A\u017e do konce kv\u011btna mohou lid\u00e9 p\u0159isp\u00edvat prost\u0159ednictv\u00edm online Srd\u00ed\u010dkov\u00fdch dn\u016f, kter\u00e9 po\u0159\u00e1d\u00e1 obecn\u011b prosp\u011b\u0161n\u00e1 spole\u010dnost \u017divot d\u011btem na pomoc mal\u00e9 Ad\u00e9lce, kter\u00e1 trp\u00ed d\u011btskou mozkovou obrnou. Vybran\u00e9 finan\u010dn\u00ed prost\u0159edky budou v\u011bnov\u00e1ny na pokryt\u00ed n\u00e1klad\u016f spojen\u00fdch nezbytnou pravidelnou neurorehabilitac\u00ed d\u011bv\u010d\u00e1tka.<\/p>\n\n\n\n
\u201e\u010cty\u0159let\u00e1 Ad\u00e9lka se narodila o p\u00e1r t\u00fddn\u016f d\u0159\u00edve. Po nezbytn\u011b nutn\u00e9m pobytu v porodnici nic nenasv\u011bd\u010dovalo tomu, \u017ee by se nem\u011bla vyv\u00edjet jako zdrav\u00e9 miminko. Zvrat nastal po n\u011bkolika dnech, kdy byla hol\u010di\u010dka hospitalizov\u00e1na s v\u00e1\u017en\u00fdmi d\u00fdchac\u00edmi pot\u00ed\u017eemi. Verdikt l\u00e9ka\u0159\u016f zn\u011bl – respira\u010dn\u00ed syncyti\u00e1ln\u00ed virus,\u201c vypr\u00e1v\u00ed p\u0159\u00edb\u011bh mal\u00e9ho Ad\u00e9lky \u0159editelka spole\u010dnosti \u017divot d\u011btem Maria K\u0159epelkov\u00e1.<\/p>\n\n\n\n
Respira\u010dn\u00ed syncyti\u00e1ln\u00ed virus (RSV) pat\u0159\u00ed do skupiny tzv. vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. Zp\u016fsobuje infekci plic a d\u00fdchac\u00edch cest a postihuje p\u0159edev\u0161\u00edm d\u011bti a star\u0161\u00ed osoby. Vysok\u00e9 riziko z\u00e1va\u017en\u00e9ho pr\u016fb\u011bhu onemocn\u011bn\u00ed maj\u00ed nedono\u0161en\u00e9 d\u011bti a kojenci s nemocemi srdce a plic. Proti RSV zat\u00edm neexistuje \u00fa\u010dinn\u00e1 vakc\u00edna. Nejrizikov\u011bj\u0161\u00edm pacient\u016fm, tedy nevyzr\u00e1l\u00fdm d\u011btem s indikac\u00ed z\u00e1va\u017en\u00e9ho onemocn\u011bn\u00ed plic a srdce, lze v \u017eivot ohro\u017euj\u00edc\u00edm st\u00e1diu ordinovat l\u00e9k Synagis, jeho\u017e po\u0159izovac\u00ed cena je v\u0161ak extr\u00e9mn\u00ed.<\/p>\n\n\n\n
\u201cAd\u00e9lka je velk\u00e1 bojovnice, poda\u0159ilo se j\u00ed nad virem zv\u00edt\u011bzit. Bohu\u017eel pot\u00ed\u017ee t\u00edm neskon\u010dily. V \u0161esti m\u011bs\u00edc\u00edch se u n\u00ed objevilo podez\u0159en\u00ed na epilepsii, kter\u00e9 se nepotvrdilo, nicm\u00e9n\u011b byla Ad\u00e9lce diagnostikov\u00e1na d\u011btsk\u00e1 mozkov\u00e1 obrna. Nemoc v\u00fdrazn\u011b ovliv\u0148uje jej\u00ed \u0159e\u010dov\u00e9 a pohybov\u00e9 schopnosti. Posti\u017eena je na celou pravou stranu t\u011bla,\u201d popisuje d\u00e1le Maria K\u0159epelkov\u00e1.<\/p>\n\n\n\n
DMO je chronick\u00e9 onemocn\u011bn\u00ed, pro kter\u00e9 je typick\u00e1 porucha centr\u00e1ln\u00ed hybnosti. Posti\u017een\u00ed zp\u016fsoben\u00e1 d\u011btskou mozkovou obrnou se po\u010d\u00ednaj\u00ed projevovat v kojeneck\u00e9m v\u011bku d\u00edt\u011bte. \u201cKladnou str\u00e1nkou\u201d onemocn\u011bn\u00ed je, \u017ee s p\u0159ib\u00fdvaj\u00edc\u00edm v\u011bkem nedoch\u00e1z\u00ed k progresi. Nav\u00edc m\u00e1 Ad\u00e9lka \u0161anci, \u017ee jednou, kdy\u017e bude pravideln\u011b rehabilitovat, m\u016f\u017ee b\u00fdt jako ostatn\u00ed zdrav\u00e9 d\u011bti, a to je opravdu skv\u011bl\u00e1 zpr\u00e1va. Tyto speci\u00e1ln\u00ed drah\u00e9 neurorehabilitace ale zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed, proto pot\u0159ebuje hol\u010di\u010dka pomoc od laskav\u00fdch lid\u00ed.<\/p>\n\n\n\n
\u201cAd\u00e9lce, kter\u00e1 m\u00e1 kv\u016fli nemoci obrovsk\u00e9 pot\u00ed\u017ee s mluven\u00edm, m\u016f\u017eete pomoci zakoupen\u00edm obr\u00e1zk\u016f tradi\u010dn\u00edch obl\u00edben\u00fdch zv\u00ed\u0159\u00e1tek \u010di slun\u00ed\u010dka ve tvaru srdce v cen\u011b 30 korun, kter\u00e9 V\u00e1m p\u0159ijdou v odpov\u011bdn\u00edm e-mailu. D\u00e1le je mo\u017eno p\u0159isp\u011bt i koup\u00ed obr\u00e1zku – D\u00e1v\u00e1m srdce d\u011btem – v hodnot\u011b 100, 300 \u010di 500 korun. C\u00edlov\u00e1 \u010d\u00e1stka, kterou je t\u0159eba vybrat na zaji\u0161t\u011bn\u00ed neurorehabilitace pro Ad\u00e9lku na rok, je 80 000 korun\u201d, dod\u00e1v\u00e1 za sb\u00edrku po\u0159\u00e1daj\u00edc\u00ed organizaci \u017divot d\u011btem jej\u00ed \u0159editelka Maria K\u0159epelkov\u00e1, kter\u00e1 d\u011bkuje v\u0161em za pomoc.<\/p>\n\n\n\n
V\u00edce na https:\/\/www.srdickovedny.cz\/<\/p>\n\n\n\n
Tom\u00e1\u0161 Kope\u010dn\u00fd<\/p>\n\n\n\n
\u010ceskolipsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/ceskolipsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" A\u017e do konce kv\u011btna mohou lid\u00e9 p\u0159isp\u00edvat prost\u0159ednictv\u00edm online Srd\u00ed\u010dkov\u00fdch dn\u016f, kter\u00e9 po\u0159\u00e1d\u00e1 obecn\u011b prosp\u011b\u0161n\u00e1 spole\u010dnost \u017divot d\u011btem na pomoc mal\u00e9 Ad\u00e9lce, kter\u00e1 trp\u00ed d\u011btskou […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14227,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37634","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37634","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37634"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37634\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14227"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37634"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37634"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37634"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}