Praha, 21. 9. 2021 \u2013 Bolesti kloub\u016f a \u0161patn\u00fd pohyb \u2013 takto si drtiv\u00e1 v\u011bt\u0161ina lid\u00ed i samotn\u00fdch pacient\u016f p\u0159edstavuje nemoc zvanou revmatoidn\u00ed artritida. M\u00e1lokdo v\u0161ak v\u00ed, \u017ee tato choroba pronik\u00e1 hluboko do org\u00e1n\u016f a m\u016f\u017ee postihnout i pl\u00edce. Pokud se pl\u00edce zav\u010das nel\u00e9\u010d\u00ed, m\u016f\u017ee to pro pacienty dopadnout tragicky. I proto provedlo v minul\u00fdch m\u011bs\u00edc\u00edch pacientsk\u00e9 sdru\u017een\u00ed Revma Liga \u010cR dotazn\u00edkov\u00e9 \u0161et\u0159en\u00ed mezi sv\u00fdmi \u010dleny \u2013 c\u00edlem bylo zjistit, jak jsou na tom revmatici s informovanost\u00ed a s jak\u00fdm p\u0159\u00edstupem a p\u0159\u00edpadn\u011b l\u00e9\u010dbou se setk\u00e1vaj\u00ed. V\u00fdsledky sdru\u017een\u00ed poprv\u00e9 zve\u0159ejn\u00ed v r\u00e1mci Sv\u011btov\u00e9ho dne artritidy (12.10.). V \u010cesku trp\u00ed revmatoidn\u00ed artritidou p\u0159ibli\u017en\u011b 70 000 lid\u00ed, n\u00e1lez na plic\u00edch m\u00e1 podle odborn\u00edk\u016f a\u017e 30 % z nich.<\/p>\n\n\n\n
\u201eNenapadlo m\u011b d\u00e1vat do souvislosti zad\u00fdch\u00e1v\u00e1n\u00ed se s revmatoidn\u00ed artritidou, revmatolog se m\u011b na toto nikdy neptal.\u201c \u2013 \u201eBylo by dobr\u00e9, aby lid\u00e9 s t\u00edmto onemocn\u011bn\u00edm v\u011bd\u011bli, \u017ee revma m\u016f\u017ee zas\u00e1hnout prakticky v\u0161e. J\u00e1 jsem ty pl\u00edce \u0161patn\u011b odhadl a vezla m\u011b rychl\u00e1.\u201c \u2013 \u201eSama jsem si vyhledala pomoc na plicn\u00edm odd\u011blen\u00ed, p\u0159etrv\u00e1vaj\u00edc\u00ed ka\u0161el u\u017e byl ne\u00fanosn\u00fd.\u201c \u2013 \u201ePneumologa jsem si na\u0161la sama, proto\u017ee jsem m\u011bla p\u0159es rok stra\u0161n\u00e9 z\u00e1chvaty ka\u0161le, du\u0161nosti a n\u00e1lez na plic\u00edch. Revmatologovi to bylo naprosto jedno.\u201c To jsou n\u011bkter\u00e9 z odpov\u011bd\u00ed 355 respondent\u016f, kte\u0159\u00ed se ve v\u011bt\u0161in\u011b s nemoc\u00ed pot\u00fdkaj\u00ed sedm a v\u00edce let. Z dotazn\u00edku pacient\u016f mimo jin\u00e9 vypl\u00fdv\u00e1, \u017ee pouze 32,9% revmatolog\u016f \u0159e\u0161\u00ed d\u00fdchac\u00ed pot\u00ed\u017ee pacient\u016f s pneumologem. P\u0159itom 58% dotazovan\u00fdch uv\u00e1d\u00ed, \u017ee pro\u017e\u00edv\u00e1 pocit nedostate\u010dn\u00e9ho okysli\u010den\u00ed a zad\u00fdch\u00e1v\u00e1 se z nevysv\u011btliteln\u00fdch p\u0159\u00ed\u010din. \u201eV\u011bt\u0161ina dotazovan\u00fdch si je v\u011bdoma mo\u017en\u00e9ho plicn\u00edho posti\u017een\u00ed p\u0159i revmatick\u00e9 nemoci. Dozv\u011bd\u011bli se o tom od sv\u00e9ho o\u0161et\u0159uj\u00edc\u00edho l\u00e9ka\u0159e, p\u0159\u00edpadn\u011b samostudiem \u010di vlastn\u00ed zku\u0161enost\u00ed. P\u0159esn\u011b 48,2% lid\u00ed uvedlo, \u017ee pokud krom\u011b revmatu trp\u00ed i du\u0161nost\u00ed, tak o tom revmatologa informuje, ale z\u00e1rove\u0148 56,1 % napsalo, \u017ee to jejich l\u00e9ka\u0159 ne\u0159e\u0161\u00ed. To je opravdu alarmuj\u00edc\u00ed,\u201c \u0159\u00edk\u00e1 Edita M\u00fcllerov\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Revma Liga \u010cR. Pacientsk\u00e1 organizace se sna\u017e\u00ed zlep\u0161it \u017eivot pacient\u016fm s revmatoidn\u00ed artritidou ji\u017e 30 let. S v\u00fdsledky dotazn\u00edku pl\u00e1nuje sezn\u00e1mit spolupracuj\u00edc\u00ed l\u00e9ka\u0159e a nad\u00e1le s nimi \u0159e\u0161it dostupnost zdravotn\u00edch slu\u017eeb a v\u010dasn\u00fd z\u00e1chyt plicn\u00edch pot\u00ed\u017e\u00ed u revmatick\u00fdch nemoc\u00ed. <\/p>\n\n\n\n
Podle l\u00e9ka\u0159\u016f maj\u00ed pacienti s revmatoidn\u00ed artritidou obecn\u011b v\u011bt\u0161\u00ed sklony k plicn\u00edm chorob\u00e1m, a\u0165 u\u017e jsou to chronick\u00e9 bronchitidy, nebo chronick\u00e1 obstruk\u010dn\u00ed plicn\u00ed nemoc (CHOPN). Naopak pacienti s CHOPN, kte\u0159\u00ed nav\u00edc kou\u0159\u00ed, maj\u00ed v\u011bt\u0161\u00ed pravd\u011bpodobnost rozvoje revmatoidn\u00ed artritidy. Bezp\u0159\u00edznakov\u00fd n\u00e1lez na plic\u00edch pak l\u00e9ka\u0159i zaznamenaj\u00ed a\u017e u 30 % revmatik\u016f, v\u00e1\u017en\u011bj\u0161\u00ed zm\u011bny u p\u0159ibli\u017en\u011b 5 % z nich. \u201eSamotn\u00e1 revmatoidn\u00ed artritida se v plic\u00edch m\u016f\u017ee projevit tzv. z\u00e1n\u011bty vmeze\u0159en\u00e9ho pojiva, kter\u00e9 zp\u016fsobuj\u00ed vazivovat\u011bn\u00ed (fibrotizaci) tk\u00e1n\u011b, a t\u00edm p\u00e1dem sni\u017eov\u00e1n\u00ed funk\u010dnosti plic. Z toho m\u016f\u017ee pramenit du\u0161nost a ka\u0161el,\u201c \u0159\u00edk\u00e1 prof. MUDr. Ladislav \u0160enolt, Ph.D., vedouc\u00ed odd\u011blen\u00ed experiment\u00e1ln\u00ed revmatologie v Revmatologick\u00e9m \u00fastavu. \u201eZ\u00e1n\u011bty na plic\u00edch jsou l\u00e9\u010diteln\u00e9, kl\u00ed\u010dov\u00e9 je v\u0161ak z\u00e1n\u011btliv\u00e9 zm\u011bny u revmatologick\u00fdch pacient\u016f v\u010das zachytit. U rizikov\u00fdch pacient\u016f je tak d\u016fle\u017eit\u00e9 prov\u00e9st funk\u010dn\u00ed vy\u0161et\u0159en\u00ed plic, rentgen nebo CT plic. N\u00e1sledn\u011b by m\u011bla b\u00fdt ve spolupr\u00e1ci s pneumology nasazena vhodn\u00e1 l\u00e9\u010dba,\u201c dod\u00e1v\u00e1 prof. \u0160enolt s t\u00edm, \u017ee fibrotick\u00e9 zm\u011bny jsou obzvl\u00e1\u0161t\u011b nebezpe\u010dn\u00e9 v tom, \u017ee jsou ji\u017e nevratn\u00e9.<\/p>\n\n\n\n
\u201eV sou\u010dasn\u00e9 dob\u011b maj\u00ed pneumologov\u00e9 k dispozici k l\u00e9\u010db\u011b fibr\u00f3z imunosupresiva a nov\u011b v centrech tak\u00e9 modern\u00ed antifibrotickou l\u00e9\u010dbu. Tu sice pacienti zat\u00edm mohou z\u00edskat jen s pomoc\u00ed tzv. paragrafu 16, ale i to je velk\u00fd pokrok. \u010cas je v tomto ohledu kl\u00ed\u010dov\u00fd faktor \u2013 \u010d\u00edm d\u0159\u00edve se plicn\u00ed onemocn\u011bn\u00ed odhal\u00ed, t\u00edm l\u00e9pe l\u00e9\u010dba zab\u00edr\u00e1, proto\u017ee pl\u00edce je\u0161t\u011b nejsou tak po\u0161kozen\u00e9,\u201c uzav\u00edr\u00e1 Edita M\u00fcllerov\u00e1.<\/p>\n\n\n\n
O nemoci<\/p>\n\n\n\n
Revmatick\u00e1 onemocn\u011bn\u00ed (revma)\npostihuj\u00ed pohybov\u00fd apar\u00e1t (klouby, kosti, p\u00e1te\u0159, ale i svaly, vazy, \u0161lachov\u00e9\n\u00fapony), mnohdy i n\u011bkter\u00e9 jin\u00e9 org\u00e1ny. Rozd\u011bluj\u00ed se do n\u011bkolika z\u00e1kladn\u00edch\nskupin: revmatick\u00e1 onemocn\u011bn\u00ed z\u00e1n\u011btliv\u00e1 (revmatoidn\u00ed artritida, tzv. syst\u00e9mov\u00e9\nnemoci a dal\u0161\u00ed), degenerativn\u00ed revmatick\u00e9 nemoci (artr\u00f3za), infek\u010dn\u00ed artritidy,\nmetabolick\u00e9 a endokrinn\u00ed choroby spojen\u00e9 s revmatick\u00fdmi stavy (dna) a\nmimokloubn\u00ed revmatismus. Mezi nej\u010dast\u011bj\u0161\u00ed a nejzn\u00e1m\u011bj\u0161\u00ed pat\u0159\u00ed zejm\u00e9na\nrevmatoidn\u00ed artritida, Becht\u011brevova nemoc a dna.<\/p>\n\n\n\n
O Revma Lize \u010cR <\/p>\n\n\n\n
Revma Liga \u010cR je spole\u010dnost lid\u00ed s revmatismem, jejich rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f a p\u0159\u00e1tel. Spole\u010dnost letos slav\u00ed 30 let od zalo\u017een\u00ed. Po celou dobu bylo v\u017edy jej\u00edm c\u00edlem zvy\u0161ovat pov\u011bdom\u00ed o revmatick\u00fdch chorob\u00e1ch a pom\u00e1hat nemocn\u00fdm \u2013 v\u00edce ve videu zde<\/a>. Jej\u00ed \u010dlenov\u00e9 bojuj\u00ed za plnohodnotn\u00fd a rovnopr\u00e1vn\u00fd \u017eivot zdravotn\u011b posti\u017een\u00fdch a vytv\u00e1\u0159ej\u00ed pro n\u011b region\u00e1ln\u00ed kluby po cel\u00e9 \u010cesk\u00e9 republice. Revma Liga \u010cR spolupracuje s mezin\u00e1rodn\u00edmi organizacemi stejn\u00e9ho zam\u011b\u0159en\u00ed, je vyhled\u00e1van\u00fdm a rovnocenn\u00fdm partnerem pro pacienty, l\u00e9ka\u0159e, zdravotn\u00edky i st\u00e1tn\u00ed spr\u00e1vu. Svou \u010dinnost\u00ed motivuje pacienty a ukazuje zdrav\u00e9 populaci sv\u011bt o\u010dima revmatik\u016f. Heslem ligy je: Revma si nevyb\u00edr\u00e1, ale spolu to zvl\u00e1dneme. V\u00edce informac\u00ed na www.revmaliga.cz<\/em>. <\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 21. 9. 2021 \u2013 Bolesti kloub\u016f a \u0161patn\u00fd pohyb \u2013 takto si drtiv\u00e1 v\u011bt\u0161ina lid\u00ed i samotn\u00fdch pacient\u016f p\u0159edstavuje nemoc zvanou revmatoidn\u00ed artritida. M\u00e1lokdo […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":27563,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36645","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36645","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36645"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36645\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27563"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36645"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36645"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36645"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}