Mariya Tsonynets z Lib\u010devsi na Lounsku se v \u0159\u00edjnu p\u0159ed osmi\nlety r\u00e1no probudila s hore\u010dkou, m\u011bla k\u0159e\u010de, zvracela. Rodina jela hned do\nnemocnice, kde tehdy 11m\u011bs\u00ed\u010dn\u00ed Maru\u0161ka, jak j\u00ed doma \u0159\u00edkaj\u00ed, pro\u0161la mnoha\nvy\u0161et\u0159en\u00edmi. Diagn\u00f3za byla bohu\u017eel ne\u00faprosn\u00e1 \u2013 herpetick\u00e1 encefalitida.<\/p>\n\n\n\n
Herpetick\u00e1 encefalitida je velmi z\u00e1va\u017en\u00e9 onemocn\u011bn\u00ed s\nvysokou \u00famrtnost\u00ed, p\u0159\u00edpadn\u011b s velmi rozs\u00e1hl\u00fdmi n\u00e1sledky. Ty si odnesla i\nMaryia, kter\u00e1 v listopadu oslav\u00ed 9. narozeniny. V t\u011b\u017ek\u00e9 \u017eivotn\u00ed situaci rodinu\npodporuje organizace z Prahy, je\u017e j\u00ed zprost\u0159edkov\u00e1v\u00e1 r\u016fznorodou odbornou pomoc.<\/p>\n\n\n\n
Maryia m\u00e1 nen\u00e1vratn\u011b po\u0161kozen\u00fd mozek, je pln\u011b odk\u00e1z\u00e1na na\nciz\u00ed pomoc, trp\u00ed epilepsi\u00ed, ment\u00e1ln\u00ed i motorickou retardac\u00ed. Ve v\u00fdvoji se v\npodstat\u011b zastavila. Nemluv\u00ed, nechod\u00ed, sama se nenaj\u00ed. Kv\u016fli \u010dast\u00fdm epileptick\u00fdm\nz\u00e1chvat\u016fm mus\u00ed b\u00fdt neust\u00e1le pod dohledem. \u201eChv\u00edli po ukon\u010den\u00ed l\u00e9\u010dby jsme\ndoufali, \u017ee to M\u00e1\u0161a zvl\u00e1dne, \u017ee bude v po\u0159\u00e1dku. Chv\u00edli i chodila, \u0159ekla p\u00e1r\nslov\u00ed\u010dek, hr\u00e1la si. Bohu\u017eel se ale jej\u00ed stav op\u011bt zhor\u0161il,\u201c popsala maminka\nTetyana Tsonynets. S man\u017eelem poch\u00e1zej\u00ed z Ukrajiny, v Lib\u010devsi bydl\u00ed 15 let.\n\u201ePro\u0161li jsme si nemocnicemi v \u010cesku i na Ukrajin\u011b, p\u0159em\u00fd\u0161leli jsme, \u017ee se tam\nvr\u00e1t\u00edme, ale nakonec jsme se rozhodli, \u017ee z\u016fstaneme zde, nebo\u0165 v \u010cesku je lep\u0161\u00ed\nzdravotnick\u00e1 p\u00e9\u010de,\u201c vysv\u011btlila.<\/p>\n\n\n\n
Maminka Maryii je velmi siln\u00e1, ob\u011btav\u00e1 \u017eena, na pln\u00fd \u00favazek\nse star\u00e1 o dceru. Na pomoc m\u00e1 man\u017eela i syna. V\u011bt\u0161inou se ale o ni star\u00e1 sama.\nMan\u017eel chod\u00ed do pr\u00e1ce, syn do osm\u00e9 t\u0159\u00eddy. Mariya nav\u0161t\u011bvuje speci\u00e1ln\u00ed \u0161kolu v\nLounech, maminka s n\u00ed rehabilituje doma. Nav\u0161t\u011bvuj\u00ed, jak jen to finan\u010dn\u00ed\nsituace dovol\u00ed, nutn\u00e9, ale velmi n\u00e1kladn\u00e9 neurorehabilita\u010dn\u00ed programy. D\u011blaj\u00ed\nv\u0161e, co je v jejich sil\u00e1ch, aby v\u00fdvoj Maryii postupoval dop\u0159edu, aby se\nzlep\u0161ovala a dos\u00e1hla do budoucna co nejv\u011bt\u0161\u00ed m\u00edry samostatnosti.<\/p>\n\n\n\n
Podporu a pomoc jim poskytuje neziskov\u00e1 organizace Alkmeon.\n\u201ePan\u00ed Tsonynets je zapojena do programu podpory a p\u00e9\u010de o osoby, kter\u00e9 se\nstaraj\u00ed o zdravotn\u011b posti\u017een\u00e9ho \u010dlena dom\u00e1cnosti. Tato slu\u017eba je zdarma, jedn\u00e1\nse o projekt Metoda diagnostiky a pos\u00edlen\u00ed rodi\u010dovsk\u00fdch kompetenc\u00ed rodi\u010d\u016f d\u011bt\u00ed\ns hendikepem financovan\u00fd za pomoci Opera\u010dn\u00edho programu Zam\u011bstnanost Evropsk\u00e9ho\nsoci\u00e1ln\u00edho fondu,\u201c vysv\u011btlila Marie Burkhardtov\u00e1, projektov\u00fd metodik organizace\nAlkmeon.<\/p>\n\n\n\n
Des\u00edtky hodin p\u00e9\u010de od odborn\u00edk\u016f<\/p>\n\n\n\n
Mamince se dost\u00e1v\u00e1 pro ni a dcerku p\u0159esn\u011b nastaven\u00e1 pomoc od\nn\u011bkolika odborn\u00edk\u016f na jednom m\u00edst\u011b. Ti se j\u00ed v\u011bnuj\u00ed des\u00edtky hodin. \u201eNa \u00favodn\u00edch\nsetk\u00e1n\u00edch se domluv\u00ed, jakou konkr\u00e9tn\u00ed pomoc rodina pot\u0159ebuje. A na dal\u0161\u00edch se\nup\u0159es\u0148uje,\u201c dodala Burkhardtov\u00e1.<\/p>\n\n\n\n
Rodin\u011b nap\u0159\u00edklad pom\u00e1h\u00e1 fyzioterapeut, kter\u00fd rad\u00ed, jak mohou\nv dom\u00e1c\u00edm prost\u0159ed\u00ed rehabilitovat. Nutri\u010dn\u00ed specialista doporu\u010duje stravu,\nergoterapeut pom\u00e1h\u00e1 s v\u00fdb\u011brem kompenza\u010dn\u00edch pom\u016fcek. P\u00e9\u010de o posti\u017een\u00e9 d\u00edt\u011b je\nfinan\u010dn\u011b hodn\u011b n\u00e1kladn\u00e1. \u201eJednou z odborn\u00fdch pomoc\u00ed je setk\u00e1n\u00ed se soci\u00e1ln\u00edm\npracovn\u00edkem. Ten zji\u0161\u0165uje, zda rodina pob\u00edr\u00e1 v\u0161echny soci\u00e1ln\u00ed d\u00e1vky, kter\u00e9\npob\u00edrat m\u016f\u017ee,\u201c vysv\u011btlila Burkhardtov\u00e1.<\/p>\n\n\n\n
Organizace Alkmeon pom\u00e1h\u00e1 v \u010cesku v\u00edce ne\u017e dvac\u00edtce rodin,\nn\u011bkter\u00e9 vyu\u017e\u00edvaj\u00ed v t\u011b\u017ek\u00e9 situaci tak\u00e9 pomoci psycholog\u016f nebo pr\u00e1vn\u00edk\u016f. Pomoc\nje velmi individu\u00e1ln\u00ed, p\u0159esn\u011b nastaven\u00e1 na pot\u0159eby konkr\u00e9tn\u00ed rodiny, pe\u010duj\u00edc\u00ed\nosoby a zdravotn\u011b posti\u017een\u00e9ho. Slu\u017eby jsou poskytov\u00e1ny v Praze, p\u016fsobnost\norganizace je po cel\u00e9 republice,\u201c sd\u011blila Burkhardtov\u00e1.<\/p>\n\n\n\n
Rodina si t\u00e9to pomoci nesm\u00edrn\u011b v\u00e1\u017e\u00ed. \u201ePom\u00e1h\u00e1 n\u00e1m tak\u00e9 nadace\nDobr\u00fd and\u011bl, a to finan\u010dn\u011b. D\u011bkujeme v\u0161em jej\u00edm d\u00e1rc\u016fm,\u201c \u0159ekla Tetyana\nTsonynets. P\u00e9\u010de o posti\u017eenou dceru je finan\u010dn\u011b n\u00e1ro\u010dn\u00e1, pen\u00edze od st\u00e1tu\nnesta\u010d\u00ed. Jen za l\u00e9ky na epilepsii d\u00e1v\u00e1 rodina tis\u00edc korun m\u011bs\u00ed\u010dn\u011b. Jak Maru\u0161ka\nroste, hodil by se nov\u00fd ko\u010d\u00e1rek nebo postel. Pokud by se rodin\u011b poda\u0159ilo sehnat\nn\u011bjak\u00e9 pen\u00edze nav\u00edc, vyu\u017eila by je na \u010dast\u011bj\u0161\u00ed terapie.<\/p>\n\n\n\n
Petr Kin\u0161t<\/p>\n\n\n\n
\u017dateck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/zatecky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Mariya Tsonynets z Lib\u010devsi na Lounsku se v \u0159\u00edjnu p\u0159ed osmi lety r\u00e1no probudila s hore\u010dkou, m\u011bla k\u0159e\u010de, zvracela. Rodina jela hned do nemocnice, kde […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14569,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36812","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36812","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36812"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36812\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14569"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36812"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36812"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36812"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}