Praha, 29. 11. 2021 \u2013 Pro tis\u00edce lid\u00ed je obt\u00ed\u017en\u00e9 si p\u0159ipustit, \u017ee za jejich bolestmi hlavy, z\u00e1vrat\u011bmi, zvracen\u00edm a dal\u0161\u00edmi projevy je ve skute\u010dnosti onemocn\u011bn\u00ed zvan\u00e9 migr\u00e9na. A \u017ee ji lze l\u00e9\u010dit a p\u0159\u00edznaky m\u00edrnit. Z obavy z\u00a0posm\u011bchu okol\u00ed nemoc sami p\u0159ed sebou zleh\u010duj\u00ed. Na to, aby tito lid\u00e9 migr\u00e9nu nepodce\u0148ovali a sv\u00e9 pot\u00ed\u017ee \u0159e\u0161ili, upozor\u0148uje sdru\u017een\u00ed Migr\u00e9na-help, kter\u00e9 i z\u00a0tohoto d\u016fvodu uspo\u0159\u00e1dalo 25. listopadu online pacientsk\u00e9 setk\u00e1n\u00ed s\u00a0n\u00e1zvem Migr\u00e9na n\u00e1s spojuje. <\/p>\n\n\n\n
\u201eP\u0159edstavte si, \u017ee \u017eijete ve spole\u010dnosti, kde se o migr\u00e9n\u011b mluv\u00ed p\u0159ev\u00e1\u017en\u011b jako o oby\u010dejn\u00e9 bolesti hlavy zvl\u00e1dnuteln\u00e9 sklenic\u00ed vody nebo proch\u00e1zkou na \u010derstv\u00e9m vzduchu. Migr\u00e9nu tak\u00e9 \u010dasto spole\u010dnost vn\u00edm\u00e1 jako jak\u00e9si f\u0148uk\u00e1n\u00ed neschopn\u00fdch pani\u010dek \u010di jako vrtoch hysterick\u00fdch \u010di neurotick\u00fdch \u017een, kter\u00e9 se nedok\u00e1\u017e\u00ed vyrovnat se stresem, p\u0159\u00edpadn\u011b jako v\u00fdmluvu p\u0159i odm\u00edtnut\u00ed sexu,\u201c vysv\u011btluje R\u00fdza Bla\u017eejovsk\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 organizace Migr\u00e9na-help. \u201eMigr\u00e9na m\u00e1 jednodu\u0161e pov\u011bst n\u011b\u010deho ban\u00e1ln\u00edho a v podstat\u011b smy\u0161len\u00e9ho. Existuj\u00ed lid\u00e9 s migr\u00e9nou, kte\u0159\u00ed tento status quo rovn\u011b\u017e zast\u00e1vaj\u00ed, proto\u017ee je jednodu\u0161e sou\u010d\u00e1st\u00ed jejich ment\u00e1ln\u00ed v\u00fdbavy, kter\u00e1 jim byla spole\u010dnost\u00ed v\u0161t\u00edpena. A potom si p\u0159esto, \u017ee za\u017e\u00edvaj\u00ed intenzivn\u00ed bolesti, opakovan\u011b \u0159\u00edkaj\u00ed \u2013 v souladu s v\u0161eobecn\u00fdm n\u00e1zorem \u2013 \u017ee to p\u0159ece nic nen\u00ed. \u010cty\u0159ikr\u00e1t, osmkr\u00e1t, patn\u00e1ctkr\u00e1t \u010di dvacetkr\u00e1t do m\u011bs\u00edce jsou paralyzov\u00e1ni zneschop\u0148uj\u00edc\u00edmi bolestmi a do toho za\u017e\u00edvaj\u00ed t\u011b\u017ek\u00e9 pocity viny, m\u00e9n\u011bcennosti \u010di studu, \u017ee nejsou schopni se s migren\u00f3zn\u00edmi stavy sami vyrovnat. Tomuto procesu se odborn\u011b \u0159\u00edk\u00e1 sebestigmatizace.\u201c <\/p>\n\n\n\n
Podle specialistky na destigmatizaci z N\u00e1rodn\u00edho \u00fastavu du\u0161evn\u00edho zdrav\u00ed Terezy Bla\u017eejovsk\u00e9 je jednou z p\u0159\u00ed\u010din takov\u00e9ho stavu nedostate\u010dn\u00e9 pov\u011bdom\u00ed spole\u010dnosti o tom, co migr\u00e9na skute\u010dn\u011b je. Pr\u00e1v\u011b nepochopen\u00ed a nep\u0159\u00edtomnost vlastn\u00ed zku\u0161enosti s nemoc\u00ed vede okol\u00ed k jej\u00edmu podce\u0148ov\u00e1n\u00ed a tlaku na nemocn\u00e9, aby migr\u00e9nu shazovali sami p\u0159ed sebou. Tato sebestigmatizace pak vede k tomu, \u017ee si pacienti nedojdou pro odbornou pomoc a trp\u00ed zbyte\u010dn\u011b d\u00e1l. Podle Terezy Bla\u017eejovsk\u00e9 by zm\u011bnu mohla p\u0159in\u00e9st pr\u00e1v\u011b \u010dinnost pacientsk\u00e9 organizace. \u201eZm\u011bny postoj\u016f a emoc\u00ed, kter\u00e9 jsou s migr\u00e9nou v na\u0161\u00ed kultu\u0159e a spole\u010dnosti spojeny, je mo\u017en\u00e9 doc\u00edlit mimo jin\u00e9 otev\u0159en\u00fdm sd\u00edlen\u00edm pro\u017eitk\u016f. V\u00edme, \u017ee pr\u00e1v\u011b setk\u00e1n\u00ed s n\u011bk\u00fdm, kdo dok\u00e1\u017ee o sv\u00e9 zku\u0161enosti dostate\u010dn\u011b otev\u0159en\u011b a smyslupln\u011b mluvit, m\u00e1 na stigma a jeho sn\u00ed\u017een\u00ed velk\u00fd vliv,\u201c dopl\u0148uje psycholo\u017eka.<\/p>\n\n\n\n
Podle neurolo\u017eky MUDr. Evy Medov\u00e9 z Centra pro diagnostiku a l\u00e9\u010dbu bolesti hlavy Fakultn\u00ed nemocnice Kr\u00e1lovsk\u00e9 Vinohrady zleh\u010duje nebo pop\u00edr\u00e1 sv\u00e9 pot\u00ed\u017ee asi t\u0159etina jej\u00edch pacient\u016f, n\u011bkte\u0159\u00ed za\u0161li za l\u00e9ka\u0159em a\u017e po dvaceti letech, kdy s migr\u00e9nou \u017eili bez jak\u00e9koli systematick\u00e9 l\u00e9\u010dby. \u201eJsou to p\u0159edev\u0161\u00edm lid\u00e9, u nich\u017e se nemoc vyskytovala v rodin\u011b, m\u011bla ji nap\u0159\u00edklad maminka a oni to vn\u00edmaj\u00ed tak, \u017ee bolesti a dal\u0161\u00ed projevy migr\u00e9ny jsou norm\u00e1ln\u00ed a mus\u00ed se vydr\u017eet,\u201c popisuje neurolo\u017eka. Podle n\u00ed by pacienti m\u011bli zam\u00ed\u0159it k praktick\u00e9mu l\u00e9ka\u0159i, ten je ode\u0161le k neurologovi a ten p\u0159\u00edpadn\u011b do specializovan\u00fdch center pro l\u00e9\u010dbu bolesti hlavy \u2013 v \u010cesku jich je p\u0159es 30. V centrech pom\u016f\u017ee lidem s nejt\u011b\u017e\u0161\u00ed formou migr\u00e9ny nap\u0159\u00edklad biologick\u00e1 l\u00e9\u010dba. \u201ePoji\u0161\u0165ovny propl\u00e1c\u00ed ji\u017e t\u00e9m\u011b\u0159 dva roky biologickou l\u00e9\u010dbu specificky vyvinutou pro prevenci atak migr\u00e9ny. Ta um\u00ed sn\u00ed\u017eit po\u010det z\u00e1chvat\u016f a\u017e o polovinu a v\u00edce, zkracuje trv\u00e1n\u00ed atak a zm\u00edr\u0148uje jejich intenzitu. Krom\u011b toho pozorujeme u biologick\u00fdch l\u00e9k\u016f minimum ne\u017e\u00e1douc\u00edch \u00fa\u010dink\u016f,\u201c dodala neurolo\u017eka MUDr. Eva Medov\u00e1. <\/p>\n\n\n\n
Pokud se pacienti setkaj\u00ed s nepochopen\u00edm u l\u00e9ka\u0159e \u2013 co\u017e se vzhledem ke stigmatizaci onemocn\u011bn\u00ed dle Migr\u00e9na-help rovn\u011b\u017e st\u00e1v\u00e1 \u2013 je vhodn\u00e9 se na pacientskou organizaci obr\u00e1tit.<\/p>\n\n\n\n
Akce po\u0159\u00e1dan\u00e9 pr\u00e1v\u011b organizac\u00ed Migr\u00e9na-help se z\u00fa\u010dastnily des\u00edtky lid\u00ed, kte\u0159\u00ed si vyslechli rady a p\u0159edn\u00e1\u0161ky odborn\u00edk\u016f, z\u00fa\u010dastnili se virtu\u00e1ln\u00edch workshop\u016f zam\u011b\u0159en\u00fdch na fyzioterapii nebo se poradili u odborn\u00edk\u016f na psychosomatiku. <\/p>\n\n\n\n
Migr\u00e9na-help tak\u00e9 po\u0159\u00e1d\u00e1 pravideln\u00e1 setk\u00e1n\u00ed v r\u00e1mci tzv. sv\u00e9pomocn\u00fdch skupin, kde si lid\u00e9 s migr\u00e9nou pom\u00e1haj\u00ed ve zvl\u00e1d\u00e1n\u00ed n\u00e1ro\u010dn\u00fdch \u017eivotn\u00edch situac\u00ed spojen\u00fdch s jejich onemocn\u011bn\u00edm: www.migrena-help.cz\/svepomocne-skupiny<\/em><\/a>, a p\u0159\u00ed\u0161t\u00ed rok chyst\u00e1 s\u00e9rii webin\u00e1\u0159\u016f zam\u011b\u0159en\u00fdch pr\u00e1v\u011b na destigmatizaci migr\u00e9ny. Z\u00e1znam setk\u00e1n\u00ed Migr\u00e9na n\u00e1s spojuje je mo\u017en\u00e9 zhl\u00e9dnout na www.migrena-help.cz\/zaznam-festivalu<\/em><\/a>.<\/em><\/p>\n\n\n\n ————————-<\/p>\n\n\n\n O Migr\u00e9na-help<\/p>\n\n\n\n Migr\u00e9na-help je prvn\u00ed\npacientsk\u00e1 organizace v \u010cesk\u00e9 republice podporuj\u00edc\u00ed osoby s migr\u00e9nou\na jejich bl\u00edzk\u00e9. \u0160\u00ed\u0159\u00ed osv\u011btu, poskytuje informa\u010dn\u00ed servis a poradenstv\u00ed,\nkoordinuje setk\u00e1v\u00e1n\u00ed sv\u00e9pomocn\u00fdch skupin, zprost\u0159edkov\u00e1v\u00e1 psychoterapii,\nrealizuje pr\u016fzkumy apod. Jde o neziskovou organizaci, kter\u00e1 sv\u00e9 slu\u017eby nab\u00edz\u00ed\nza symbolick\u00fd poplatek nebo zdarma.<\/p>\n\n\n\n O l\u00e9\u010db\u011b migr\u00e9ny<\/p>\n\n\n\n V\u00a0sou\u010dasn\u00e9 dob\u011b je na migr\u00e9nu k dispozici \u00fa\u010dinn\u00e1 l\u00e9\u010dba, kter\u00e1 se d\u011bl\u00ed na akutn\u00ed a preventivn\u00ed. V\u00a0p\u0159\u00edpad\u011b, \u017ee m\u00e1 pacient jen \u010dty\u0159i dny s\u00a0migr\u00e9nou (MMD) do m\u011bs\u00edce a pom\u016f\u017ee mu od bolesti tableta l\u00e9ku ze skupiny triptan\u016f, sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba a nen\u00ed t\u0159eba nasazovat preventivn\u00ed l\u00e9\u010dbu. Ov\u0161em p\u0159i vy\u0161\u0161\u00edm po\u010dtu dn\u016f s migr\u00e9nou \u2013 p\u011bt a v\u00edce do m\u011bs\u00edce \u2013 doch\u00e1z\u00ed k\u00a0v\u00fdrazn\u00e9mu sn\u00ed\u017een\u00ed kvality \u017eivota pacienta. Zde je vhodn\u00e9 nasadit preventivn\u00ed (tzv. profylaktickou) l\u00e9\u010dbu, jej\u00edm\u017e c\u00edlem je sn\u00ed\u017eit po\u010det a intenzitu z\u00e1chvat\u016f a omezit d\u00e9lku jejich trv\u00e1n\u00ed. V\u00edce na www.migrena-kompas.cz<\/em>.<\/a>S nemoc\u00ed pom\u00e1h\u00e1 lidem tak\u00e9 mobiln\u00ed aplikace Migr\u00e9na Kompas vyvinut\u00e1 spole\u010dnost\u00ed PearsHealthCyber a podpo\u0159en\u00e1 spole\u010dnost\u00ed TevaPharmaceuticals CR. U\u017eivatel\u016fm umo\u017e\u0148uje zaznamenat jednotliv\u00e9 z\u00e1chvaty, jejich d\u00e9lku, intenzitu a u\u017eit\u00e9 l\u00e9ky. Aplikaci si do t\u00e9to doby nainstalovalo 4491 u\u017eivatel\u016f.<\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 29. 11. 2021 \u2013 Pro tis\u00edce lid\u00ed je obt\u00ed\u017en\u00e9 si p\u0159ipustit, \u017ee za jejich bolestmi hlavy, z\u00e1vrat\u011bmi, zvracen\u00edm a dal\u0161\u00edmi projevy je ve skute\u010dnosti […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36935","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36935","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36935"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36935\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36935"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36935"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36935"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}