V\u00edce ne\u017e 200 slune\u010dnice rozdaj\u00ed ve \u010dtvrtek 12. kv\u011btna lidem z \u010cesk\u00fdch Bud\u011bjovic pacienti s roztrou\u0161enou skler\u00f3zou (RS). Cht\u011bj\u00ed tak upozornit na svou nemoc, kterou v \u010cesku trp\u00ed tis\u00edce lid\u00ed. Akce se jmenuje Rozsvi\u0165me Bud\u011bjce. Krom\u011b slune\u010dnic \u010dek\u00e1 na n\u00e1v\u0161t\u011bvn\u00edky i doprovodn\u00fd program, kter\u00fd odstartuje na n\u00e1m\u011bst\u00ed P\u0159emysla Otakara II. v 15 hodin. D\u011bkujeme V\u011b\u0159e \u0160v\u00e1bov\u00e9 za p\u0159\u00edsp\u011bvek.<\/p>\n\n\n\n
\u201eSt\u00e1le se pot\u00fdk\u00e1me s t\u00edm, \u017ee se toho o RS moc nev\u00ed. Projevy nemoci mohou b\u00fdt nen\u00e1padn\u00e9, zpo\u010d\u00e1tku lid\u00e9 mohou c\u00edtit jen pouh\u00e9 brn\u011bn\u00ed prst\u016f. Akc\u00ed Rozsvi\u0165me Bud\u011bjce chceme na nemoc upozornit a z\u00e1rove\u0148 pacienty v boji s n\u00ed podpo\u0159it,\u201c \u0159\u00edk\u00e1 V\u011bra \u0160v\u00e1bov\u00e1 z organizace ROSKA \u010cesk\u00e9 Bud\u011bjovice. N\u00e1v\u0161t\u011bvn\u00edci nedostanou jenom kv\u011btinu, ale tak\u00e9 si na n\u00e1m\u011bst\u00ed P\u0159emysla Otakara II. vyzkou\u0161\u00ed i p\u0159ek\u00e1\u017ekovou dr\u00e1hu na invalidn\u00edch voz\u00edc\u00edch nebo akroj\u00f3gu. \u201eCvi\u010den\u00ed kombinuje prvky j\u00f3gy, akrobacie a meditace. Je to skv\u011bl\u00fd zp\u016fsob, jak se vc\u00edtit do sv\u00e9ho t\u011bla. Jsem p\u0159esv\u011bd\u010den\u00e1, \u017ee tuto zku\u0161enost ocen\u00ed jak pacienti s roztrou\u0161enou skler\u00f3zou, tak zdrav\u00ed lid\u00e9,\u201c popisuje \u0160v\u00e1bov\u00e1.<\/p>\n\n\n\n
Z\u00e1jemci mohou pacienty s RS podpo\u0159it tak\u00e9 koup\u00ed tri\u010dka s motivem slune\u010dnic. Ve\u0161ker\u00fd v\u00fdt\u011b\u017eek poputuje pr\u00e1v\u011b na rehabilitaci nemocn\u00fdch. Tri\u010dka lze tak\u00e9 objednat p\u0159edem na facebookov\u00e9 str\u00e1nce ROSKA \u010cesk\u00e9 Bud\u011bjovice. \u201eT\u00e9matem leto\u0161n\u00edho ro\u010dn\u00edku je propojen\u00ed. Slune\u010dnice symbolicky propojuj\u00ed pacienty s RS s jejich rodinami, p\u0159\u00e1teli, l\u00e9ka\u0159i a dal\u0161\u00edmi. Kv\u011btiny tak\u00e9 symbolizuj\u00ed nad\u011bji. S o\u010dek\u00e1v\u00e1n\u00edm pozorujeme, jak se neust\u00e1le vyv\u00edj\u00ed l\u00e9\u010dba RS a t\u00edm otev\u00edr\u00e1 pacient\u016fm dve\u0159e do lep\u0161\u00ed budoucnosti,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fonduIMPULS, kter\u00fd celou akci spolu s organizac\u00ed ROSKA po\u0159\u00e1d\u00e1.<\/p>\n\n\n\n
RS v \u010cesku trp\u00ed p\u0159ibli\u017en\u011b 20 tis\u00edc lid\u00ed. Chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu v\u011bt\u0161inou propuk\u00e1 v mlad\u0161\u00edm v\u011bku a \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice tak\u00e9 EB virus (Epsteina-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n\n\n\n
O ROSCE \u010cesk\u00e9 Bud\u011bjovice<\/p>\n\n\n\n
Ji\u017e od r. 1993 pom\u00e1h\u00e1 v ji\u017en\u00edch \u010cech\u00e1ch lidem s roztrou\u0161enou skler\u00f3zou a jejich bl\u00edzk\u00fdm aktivn\u011b bojovat s nemoc\u00ed a motivuje je, aby sv\u016fj \u017eivotn\u00ed boj nevzd\u00e1vali, u\u017e jen proto, aby si sami mohli uva\u0159it k\u00e1vu, doj\u00edt nakoupit \u010di vz\u00edt d\u00edt\u011b do n\u00e1ru\u010de\u2026 Vedle medikace hraje v l\u00e9\u010db\u011b obrovskou roli rehabilitace a cvi\u010den\u00ed, a proto\u017ee v Jiho\u010desk\u00e9m kraji nebylo \u017e\u00e1dn\u00e9 za\u0159\u00edzen\u00ed, kter\u00e9 by pln\u011b respektovalo pot\u0159eby t\u011bchto pacient\u016f, otev\u0159eli nov\u00e9 rehabilita\u010dn\u00ed a poradensk\u00e9 centrum ROSKA \u010cesk\u00e9 Bud\u011bjovice. Mimo dosud vykon\u00e1van\u00e9 poradensk\u00e9 a informa\u010dn\u00ed slu\u017eby nyn\u00ed pacient\u016fm nab\u00edz\u00ed i r\u016fzn\u00e9 typy skupinov\u00e9ho cvi\u010den\u00ed uzp\u016fsoben\u00e9ho na m\u00edru jejich handicapu (rehabilita\u010dn\u00ed cvi\u010den\u00ed, j\u00f3ga, cvi\u010den\u00ed dle Feldenkraisovy metody, posilovac\u00ed cvi\u010den\u00ed, kondi\u010dn\u00ed tr\u00e9ninky apod.) nebo si mohou pacienti p\u0159ij\u00edt zacvi\u010dit individu\u00e1ln\u011b.<\/p>\n\n\n\n
O Nada\u010dn\u00edm fondu IMPULS<\/p>\n\n\n\n
Nada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou pln\u011b hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho registru pacient\u016f s RS ReMuS a jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. <\/p>\n\n\n\n
V\u011bra \u0160v\u00e1bov\u00e1<\/p>\n\n\n\n
\u010ceskobud\u011bjovick\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ceskobudejovicky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V\u00edce ne\u017e 200 slune\u010dnice rozdaj\u00ed ve \u010dtvrtek 12. kv\u011btna lidem z \u010cesk\u00fdch Bud\u011bjovic pacienti s roztrou\u0161enou skler\u00f3zou (RS). Cht\u011bj\u00ed tak upozornit na svou nemoc, kterou […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":28427,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37621","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37621","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37621"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37621\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/28427"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37621"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37621"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37621"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}