \u0161kol pos\u00edlat i dosp\u011bl\u00ed.<\/p>\n\n\n\n Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu. P\u0159\u00ed\u010dina nemoci, kter\u00e1 v\u011bt\u0161inou propuk\u00e1 v mlad\u0161\u00edm v\u011bku, nen\u00ed dosud zn\u00e1ma. Pro nemoc, ji\u017e \u010dast\u011bji postihuje \u017eeny, je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed atak a klidov\u00fdch stav\u016f. Podle l\u00e9ka\u0159\u016f jsou krom\u011b genetick\u00e9 dispozice rizikov\u00fdmi faktory EB virus (Epsteina-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n\n\n\n O Nada\u010dn\u00edm fondu IMPULS<\/p>\n\n\n\n Nada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je\npodporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou\nskler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii,\nkter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e\nvzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU\nje z\u0159izovatelem celost\u00e1tn\u00edho registru pacient\u016f s RS (ReMuS) a jeho financov\u00e1n\u00ed\nzaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz<\/em><\/a>.<\/p>\n\n\n\n O Unii ROSKA<\/p>\n\n\n\n Posl\u00e1n\u00edm Unie ROSKA je pom\u00e1hat lidem s roztrou\u0161enou skler\u00f3zou \u017e\u00edt kvalitn\u00ed, d\u016fstojn\u00fd a plnohodnotn\u00fd \u017eivot. Unie ROSKA ve sv\u00e9 \u010dinnosti nav\u00e1zala na spolky Roska, kter\u00e9 v \u010cR vznikaly od roku 1983. Jako \u010cesk\u00e1 multiplesclerosis (MS) spole\u010dnost je aktivn\u00edm \u010dlenem mezin\u00e1rodn\u00ed federace MSIF a jej\u00ed evropsk\u00e9 platformy EMSP p\u0159i EU. Velice efektivn\u00ed je sv\u00e9pomoc posti\u017een\u00fdch, kterou realizuje 26 samostatn\u00fdch region\u00e1ln\u00edch spolk\u016f Roska. Unie ROSKA m\u00e1 celorepublikovou p\u016fsobnost ve v\u0161ech kraj\u00edch \u010cR a m\u00e1 asi 1\u00a0500\u00a0\u010dlen\u016f. V sou\u010dasn\u00e9 dob\u011b stoj\u00ed v \u010dele Unie ROSKA sedmi\u010dlenn\u00e1 v\u00fdkonn\u00e1 rada.<\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 15. 7. 2021 \u2013 V\u00edce ne\u017e 700 slune\u010dnic zasadili pacienti s\u00a0roztrou\u0161enou skler\u00f3zou (RS) na deseti m\u00edstech po cel\u00e9m\u00a0\u010cesku. Akc\u00ed Rozsvi\u0165me \u010ceskou republiku upozor\u0148uj\u00ed na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":28428,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36371","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36371","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36371"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36371\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/28428"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36371"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36371"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36371"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}