Verunka je jeden\u00e1ctilet\u00e1 d\u00edvenka z Liberce, kter\u00e1 p\u016fsob\u00ed mlad\u0161\u00edm dojmem. P\u0159esto\u017ee trp\u00ed kombinac\u00ed mnoha r\u016fzn\u00fdch zdravotn\u00edch handicap\u016f, d\u00edky intenzivn\u00ed rehabilitaci d\u011bl\u00e1 velk\u00e9 pokroky. Zdravotn\u00ed poji\u0161\u0165ovny ale jej\u00ed l\u00e9\u010dbu hrad\u00ed jen z mal\u00e9 \u010d\u00e1sti.<\/p>\n\n\n\n
S pot\u00ed\u017eemi se pot\u00fdk\u00e1 od narozen\u00ed kv\u016fli komplikovan\u00e9mu porodu. Na sv\u011bt p\u0159i\u0161la c\u00edsa\u0159sk\u00fdm \u0159ezem, kr\u00e1tce byla o\u017eivov\u00e1na. Bezprost\u0159edn\u011b se dostavily novorozeneck\u00e9 k\u0159e\u010de. Veronika pro\u0161la ve\u0161ker\u00fdmi dostupn\u00fdmi vy\u0161et\u0159en\u00edmi a po m\u011bs\u00edci byla propu\u0161t\u011bna s t\u00edm, \u017ee se jedn\u00e1 o epilepsii a hypotonii v d\u016fsledku p\u0159idu\u0161en\u00ed p\u0159i porodu. Do \u010dty\u0159 let byla kompenzov\u00e1na na antiepileptick\u00e9 l\u00e9\u010db\u011b, absolvovala pravideln\u00e1 rehabilita\u010dn\u00ed cvi\u010den\u00ed.<\/p>\n\n\n\n
Z\u00e1chvaty d\u00edky l\u00e9\u010db\u011b sice na n\u011bjak\u00fd \u010das ustaly, ale norm\u00e1ln\u00ed v\u00fdvoj stagnoval. Z\u00e1rove\u0148 se za\u010daly objevovat dal\u0161\u00ed zdravotn\u00ed komplikace jako chronick\u00e9 r\u00fdmy, obrna polykac\u00edch sval\u016f, odm\u00edt\u00e1n\u00ed p\u0159\u00edjmu stravy i tekutin, nespavosti, ADHD, absence verb\u00e1ln\u00ed komunikace, porucha r\u016fstu. V l\u00e9t\u011b 2015 za\u010dala odm\u00edtat ve\u0161kerou stravu a tekutiny, p\u0159i pobytu v nemocnici byl zji\u0161t\u011bn v\u00fdznamn\u00fd reflux j\u00edcnu a probl\u00e9my se \u0161t\u00edtnou \u017el\u00e1zou. Na podzim j\u00ed zavedli PEG sondu p\u0159\u00edmo do \u017ealudku, aby m\u011bla zaji\u0161t\u011bn\u00fd p\u0159\u00edsun tekutin a stravy.<\/p>\n\n\n\n
Kdy\u017e bylo d\u00edvce \u0161est let, l\u00e9ka\u0159i prok\u00e1zali, \u017ee trp\u00ed vz\u00e1cnou formou epilepsie, s jej\u00ed\u017e l\u00e9\u010dbou nen\u00ed mnoho zku\u0161enost\u00ed ani ve sv\u011bt\u011b a kter\u00e1 sebou p\u0159in\u00e1\u0161\u00ed \u0159adu doprovodn\u00fdch komplikac\u00ed. Verunka nemluv\u00ed, ale \u00fam\u011brn\u011b v\u011bku rozum\u00ed.<\/p>\n\n\n\n
\u201ePo dohod\u011b s logopedkou jsme se p\u0159ed p\u011bti lety pustili do v\u00fduky znakov\u00e9 \u0159e\u010di pro hluchon\u011bm\u00e9. Neust\u00e1le rehabilitujeme, sama ujde ji\u017e i v\u011bt\u0161\u00ed vzd\u00e1lenosti, na del\u0161\u00ed pou\u017e\u00edv\u00e1me speci\u00e1ln\u00ed ko\u010d\u00e1rek nebo kolo. Do deseti let pou\u017e\u00edvala pleny. Od t\u011bch ji\u017e aktivn\u011b ustupujeme, pou\u017e\u00edv\u00e1 je jen na noc. Proto\u017ee \u010dasto slinila, pou\u017e\u00edvali jsme r\u016fzn\u00e9 pom\u016fcky pro pos\u00edlen\u00ed orofaci\u00e1ln\u00ed oblasti, nakupuji tak\u00e9 r\u016fzn\u00e9 vzd\u011bl\u00e1vac\u00ed pom\u016fcky pro podporu rozvoje a n\u00e1cviku logick\u00e9ho my\u0161len\u00ed. Pou\u017e\u00edv\u00e1me i tablet,\u201c popisuje maminka trnitou cestu, kterou ob\u011b proch\u00e1z\u00ed. Verunka intenzivn\u011b nav\u0161t\u011bvovala klasickou rehabilitaci i ambulanci zab\u00fdvaj\u00edc\u00ed se dechovou rehabilitac\u00ed. Na d\u00edvce se v\u00fdrazn\u011b projevuje ADHD hyperaktivita.<\/p>\n\n\n\n
Dnes je Verunce 11 let. P\u0159es sv\u016fj velk\u00fd handicap je to usm\u011bvav\u00e1 d\u00edvenka, pln\u00e1 energie. Nav\u0161t\u011bvuje speci\u00e1ln\u00ed z\u00e1kladn\u00ed \u0161kolu pro t\u011blesn\u011b posti\u017een\u00e9 p\u0159i Jedli\u010dkov\u011b \u00fastavu, kde m\u00e1 zaji\u0161t\u011bnu ve\u0161kerou odbornou p\u00e9\u010di v\u010detn\u011b navazuj\u00edc\u00ed logopedick\u00e9 a ergoterapeutick\u00e9 p\u00e9\u010de. Obrovsk\u00fd v\u00fdznam pro ni maj\u00ed neurorehabilitace v centru SAREMA Liberec, kam doj\u00ed\u017ed\u00ed pr\u016fb\u011b\u017en\u011b od sv\u00fdch dvou let. Maminka s nad\u011bj\u00ed \u0159\u00edk\u00e1: \u201eP\u00e9\u010di, kterou Verunka dnes intenzivn\u011b podstupuje, kdy vid\u00edm neust\u00e1l\u00e9 posuny dop\u0159edu, vn\u00edm\u00e1m jako vysoce prosp\u011b\u0161nou a v sou\u010dasnosti jako naprosto nutnou pot\u0159ebu.\u201c<\/p>\n\n\n\n
\u201eSna\u017e\u00edm se ji posouvat jak po zdravotn\u00ed str\u00e1nce, tak i po str\u00e1nce vzd\u011bl\u00e1vac\u00ed a sportovn\u00ed. R\u00e1da bych, aby j\u00ed byl umo\u017en\u011bn ten nejlep\u0161\u00ed vstup do \u017eivota, aby m\u011bla \u0161anci se v b\u011b\u017en\u00e9mu \u017eivot\u011b pohybovat, dorozum\u011bt a aby byla co nejv\u00edce sob\u011bsta\u010dn\u00e1. K dobr\u00fdm v\u00fdsledk\u016fm ale pot\u0159ebuje v\u00edce rehabilita\u010dn\u00edch cykl\u016f b\u011bhem roku, bohu\u017eel ani tyto intenzivn\u00ed rehabilitace zdravotn\u00ed poji\u0161\u0165ovny nepropl\u00e1cej\u00ed,\u201c dod\u00e1v\u00e1 maminka.<\/p>\n\n\n\n
Sb\u00edrka pro Verunku:<\/p>\n\n\n\n
Na rehabilitace Veroniky m\u016f\u017eete p\u0159isp\u011bt ve sb\u00edrce na d\u00e1rcovsk\u00e9 platform\u011b Donio.cz, kterou najdete na odkazu www.donio.cz\/aktivni-verunka. <\/p>\n\n\n\n
Krist\u00fdna Dutkov\u00e1<\/p>\n\n\n\n
Libereck\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/liberecky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Verunka je jeden\u00e1ctilet\u00e1 d\u00edvenka z Liberce, kter\u00e1 p\u016fsob\u00ed mlad\u0161\u00edm dojmem. P\u0159esto\u017ee trp\u00ed kombinac\u00ed mnoha r\u016fzn\u00fdch zdravotn\u00edch handicap\u016f, d\u00edky intenzivn\u00ed rehabilitaci d\u011bl\u00e1 velk\u00e9 pokroky. Zdravotn\u00ed poji\u0161\u0165ovny […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14424,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37672","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37672","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37672"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37672\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14424"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37672"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37672"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37672"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}