P\u0159ibli\u017en\u011b p\u011btadvacet tis\u00edc lid\u00ed v \u010cesku trp\u00ed roztrou\u0161enou skler\u00f3zou. Tato nevyl\u00e9\u010diteln\u00e1 nemoc nej\u010dast\u011bji propuk\u00e1 mezi dvac\u00e1t\u00fdm a \u010dty\u0159ic\u00e1t\u00fdm rokem \u017eivota a v\u011bt\u0161inov\u011b postihuje \u017eeny. Ro\u010dn\u011b p\u0159ib\u00fdv\u00e1 a\u017e tis\u00edc nov\u00fdch pacient\u016f a zhruba \u010dtvrtina z nich pot\u0159ebuje komplexn\u00ed p\u00e9\u010di.<\/p>\n\n\n\n
V \u010cesku je v\u0161ak pouze jedin\u00e9 specializovan\u00e9 za\u0159\u00edzen\u00ed. Je j\u00edm Domov sv. Josefa v \u017dir\u010di na okraji Dvora Kr\u00e1lov\u00e9 nad Labem. Svou nad\u011bji tam up\u00edraj\u00ed lid\u00e9 z cel\u00e9 zem\u011b. Ti, jim\u017e dostupn\u00e1 l\u00e9\u010dba, kter\u00e1 nemoc dok\u00e1\u017ee zpomalit, nezab\u00edr\u00e1. \u201ePom\u00e1h\u00e1me jim prost\u0159ednictv\u00edm rehabilitac\u00ed a odborn\u00fdch terapi\u00ed,\u201c \u0159ekl Den\u00edku mluv\u010d\u00ed za\u0159\u00edzen\u00ed Jan Stan\u011bk.<\/p>\n\n\n\n
Provozuj\u00ed zde osmaosmdes\u00e1t l\u016f\u017eek, na nich\u017e za rok dok\u00e1\u017eou pomoci \u010dty\u0159em stovk\u00e1m nemocn\u00fdch. T\u00e9m\u011b\u0159 \u0161edes\u00e1t l\u016f\u017eek je ur\u010deno ke kr\u00e1tkodob\u00fdm pobyt\u016fm, zhruba t\u0159icet k dlouhodob\u00e9mu \u017eivotu. \u201eNa ty m\u00e1me sto pades\u00e1t \u017e\u00e1dost\u00ed. Popt\u00e1vka zna\u010dn\u011b p\u0159evy\u0161uje dostupnou nab\u00eddku,\u201c upozornil Stan\u011bk. Proto lid\u00e9 s roztrou\u0161enou skler\u00f3zou nez\u0159\u00eddka kon\u010d\u00ed v l\u00e9\u010debn\u00e1ch dlouhodob\u011b nemocn\u00fdch, kde ale nen\u00ed takov\u00e1 \u00farove\u0148 speci\u00e1ln\u00ed p\u00e9\u010de.<\/p>\n\n\n\n
Domov v \u017dir\u010di dost\u00e1v\u00e1 pravideln\u00e9 dotace od ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed (MPSV). Loni to bylo n\u011bco p\u0159es deset milion\u016f korun. \u201eTyto dotace n\u00e1m pokryj\u00ed zhruba t\u0159etinu celoro\u010dn\u00edho provozu,\u201c uvedl Stan\u011bk. Dal\u0161\u00ed dv\u011b t\u0159etiny zaji\u0161\u0165uj\u00ed podpora od Kr\u00e1lov\u00e9hradeck\u00e9ho kraje, soukrom\u00e9 dary, \u00fahrady od poji\u0161\u0165oven a p\u0159\u00edsp\u011bvky od klient\u016f.<\/p>\n\n\n\n
Letos se ale dotace zdr\u017eely. Podle mluv\u010d\u00edho resortu soci\u00e1ln\u00edch v\u011bc\u00ed Jakuba Augusty to zp\u016fsobilo rozpo\u010dtov\u00e9 provizorium, poskytovatel\u00e9 slu\u017eeb soci\u00e1ln\u00ed p\u00e9\u010de nicm\u00e9n\u011b dostali alespo\u0148 \u010d\u00e1st finan\u010dn\u00edch prost\u0159edk\u016f. \u201eV\u00fdplata standardn\u00ed dotace prob\u011bhne nejpozd\u011bji na za\u010d\u00e1tku kv\u011btna,\u201c sl\u00edbil Augusta.<\/p>\n\n\n\n
Podpora sob\u011bsta\u010dnosti<\/p>\n\n\n\n
Na ministerstvu cht\u011bj\u00ed do konce leto\u0161n\u00edho roku pro lidi s roztrou\u0161enou skler\u00f3zou p\u0159ipravit n\u00e1vrh nov\u00e9ho standardu p\u00e9\u010de. \u201ePrioritou je pro n\u00e1s podpora ter\u00e9nn\u00edch a ambulantn\u00edch slu\u017eeb,\u201c uvedl Augusta. To Stan\u011bk v\u00edt\u00e1, proto\u017ee pro nemocn\u00e9ho je nejlep\u0161\u00ed, kdy\u017e m\u016f\u017ee z\u016fstat doma.<\/p>\n\n\n\n
V domov\u011b v \u017dir\u010di nap\u0159\u00edklad v minulosti z\u0159\u00eddili odbornou telefonickou a video poradnu. Pom\u00e1haj\u00ed tam i rodinn\u00fdm p\u0159\u00edslu\u0161n\u00edk\u016fm nemocn\u00fdch, kte\u0159\u00ed si nemaj\u00ed jak odpo\u010dinout a m\u016f\u017ee p\u0159ij\u00edt \u201eponorka\u201c. Pomoci se lidem dostane i ve t\u0159ech tzv. chytr\u00fdch bytech, kter\u00e9 domov z\u0159\u00edd\u00ed b\u011bhem p\u0159\u00ed\u0161t\u00edho roku. Pacienti tam se sv\u00fdmi pe\u010dovateli budou moci b\u00fdt t\u0159eba t\u00fdden.<\/p>\n\n\n\n
D\u016fle\u017eit\u00e1 je i medic\u00ednsk\u00e1 podpora. P\u0159ed t\u0159emi lety vznikla s\u00ed\u0165 center vysoce specializovan\u00e9 p\u00e9\u010de pro roztrou\u0161enou skler\u00f3zou. P\u016fsob\u00ed ve fakultn\u00edch nemocnic\u00edch, kde je nemocn\u00fdm poskytov\u00e1na odborn\u00e1 p\u00e9\u010de. \u201ePodporujeme i pacientsk\u00e9 organizace, kter\u00e9 lidem s roztrou\u0161enou skler\u00f3zou pom\u00e1haj\u00ed. Vypisujeme dotace a jejich z\u00e1stupci jsou \u010dleny pacientsk\u00e9 rady ministerstva a jej\u00edch pracovn\u00edch skupin,\u201c dodal mluv\u010d\u00ed resortu zdravotnictv\u00ed Ond\u0159ej Jakob.<\/p>\n\n\n\n
Jak pomoci? Kupte Domovenku<\/p>\n\n\n\n
Na odbornou terapeutickou p\u00e9\u010di lid\u00ed s roztrou\u0161enou skler\u00f3zou v Domov\u011b sv. Josefa mohou z\u00e1jemci p\u0159isp\u011bt prost\u0159ednictv\u00edm Domovenky. Lid\u00e9 mohou p\u0159isp\u011bt na libovoln\u00fd po\u010det hodin cvi\u010den\u00ed n\u011bkter\u00e9mu z pacient\u016f. Jedna hodina vyjde na 290 korun.<\/p>\n\n\n\n
Sb\u00edrku kv\u016fli leto\u0161n\u00edm zpo\u017ed\u011bn\u00fdm platb\u00e1m od st\u00e1tu odstartoval Honza Du\u0161ek, kter\u00fd v domov\u011b natrvalo \u017eije a jemu\u017e t\u00fdm filma\u0159sk\u00fdch nad\u0161enc\u016f loni vyplnil sen projet na invalidn\u00edm voz\u00edku \u010cernobyl, o \u010dem\u017e Den\u00edk informoval.<\/p>\n\n\n\n
Informace jsou na www.domovenka.cz.<\/p>\n\n\n\n
Andrea Cerqueirov\u00e1<\/p>\n\n\n\n
Den\u00edk<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" P\u0159ibli\u017en\u011b p\u011btadvacet tis\u00edc lid\u00ed v \u010cesku trp\u00ed roztrou\u0161enou skler\u00f3zou. Tato nevyl\u00e9\u010diteln\u00e1 nemoc nej\u010dast\u011bji propuk\u00e1 mezi dvac\u00e1t\u00fdm a \u010dty\u0159ic\u00e1t\u00fdm rokem \u017eivota a v\u011bt\u0161inov\u011b postihuje \u017eeny. Ro\u010dn\u011b […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":29846,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37577","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37577","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37577"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37577\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/29846"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37577"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37577"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37577"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}