Jednadvac\u00e1t\u00fd b\u0159ezen sice p\u0159ed p\u00e1r lety p\u0159i\u0161el kv\u016fli p\u0159estupn\u00fdm rok\u016fm o privilegium prvn\u00edho jarn\u00edho dne, ale jako Sv\u011btov\u00fd den Downova syndromu se p\u0159ipom\u00edn\u00e1 ka\u017edoro\u010dn\u011b.<\/p>\n\n\n\n
\u201eJde o datum symbolizuj\u00edc\u00ed trizomii \u010dili ztrojen\u00ed 21. chromozomov\u00e9ho p\u00e1ru v bu\u0148k\u00e1ch lid\u00ed s Downov\u00fdm syndromem,\u201c vysv\u011btluje Jana Jaro\u0161ov\u00e1, speci\u00e1ln\u00ed pedago\u017eka a \u0159editelka \u010deskobud\u011bjovick\u00e9 obecn\u011b prosp\u011b\u0161n\u00e9 spole\u010dnosti Ove\u010dka, je\u017e u\u017e dv\u011b des\u00edtky let pom\u00e1h\u00e1 rodin\u00e1m, kter\u00e9 d\u011bti s t\u00edmhle druhem v\u00fdvojov\u00e9 vady s l\u00e1skou vychov\u00e1vaj\u00ed.<\/p>\n\n\n\n
\u201eSpole\u010dnost o t\u011bchto lidech, kter\u00fdch se narod\u00ed asi pades\u00e1t ro\u010dn\u011b, je\u0161t\u011b po\u0159\u00e1d moc nev\u00ed, a za\u0159azuje si je do skupiny ment\u00e1ln\u011b posti\u017een\u00fdch, i kdy\u017e jsou mezi t\u011bmito lidmi vylo\u017een\u011b \u0161ikovn\u00ed a nadan\u00ed jedinci,\u201c pokra\u010duje matka dvou dcer a p\u0159ipom\u00edn\u00e1, \u017ee do trojice pom\u00e1haj\u00edc\u00edch center pat\u0159\u00ed krom\u011b Prahy a Brna i \u010cesk\u00e9 Bud\u011bjovice.<\/p>\n\n\n\n
S radost\u00ed p\u0159edstavuje nadanou \u0161estn\u00e1ctiletou Ane\u017eku Maru\u0161incovou z Bud\u011bjovic, jej\u00ed\u017e oboustrann\u00e1 kn\u00ed\u017eka Ane\u017e\u010dino bystro \/ Ane\u017e\u010dino bistro obsahuje z jedn\u00e9 strany poh\u00e1dky a z druh\u00e9 autor\u010diny post\u0159ehy, n\u00e1pady a \u00favahy o \u017eivot\u011b. Poh\u00e1dkovou \u010d\u00e1st ilustrovala Eli\u0161ka Ivanov\u00e1, \u00favahy dcera \u0159editelky spole\u010dnosti Ove\u010dka Zuzana Jaro\u0161ov\u00e1.<\/p>\n\n\n\n
\u201eKdy\u017e jsem \u010dekala prvn\u00ed hol\u010di\u010dku, \u0159ekli mi l\u00e9ka\u0159i, \u017ee bude m\u00edt Down\u016fv syndrom,“ vzpom\u00ednala Jana Jaro\u0161ov\u00e1. \u201eLekla jsem se a dostala strach. Proto\u017ee jsem v\u011b\u0159\u00edc\u00ed, v\u011bd\u011bla jsem, \u017ee d\u011bti jsou od Boha, tak\u017ee si ji nenech\u00e1m vz\u00edt. To se ned\u011bl\u00e1. Tak jsem \u0159ekla hezky nahlas, \u017ee si ji nech\u00e1m, a odt\u00e9 doby jsem m\u011bla klid. Pak se narodila Johanka, a byla zdrav\u00e1.\u201c<\/p>\n\n\n\n
Mal\u00ed\u0159ka i here\u010dka<\/p>\n\n\n\n
Druh\u00e1 dcera se m\u011bla narodit v po\u0159\u00e1dku. \u201eZuzka p\u0159i\u0161la na sv\u011bt 12. \u00fanora 1998. Hodinu a p\u016fl po porodu mi \u0159ekli, \u017ee jsou u n\u00ed n\u011bjak\u00e9 genetick\u00e9 zm\u011bny. Druh\u00fd den pak man\u017eelovi ozn\u00e1mili, \u017ee m\u00e1 Down\u016fv syndrom. Tvrdili mu, \u017ee bude nesob\u011bsta\u010dn\u00e1, nevzd\u011blavateln\u00e1 a nenau\u010d\u00ed se ani chodit. Nejlep\u0161\u00ed pr\u00fd bude, kdy\u017e ji d\u00e1me do \u00fastavu,\u201c vzpom\u00ednala matka na tzv. dob\u0159e m\u00ed\u0159en\u00e9 l\u00e9ka\u0159sk\u00e9 rady, kter\u00e9 ale nep\u0159ich\u00e1zely v \u00favahu.<\/p>\n\n\n\n
\u201eDneska je Zuzka nadanou mal\u00ed\u0159kou a vystavovala u\u017e obrazy v Al\u0161ov\u011b jiho\u010desk\u00e9 galerii v r\u00e1mci v\u00fdstavy atelieru Al\u0161ovka. Spolu s Eli\u0161kou Ivanovou m\u011bly v\u00fdstavu obraz\u016f v Borovanech. V Bud\u011bjovic\u00edch existuje i dramatick\u00e9 t\u011bleso, se kter\u00fdm here\u010dky s Downov\u00fdm syndromem Ane\u017eka, Eli\u0161ka, Terezka a Zuzka ji\u017e n\u011bkolikr\u00e1t vystupovaly. A r\u00e1da p\u0159ipom\u00edn\u00e1m i spisovatele i mal\u00ed\u0159e z Kadan\u011b Jirku \u0160ed\u00e9ho, kter\u00fd je autorem \u0159ady knih a v\u00fdstav a mnoho let ji\u017e s n\u00e1mi spolupracuje,\u201c a vypo\u010d\u00edt\u00e1v\u00e1 tituly, kter\u00e9 napsal. \u201eNap\u0159. vybran\u00e1 uk\u00e1zka z knihy Citlivost barevn\u00e9ho slunce dokl\u00e1d\u00e1, \u017ee tihle lid\u00e9 n\u00e1m maj\u00ed rozhodn\u011b co \u0159\u00edct.\u201c<\/p>\n\n\n\n
Odvahu do rodin <\/p>\n\n\n\n
Jana Jaro\u0161ov\u00e1 z vlastn\u00ed rodi\u010dovsk\u00e9 zku\u0161enosti v\u00ed, a proto zd\u016fraz\u0148uje, \u017ee lid\u00e9 s DS maj\u00ed v sob\u011b mnohem v\u011bt\u0161\u00ed potenci\u00e1l, ne\u017e se u nich p\u0159edpokl\u00e1d\u00e1. \u201eZcela z\u00e1sadn\u011b z\u00e1le\u017e\u00ed na jejich rodin\u011b a na prost\u0159ed\u00ed, ve kter\u00e9m vyr\u016fstaj\u00ed. A na mo\u017enostech d\u00edt\u011bte, proto\u017ee ka\u017ed\u00e9 z nich je origin\u00e1l, a nelze je proto za\u0161katulkovat podle jednoho metru,\u201c vysv\u011btluje Jana Jaro\u0161ov\u00e1 s t\u00edm, \u017ee d\u011bti nav\u0161t\u011bvuj\u00ed b\u011b\u017en\u00e9 i speci\u00e1ln\u00ed \u0161koly, z\u00e1le\u017e\u00ed na volb\u011b rodiny. \u201eD\u011bti s Downov\u00fdm syndromem jsou mil\u00e9, tak\u017ee je nen\u00ed t\u011b\u017ek\u00e9 p\u0159ijmout. Tyhle d\u011bti n\u00e1s u\u010d\u00ed l\u00e1sce,\u201c zjistila u\u017e p\u0159ed v\u00edce ne\u017e 20 lety a nab\u00e1d\u00e1 ostatn\u00ed s podobn\u00fdm osudem, aby nezoufali a d\u00edt\u011b si nenechali p\u0159ed narozen\u00edm vz\u00edt. \u201eKdy\u017e budou m\u00edt rodi\u010de dostatek informac\u00ed, sn\u00e1ze se rozhodnou, \u017ee si posti\u017een\u00e9 d\u00edt\u011b nechaj\u00ed a vychovaj\u00ed ho. Je d\u016fle\u017eit\u00e9 m\u00edt hned od narozen\u00ed vzor. Sv\u011btlo, za kter\u00fdm jdete. Proto je tak d\u016fle\u017eit\u00e1 osv\u011bta. Nejen pro rodi\u010de t\u011bchto d\u011bt\u00ed, ale je t\u0159eba ovliv\u0148ovat i majoritn\u00ed spole\u010dnost,“ zd\u016fraz\u0148uje Jana Jaro\u0161ov\u00e1.<\/p>\n\n\n\n
Spokojen\u00e9 d\u011bti \u017eij\u00edc\u00ed v l\u00e1skypln\u00e9m prost\u0159ed\u00ed j\u00ed d\u00e1vaj\u00ed zapravdu.<\/p>\n\n\n\n
V\u00edte, \u017ee\u2026<\/p>\n\n\n\n
\u2026Down\u016fv syndrom (DS) vznik\u00e1 n\u00e1hodn\u00fdm chybn\u00fdm d\u011blen\u00edm genetick\u00e9ho materi\u00e1lu? Nadbyte\u010dn\u00fd chromozom m\u016f\u017ee poch\u00e1zet od otce i od matky, jde o genetickou nehodu, za ni\u017e nenese odpov\u011bdnost \u017e\u00e1dn\u00fd z rodi\u010d\u016f.<\/p>\n\n\n\n
\u2026 ro\u010dn\u011b se narod\u00ed asi 50 d\u011bt\u00ed s DS? Narozen\u00edm v\u011bt\u0161iny dal\u0161\u00edch ale zabr\u00e1n\u00ed interrupce, k n\u00ed\u017e se matky rozhodnou p\u0159i prenat\u00e1ln\u00edm diagnostikov\u00e1n\u00ed vady.<\/p>\n\n\n\n
\u2026 neexistuje \u017e\u00e1dn\u00e1 rovnocenn\u00e1 n\u00e1hrada za p\u0159irozen\u00fd rozvoj d\u00edt\u011bte v rodin\u011b? Jak se d\u00edt\u011b s DS vyv\u00edj\u00ed v dom\u00e1c\u00edm prost\u0159ed\u00ed, zcela z\u00e1sadn\u00edm zp\u016fsobem ur\u010duje jeho dal\u0161\u00ed \u017eivot a p\u0159ijet\u00ed spole\u010dnost\u00ed.<\/p>\n\n\n\n
\u2026 snahou spole\u010dnosti Ove\u010dka je pomoci rodi\u010d\u016fm d\u011bti s DS maxim\u00e1ln\u011b rozvinout, aby se pak mohly podle sv\u00fdch mo\u017enost\u00ed co nejl\u00e9pe za\u010dlenit do b\u011b\u017en\u00e9 spole\u010dnosti?<\/p>\n\n\n\n
Kontakt<\/p>\n\n\n\n
Ove\u010dka, o.p.s., Plach\u00e9ho 272 \/ 25, 370 01 \u010cesk\u00e9 Bud\u011bjovice, \u0159editelka Jana Jaro\u0161ov\u00e1, e-mail: dsovecka@gmail.com, tel. 739 600 197.<\/p>\n\n\n\n
Poh\u00e1dka o smutn\u00e9m kr\u00e1li Bohuslavovi<\/p>\n\n\n\n
Ane\u017eka Maru\u0161incov\u00e1<\/p>\n\n\n\n
Kdysi byl jeden kr\u00e1l, kdy\u017e za\u010dal kralovat, bylo mu 25 let. A ten kr\u00e1l m\u011bl dceru princeznu Zuzanku. T\u00e9 je teprve 17 let. A ten kr\u00e1l byl velmi smutn\u00fd, proto\u017ee cht\u011bl ud\u011blat dcery oslavu 18ti let a st\u00e1le nep\u0159ijeli \u017e\u00e1dn\u00ed hosti. A Zuzanka kr\u00e1le po\u0159\u00e1d ut\u011b\u0161ovala, \u017ee svol\u00e1 pr\u016fzkumn\u00edky, aby nasedli na kon\u011b a \u017ee tam dojedou. A jak \u0159ekla, tak i ud\u011blala. A hosti p\u0159ijeli. Sam\u00ed ho\u0161i. Vysoc\u00ed princov\u00e9. Nejmlad\u0161\u00ed princ Jaroslav, kter\u00e9mu bylo 21 let, se do n\u00ed zamiloval, kdy\u017e ji uvid\u011bl v kr\u00e1sn\u00fdch b\u00edl\u00fdch \u0161atech a leskl\u00fdch, zlat\u00fdch st\u0159ev\u00ed\u010dk\u00e1ch a s korunkou na hlav\u011b. Kr\u00e1l zacinkal o pr\u00e1zdnou skleni\u010dku l\u017ei\u010dkou a v\u0161ichni up\u0159eli zrak na kr\u00e1le. Ten vstal a \u0159ekl: \u201eM\u00e1 dcera princezna Zuzanka m\u00e1 18. narozeniny a chci, abyste j\u00ed \u0159ekli, jak ji m\u00e1te r\u00e1di. Pocem, ty tam.\u201c Jaroslav p\u0159istoupil a \u0159ekl: \u201eM\u00e1m t\u011b r\u00e1d, Zuzanko,\u201c a popadl ji a za\u010dal ji l\u00edbat.<\/p>\n\n\n\n
Radek G\u00e1lis<\/p>\n\n\n\n
\u010ceskobud\u011bjovick\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ceskobudejovicky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Jednadvac\u00e1t\u00fd b\u0159ezen sice p\u0159ed p\u00e1r lety p\u0159i\u0161el kv\u016fli p\u0159estupn\u00fdm rok\u016fm o privilegium prvn\u00edho jarn\u00edho dne, ale jako Sv\u011btov\u00fd den Downova syndromu se p\u0159ipom\u00edn\u00e1 ka\u017edoro\u010dn\u011b. \u201eJde […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":19903,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37358","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37358","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37358"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37358\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19903"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37358"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37358"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37358"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}