{"id":38452,"date":"2023-01-25T22:58:10","date_gmt":"2023-01-25T21:58:10","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=38452"},"modified":"2023-01-25T22:58:11","modified_gmt":"2023-01-25T21:58:11","slug":"trojcatka-potrebuji-lecbu-ktera-neni-v-cesku-povolena-na-slovensku-by-to-slo","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=38452","title":{"rendered":"Troj\u010d\u00e1tka pot\u0159ebuj\u00ed l\u00e9\u010dbu, kter\u00e1 nen\u00ed v \u010cesku povolena. Na Slovensku by to \u0161lo"},"content":{"rendered":"\n<p>V&nbsp;\u0161esti letech jedna t\u00e9m\u011b\u0159 nevid\u00ed, druh\u00e1 nemluv\u00ed a t\u0159et\u00ed m\u00e1 epilepsii. To ale nen\u00ed v\u0161e, co si ka\u017ed\u00e1 z&nbsp;p\u0159ed\u010dasn\u011b narozen\u00fdch troj\u010d\u00e1tek p\u0159inesla do \u017eivota. V\u0161echny sestry maj\u00ed mnohon\u00e1sobn\u00e1 posti\u017een\u00ed, ale i&nbsp;p\u0159esto je rodi\u010de nedali do \u00fastavu, jak jim n\u011bkte\u0159\u00ed radili, a cel\u00e9 dny s&nbsp;ka\u017edou zvl\u00e1\u0161\u0165 cvi\u010d\u00ed. I&nbsp;kdyby terapie pomohla jen jedn\u00e9 z&nbsp;dcer, bude to podle rodi\u010d\u016f m\u00edt&nbsp;smysl.<\/p>\n\n\n\n<p>Hanka Hr\u00e1\u010dkov\u00e1 je maminkou p\u0159ed\u010dasn\u011b narozen\u00fdch hol\u010di\u010dek, kter\u00e9 p\u0159i\u0161ly na sv\u011bt ve 24.&nbsp;t\u00fddnu t\u011bhotenstv\u00ed. \u201eCel\u00e9 t\u011bhotenstv\u00ed prob\u00edhalo bez z\u00e1sadn\u00edch probl\u00e9m\u016f. Hol\u010di\u010dky rostly, jak m\u011bly a pan\u00ed doktorka m\u011bla radost, \u017ee je v\u0161echno tak, jak m\u00e1 b\u00fdt. Za p\u00e1r hodin po posledn\u00ed kontrole v\u0161ak bylo v\u0161echno jinak a j\u00e1 za\u010dala rodit,\u201c popisuje okam\u017eiky prvn\u00edho velk\u00e9ho strachu o&nbsp;d\u011bti Hanka, kter\u00e1 den na to p\u0159ivedla akutn\u00edm c\u00edsa\u0159em na sv\u011bt sv\u00e9 t\u0159i hol\u010di\u010dky.<\/p>\n\n\n\n<p>T\u0159i d\u011bti, t\u0159i r\u016fzn\u00e1 posti\u017een\u00ed<\/p>\n\n\n\n<p>Hance a jej\u00edmu man\u017eelovi se narodila t\u0159i d\u011bv\u010d\u00e1tka \u2013 Viktorka, Am\u00e1lka a \u017dofinka. Ka\u017ed\u00e1 z&nbsp;d\u00edvek m\u00e1 ale posti\u017een\u00ed trochu jin\u00e9, tud\u00ed\u017e k&nbsp;nim mus\u00ed p\u0159istupovat odli\u0161n\u011b a rehabilitovat a rozv\u00edjet je odd\u011blen\u011b.<\/p>\n\n\n\n<p>\u201eViktorka se narodila s&nbsp;480 gramy a do 3,5&nbsp;roku byla absolutn\u011b hluch\u00e1, nyn\u00ed sly\u0161\u00ed trochu, ale nerozum\u00ed, nemluv\u00ed a pohybuje se pouze po \u010dty\u0159ech. M\u00e1 za sebou n\u011bkolikan\u00e1sobnou operaci b\u0159icha a 6&nbsp;operac\u00ed o\u010d\u00ed. Jedn\u00edm vid\u00ed pouze sv\u011btlo a tmu, druh\u00fdm zhruba na 40&nbsp;%, a to pouze na metr a p\u016fl,\u201c popisuje stav prvn\u00ed dcery Hanka, kter\u00e1, aby dce\u0159i usnadnila komunikaci, vytvo\u0159ila speci\u00e1ln\u00ed komunika\u010dn\u00ed panel se sv\u011bteln\u00fdmi tla\u010d\u00edtky 4&nbsp;z\u00e1kladn\u00edch pot\u0159eb, kter\u00e9 se t\u00fdkaj\u00ed j\u00eddla, pit\u00ed, vykon\u00e1n\u00ed pot\u0159eby a sp\u00e1nku. \u201eBudeme se sna\u017eit Viktorku nau\u010dit, aby si \u0159ekla alespo\u0148 o&nbsp;tyto 4&nbsp;pot\u0159eby,\u201c vysv\u011btluje maminka d\u011bv\u010d\u00e1tek.<\/p>\n\n\n\n<p>Am\u00e1lka je jednovaje\u010dn\u00e9 dvoj\u010de Viktorky a narodila se s&nbsp;560 gramy. Stejn\u011b jako Viktorka se pohybuje pouze po \u010dty\u0159ech, ale na rozd\u00edl od Viktorky j\u00ed dozr\u00e1l sluch, tak\u017ee sly\u0161\u00ed. \u201eD\u00edky tomu i&nbsp;docela dob\u0159e rozum\u00ed, a i&nbsp;kdy\u017e je to se zrakem hor\u0161\u00ed, d\u00edky br\u00fdl\u00edm vid\u00ed. Bohu\u017eel ale tak\u00e9 nemluv\u00ed a sv\u00e9 pot\u0159eby ukazuje prstem. Za\u010d\u00edn\u00e1me j\u00ed ale u\u010dit znaky. Am\u00e1lce postupn\u011b vytv\u00e1\u0159\u00edm speci\u00e1ln\u00ed komunika\u010dn\u00ed knihu, d\u00edky kter\u00e9 bude jednou moci komunikovat s&nbsp;ostatn\u00edmi lidmi nap\u0159\u00edklad ve \u0161kole,\u201c vysv\u011btluje maminka, kter\u00e1 nikdy nep\u0159estane bojovat za to, aby jej\u00ed dcery byly jednou sob\u011bsta\u010dn\u00e9.<\/p>\n\n\n\n<p>\u017dofinka je na tom ze v\u0161ech t\u0159\u00ed hol\u010di\u010dek nejl\u00e9pe. Narodila se s&nbsp;630 gramy a je ji\u017e schopn\u00e1 tr\u00e9novat ch\u016fzi v&nbsp;chod\u00edtku. \u201eKv\u016fli nevhodn\u011b \u0159e\u0161en\u00e9mu bydlen\u00ed v\u0161ak zat\u00edm nejsme schopni zajistit, aby se p\u0159esouvala pomoc\u00ed chod\u00edtka sama, tak\u017ee tak\u00e9 preferuje lezen\u00ed po \u010dty\u0159ech. \u017dofinka jako jedin\u00e1 mluv\u00ed a motoricky je na tom nejl\u00e9pe, ale samostatn\u00e1 nen\u00ed,\u201c popisuje stav t\u0159et\u00ed hol\u010di\u010dky maminka a dod\u00e1v\u00e1, \u017ee velk\u00fdm hendikepem \u017dofinky je VP-shunt, co\u017e je ventil s&nbsp;hadi\u010dkou, kter\u00e1 odv\u00e1d\u00ed p\u0159ebyte\u010dn\u00fd mozkom\u00ed\u0161n\u00ed mok z&nbsp;mozku do dutiny b\u0159i\u0161n\u00ed, s&nbsp;\u010d\u00edm\u017e je spojen\u00e1 i&nbsp;epilepsie.<\/p>\n\n\n\n<p>\u00dastav nikdy nep\u0159ipadal v&nbsp;\u00favahu<\/p>\n\n\n\n<p>Kdy\u017e se narod\u00ed jakkoliv hendikepovan\u00e9 d\u00edt\u011b, ob\u010das se stane, \u017ee tato ud\u00e1lost rozlo\u017e\u00ed nejen man\u017eelstv\u00ed, ale i&nbsp;celou \u0161irokou rodinu. Nato\u017e kdy\u017e jsou t\u0159i najednou. \u201eKdy\u017e se hol\u010di\u010dky narodily, \u0159ekli n\u00e1m, \u017ee budou le\u017e\u00e1ci a a\u0165 se na to p\u0159iprav\u00edme. Jin\u00ed dokonce tvrdili, \u017ee to nezvl\u00e1dneme a a\u0165 zv\u00e1\u017e\u00edme p\u0159em\u00edst\u011bn\u00ed holek do \u00fastavu v&nbsp;Olomouci,\u201c popisuje rady, kter\u00e9 jako \u010derstv\u00e1 maminka sly\u0161ela z&nbsp;\u0159ad odborn\u00edk\u016f kolem sebe.<\/p>\n\n\n\n<p>\u201eJ\u00e1 ale od za\u010d\u00e1tku v\u011bd\u011bla, \u017ee to takhle nechci. \u017de za sv\u00e9 d\u011bti budu bojovat, a \u017ee je chci doma. S&nbsp;man\u017eelem jsme byli od za\u010d\u00e1tku za jedno a j\u00e1 jsem vd\u011b\u010dn\u00e1 za jeho obrovskou podporu v&nbsp;t\u011bch nejt\u011b\u017e\u0161\u00edch chv\u00edl\u00edch na za\u010d\u00e1tku, kdy za mnou st\u00e1l,\u201c d\u011bkuje sv\u00e9mu mu\u017ei Hanka, kter\u00e1 je s&nbsp;man\u017eelem p\u0159esv\u011bd\u010dena, \u017ee mozek je jeden velk\u00fd plastick\u00fd z\u00e1zrak, kter\u00fd je schopn\u00fd m\u011bnit sv\u00e9 vlastnosti v&nbsp;z\u00e1vislosti na podn\u011btech.<\/p>\n\n\n\n<p>Ka\u017edodenn\u00ed celodenn\u00ed rehabilitace<\/p>\n\n\n\n<p>D\u0159\u00edve rodi\u010de s&nbsp;hol\u010di\u010dkami rehabilitovali 4x denn\u011b po p\u016fl hodin\u011b, dnes nejen kv\u016fli rozvoji pohybov\u00e9, ale i ment\u00e1ln\u00ed str\u00e1nky, rehabilituj\u00ed 1&nbsp;a\u017e 1,5&nbsp;hodinu denn\u011b s&nbsp;ka\u017edou hol\u010di\u010dkou a 1&nbsp;a\u017e 1,5&nbsp;hodiny se v\u011bnuj\u00ed ergoterapii. V&nbsp;sou\u010dtu tedy dev\u011bt hodin denn\u011b. \u201ePrvn\u00ed rok mi pom\u00e1hal se cvi\u010den\u00edm man\u017eel, ale vzhledem k&nbsp;tomu, \u017ee byl zam\u011bstn\u00e1n na pln\u00fd \u00favazek, p\u0159evzala jsem cvi\u010den\u00ed j\u00e1. Ale sama jsem nebyla. M\u011bla jsem v\u017edy k&nbsp;dispozici pe\u010dovatelku, kter\u00e1 mi pom\u00e1hala s&nbsp;dom\u00e1cnost\u00ed, pom\u00e1haly i&nbsp;babi\u010dky, d\u011bda, a nyn\u00ed pom\u00e1h\u00e1 i&nbsp;v\u00fdborn\u00e1 fyzioterapeutka, kter\u00e1 doj\u00ed\u017ed\u00ed 2x t\u00fddn\u011b, a jednou m\u011bs\u00ed\u010dn\u011b fyzioterapeut ze Slovenska, kter\u00fd s&nbsp;hol\u010di\u010dkami intenzivn\u011b pracuje,\u201c popisuje p\u00e9\u010di maminka Hanka.<\/p>\n\n\n\n<p>Moment\u00e1ln\u011b chod\u00ed hol\u010di\u010dky 2x t\u00fddn\u011b do speci\u00e1ln\u00ed \u0161koly, aby se rozv\u00edjely i&nbsp;soci\u00e1ln\u011b, co\u017e je pro n\u011b rovn\u011b\u017e ohromn\u011b d\u016fle\u017eit\u00e9. \u201eTy dny, kdy jsou hol\u010di\u010dky ve \u0161kolce, chod\u00edm do pr\u00e1ce, za co\u017e jsem moc r\u00e1da. Doporu\u010dila bych to ka\u017ed\u00e9 mamince hendikepovan\u00fdch d\u011bt\u00ed, proto\u017ee se mohu odreagovat a zam\u011bstnat mozek tak\u00e9 n\u011b\u010d\u00edm jin\u00fdm, a m\u00edt pocit, \u017ee jsem u\u017eite\u010dn\u00e1 i&nbsp;jinde,\u201c rad\u00ed z&nbsp;vlastn\u00ed zku\u0161enosti Hanka, kter\u00e1 v&nbsp;sob\u011b m\u00e1 obrovsk\u00e9 mno\u017estv\u00ed energie a neust\u00e1le vyhled\u00e1v\u00e1 nov\u00e9 specialisty, odborn\u00edky, \u010dte odborn\u00e9 publikace, diskuze a hled\u00e1 dal\u0161\u00ed mo\u017enosti a techniky, jak sv\u00fdm t\u0159em dcer\u00e1m pomoci.<\/p>\n\n\n\n<p>V\u011bd\u00ed o&nbsp;sob\u011b, ale nehraj\u00ed si<\/p>\n\n\n\n<p>\u201eHol\u010di\u010dky jsou \u00fa\u017easn\u00e9 a jsou moc hodn\u00e9. Od mali\u010dka jsou zvykl\u00e9 na to, \u017ee se s&nbsp;jednou pracuje (rehabilituje), a \u017ee v&nbsp;tu chv\u00edli si mus\u00ed dal\u0161\u00ed dv\u011b bu\u010f pohr\u00e1t samy, nebo pozorovat, jak sest\u0159i\u010dka cvi\u010d\u00ed. Spole\u010dn\u011b si ale nehraj\u00ed,\u201c \u0159\u00edk\u00e1 Hanka Hr\u00e1\u010dkov\u00e1, kter\u00e1 vysv\u011btluje, \u017ee ment\u00e1ln\u011b i&nbsp;motoricky je na tom ka\u017ed\u00e1 z&nbsp;hol\u010di\u010dek jinak, tak\u017ee to ani nejde.<\/p>\n\n\n\n<p>Kontroverzn\u00ed l\u00e9\u010dba: v&nbsp;\u010cech\u00e1ch nelze<\/p>\n\n\n\n<p>Rodi\u010de doufaj\u00ed, \u017ee jednou budou jejich d\u011bv\u010data samostatn\u00e1, a proto nep\u0159est\u00e1vaj\u00ed rehabilitovat a d\u011bv\u010data d\u00e1l rozv\u00edjet. R\u00e1di by tak\u00e9 podstoupili l\u00e9\u010dbu kmenov\u00fdmi bu\u0148kami, kter\u00e1 m\u016f\u017ee obnovit po\u0161kozen\u00e1 m\u00edsta v&nbsp;t\u011ble. \u201e\u0158e\u0161\u00edme spoustu ot\u00e1zek a probl\u00e9m\u016f od plic p\u0159es svaly, nervovou soustavu a\u017e po mozek, od kter\u00e9ho se odv\u00edj\u00ed t\u00e9m\u011b\u0159 v\u0161echno. V\u011b\u0159\u00edme, \u017ee by tento zp\u016fsob l\u00e9\u010dby mohl holk\u00e1m pomoci, i&nbsp;kdy\u017e v\u00edme, \u017ee je to l\u00e9\u010dba nejist\u00e1, ale pro n\u00e1s je nad\u011bj\u00ed,\u201c \u0159\u00edk\u00e1 maminka d\u011bv\u010d\u00e1tek.<\/p>\n\n\n\n<p>V&nbsp;\u010cesk\u00e9 republice nen\u00ed l\u00e9\u010dba pomoc\u00ed kmenov\u00fdch bun\u011bk povolena. \u201eL\u00e9\u010dba jako takov\u00e1 se aplikuje v&nbsp;zahrani\u010d\u00ed, nap\u0159\u00edklad na Slovensku, v&nbsp;Rakousku, Srbsku, Anglii, \u0160v\u00fdcarsku \u010di Mexiku. I&nbsp;p\u0159esto, \u017ee je to n\u00e1kladn\u00e1 l\u00e9\u010dba, jsme s&nbsp;man\u017eelem za jedno, \u017ee kdyby pomohla alespo\u0148 jedn\u00e9 hol\u010di\u010dce v&nbsp;jedn\u00e9 oblasti, ty pen\u00edze by za to st\u00e1ly,\u201c s&nbsp;jistotou tvrd\u00ed rodi\u010de.<\/p>\n\n\n\n<p>Co vlastn\u011b znamen\u00e1 b\u00fdt norm\u00e1ln\u00ed?<\/p>\n\n\n\n<p>I\u00a0p\u0159es to v\u0161echno si maminka nejv\u00edc p\u0159eje, aby byly hol\u010di\u010dky v\u00a0\u017eivot\u011b hlavn\u011b \u0161\u0165astn\u00e9. \u201eSamoz\u0159ejm\u011b d\u011bl\u00e1me maximum pro to, abychom hol\u010di\u010dky postupn\u011b nau\u010dili ur\u010dit\u00e9 samostatnosti a aby jednou zvl\u00e1dly vykon\u00e1vat z\u00e1kladn\u00ed \u017eivotn\u00ed pot\u0159eby. Ve fin\u00e1le je pro n\u00e1s ale d\u016fle\u017eit\u00e9 to, aby byly v\u00a0\u017eivot\u011b \u0161\u0165astn\u00e9. Proto\u017ee b\u00fdt norm\u00e1ln\u00ed nen\u00ed v\u016fbec pouk\u00e1zka na \u0161\u0165astn\u00fd \u017eivot,\u201c tvrd\u00ed maminka Hanka s\u00a0l\u00e1skou a obrovsk\u00fdm nasazen\u00edm a dod\u00e1v\u00e1, \u017ee s\u00a0man\u017eelem v\u017edy v\u011b\u0159ili na z\u00e1zraky, kter\u00e9 se u\u017e staly, a proto nep\u0159est\u00e1vaj\u00ed v\u011b\u0159it, \u017ee se budou d\u00edt i\u00a0d\u00e1l.<\/p>\n\n\n\n<p>Chcete-li rodi\u010d\u016fm Viktorky, Am\u00e1lky a \u017dofinky k\u00a0z\u00e1zraku pomoci, m\u016f\u017eete jim p\u0159isp\u011bt jakoukoliv \u010d\u00e1stkou ve sb\u00edrce: <a rel=\"noreferrer noopener\" href=\"https:\/\/www.donio.cz\/handicapovana-trojcatka\" target=\"_blank\">https:\/\/www.donio.cz\/handicapovana-trojcatka<\/a>.<\/p>\n\n\n\n<p>Kate\u0159ina N\u011bmcov\u00e1<\/p>\n\n\n\n<p>Den\u00edk.cz<\/p>\n\n\n\n<p><a href=\"https:\/\/www.denik.cz\/\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>V&nbsp;\u0161esti letech jedna t\u00e9m\u011b\u0159 nevid\u00ed, druh\u00e1 nemluv\u00ed a t\u0159et\u00ed m\u00e1 epilepsii. To ale nen\u00ed v\u0161e, co si ka\u017ed\u00e1 z&nbsp;p\u0159ed\u010dasn\u011b narozen\u00fdch troj\u010d\u00e1tek p\u0159inesla do \u017eivota. V\u0161echny <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=38452\" title=\"Troj\u010d\u00e1tka pot\u0159ebuj\u00ed l\u00e9\u010dbu, kter\u00e1 nen\u00ed v \u010cesku povolena. Na Slovensku by to \u0161lo\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14228,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-38452","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38452","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=38452"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38452\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14228"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=38452"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=38452"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=38452"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}