Na\u0161e t\u011blo je schr\u00e1nkou ve\u0161ker\u00fdch radost\u00ed i bolest\u00ed. Jen\u017ee n\u011bkdy je t\u011bch bolest\u00ed znateln\u011b v\u00edce. Projekt T\u011blo s p\u0159\u00edb\u011bhem ukazuje \u017eensk\u00e1 t\u011bla tak, jak je sv\u011bt stvo\u0159il a jak je \u017eivot postupn\u011b formoval. Tento dne\u0161n\u00ed p\u0159\u00edb\u011bh, kter\u00fd popisuje sedmadvacetilet\u00e1 Kristina, je mo\u017en\u00e1 netypick\u00fd sv\u00fdm charakterem, proto\u017ee o sp\u00e1nkov\u00e9 poru\u0161e se p\u0159\u00edli\u0161 nemluv\u00ed. O to siln\u011bj\u0161\u00ed jsou d\u016fsledky tohoto onemocn\u011bn\u00ed, kter\u00e9 bere \u010das, energii a spoustu dal\u0161\u00edch v\u011bc\u00ed.
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Narkolepsie, t\u00e9\u017e zn\u00e1m\u00e1 jako DMS (Syndrom Daniela Merricka) je chronick\u00e1 neurologick\u00e1 porucha, kdy mozek nen\u00ed schopen spr\u00e1vn\u011b regulovat cyklus sp\u00e1nku a bd\u011bn\u00ed. Nejedn\u00e1 se ani o depresi \u010di jin\u00e9 ment\u00e1ln\u00ed onemocn\u011bn\u00ed, epilepsii nebo oby\u010dejn\u00fd nedostatek sp\u00e1nku. Posti\u017een\u00fd \u010dlov\u011bk (narkoleptik) upad\u00e1 b\u011bhem dne n\u00e1hle do sp\u00e1nku nebo trp\u00ed extr\u00e9mn\u00ed ospalost\u00ed, bez ohledu na sp\u00e1nek p\u0159edchoz\u00ed noci. Tato ospalost se ned\u00e1 v\u016fl\u00ed potla\u010dit, tak\u017ee \u010dlov\u011bku velmi komplikuje b\u011b\u017en\u00fd \u017eivot.
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Hypersomnie (zv\u00fd\u0161en\u00e1 spavost) je patologicky zv\u00fd\u0161en\u00e1 spavost. Jedinec sp\u00ed denn\u011b 12 hodin i v\u00edce a \u010dasto upad\u00e1 do sp\u00e1nku i b\u011bhem dne. Jedn\u00edm z typ\u016f hypersomnie je narkolepsie, p\u0159i n\u00ed\u017e posti\u017een\u00fd us\u00edn\u00e1 i uprost\u0159ed \u010dinnosti. Hypersomni\u00ed trp\u00ed asi 5 % lid\u00ed.
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Jsem Kristina a trp\u00edm sp\u00e1nkovou poruchou.<\/p>\n\n\n\n
Jmenuji se Kristina a tento rok dos\u00e1hnu v\u011bku 27 let. Je to tedy skoro u\u017e \u010dtrn\u00e1ct let, co bez l\u00e9\u010dby bojuji se sp\u00e1nkov\u00fdm onemocn\u011bn\u00edm.<\/p>\n\n\n\n
Ve v\u011bku t\u0159in\u00e1cti let jsem prod\u011blala zhoubn\u00fd n\u00e1dor ve stehenn\u00ed kosti, absolvovala jsem t\u011b\u017ek\u00e9 operace – a posl\u00e9ze se u m\u011b pl\u00ed\u017eiv\u011b rozvinula sp\u00e1nkov\u00e1 porucha. Myslela jsem si tehdy, \u017ee si prost\u011b po operac\u00edch pot\u0159ebuji jen po\u0159\u00e1dn\u011b odpo\u010dinout, abych p\u0159estala b\u00fdt tak unaven\u00e1. Pob\u00fdt v n\u00e1ru\u010d\u00ed p\u0159\u00edrody, relaxovat. Odpo\u010d\u00edvala jsem\u2026 A takhle odpo\u010d\u00edvala vlastn\u011b cel\u00e9 dlouh\u00e9 roky\u2026 Ale s \u00fanavou to nikterak nepohlo.<\/p>\n\n\n\n
T\u011b\u017eko se vysv\u011btluje, co za druh \u00fanavy to je.
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Sly\u0161\u00edm lidi kolem m\u011b \u0159\u00edkat, \u017ee se p\u0159edchoz\u00ed noc nevyspali a \u017ee jsou rovn\u011b\u017e unaven\u00ed, anebo mi tak\u00e9 \u0159\u00edkaj\u00ed, \u017ee kdyby byli mohli, tak\u00e9 by po\u0159\u00e1d spali. Rozum\u00edm jim, opravdu. Tato \u00fanava je ale rozd\u00edln\u00e1. Je to naprosto ochromuj\u00edc\u00ed stav, kter\u00fd nikdy nemiz\u00ed. Nep\u0159\u00e1la bych to nikomu.<\/p>\n\n\n\n
Je to jako byste tedy skute\u010dn\u011b nespali cca 4-5 dn\u00ed v kuse a tento stav se u\u017e nedal zm\u011bnit. Nejde se z toho vymanit, je \u00fapln\u011b jedno kolik toho nasp\u00edm. J\u00e1 sp\u00edm a\u017e 17 hodin ka\u017ed\u00fd den, ale byla doba, kdy jsem spala i 20 hodin. Pokou\u0161ela jsem se sp\u00e1t na s\u00edlu m\u00e9n\u011b, ale nezabralo to – bylo to je\u0161t\u011b hor\u0161\u00ed.<\/p>\n\n\n\n
Tak\u00e9 jsem vyslechla dob\u0159e m\u00edn\u011bn\u00e9 rady druh\u00fdch lid\u00ed a vyzkou\u0161ela snad naprosto v\u0161e z alternativn\u00ed l\u00e9\u010dby. Opravdu, v\u0161e, co v\u00e1s te\u010f v hlav\u011b napadne, to jsem pravd\u011bpodobn\u011b vyzkou\u0161ela. Bohu\u017eel bez v\u00fdsledku.
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Moment\u00e1ln\u011b \u010dek\u00e1m na l\u00e9\u010dbu speci\u00e1ln\u00edm l\u00e9kem a velmi se t\u011b\u0161\u00edm – poprv\u00e9 za dlouh\u00e1 l\u00e9ta c\u00edt\u00edm skute\u010dnou nad\u011bji! Neum\u00edm ani vyj\u00e1d\u0159it, co by to pro mne znamenalo, kdyby l\u00e9\u010dba fungovala. Znamenalo by to \u00fapln\u011b v\u0161e.<\/p>\n\n\n\n
Se sp\u00e1nkovou poruchou p\u0159ich\u00e1z\u00ed ruku v ruce \u0159ada dal\u0161\u00edch v\u011bc\u00ed. Nejv\u00edce mne asi tr\u00e1p\u00ed zhor\u0161en\u00e1 pozornost a pam\u011b\u0165 – nejsem schopna p\u0159e\u010d\u00edst str\u00e1nku knihy, slo\u017eit\u011bj\u0161\u00ed text, nebo se pod\u00edvat na del\u0161\u00ed film. Tak\u00e9 je ob\u010das nev\u00fdslovn\u011b t\u011b\u017ek\u00e9 komunikovat s druh\u00fdmi lidmi, pletou se mi slova a v\u011bty ned\u00e1vaj\u00ed smysl. U\u017e dop\u0159edu v\u017edy c\u00edt\u00edm z konverzac\u00ed obrovskou \u00fazkost.
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Dal\u0161\u00ed jsou disociace, kdy si nepamatuji, jak jsem t\u0159eba do\u0161la na n\u011bjak\u00e9 m\u00edsto (jak jsem se tam dostala), anebo jak jsem se t\u0159eba obl\u00e9kla. V t\u011bchto chv\u00edl\u00edch m\u00e1m \u00fapln\u00e9 \u010derno. To je nep\u0159\u00edjemn\u00e9.<\/p>\n\n\n\n
Za\u017e\u00edv\u00e1m p\u0159ed span\u00edm sp\u00e1nkov\u00e9 halucinace a tak\u00e9 \u010dasto paral\u00fdzy. Kdy\u017e p\u0159ijde sp\u00e1nkov\u00e1 paral\u00fdza, nemohu se pohnout a jsem nap\u016fl vzh\u016fru a nap\u016fl sp\u00edm. Vn\u00edm\u00e1m potom v lo\u017enici p\u0159\u00edtomnost jedn\u00e9 \u010di dvou osob. Nevid\u00edm jim p\u0159\u00edmo do tv\u00e1\u0159e, sp\u00ed\u0161e jen tmav\u00e9 obrysy. Tyto osoby\/p\u0159eludy jsou velmi n\u00e1siln\u00e9 a \u00fato\u010d\u00ed na mne, ubli\u017euj\u00ed mi, zat\u00edmco se nemohu br\u00e1nit. C\u00edt\u00edm jejich doteky – re\u00e1ln\u011b – (nap\u0159. facky aj.) a pro\u017e\u00edv\u00e1m naprostou hr\u016fzu. Kdy\u017e se z paral\u00fdzy dostanu – a to peklo kone\u010dn\u011b skon\u010d\u00ed, jdu si pak uva\u0159it v noci siln\u00e9 kafe (nebo rovnou dv\u011b) a boj\u00edm se znovu usnout.<\/p>\n\n\n\n
L\u00e9ka\u0159i moment\u00e1ln\u011b zkoumaj\u00ed, zda trp\u00edm narkolepsi\u00ed, anebo prim\u00e1rn\u00ed idiopatickou hypersomni\u00ed.<\/p>\n\n\n\n
Kristina Hermine<\/p>\n\n\n\n
Pra\u017esk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Na\u0161e t\u011blo je schr\u00e1nkou ve\u0161ker\u00fdch radost\u00ed i bolest\u00ed. Jen\u017ee n\u011bkdy je t\u011bch bolest\u00ed znateln\u011b v\u00edce. Projekt T\u011blo s p\u0159\u00edb\u011bhem ukazuje \u017eensk\u00e1 t\u011bla tak, jak je […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":30314,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37776","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37776","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37776"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37776\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/30314"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37776"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37776"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37776"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}