Narozen\u00ed miminka v\u017edycky znamen\u00e1 obrovskou zm\u011bnu pro celou\nrodinu. N\u011bkte\u0159\u00ed rodi\u010de ale za\u017e\u00edvaj\u00ed krom\u011b radosti i mnoho starost\u00ed.<\/p>\n\n\n\n
Kdy\u017e se u d\u00edt\u011bte zjist\u00ed zdravotn\u00ed posti\u017een\u00ed, p\u0159evr\u00e1t\u00ed se\nrodi\u010d\u016fm cel\u00fd sv\u011bt. Za\u017e\u00edvaj\u00ed \u0161ok, strach, nev\u00ed, co bude d\u00e1l. Rodi\u010de se boj\u00ed o\nsv\u00e9 d\u00edt\u011b, o rodinu a jak to v\u0161e zvl\u00e1dnou. Obavy maj\u00ed tak\u00e9 z reakc\u00ed \u0161ir\u0161\u00edho\nokol\u00ed, jak p\u0159ijme diagn\u00f3zu. Podpora ran\u00e9 p\u00e9\u010de by tak m\u011bla p\u0159ij\u00edt co nejd\u0159\u00edve,\naby provedla rodi\u010de ne\u010dekanou situac\u00ed a dala jim nad\u011bji. Nad\u011bji na to, \u017ee v\u0161e\nzvl\u00e1dnou a \u017ee jim slu\u017eba ran\u00e9 p\u00e9\u010de uk\u00e1\u017ee, jak maxim\u00e1ln\u011b podpo\u0159it v\u00fdvoj jejich\nd\u00edt\u011bte v obdob\u00ed od narozen\u00ed do 7 let. Poradkyn\u011b ran\u00e9 p\u00e9\u010de p\u0159ijedou do dom\u00e1c\u00edho\nprost\u0159ed\u00ed d\u00edt\u011bte. Rodi\u010de se mohou pod\u011blit o v\u0161e co je t\u00ed\u017e\u00ed a z\u00edskaj\u00ed podporu i\npraktick\u00e9 rady. D\u016fle\u017eit\u00e9 je, aby se rodiny o mo\u017enosti pomoci dozv\u011bd\u011bly v\u010das.<\/p>\n\n\n\n
\u201eD\u00edky ran\u00e9 p\u00e9\u010di jsem poznala n\u011bkolik fajn lidi\u010dek a \u00fa\u017easn\u00fdch\nd\u011bt\u00ed, a to byl za\u010d\u00e1tek k tomu, abych pochopila, \u017ee moje dcera s Downov\u00fdm\nsyndromem je \u00fa\u017easn\u00e1 a dokonal\u00e1 bytost. Jsem na ni opravdu py\u0161n\u00e1 a \u0161\u0165astn\u00e1, \u017ee\nji m\u00e1m. Vlastn\u011b nejenom j\u00e1, ale cel\u00e1 na\u0161e rodina i p\u0159\u00e1tel\u00e9\u201c, \u0159\u00edk\u00e1 Lucie Ko\u010dov\u00e1,\nmaminka 6let\u00e9 Barunky.<\/p>\n\n\n\n
Aby se odborn\u00e1 pomoc dostala k d\u011btem co nejd\u0159\u00edve, po\u0159\u00e1d\u00e1 Spole\u010dnost pro ranou p\u00e9\u010di ka\u017ed\u00fd rok v listopadu celorepublikovou osv\u011btovou kampa\u0148 T\u00fdden ran\u00e9 p\u00e9\u010de\u00ae. Leto\u0161n\u00ed 14. ro\u010dn\u00edk prob\u011bhne od 1. do 7. listopadu. Ambasadorem kampan\u011b se stala skupina Mirai. Text jejich p\u00edsn\u011b \u201eSlovo NEJDE neexistuje\u201c je mottem kampan\u011b a chce uk\u00e1zat rodi\u010dovskou s\u00edlu a odhodl\u00e1n\u00ed v\u0161echny p\u0159ek\u00e1\u017eky p\u0159ekonat.<\/p>\n\n\n\n
Mirai pozvali dv\u011b z t\u011bchto rodin na sv\u016fj koncert. Odtud si (nejen) d\u011bti odvezly z\u00e1\u017eitky, kter\u00e9 se \u010dasto nepo\u0161t\u011bst\u00ed ani b\u011b\u017en\u00fdm rodin\u00e1m. U d\u00edt\u011bte se z\u00e1va\u017en\u00fdm onemocn\u011bn\u00edm nebo posti\u017een\u00edm je \u017eivot velmi slo\u017eit\u00fd. Je v\u0161ak zvl\u00e1dnuteln\u00fd. Prost\u011b \u201eSlovo NEJDE neexistuje\u201c. Spole\u010dnost pro ranou p\u00e9\u010di neum\u00ed zm\u011bnit diagn\u00f3zu d\u00edt\u011bte, ale um\u00ed rodi\u010de v\u017edy podpo\u0159it tak, aby se mohli pln\u011b sv\u00e9mu d\u00edt\u011bti v\u011bnovat.<\/p>\n\n\n\n
Jak slu\u017eba funguje?<\/p>\n\n\n\n
Poradkyn\u011b ran\u00e9 p\u00e9\u010de, vysoko\u0161kolsky vzd\u011blan\u00e9 odbornice na\nsoci\u00e1ln\u00ed pr\u00e1ci a speci\u00e1ln\u00ed pedagogiku, jezd\u00ed za rodinami zpo\u010d\u00e1tku ka\u017ed\u00fd m\u011bs\u00edc.\nPom\u00e1haj\u00ed rodi\u010d\u016fm zorientovat se v nov\u00e9 \u017eivotn\u00ed situaci krok za krokem. Ukazuj\u00ed\njim, jak mohou sami se sv\u00fdmi d\u011btmi pracovat a rozv\u00edjet je. Pou\u017e\u00edvaj\u00ed p\u0159itom\ninteraktivn\u00ed hra\u010dky a speci\u00e1ln\u00ed pom\u016fcky, kter\u00e9 v p\u0159\u00edpad\u011b z\u00e1jmu i bezplatn\u011b\nzap\u016fj\u010duj\u00ed. V\u010dasn\u00e1 pomoc m\u00e1 velk\u00fd vliv na to, jak rodina toto t\u011b\u017ek\u00e9 obdob\u00ed\nzvl\u00e1dne a jak\u00fd bude \u017eivot d\u00edt\u011bte v budoucnu. Na odbornou pomoc ran\u00e9 p\u00e9\u010de m\u00e1\nn\u00e1rok ka\u017ed\u00e1 rodina, kter\u00e1 vychov\u00e1v\u00e1 doma d\u00edt\u011b s posti\u017een\u00edm nebo s ohro\u017een\u00fdm\nv\u00fdvojem ve v\u011bku od narozen\u00ed do 7 let.<\/p>\n\n\n\n
P\u0159\u00edb\u011bh Luk\u00e1\u0161ka<\/p>\n\n\n\n
\u201eKdy\u017e \u010dek\u00e1te p\u0159\u00edchod prvn\u00edho d\u00edt\u011bte do rodiny, automaticky\np\u0159edpokl\u00e1d\u00e1te, \u017ee bude v\u0161echno v po\u0159\u00e1dku. Bohu\u017eel, kdy\u017e byly na\u0161emu Luk\u00e1\u0161kovi\ndva m\u011bs\u00edce, \u0159ekli n\u00e1m, \u017ee nevid\u00ed. Do na\u0161eho \u017eivota najednou vplul strach a\nnejistota. Tehdy n\u00e1m nab\u00eddla pomoc Spole\u010dnost pro ranou p\u00e9\u010di, za\u010dala k n\u00e1m\njezdit poradkyn\u011b Katka a za\u010dali jsme se synem pracovat. Dali n\u00e1m nad\u011bji, \u017ee\njeho zrak se m\u016f\u017ee zlep\u0161it. Sd\u00edleli s n\u00e1mi na\u0161i neskute\u010dnou radost, kdy\u017e v p\u016fl\nroce Luk\u00e1\u0161ek poprv\u00e9 zaregistroval m\u016fj obli\u010dej. D\u00edky ran\u00e9 p\u00e9\u010di na to nejsme\nsami, m\u016f\u017eeme se s n\u011bk\u00fdm poradit \u2013 PROST\u011a NEJSME NA TO SAMI \u2013 a to je hrozn\u011b\nmoc! Pro m\u011b je nejv\u011bt\u0161\u00ed odm\u011bnou, \u017ee kdy\u017e n\u00e1s dnes potk\u00e1te na ulici, mo\u017en\u00e1 ani\nnepozn\u00e1te, \u017ee Luk\u00e1\u0161ek m\u00e1 n\u011bjak\u00fd probl\u00e9m,\u201c \u0159\u00edk\u00e1 o ran\u00e9 p\u00e9\u010di jeho maminka.\nP\u0159e\u010dt\u011bte si dal\u0161\u00ed p\u0159\u00edb\u011bhy rodin, kter\u00e9 mus\u00ed o ka\u017ed\u00fd \u00fasm\u011bv sv\u00fdch d\u011bt\u00ed bojovat.<\/p>\n\n\n\n
Program T\u00fddne ran\u00e9 p\u00e9\u010de\u00ae je k dispozici na\nwww.tydenranepece.cz. P\u0159ij\u010fte se pod\u00edvat na Den otev\u0159en\u00fdch dve\u0159\u00ed, z\u00fa\u010dastn\u011bte se\np\u0159edn\u00e1\u0161ek, workshop\u016f, v\u00fdstav a dal\u0161\u00edch akc\u00ed. Pokud bude nep\u0159\u00edzniv\u00e1 situace,\nprob\u011bhnou aktivity online. \u201eSlovo NEJDE neexistuje\u201c plat\u00ed v tomto \u010dase v\u00edce,\nne\u017e kdy jindy.<\/p>\n\n\n\n
Pomoci m\u016f\u017eete i vy, sta\u010d\u00ed poslat na \u010d\u00edslo 87 777 SMS ve\ntvaru: DMS PRORODINU 90<\/p>\n\n\n\n
Podpo\u0159it m\u016f\u017eete i zde:\nhttps:\/\/www.ranapece.cz\/chci-podporit\/<\/p>\n\n\n\n
JAK\u00c1 JE NA\u0160E POMOC<\/p>\n\n\n\n
\u2022 v\u010dasn\u00e1 \u2013 pom\u00e1h\u00e1me okam\u017eit\u011b po zji\u0161t\u011bn\u00ed diagn\u00f3zy<\/p>\n\n\n\n
\u2022 dostupn\u00e1 \u2013 p\u0159ijedeme za rodinou a\u017e dom\u016f kdekoliv v regionu<\/p>\n\n\n\n
\u2022 odborn\u00e1 \u2013 posilujeme kompetence rodi\u010d\u016f v tom, jak sv\u00e9 d\u011bti\nrozv\u00edjet<\/p>\n\n\n\n
\u2022 komplexn\u00ed \u2013 podporujeme celou rodinu a spoluvytv\u00e1\u0159\u00edme\npodp\u016frn\u00fd t\u00fdm kolem n\u00ed <\/p>\n\n\n\n
SKUTE\u010cN\u00c1 POMOC V \u010c\u00cdSLECH<\/p>\n\n\n\n
\u2022 Spole\u010dnost pro ranou p\u00e9\u010di podporuje 800 rodin d\u011bt\u00ed s\nhendikepem nebo rizikov\u00fdm v\u00fdvojem<\/p>\n\n\n\n
\u2022 Doj\u00ed\u017ed\u00ed za nimi dom\u016f a ro\u010dn\u011b provede s rodinami 15 000\nkonzultac\u00ed<\/p>\n\n\n\n
\u2022 Za 30 let p\u016fsoben\u00ed pomohla k lep\u0161\u00edmu startu do \u017eivota u\u017e tis\u00edc\u016fm d\u011bt\u00ed<\/p>\n\n\n\n
Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/pr.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Narozen\u00ed miminka v\u017edycky znamen\u00e1 obrovskou zm\u011bnu pro celou rodinu. N\u011bkte\u0159\u00ed rodi\u010de ale za\u017e\u00edvaj\u00ed krom\u011b radosti i mnoho starost\u00ed. Kdy\u017e se u d\u00edt\u011bte zjist\u00ed zdravotn\u00ed posti\u017een\u00ed, […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":30134,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36854","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36854","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36854"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36854\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/30134"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36854"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36854"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36854"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}