Praha, 1. 12. 2021 \u2013 Roky trp\u011bli zbyte\u010dn\u011b, proto\u017ee se b\u00e1li l\u00e9ka\u0159e po\u017e\u00e1dat o zm\u011bnu l\u00e9\u010dby \u2013 i takto zn\u00ed p\u0159\u00edb\u011bhy pacient\u016f s revmatoidn\u00ed artritidou. Mnoz\u00ed z nich se o sv\u00e9 bolesti odhodl\u00e1vaj\u00ed mluvit a\u017e tehdy, kdy\u017e je jejich zdravotn\u00ed stav ne\u00fanosn\u00fd. Rozhovor \u010dasto odkl\u00e1daj\u00ed z obavy, \u017ee je revmatolog nepochop\u00ed. Pacientsk\u00e1 organizace Revma Liga \u010cesk\u00e1 republika proto lidi s revmatoidn\u00ed artritidou u\u010d\u00ed, jak o sv\u00e9 nemoci s l\u00e9ka\u0159i mluvit a kdy je vhodn\u00e9 odborn\u00edka zm\u011bnit. <\/p>\n\n\n\n
V l\u00e9\u010db\u011b revmatoidn\u00ed artritidy je d\u016fle\u017eit\u00e9 nastaven\u00ed tzv. l\u00e9\u010dby k c\u00edli. Je to proces, p\u0159i kter\u00e9m si pacient s l\u00e9ka\u0159em hned zpo\u010d\u00e1tku spole\u010dn\u011b stanov\u00ed re\u00e1lnou metu, kter\u00e9 cht\u011bj\u00ed dos\u00e1hnout v co nejkrat\u0161\u00edm \u010dase. \u201eJe d\u016fle\u017eit\u00e9 m\u011b\u0159it aktivitu nemoci a efektivitu l\u00e9\u010dby a v p\u0159\u00edpad\u011b, \u017ee nen\u00ed \u00fa\u010dinn\u00e1, ji zm\u011bnit. Stanovit si \u010dasov\u00fd horizont, ve kter\u00e9m chceme dos\u00e1hnout k\u00fd\u017een\u00fdch v\u00fdsledk\u016f. Ide\u00e1ln\u00ed je doc\u00edlit remise, tedy \u00fapln\u00e9ho vymizen\u00ed p\u0159\u00edznak\u016f. Ne u v\u0161ech pacient\u016f je to ale re\u00e1ln\u00e9,\u201c \u0159\u00edk\u00e1 p\u0159edsedkyn\u011b pacientsk\u00e9ho spolku Revma Liga Edita M\u00fcllerov\u00e1. Zat\u00edmco v zahrani\u010d\u00ed je podrobn\u00fd dialog mezi l\u00e9ka\u0159em a pacientem o v\u0161ech mo\u017enostech l\u00e9\u010dby standardn\u00ed prax\u00ed, v \u010cesku jeho vyu\u017eit\u00ed st\u00e1le pokulh\u00e1v\u00e1. Jedn\u00edm z d\u016fvod\u016f je p\u0159et\u00ed\u017eenost revmatolog\u016f i to, \u017ee pacienti v\u016fbec netu\u0161\u00ed, \u017ee m\u00e1 l\u00e9ka\u0159 m\u011b\u0159it aktivitu jejich nemoci a podle toho nastavit efektivn\u00ed l\u00e9\u010dbu. Nav\u00edc podle pacientsk\u00e9 organizace neexistuje \u017e\u00e1dn\u00fd ucelen\u00fd n\u00e1vod pro l\u00e9ka\u0159e, jak s pacientem mluvit, a naopak pro pacienta, jak\u00e9 kl\u00e1st ot\u00e1zky. <\/p>\n\n\n\n
Komunikace o nemoci a zm\u011bna revmatologa p\u0159itom obr\u00e1tila \u017eivot k lep\u0161\u00edmu Pavl\u00edn\u011b ze Smilovic u Mlad\u00e9 Boleslavi. Bez pomoci p\u0159\u00edtele se nezvl\u00e1dla ani oto\u010dit v posteli, nyn\u00ed pravideln\u011b b\u011bh\u00e1 10 km a zved\u00e1 \u010dinky t\u011b\u017e\u0161\u00ed, ne\u017e je ona sama. To v\u0161e d\u00edky biologick\u00e9 l\u00e9\u010db\u011b, kterou j\u00ed nov\u00fd revmatolog doporu\u010dil. \u201eRoky jsem trp\u011bla zbyte\u010dn\u011b a n\u011bkter\u00e9 nevratn\u00e9 zm\u011bny na kloubech se v\u016fbec nemusely st\u00e1t, pokud bych m\u011bla l\u00e9\u010dbu d\u0159\u00edv. Te\u010f u\u017e v\u00edm, \u017ee jsem po mo\u017enostech l\u00e9\u010dby m\u011bla v\u00edce p\u00e1trat a s b\u00fdvalou l\u00e9ka\u0159kou o tom intenzivn\u011bji mluvit,\u201c vysv\u011btluje Pavl\u00edna. <\/p>\n\n\n\n
Pacienti, kte\u0159\u00ed nejsou spokojeni se svou dosavadn\u00ed l\u00e9\u010dbou a cht\u011bj\u00ed sv\u00e9ho l\u00e9ka\u0159e po\u017e\u00e1dat o jej\u00ed zm\u011bnu, mohou vyu\u017e\u00edt doporu\u010den\u00ed na webu www.mluvmeora.cz<\/a>. Do formul\u00e1\u0159ePr\u016fvodce rozhovorem s l\u00e9ka\u0159em<\/em> si zaznamenaj\u00ed sv\u00e9 p\u0159\u00edznaky, zhodnot\u00ed dosavadn\u00ed l\u00e9\u010dbu a stanov\u00ed c\u00edle, jich\u017e cht\u011bj\u00ed l\u00e9\u010dbou dos\u00e1hnout. Vypln\u011bn\u00fd dotazn\u00edk si pot\u00e9 vezmou s\u00a0sebou na dal\u0161\u00ed n\u00e1v\u0161t\u011bvu u revmatologa. Komunikaci s\u00a0l\u00e9ka\u0159em si pacienti tak\u00e9 mohou natr\u00e9novat na speci\u00e1ln\u011b zam\u011b\u0159en\u00fdch workshopech Revma Ligy. \u201eSpole\u010dn\u011b nacvi\u010dujeme r\u016fzn\u00e9 situace. Nap\u0159\u00edklad jak si udr\u017eet pozornost l\u00e9ka\u0159e nebo jak vystupovat sebev\u011bdom\u011b,\u201c \u0159\u00edk\u00e1 Edita M\u00fcllerov\u00e1. <\/p>\n\n\n\n Revmatoidn\u00ed artritida, kterou trp\u00ed a\u017e 85 tis\u00edc \u010cech\u016f, je syst\u00e9mov\u00e9 onemocn\u011bn\u00ed, co\u017e znamen\u00e1, \u017ee posti\u017eeny nemus\u00ed b\u00fdt jen klouby, ale i jin\u00e9 org\u00e1ny, nap\u0159\u00edklad o\u010di nebo pl\u00edce. Pacienti by proto m\u011bli sv\u00e9ho revmatologa v\u017edy informovat o v\u0161ech pot\u00ed\u017e\u00edch, p\u0159esto\u017ee si mysl\u00ed, \u017ee s jejich nemoc\u00ed nesouvis\u00ed. \u201eKomunikace mezi pacientem a revmatologem je pro \u00fasp\u011b\u0161nou l\u00e9\u010dbu z\u00e1sadn\u00ed. Net\u00fdk\u00e1 se jen aktivity nemoci a intenzity p\u0159\u00edznak\u016f, jako je nap\u0159\u00edklad bolest, n\u011bkdy n\u00e1m pacienti bohu\u017eel zaml\u010duj\u00ed, \u017ee u\u017e\u00edvaj\u00ed l\u00e9ky jinak, ne\u017e jim l\u00e9ka\u0159 doporu\u010dil. Ob\u010das se st\u00e1v\u00e1, \u017ee po nasazen\u00ed biologick\u00e9 l\u00e9\u010dby poc\u00edt\u00ed velkou \u00falevu, vysad\u00ed v\u0161echny ostatn\u00ed medikamenty a ne\u0159eknou n\u00e1m o tom. To je samoz\u0159ejm\u011b \u0161patn\u011b, proto\u017ee bez t\u00e9to informace nem\u016f\u017eeme spr\u00e1vn\u011b zva\u017eovat dal\u0161\u00ed postupy l\u00e9\u010dby. Sv\u00fdm pacient\u016fm \u0159\u00edk\u00e1m, \u017ee je to, jako by n\u00e1s nechali \u0159\u00eddit v\u016fz se zav\u0159en\u00fdma o\u010dima,\u201c vysv\u011btluje revmatolo\u017eka MUDr.Leona Proch\u00e1zkov\u00e1, Ph.D. <\/p>\n\n\n\n O nemoci<\/p>\n\n\n\n Revmatoidn\u00ed artritida (RA) je jedna z mnoha z\u00e1n\u011btliv\u00fdch autoimunitn\u00edch revmatick\u00fdch nemoc\u00ed. Jedn\u00e1 se o chronick\u00e9 syst\u00e9mov\u00e9 onemocn\u011bn\u00ed postihuj\u00edc\u00ed klouby a mimokloubn\u00ed struktury. V sou\u010dasnosti je nevyl\u00e9\u010diteln\u00e1. V \u010cR j\u00ed trp\u00ed p\u0159ibli\u017en\u011b 0,5\u20131 % obyvatel, tedy a\u017e 85 tis\u00edc osob. RA zna\u010dn\u011b sni\u017euje funk\u010dn\u00ed schopnosti a kvalitu \u017eivota pacienta. Z\u00e1sadn\u00ed je p\u0159i nemoci v\u010dasn\u00e1 diagnostika a efektivn\u00ed l\u00e9\u010dba. V\u00edce informac\u00ed o dostupnosti efektivn\u00ed l\u00e9\u010dby revmatoidn\u00ed artritidy naleznete na str\u00e1nk\u00e1ch projektu Revma mapa www.revmavyzva.cz<\/a>, o m\u011b\u0159en\u00ed aktivity nemoci na www.myrevma.cz<\/a>, o efektivn\u00ed komunikaci s\u00a0l\u00e9ka\u0159em na www.mluvmeora.cz<\/a>.<\/p>\n\n\n\n O Revma Lize \u010cR <\/p>\n\n\n\n Revma Liga \u010cR je spole\u010dnost lid\u00ed s revmatismem, jejich rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f a p\u0159\u00e1tel. Spole\u010dnost letos slav\u00ed 30 let od zalo\u017een\u00ed. Jej\u00ed \u010dlenov\u00e9 bojuj\u00ed za plnohodnotn\u00fd a rovnopr\u00e1vn\u00fd \u017eivot zdravotn\u011b posti\u017een\u00fdch a\u00a0vytv\u00e1\u0159ej\u00ed pro n\u011b region\u00e1ln\u00ed kluby po cel\u00e9 \u010cesk\u00e9 republice. Revma Liga \u010cR spolupracuje s mezin\u00e1rodn\u00edmi organizacemi stejn\u00e9ho zam\u011b\u0159en\u00ed, je vyhled\u00e1van\u00fdm a rovnocenn\u00fdm partnerem pro pacienty, l\u00e9ka\u0159e, zdravotn\u00edky i st\u00e1tn\u00ed spr\u00e1vu. Dlouhodob\u011b usiluje o zlep\u0161en\u00ed komunikace mezi l\u00e9ka\u0159i a pacienty. Pro nemocn\u00e9 proto po\u0159\u00e1d\u00e1 \u0159adu workshop\u016f<\/a> zam\u011b\u0159en\u00fdch na dialog. Z\u00e1rove\u0148 jedn\u00e1 s odborn\u00edky prost\u0159ednictv\u00edm \u010cesk\u00e9 revmatologick\u00e9 spole\u010dnosti a usiluje o vytvo\u0159en\u00ed ucelen\u00fdch manu\u00e1l\u016f komunikace l\u00e9ka\u0159\u016f s pacienty. Heslem ligy je: Revma si nevyb\u00edr\u00e1, ale spolu to zvl\u00e1dneme. V\u00edce informac\u00ed na www.revmaliga.cz.<\/a><\/p>\n\n\n\n Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":" Praha, 1. 12. 2021 \u2013 Roky trp\u011bli zbyte\u010dn\u011b, proto\u017ee se b\u00e1li l\u00e9ka\u0159e po\u017e\u00e1dat o zm\u011bnu l\u00e9\u010dby \u2013 i takto zn\u00ed p\u0159\u00edb\u011bhy pacient\u016f s revmatoidn\u00ed artritidou. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":15420,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-36938","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36938","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36938"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/36938\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15420"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36938"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36938"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36938"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}