\u201eKdysi jsem si p\u0159estavovala, jak bude moje hol\u010di\u010dka vypadat\na co bude d\u011blat v pubert\u011b. To, \u017ee m\u011b bude pot\u0159ebovat ka\u017edou minutu sv\u00e9ho\n\u017eivota, beze m\u011b se nenaj\u00ed, nenapije, nebude schopna se o sebe postarat \u010di ani\nj\u00edt na toaletu a um\u00fdt se, to jsem ani v nejhor\u0161\u00edm snu ne\u010dekala.\u201c Tak za\u010d\u00edn\u00e1 sv\u00e9\nvypr\u00e1v\u011bn\u00ed matka patn\u00e1ctilet\u00e9 Anny.<\/p>\n\n\n\n
V pr\u016fb\u011bhu t\u011bhotenstv\u00ed nic nenasv\u011bd\u010dovalo, \u017ee by m\u011blo b\u00fdt\nn\u011bco s Ani\u010dkou v nepo\u0159\u00e1dku. Matka se t\u011b\u0161ila, \u017ee k synovi p\u0159ibude vysn\u011bn\u00e1 dcera.\nKr\u00e1tce po narozen\u00ed se v\u0161ak dozv\u011bd\u011bla smutnou diagn\u00f3zu d\u00edvky: trisomie dev\u00e1t\u00e9ho\nchromozomu, velmi z\u00e1va\u017en\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed, mozkov\u00e1 obrna, v budoucnu\nt\u011b\u017ek\u00e1 ment\u00e1ln\u00ed retardace.<\/p>\n\n\n\n
Progn\u00f3zy se naplnily<\/p>\n\n\n\n
I kdy\u017e rodina \u017eij\u00edc\u00ed v Praze ihned za\u010dala s dcerou\nrehabilitovat a podstupuj\u00ed velmi n\u00e1kladn\u00e9 nadstandardn\u00ed rehabilitace, progn\u00f3zy\nl\u00e9ka\u0159\u016f se naplnily. Nav\u00edc s sebou p\u0159ivedly i hypertrofii mozku, vrozen\u00e9\ndeformity ky\u010dle, zhor\u0161en\u00e9 vid\u011bn\u00ed, v\u00fdvojovou dysf\u00e1zii a poruchy autistick\u00e9ho\nspektra.<\/p>\n\n\n\n
Ani\u010dka t\u00e9m\u011b\u0159 nemluv\u00ed, pohybuje se velmi opatrn\u011b, ve\nspeci\u00e1ln\u00edch ort\u00e9z\u00e1ch a s oporou. Ment\u00e1ln\u011b je na \u00farovni batolete. Je v\u0161ak velmi\nusm\u011bvav\u00e1, spole\u010densk\u00e1, r\u00e1da si hraje s ply\u0161ov\u00fdmi hra\u010dkami a j\u00ed zeleninu.\nNav\u0161t\u011bvuje speci\u00e1ln\u00ed \u0161kolu s asistentem.<\/p>\n\n\n\n
Pomoc od neziskov\u00e9 organizace<\/p>\n\n\n\n
Maminka Ani\u010dky je navzdory tomu, co v\u0161e j\u00ed \u017eivot postavil do\ncesty, velmi pozitivn\u00ed. Na pln\u00fd \u00favazek se star\u00e1 o dceru, star\u0161\u00edho syna i\npracuj\u00edc\u00edho man\u017eela. D\u011bl\u00e1 v\u0161e, co je v jejich sil\u00e1ch, aby v\u00fdvoj Ani\u010dky\npostupoval dop\u0159edu, aby se zlep\u0161ovala a dos\u00e1hla do budoucna co nejv\u011bt\u0161\u00ed m\u00edry\nsamostatnosti. Podporu a pomoc rodin\u011b poskytuje neziskov\u00e1 organizace Alkmeon.<\/p>\n\n\n\n
\u201ePan\u00ed je zapojena do programu podpory a p\u00e9\u010de o osoby, kter\u00e9\nse staraj\u00ed o zdravotn\u011b posti\u017een\u00e9ho \u010dlena dom\u00e1cnosti. Tato slu\u017eba je zdarma a je\nfinancovan\u00e1 za pomoci Opera\u010dn\u00edho programu Zam\u011bstnanost Evropsk\u00e9ho soci\u00e1ln\u00edho\nfondu,\u201c vysv\u011btluje Lucie Lebedov\u00e1, projektov\u00fd metodik organizace Alkmeon.<\/p>\n\n\n\n
Des\u00edtky hodin p\u00e9\u010de od odborn\u00edk\u016f<\/p>\n\n\n\n
Ani\u010dka a jej\u00ed matka dost\u00e1vaj\u00ed des\u00edtky hodin pomoci a\nvzd\u011bl\u00e1v\u00e1n\u00ed. Podpora je podle p\u0159esn\u011b nastaven\u00e9ho individu\u00e1ln\u00edho pl\u00e1nu podpory\nv\u0161emi pot\u0159ebn\u00fdmi odborn\u00edky na jednom m\u00edst\u011b. \u201eNa \u00favodn\u00edch setk\u00e1n\u00edch v r\u00e1mci\ndiagnostiky zji\u0161\u0165ujeme, jakou konkr\u00e9tn\u00ed pomoc rodina pot\u0159ebuje. Takov\u00e9 pomoci\nse j\u00ed dostane,\u201c dodala Lebedov\u00e1.<\/p>\n\n\n\n
Rodin\u011b pe\u010duj\u00edc\u00ed o hendikepovan\u00e9 d\u00edt\u011b nap\u0159\u00edklad pom\u00e1h\u00e1\nfyzioterapeut, kter\u00fd rad\u00ed jak rehabilitovat v dom\u00e1c\u00edm prost\u0159ed\u00ed. Nutri\u010dn\u00ed\nspecialista doporu\u010d\u00ed stravu. Ergoterapeut rad\u00ed, jak podpo\u0159it d\u00edt\u011b v\nsamostatnosti a b\u011b\u017en\u00fdch denn\u00edch \u010dinnostech, pom\u016f\u017ee s v\u00fdb\u011brem kompenza\u010dn\u00edch\npom\u016fcek.<\/p>\n\n\n\n
\u201eJednou z odborn\u00fdch pomoc\u00ed je i setk\u00e1n\u00ed se soci\u00e1ln\u00edm\npracovn\u00edkem. Ten zji\u0161\u0165uje, zda rodina pob\u00edr\u00e1 v\u0161echny soci\u00e1ln\u00ed d\u00e1vky, kter\u00e9\npob\u00edrat m\u016f\u017ee. Rodiny mohou vyu\u017e\u00edt i psychologa \u010di pr\u00e1vn\u00edka,\u201c vysv\u011btlila\nLebedov\u00e1 a doplnila, \u017ee slu\u017eby jsou poskytov\u00e1ny v Praze, p\u016fsobnost organizace\nje po cel\u00e9 republice.<\/p>\n\n\n\n
Rodina Ani\u010dky si t\u00e9to pomoci nesm\u00edrn\u011b v\u00e1\u017e\u00ed. \u201ePom\u00e1h\u00e1 n\u00e1m\nfinan\u010dn\u011b i nadace Dobr\u00fd and\u011bl. S \u00fahradou velmi n\u00e1kladn\u00fdch rehabilitac\u00ed dal\u0161\u00ed\nnadace a nada\u010dn\u00ed fondy v \u010cesk\u00e9 republice. I t\u011bm d\u011bkuji,\u201c zd\u016fraznila matka\nhendikepovan\u00e9 d\u00edvky.<\/p>\n\n\n\n
Pomoci j\u00ed i dce\u0159i mohou lid\u00e9 i na sb\u00edrkov\u00e9m webu, kter\u00fd se\nzam\u011b\u0159uje na dobro\u010dinn\u00e9 projekty donio.cz.<\/p>\n\n\n\n
Martin Rumler<\/p>\n\n\n\n
Bene\u0161ovsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/benesovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" \u201eKdysi jsem si p\u0159estavovala, jak bude moje hol\u010di\u010dka vypadat a co bude d\u011blat v pubert\u011b. To, \u017ee m\u011b bude pot\u0159ebovat ka\u017edou minutu sv\u00e9ho \u017eivota, beze […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14228,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37073","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37073","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37073"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37073\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14228"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37073"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37073"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37073"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}