V po\u0159ad\u00ed 14. ro\u010dn\u00edk charitativn\u00ed akce MDA RIDE pod heslem Jedeme v tom s V\u00e1mi! prob\u011bhl 11. \u010dervna na V\u00e1clavsk\u00e9m n\u00e1m\u011bst\u00ed – Muzejn\u00ed o\u00e1ze. C\u00edlem ud\u00e1losti je pomoci lidem s nervosvalov\u00fdm posti\u017een\u00edm ozna\u010den\u00fdm jako svalov\u00e1 dystrofie.<\/p>\n\n\n\n
V\u00e1clav\u00e1k o\u017eil zvuky kr\u00e1sn\u00fdch motocykl\u016f Harley-Davidson, Indian a dal\u0161\u00edch zna\u010dek. Bylo mo\u017en\u00e9 vid\u011bt v\u00fdstavu voz\u016f Ford Mustang Riders Clubu a veter\u00e1n\u016f z 1st Veter\u00e1n US Car Clubu. V\u0161e doprovodil kulturn\u00ed program pro cel\u00e9 rodiny, spanil\u00e1 j\u00edzda Prahou, workshopy a po\u010detn\u00e9 st\u00e1nky partner\u016f akce.<\/p>\n\n\n\n
„Je to tady \u00fa\u017easn\u00e9, jsme nad\u0161en\u00ed, tyto akce jsou d\u016fle\u017eit\u00e9. A\u0165 jsou d\u011bti posti\u017een\u00e9 jak\u00fdmkoli zp\u016fsobem, je d\u016fle\u017eit\u00e9 dr\u017eet p\u0159i sob\u011b. M\u016fj p\u011btilet\u00fd syn Sebasti\u00e1n trp\u00ed vrozenou v\u00fdvojovou vadou p\u00e1te\u0159e, tak\u017ee jsme se p\u0159i\u0161li pod\u00edvat, na akci m\u011b upozornil kamar\u00e1d motork\u00e1\u0159, jsem moc r\u00e1da \u017ee se takov\u00e9 akce konaj\u00ed, je to opravdu pot\u0159ebn\u00e9,“ \u0159ekla Den\u00edku maminka Petra.<\/p>\n\n\n\n
MDA RIDE je nejv\u011bt\u0161\u00ed motocyklov\u00e1 charitativn\u00ed akce v \u010cesk\u00e9 republice, kter\u00e1 je spojen\u00e1 s ve\u0159ejnou sb\u00edrkou, jej\u00ed\u017e v\u00fdt\u011b\u017eek putuje na pomoc lidem posti\u017een\u00fdm svalovou dystrofi\u00ed, sdru\u017een\u00fdch v Asociaci muskul\u00e1rn\u00edch dystrofik\u016f \u010cR a v dal\u0161\u00edch \u010dty\u0159ech subjektech. Za p\u0159edchoz\u00edch 13 let tento spolek v\u011bnoval p\u0159es 9 milion\u016f korun a pomohl financovat v\u00edce ne\u017e 400 projekt\u016f.<\/p>\n\n\n\n
\u201cHlavn\u00edm bodem programu byla tradi\u010dn\u00ed Spanil\u00e1 j\u00edzda Prahou, kter\u00e1 odstartovala ve 14 hodin. \u201cSpole\u010dn\u00e9 vyj\u00ed\u017e\u010fky jezdc\u016f na motocyklech v\u0161ech zna\u010dek a velikost\u00ed se ve vozech na\u0161ich partner\u016f z\u00fa\u010dastnili tak\u00e9 nemocn\u00ed svalovou dystrofi\u00ed,\u201d uv\u00e1d\u00ed Josef \u201cK\u00e1\u010fa\u201d Kade\u0159\u00e1bek, zakladatel a p\u0159edseda MDA RIDE. \u201cSvalov\u00e1 dystrofie je m\u00e1lo zn\u00e1m\u00e1, ale velmi t\u011b\u017ek\u00e1 a z\u00e1ke\u0159n\u00e1 nemoc. A pr\u00e1v\u011b proto je pro n\u00e1s d\u016fle\u017eit\u00e9, \u017ee se d\u00edky na\u0161\u00ed akci da\u0159\u00ed nejen vybrat pen\u00edze na podporu nemocn\u00fdch, ale tak\u00e9 informovat o t\u00e9to nemoci \u0161ir\u0161\u00ed ve\u0159ejnost,“ vysv\u011btluje K\u00e1\u010fa.<\/p>\n\n\n\n
Krom\u011b vystoupen\u00ed skupin Strahov, Petra Vondr\u00e1\u010dka s Lokomotivou, V. I. T. Classic Bandu a Screwballs Rockabilly si mohli n\u00e1v\u0161t\u011bvn\u00edci poslechnout tak\u00e9 rapera Vladim\u00edra 518.<\/p>\n\n\n\n
Opravdovou hv\u011bzdou dne byla zp\u011bva\u010dka Jitka Zelenkov\u00e1. N\u00e1v\u0161t\u011bvn\u00edci se tak\u00e9 mohli z\u00fa\u010dastnit \u0159ady workshop\u016f, a nav\u0161t\u00edvit st\u00e1nky partner\u016f, vyfotit na stroji Harley-Davidson. \u017deny zde dokonce na\u0161ly i kade\u0159nick\u00fd salon Hairarea Blanky Ha\u0161kov\u00e9, kter\u00fd provozuj\u00ed kade\u0159nice celebrit.<\/p>\n\n\n\n
Firma Illy na sv\u00e9m st\u00e1nku prezentovala v\u00fdbornou k\u00e1vou a po ob\u010derstveni cateringem restaurace Kotleta, si mohli \u00fa\u010dastn\u00edci zaz\u00e1vodit u st\u00e1nku s trena\u017e\u00e9ry Formule1. Atrakce byly k dispozici za dobrovoln\u00fd p\u0159\u00edsp\u011bvek do kasi\u010dek.<\/p>\n\n\n\n
Co je svalov\u00e1 dystrofie<\/p>\n\n\n\n
Svalov\u00e1 dystrofie je \u0161irok\u00fd term\u00edn pro ozna\u010den\u00ed genetick\u00fdch onemocn\u011bn\u00ed, kter\u00e9 postihuj\u00ed svalstvo. Nemoc postupn\u011b oslabuje kostern\u00ed svalstvo kon\u010detin a trupu. Ve v\u011bku dosp\u00edv\u00e1n\u00ed, p\u0159ibli\u017en\u011b mezi 13. \u2013 19. rokem nebo d\u0159\u00edve, jsou zasa\u017eeny i svaly d\u00fdchac\u00ed a srde\u010dn\u00ed. Tato nemoc postihuje z 99,9 % chlapce a v dne\u0161n\u00ed dob\u011b je st\u00e1le nel\u00e9\u010diteln\u00e1. D\u011bti, kter\u00e9 tato vada postihne, se do\u017e\u00edvaj\u00ed cca t\u0159iceti let \u017eivota.<\/p>\n\n\n\n
Pro\u010d MDA RIDE?<\/p>\n\n\n\n
Proto\u017ee c\u00edlem v\u0161ech aktivit je benefi\u010dn\u00ed j\u00edzda motork\u00e1\u0159\u016f s lidmi posti\u017een\u00fdmi touto nemoc\u00ed a p\u0159edev\u0161\u00edm snaha z\u00edskat maxim\u00e1ln\u00ed mno\u017estv\u00ed prost\u0159edk\u016f pro Asociaci muskul\u00e1rn\u00edch dystrofik\u016f \u010cR a sdru\u017een\u00ed Parent Project. MDA je mezin\u00e1rodn\u00ed zkratkou pro asociaci muskul\u00e1rn\u00edch dystrofik\u016f. My\u0161lenka benefi\u010dn\u00edch j\u00edzd vznikla v USA v osmdes\u00e1t\u00fdch letech minul\u00e9ho stolet\u00ed a o deset let pozd\u011bji se p\u0159idali motork\u00e1\u0159i ve \u0160v\u00fdcarsku. Jsme tedy druhou zem\u00ed v Evrop\u011b a prvn\u00ed v Evropsk\u00e9 Unii, kdo se od roku 2008 rozhodl pom\u00e1hat lidem s touto zat\u00edm nevyl\u00e9\u010ditelnou nemoc\u00ed.<\/p>\n\n\n\n
Co je MDA RIDE?<\/p>\n\n\n\n
MDA RIDE o.s. je spole\u010dnost lid\u00ed \u2013 motork\u00e1\u0159\u016f, kte\u0159\u00ed se rozhodli dlouhodob\u011b pom\u00e1hat lidem s neurosvalov\u00fdm posti\u017een\u00edm, zn\u00e1m\u00fdm jako svalov\u00e1 dystrofie.<\/p>\n\n\n\n
Radek Cihla<\/p>\n\n\n\n
Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" V po\u0159ad\u00ed 14. ro\u010dn\u00edk charitativn\u00ed akce MDA RIDE pod heslem Jedeme v tom s V\u00e1mi! prob\u011bhl 11. \u010dervna na V\u00e1clavsk\u00e9m n\u00e1m\u011bst\u00ed – Muzejn\u00ed o\u00e1ze. C\u00edlem […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":259,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37749","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37749","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37749"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37749\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/259"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37749"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37749"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37749"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}