Treacher-Collinsov\u016fv syndrom a ztr\u00e1ta sluchu 75 procent. To dostal do v\u00ednku v roce 1975 dnes sedma\u010dty\u0159icetilet\u00fd Daniel Kaftan z Hole\u0161ovic. \u201eNarodil jsem se jako nedosl\u00fdchav\u00fd. Ale situace byla o to hor\u0161\u00ed, \u017ee jsem nem\u011bl vyvinut\u00e9 zvukovody ani u\u0161n\u00ed boltce, tak\u017ee jsem nemohl nosit klasick\u00e1 sluchadla,\u201c vrac\u00ed se zp\u00e1tky v \u010dase Daniel.<\/p>\n\n\n\n
P\u0159esto\u017ee cel\u00e9 d\u011btstv\u00ed str\u00e1vil mezi sly\u0161\u00edc\u00edmi, v sedmi letech \u2013 v roce 1982 \u2013 nastoupil do prvn\u00ed t\u0159\u00eddy mezi nedosl\u00fdchav\u00e9 do \u0161koly v Je\u010dn\u00e9 v Praze 2. Tehdy tak\u00e9 dostal sv\u00e9 prvn\u00ed kapesn\u00ed sluchadlo s kostn\u00edm veden\u00edm.<\/p>\n\n\n\n
\u201eDosud \u2013 z nostalgie \u2013 si ho schov\u00e1v\u00e1m,\u201c usm\u00edv\u00e1 se a ukazuje mi krabi\u010dku se \u0161\u0148\u016frkami. Kdy\u017e o n\u011bm mluv\u00ed, popisuje ho jako mal\u00fd z\u00e1zrak, kter\u00fd p\u0159ed n\u00edm otev\u0159el nov\u00fd sv\u011bt. \u201eSv\u011bt zvuk\u016f, kter\u00e9 jsem do t\u00e9 doby vn\u00edmal jakoby z velk\u00e9 d\u00e1lky, nebo jsem je v\u016fbec neznal.\u201c<\/p>\n\n\n\n
Na prvn\u00ed pohled by se mohlo zd\u00e1t, \u017ee byl Daniel kone\u010dn\u011b \u0161\u0165astn\u00fd. Ale kapesn\u00ed sluchadlo m\u011blo i svou stinnou (a bolestivou) str\u00e1nku\u2026<\/p>\n\n\n\n
Krvav\u00e9 otlaky<\/p>\n\n\n\n
\u201ePru\u017eina, kter\u00e1 dr\u017eela kostn\u00ed vibr\u00e1tor, ho z\u00e1rove\u0148 siln\u00fdm tlakem tiskla na u\u0161n\u00ed kost. Roky plynuly a pou\u017e\u00edv\u00e1n\u00ed kapesn\u00edho sluchadla se pro mne stalo no\u010dn\u00ed m\u016frou. Celkem 32 let, v pr\u016fm\u011bru 18 hodin denn\u011b, jsem pou\u017e\u00edval ono kapesn\u00ed sluchadlo, a to m\u011blo za n\u00e1sledek nep\u0159\u00edjemn\u00e9, bolestiv\u00e9 a m\u00edsty i krvav\u00e9 otlaky po cel\u00e9m obvodu hlavy. Zejm\u00e9na v letn\u00edch m\u011bs\u00edc\u00edch, kdy se pod hust\u00fdmi vlasy m\u00e1 k\u016f\u017ee potila v\u00edce ne\u017e kdy jindy, se pru\u017eina do hlavy doslova za\u0159ez\u00e1vala.\u201c<\/p>\n\n\n\n
\u017divotn\u00ed zlom? Sly\u0161\u00edm v\u00edtr!<\/p>\n\n\n\n
V roce 2014 \u0161el na operaci kostn\u00edho implant\u00e1tu. \u201ePoprv\u00e9 v \u017eivot\u011b jsem se t\u011b\u0161il na operaci! U\u017e \u017e\u00e1dn\u00e1 krabi\u010dka, \u017e\u00e1dn\u00e1 \u0161\u0148\u016frka, \u017e\u00e1dn\u00e1 pru\u017eina na hlav\u011b. Jen mal\u00fd audioprocesor, kter\u00fd je p\u0159idr\u017eov\u00e1n d\u00edky slab\u00e9mu magnetu v m\u00edst\u011b implant\u00e1tu. Je zcela ukryt\u00fd pod k\u016f\u017e\u00ed, nikterak ho nec\u00edt\u00edm. A sly\u0161\u00edm!\u201c<\/p>\n\n\n\n
Dva m\u011bs\u00edce po operaci \u0161el do nemocnice na prvn\u00ed se\u0159\u00edzen\u00ed audioprocesoru. N\u00e1sledn\u011b zam\u00ed\u0159il do nemocni\u010dn\u00edho parku. Svi\u017en\u00fdm krokem sp\u011bchal dol\u016f po schodech. A najednou\u2026 Nezn\u00e1m\u00e9 zvuky\u2026<\/p>\n\n\n\n
\u201eV duchu jsem si \u0159\u00edkal, co to m\u016f\u017ee b\u00fdt. Vz\u00e1p\u011bt\u00ed mi to do\u0161lo! To je v\u00edtr! V\u00edtr ve vlasech. Poprv\u00e9 v \u017eivot\u011b jsem sly\u0161el v\u00edtr! Jak n\u00e1dhern\u011b zn\u011bl!\u201c<\/p>\n\n\n\n
Eurokl\u00ed\u010d k toalet\u00e1m v cel\u00e9 EU<\/p>\n\n\n\n
P\u0159esto\u017ee je cel\u00fd \u017eivot nedosl\u00fdchav\u00fd, a\u017e letos v dubnu za\u010dal pob\u00edrat invalidn\u00ed d\u016fchod. \u201eNeb\u00fdt t\u0159\u00eddn\u00edho srazu na Z\u0160 pro sluchov\u011b posti\u017een\u00e9 v Je\u010dn\u00e9 po 30 letech, jsem bez invalidn\u00edho d\u016fchodu dote\u010f. Na srazu jsem byl za trubku, kter\u00e1 nev\u00ed, na co v\u0161echno m\u00e1 n\u00e1rok.\u201c<\/p>\n\n\n\n
D\u00edky spolu\u017e\u00e1k\u016fm tedy zkusil za\u017e\u00e1dat o invalidn\u00ed d\u016fchod. \u201eNev\u011b\u0159il jsem, \u017ee by to vy\u0161lo. Ale ono jo! A nav\u00edc d\u00edky projektu Jsem jedno ucho jsem zjistil, na co dal\u0161\u00edho m\u00e1m n\u00e1rok. Nap\u0159\u00edklad \u017ee mohu jako sluchov\u011b posti\u017een\u00fd z\u00edskat Eurokl\u00ed\u010d, kter\u00fdm si otev\u0159u toalety po cel\u00e9 EU! Nikdy by m\u011b nenapadlo, \u017ee tato v\u00fdhoda nen\u00e1le\u017e\u00ed jen lidem na voz\u00edku, ale i lidem se sluchovou vadou!\u201c<\/p>\n\n\n\n
Daniel si za\u017e\u00e1dal i o pr\u016fkaz ZTP a p\u0159\u00edsp\u011bvek na mobilu. A p\u0159em\u00fd\u0161l\u00ed, \u017ee si po\u017e\u00e1d\u00e1 i o p\u0159\u00edsp\u011bvek na mobil \u010di tablet.<\/p>\n\n\n\n
\u201eZa cel\u00fd \u017eivot jsem se nesetkal s nik\u00fdm, kdo by m\u011b nasm\u011broval, kdo by mi poradil, na co m\u00e1m jako sluchov\u011b posti\u017een\u00fd n\u00e1rok. Ani u l\u00e9ka\u0159\u016f, ani v nemocnic\u00edch jsem nikdy nic nezjistil. Fakt jsem si p\u0159ipadal jako trubka, kdy\u017e si spolu\u017e\u00e1ci na srazu vypr\u00e1v\u011bli, kolik jim u\u017e l\u00e9ta chod\u00ed na \u00fa\u010det\u2026 Inu, chybami se \u010dlov\u011bk u\u010d\u00ed,\u201c uzav\u00edr\u00e1 se sm\u00edchem Daniel Kaftan.<\/p>\n\n\n\n
Na co m\u00e1te n\u00e1rok, pokud \u0161patn\u011b sly\u0161\u00edte?<\/p>\n\n\n\n
– invalidn\u00ed d\u016fchod<\/p>\n\n\n\n
– pr\u016fkaz ZTP<\/p>\n\n\n\n
– Eurokl\u00ed\u010d, kter\u00fdm si otev\u0159ete toalety v cel\u00e9 Evropsk\u00e9 unii<\/p>\n\n\n\n
– p\u0159\u00edsp\u011bvek na zvl\u00e1\u0161tn\u00ed kompenza\u010dn\u00ed pom\u016fcku \u2013 nap\u0159. vibra\u010dn\u00ed bud\u00edk, televizn\u00ed zesilova\u010d \u010di induk\u010dn\u00ed smy\u010dku<\/p>\n\n\n\n
– p\u0159\u00edsp\u011bvek na sluchadla \u2013 od leto\u0161n\u00edho ledna je to 2x 7 000 korun na ob\u011b u\u0161i<\/p>\n\n\n\n
– p\u0159\u00edsp\u011bvek na mobilitu<\/p>\n\n\n\n
– p\u0159\u00edsp\u011bvek na telefon<\/p>\n\n\n\n
– p\u0159\u00edsp\u011bvek na tablet\/notebook<\/p>\n\n\n\n
– nesly\u0161\u00edc\u00ed maj\u00ed n\u00e1rok na tlumo\u010dn\u00edka znakov\u00e9ho jazyka \u2013 nap\u0159. p\u0159i vy\u0159izov\u00e1n\u00ed z\u00e1le\u017eitost\u00ed na \u00fa\u0159ad\u011b \u010di u l\u00e9ka\u0159e<\/p>\n\n\n\n
– nesly\u0161\u00edc\u00ed lid\u00e9 jsou osvobozeni od placen\u00ed poplatk\u016f za rozhlas a televizi‘<\/p>\n\n\n\n
– nesly\u0161\u00edc\u00ed neplat\u00ed d\u00e1lni\u010dn\u00ed zn\u00e1mku<\/p>\n\n\n\n
(Pro bli\u017e\u0161\u00ed informace k z\u00edsk\u00e1n\u00ed konkr\u00e9tn\u00edho p\u0159\u00edsp\u011bvku kontaktujte p\u0159\u00edslu\u0161n\u00fd \u00da\u0159ad pr\u00e1ce, pozn. autorky)<\/p>\n\n\n\n
Veronika C\u00e9zov\u00e1<\/p>\n\n\n\n
Berounsk\u00fd den\u00edk<\/p>\n\n\n\n
https:\/\/berounsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Treacher-Collinsov\u016fv syndrom a ztr\u00e1ta sluchu 75 procent. To dostal do v\u00ednku v roce 1975 dnes sedma\u010dty\u0159icetilet\u00fd Daniel Kaftan z Hole\u0161ovic. \u201eNarodil jsem se jako nedosl\u00fdchav\u00fd. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":6438,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-38188","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38188","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=38188"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38188\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/6438"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=38188"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=38188"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=38188"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}