{"id":37377,"date":"2022-03-24T18:19:58","date_gmt":"2022-03-24T17:19:58","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=37377"},"modified":"2022-03-24T18:19:59","modified_gmt":"2022-03-24T17:19:59","slug":"lidem-s-roztrousenou-sklerozou-zacina-maraton-po-rocni-pauze-si-opet-zacvici-na-zivo-a-bezpecne","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=37377","title":{"rendered":"Lidem s\u00a0roztrou\u0161enou skler\u00f3zou za\u010d\u00edn\u00e1 maraton. Po ro\u010dn\u00ed pauze si op\u011bt zacvi\u010d\u00ed na \u017eivo a bezpe\u010dn\u011b"},"content":{"rendered":"\n

Pra\u017ean\u00e9 se po dvou letech spole\u010dn\u011b setkaj\u00ed a zapoj\u00ed do\u00a0Maratonu s\u00a0roztrou\u0161enou skler\u00f3zou (MaRS). Krom\u011b skupinov\u00e9ho cvi\u010den\u00ed je \u010dek\u00e1 na Pet\u0159\u00edn\u011b tzv. Roztrou\u0161en\u00e1 stezka \u2013 kilometrov\u00e1 cesta pln\u00e1 stanovi\u0161\u0165, kter\u00e1 prov\u011b\u0159\u00ed v\u0161echny smysly z\u00fa\u010dastn\u011bn\u00fdch. Loni cvi\u010dili pacienti s\u00a0roztrou\u0161enou skler\u00f3zou (RS) i jejich bl\u00edzc\u00ed kv\u016fli koronavirov\u00e9 pandemii pouze vzd\u00e1len\u011b ze sv\u00fdch domov\u016f nebo \u0161li na proch\u00e1zku. Letos se krom\u011b setk\u00e1n\u00ed s\u00a0p\u0159\u00e1teli mohou t\u011b\u0161it i na studiov\u00e9 lekce, nap\u0159\u00edklad j\u00f3gu \u010di kruhov\u00fd tr\u00e9nink. Akce, kter\u00e1 si klade za c\u00edl motivovat pacienty s\u00a0RS k\u00a0pohybu, za\u010d\u00edn\u00e1 v\u00a0p\u00e1tek 25. b\u0159ezna ve 14 hodin a potrv\u00e1 do soboty.\u00a0<\/strong><\/p>\n\n\n\n

Sportovci si mohou vyzkou\u0161et nejr\u016fzn\u011bj\u0161\u00ed typy pohybu podle obt\u00ed\u017enosti, nap\u0159\u00edklad j\u00f3gu ve studiu YogaMe na N\u00e1rodn\u00ed t\u0159\u00edd\u011b nebo pilates v My Pilates Studio na Praze 5. V\u011bt\u0161ina cvi\u010den\u00ed a samotn\u00e9 zah\u00e1jen\u00ed Maratonu se ale bude konat pod \u0161ir\u00fdm nebem na Pet\u0159\u00edn\u011b od p\u00e1te\u010dn\u00edch 14 hodin. Organiz\u00e1to\u0159i t\u00edm cht\u011bj\u00ed, aby se zm\u00edrnilo riziko \u0161\u00ed\u0159en\u00ed koronaviru a ka\u017ed\u00fd \u00fa\u010dastn\u00edk se c\u00edtil bezpe\u010dn\u011b. \u201eKa\u017ed\u00fd, kdo p\u0159ijde na Pet\u0159\u00edn, si m\u016f\u017ee proj\u00edt tzv. Roztrou\u0161enou stezku smysl\u016f, kter\u00e1 ho sezn\u00e1m\u00eds n\u011bkdy dokonce neviditeln\u00fdmi p\u0159\u00edznaky RS, nap\u0159\u00edklad \u00fanavou, brn\u011bn\u00edm kone\u010dk\u016f prst\u016f nebo rozost\u0159en\u00fdm vid\u011bn\u00edm. Sou\u010d\u00e1st\u00ed je t\u0159eba pam\u011b\u0165ov\u00e1 hra nebo cvi\u010den\u00ed na jemnou motoriku,\u201c<\/em> popisuje chystanou ud\u00e1lost Kate\u0159ina B\u00e9mov\u00e1 z\u00a0Nada\u010dn\u00edho fondu IMPULS, jen\u017e celou akci organizuje, a dod\u00e1v\u00e1: \u201ePro ty, kte\u0159\u00ed se Maratonu nemohou z\u00fa\u010dastnit osobn\u011b, jsme p\u0159ipravili videa, podle nich\u017e mohou cvi\u010dit doma.<\/em>\u201c Jejich seznam najdou lid\u00e9 na www.maratonmars.cz. Cviky pro pacienty p\u0159ipravili studenti oboru Aplikovan\u00e1 t\u011blesn\u00e1 v\u00fdchova a sport osob se specifick\u00fdmi pot\u0159ebami Univerzity Karlovy v Praze\u00a0(APA FTVS UK). Jsou odstup\u0148ov\u00e1ny podle n\u00e1ro\u010dnosti, a na sv\u00e9 si tak p\u0159ijdou i pacienti s\u00a0v\u011bt\u0161\u00edmi pohybov\u00fdmi omezen\u00edmi. \u201eLo\u0148sk\u00e1 videa maj\u00ed tis\u00edce zhl\u00e9dnut\u00ed a lid\u00e9 se k\u00a0nim vrac\u00ed opakovan\u011b po cel\u00fd rok. MaRS je motiva\u010dn\u00ed v\u00edkendovou akc\u00ed, ale lid\u00e9 se mus\u00ed h\u00fdbat ka\u017ed\u00fd den,\u201c<\/em> vysv\u011btluje B\u00e9mov\u00e1.<\/p>\n\n\n\n

Podle l\u00e9ka\u0159\u016f se pandemie koronaviru negativn\u011b podepsala na fyzick\u00e9 kondici pacient\u016f s\u00a0RS. Lid\u00e9 m\u00e9n\u011b vych\u00e1zeli z\u00a0domu, necvi\u010dili a v\u00edce jedli. \u201ePohyb je p\u0159itom pro pacienty s RS z\u00e1sadn\u00ed. Nez\u00e1le\u017e\u00ed na tom, co d\u011blaj\u00ed, ale jak \u010dasto a pravideln\u011b. Pro za\u010d\u00e1tek posta\u010d\u00ed i rychl\u00e1 ch\u016fze, a to alespo\u0148 20 minut denn\u011b,\u201c<\/em> vysv\u011btluje prof. MUDr. Eva Kubala Havrdov\u00e1, CSc., vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a VFN v\u00a0Praze. Maraton s\u00a0RS, kter\u00e9ho se obvykle \u00fa\u010dastn\u00ed tis\u00edce lid\u00ed po cel\u00e9 republice, potrv\u00e1 do soboty 26. b\u0159ezna. V\u00edce informac\u00ed o programu a jednotliv\u00fdch nab\u00eddk\u00e1ch cvi\u010den\u00ed najdou z\u00e1jemci na www.maratonmars.cz<\/a>.<\/p>\n\n\n\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/strong><\/p>\n\n\n\n

Roztrou\u0161en\u00e1 skler\u00f3za (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence jsou t\u011b\u017ek\u00e9. Na cel\u00e9m sv\u011bt\u011b trp\u00ed RS 2,5 milionu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 20 tis\u00edc. Nemoc se vyskytuje p\u0159edev\u0161\u00edm ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (Epsteina-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz<\/em>.\u00a0<\/p>\n\n\n\n

O Nada\u010dn\u00edm fondu IMPULS<\/strong> <\/p>\n\n\n\n

Nada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho registru pacient\u016f s RS ReMuS a jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz<\/em><\/a>.<\/p>\n\n\n\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

Pra\u017ean\u00e9 se po dvou letech spole\u010dn\u011b setkaj\u00ed a zapoj\u00ed do\u00a0Maratonu s\u00a0roztrou\u0161enou skler\u00f3zou (MaRS). Krom\u011b skupinov\u00e9ho cvi\u010den\u00ed je \u010dek\u00e1 na Pet\u0159\u00edn\u011b tzv. Roztrou\u0161en\u00e1 stezka \u2013 kilometrov\u00e1 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":37378,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37377","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37377","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37377"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37377\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/37378"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37377"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37377"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37377"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}