\u00dasil\u00ed Nada\u010dn\u00edho fondu Cesta proti bolesti nekon\u010d\u00ed ani po zda\u0159il\u00e9 akci. Je\u0161t\u011b chyb\u00ed ort\u00e9zy pro Nikolku, proto se dal\u0161\u00ed pozornost p\u0159esouv\u00e1 na platformu Donio.<\/p>\n\n\n\n
\u201ePrvn\u00ed k\u00e1\u010da! Druh\u00e1 a m\u00e1me t\u0159et\u00ed!\u201c Herec Martin Zounar v Jirkov\u011b moderoval z\u00e1vody, jak\u00e9 se jen tak nevid\u00ed. P\u0159ed zraky stovek lid\u00ed nat\u011bsnan\u00fdch na n\u00e1b\u0159e\u017e\u00ed komentoval benefi\u010dn\u00ed plavbu gumov\u00fdch ka\u010denek, un\u00e1\u0161en\u00fdch \u0159\u00ed\u010dn\u00edm proudem. Smyslem akce bylo vyd\u011blat nejm\u00e9n\u011b 210 tis\u00edc korun pro t\u0159i handicapovan\u00e9 sle\u010dny Majdu, Ka\u010dku a Nikolu. To se tak\u00e9 poda\u0159ilo.<\/p>\n\n\n\n
Co bude mo\u017en\u00e9 t\u011bmto kamar\u00e1dk\u00e1m a spolu\u017ea\u010dk\u00e1m zafinancovat? \u201eMajd\u011b a Nikolce neurorehabilita\u010dn\u00ed pobyt s posilov\u00e1n\u00edm ve specializovan\u00e9m za\u0159\u00edzen\u00ed, kter\u00fd nehrad\u00ed poji\u0161\u0165ovny. Ka\u010dence koup\u00edme multifunk\u010dn\u00ed stav\u011bc\u00ed za\u0159\u00edzen\u00ed,\u201c p\u0159ibl\u00ed\u017eil Bed\u0159ich Fry\u010d z po\u0159\u00e1daj\u00edc\u00edho Nada\u010dn\u00edho fondu Cesta proti bolesti.<\/p>\n\n\n\n
Finance skl\u00e1dal nada\u010dn\u00ed fond z v\u00edce zdroj\u016f. Velkou m\u011brou pomohli sponzo\u0159i, p\u0159\u00edmo na akci pak m\u011bli lid\u00e9 mo\u017enost koupit si tri\u010dko s logem akce a samoz\u0159ejm\u011b z\u00e1vodn\u00ed ka\u010denky. Dal\u0161\u00ed p\u0159\u00edsp\u011bvky pak padaly p\u0159\u00edmo do kasi\u010dky, kter\u00e1 byla rozpe\u010det\u011bn\u00e1 v pond\u011bl\u00ed na jirkovsk\u00e9 radnici.<\/p>\n\n\n\n
Celkov\u00e1 \u010d\u00e1stka podle Fry\u010de p\u0159es\u00e1hla \u010dtvrt milionu korun. Rozd\u00edl oproti p\u016fvodn\u011b zam\u00fd\u0161len\u00e9 \u010d\u00e1stce ov\u0161em nadace p\u0159id\u00e1 k navazuj\u00edc\u00ed akci na platform\u011b Donio, kde chce vybrat dal\u0161\u00edch 150 tis\u00edc korun.<\/p>\n\n\n\n
\u201eVzali jsme si je\u0161t\u011b dal\u0161\u00ed sousto,\u201c vysv\u011btlil \u010dlen nada\u010dn\u00edho fondu. \u201eMaminka Nikoly se toti\u017e v pr\u016fb\u011bhu p\u0159\u00edprav zm\u00ednila, \u017ee jak dcera dosp\u00edv\u00e1, pot\u0159ebovala by kv\u016fli ochabl\u00fdm sval\u016fm speci\u00e1ln\u00ed ort\u00e9zu. Ov\u0161em vyr\u00e1b\u011bj\u00ed ji ve V\u00eddni, stoj\u00ed p\u0159es 150 tis\u00edc a poji\u0161\u0165ovna ji nepropl\u00e1c\u00ed,\u201c poznamenal.<\/p>\n\n\n\n
Dostat jen jednu botu<\/p>\n\n\n\n
Podle Jitky Peterkov\u00e9, maminky Nikoly, je to smutn\u00e1 realita. Velk\u00e1 \u010d\u00e1st rodin s handicapovan\u00fdmi \u010dleny se vypo\u0159\u00e1d\u00e1v\u00e1 s t\u00edm, \u017ee na \u0159adu skute\u010dn\u011b \u00fa\u010dinn\u00fdch a pot\u0159ebn\u00fdch pom\u016fcek finan\u010dn\u011b nedos\u00e1hnou.<\/p>\n\n\n\n
\u201eNap\u0159\u00edklad na n\u00e1kup invalidn\u00edho voz\u00edku poji\u0161\u0165ovna poskytuje jen z\u00e1klad: t\u0159icet tis\u00edc korun. Aby m\u011bl voz\u00edk v\u0161echny pot\u0159ebn\u00e9 sou\u010d\u00e1sti, je ale nutno uhradit t\u0159eba sto tis\u00edc,\u201c uvedla pro p\u0159edstavu. \u201eJsme tedy v situaci, kdy jako bychom od st\u00e1tu dostali jednu botu a druhou si museli obstarat s pomoc\u00ed r\u016fzn\u00fdch sb\u00edrek,\u201c pomohla si p\u0159irovn\u00e1n\u00edm.<\/p>\n\n\n\n
O to v\u00edce si rodiny cen\u00ed snahy \u010dlen\u016f nada\u010dn\u00edho fondu. \u201eJe to od nich opravdu skv\u011bl\u00e9, bez pomoci se toti\u017e neobejdeme,\u201c ocenila pan\u00ed Peterkov\u00e1. \u201eAkce byla nav\u00edc n\u00e1dhern\u00e1, u\u017eili jsme si ji,\u201c doplnila.<\/p>\n\n\n\n
Sobotn\u00ed plavbu ka\u010denek r\u00e1moval den pln\u00fd z\u00e1bavy pro dosp\u011bl\u00e9 i d\u011bti. Ve\u0161ker\u00e9 kapely a dal\u0161\u00ed interpreti vystoupili bez n\u00e1roku na honor\u00e1\u0159. Jirkovan\u00e9 se jim za to skv\u011ble odm\u011bnili. Krom\u011b toho, \u017ee podpo\u0159ili nemocn\u00e9 d\u011bti svou p\u0159\u00edtomnost\u00ed i financemi, je\u0161t\u011b na z\u00e1v\u011br uklidili lavice a odpadky. P\u00e1r minut po skon\u010den\u00ed nebylo poznat, \u017ee se v centru m\u011bsta bavily stovky lid\u00ed.<\/p>\n\n\n\n
S charitativn\u00ed kampan\u00ed Cesta proti bolesti za\u010dal p\u0159ed osmi lety Milan Dzuriak z Jirkova, mlad\u00fd mu\u017e, kter\u00fd je s\u00e1m nevyl\u00e9\u010diteln\u011b nemocn\u00fd. Proto\u017ee necht\u011bl propadat pocit\u016fm marnosti, sna\u017eil se p\u0159ekon\u00e1vat sv\u00e9 limity na cest\u00e1ch po \u010cesku a zahrani\u010d\u00ed ve prosp\u011bch d\u011bt\u00ed s posti\u017een\u00edm. Za sv\u00e9 \u00fasil\u00ed dostal od Nadace Via presti\u017en\u00ed ocen\u011bn\u00ed Bona Via. Pozd\u011bji stanul v \u010dele sou\u010dasn\u00e9ho Nada\u010dn\u00edho fondu Cesta proti bolesti.<\/p>\n\n\n\n
D\u011bti, kter\u00fdm Jirkovan\u00e9 pomohli:<\/p>\n\n\n\n
Nikolka Slab\u00e1kov\u00e1 (13)<\/p>\n\n\n\n
Od narozen\u00ed se pot\u00fdk\u00e1 s genetick\u00fdm onemocn\u011bn\u00edm, centr\u00e1ln\u00edm hypotonick\u00fdm syndromem, epilepsi\u00ed, o\u010dn\u00ed vadou a t\u011b\u017ekou ment\u00e1ln\u00ed retardac\u00ed. Nikolky zdravotn\u00ed stav vy\u017eaduje 24hodinovou p\u00e9\u010di a velkou pomoc v b\u011b\u017en\u00fdch \u017eivotn\u00edch situac\u00edch. Ned\u00edlnou sou\u010d\u00e1st\u00ed a pro ni nezbytnou pot\u0159ebou jsou celo\u017eivotn\u00ed rehabilitace, kter\u00e9 maj\u00ed velk\u00fd vliv na jej\u00ed pohyb a t\u00edm kvalitu \u017eivota a pom\u00e1haj\u00ed k co nejv\u011bt\u0161\u00edm pokrok\u016fm. \u010c\u00edm v\u00edce podn\u011bt\u016f a \u010dinnost\u00ed bude Nikolka m\u00edt, t\u00edm bude jej\u00ed rozvoj lep\u0161\u00ed a pro jej\u00ed maminku dal\u0161\u00ed velk\u00e1 motivace, \u017ee v\u00fdvoj pozvolna a pozitivn\u011b pokra\u010duje. V ka\u017ed\u00e9m pokroku a z\u00edskan\u00fdch dovednostech p\u0159ijdou vy\u0161\u0161\u00ed po\u017eadavky a s t\u00edm i nov\u00fd c\u00edl. A to jednou sama chodit a b\u00fdt alespo\u0148 tro\u0161ku sob\u011bsta\u010dn\u00e1.<\/p>\n\n\n\n
Magdalenka Kerlikov\u00e1 (12)<\/p>\n\n\n\n
Od narozen\u00ed se pot\u00fdk\u00e1 s d\u011btskou mozkovou obrnou, spastickou kvadrupar\u00e9zou, centr\u00e1ln\u00ed zrakovou vadou CVI, p\u0159idru\u017eenou epilepsi\u00ed a t\u011b\u017ekou ment\u00e1ln\u00ed retardac\u00ed. Magdalenka vy\u017eaduje 24hodinovou p\u00e9\u010di, p\u0159esto nebude nikdy zcela samostatn\u00e1. Jak poroste, bude p\u00e9\u010de o ni n\u00e1ro\u010dn\u011bj\u0161\u00ed. Tak\u00e9 jsou pro ni nezbytnou sou\u010d\u00e1st\u00ed celo\u017eivotn\u00ed rehabilitace, aby se j\u00ed nekroutilo t\u011bl\u00ed\u010dko a t\u00edm se mohla l\u00e9pe h\u00fdbat a d\u00e1le se rozv\u00edjet. Kdyby denn\u011b necvi\u010dila, m\u011bla by deformity, skoli\u00f3zu a p\u00e9\u010de o ni by byla daleko n\u00e1ro\u010dn\u011bj\u0161\u00ed.<\/p>\n\n\n\n
Ka\u010denka \u0160kubov\u00e1 (12)<\/p>\n\n\n\n
Narodila se o t\u0159i m\u011bs\u00edce d\u0159\u00edve a bohu\u017eel si s sebou nese celo\u017eivotn\u00ed n\u00e1sledky, bude pot\u0159ebovat neust\u00e1lou p\u00e9\u010di a pomoc druh\u00fdch.<\/p>\n\n\n\n
Ka\u010denka m\u00e1 nejt\u011b\u017e\u0161\u00ed formu d\u011btsk\u00e9 mozkov\u00e9 obrny, spastickou kvadrupar\u00e9zu (ochrnut\u00ed v\u0161ech \u010dty\u0159 kon\u010detin, kter\u00e9 se j\u00ed neda\u0159\u00ed ovl\u00e1dat tak jak by pot\u0159ebovala), strabismus, o\u010dn\u00ed vadu CVI (Ka\u010denka nedovede spr\u00e1vn\u011b vn\u00edmat prostor, vztahy v prostoru a m\u00e1 nedostate\u010dn\u011b rozvinutou koordinaci zraku a motorick\u00e9 \u010dinnosti ruky), West\u016fv syndrom a opo\u017ed\u011bn\u00fd psychomotorick\u00fd v\u00fdvoj. Ve sv\u00fdch 12 letech sama nechod\u00ed, neleze ani nesed\u00ed, p\u0159esto je velmi vn\u00edmav\u00e1, usm\u011bvav\u00e1 a \u0161\u0165astn\u00e1.<\/p>\n\n\n\n
Ka\u010denka nebude nikdy zcela samostatn\u00e1 a jak poroste, bude p\u00e9\u010de o ni n\u00e1ro\u010dn\u011bj\u0161\u00ed. Mus\u00ed cel\u00fd \u017eivot cvi\u010dit, aby se j\u00ed nekroutilo t\u011bl\u00ed\u010dko a mohla se co nejl\u00e9pe h\u00fdbat a pohybovat.<\/p>\n\n\n\n
Miroslava \u0160ebestov\u00e1<\/p>\n\n\n\n
Den\u00edk<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" \u00dasil\u00ed Nada\u010dn\u00edho fondu Cesta proti bolesti nekon\u010d\u00ed ani po zda\u0159il\u00e9 akci. Je\u0161t\u011b chyb\u00ed ort\u00e9zy pro Nikolku, proto se dal\u0161\u00ed pozornost p\u0159esouv\u00e1 na platformu Donio. \u201ePrvn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24717,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-37830","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37830","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=37830"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/37830\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24717"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=37830"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=37830"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=37830"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}