Stanislav Platil (45 let) ze \u0160t\u011bt\u00ed byl mu\u017eem v pln\u00e9 s\u00edle, kdy\u017e se mu v noze objevil nep\u0159\u00edjemn\u00fd tlak. Jako oper\u00e1tor jednoho z p\u0159ev\u00edjec\u00edch stroj\u016f v nejv\u011bt\u0161\u00ed pap\u00edrn\u011b v \u010cesku tomu zprvu nev\u011bnoval pozornost v domn\u011bn\u00ed, \u017ee se jedn\u00e1 o nata\u017een\u00fd sval. Jen\u017ee \u0161lo o n\u00e1dor, odborn\u011b zvan\u00fd myxoidn\u00ed liposarkom.<\/p>\n\n\n\n
V dob\u011b, kdy se Stanislav Platil vydal k l\u00e9ka\u0159i, u\u017e m\u011bl n\u00e1dor velikost pomeran\u010de. \u201eN\u00e1dor byl ze za\u010d\u00e1tku hluboko ulo\u017een\u00fd ve svalu, tak\u017ee nebyl vid\u011bt a nic nebolelo. Teprve pozd\u011bji, kdy\u017e jsem se sprchoval, tak bylo vid\u011bt, \u017ee v noze n\u011bco je. \u0160el jsem k l\u00e9ka\u0159i a a\u017e on mi \u0159ekl o skute\u010dn\u00e9 velikosti n\u00e1doru,\u201c \u0159\u00edk\u00e1 Stanislav Platil, kter\u00fd absolvoval nejprve protonovou l\u00e9\u010dbu a pozd\u011bji operaci, b\u011bhem kter\u00e9 byl n\u00e1dor odstran\u011bn.<\/p>\n\n\n\n
V t\u00e9 dob\u011b u\u017e n\u00e1dor utla\u010doval okoln\u00ed nervy a d\u00e1val o sob\u011b v\u011bd\u011bt silnou bolest\u00ed. Jen\u017ee operace p\u0159i\u0161la pozd\u011b, sarkom se stihl roz\u0161\u00ed\u0159it do plic, kde se metast\u00e1zy z milimetrov\u00e9 velikosti za\u010daly prudce zv\u011bt\u0161ovat. Chemoterapie nezabrala a posledn\u00ed \u0161anc\u00ed je biologick\u00e1 l\u00e9\u010dba.<\/p>\n\n\n\n
Z\u00e1rove\u0148 byl b\u011bhem operace p\u0159eru\u0161en femor\u00e1ln\u00ed nerv, co\u017e zp\u016fsobilo nefunk\u010dnost stehenn\u00edho svalu. \u201ePo byt\u011b chod\u00edm bez opory, v\u0161ude dos\u00e1hnu a m\u016f\u017eu se op\u0159\u00edt, ale venku mus\u00edm m\u00edt hole,\u201c komentoval situaci Stanislav, t\u00e1ta t\u0159\u00ed d\u011bt\u00ed.<\/p>\n\n\n\n
Nyn\u00ed se on i jeho rodina up\u00ednaj\u00ed k l\u00e9ku Yondelis. \u201eStandu nevyl\u00e9\u010d\u00ed, ale podle pan\u00ed doktorky mu prodlou\u017e\u00ed \u017eivot,\u201c \u0159ekla man\u017eelka Martina s t\u00edm, \u017ee Stanislav by mohl \u017e\u00edt d\u00edky n\u00e1kladn\u00e9mu zahrani\u010dn\u00edmu l\u00e9ku a\u017e o des\u00edtky let d\u00e9le.<\/p>\n\n\n\n
\u017d\u00e1dost na uhrazen\u00ed l\u00e9ku podal poji\u0161\u0165ovn\u011b \u00dastav radia\u010dn\u00ed onkologie. N\u011bkolikastr\u00e1nkov\u00e1 zpr\u00e1va V\u0161eobecn\u00e9 zdravotn\u00ed poji\u0161\u0165ovny v\u0161ak Stanislava nepot\u011b\u0161ila. D\u016fle\u017eit\u00e9 je v n\u00ed jedin\u00e9 slovo: zam\u00edtnuto. \u201eVzhledem k mo\u017enosti, \u017ee je k dispozici alternativn\u00ed l\u00e9\u010dba, nen\u00ed napln\u011bna jedna z podm\u00ednek mimo\u0159\u00e1dn\u00e9 \u00fahrady l\u00e9\u010div\u00e9ho p\u0159\u00edpravku z prost\u0159edk\u016f ve\u0159ejn\u00e9ho poji\u0161t\u011bn\u00ed,\u201c stoj\u00ed ve zpr\u00e1v\u011b VZP.<\/p>\n\n\n\n
Odvol\u00e1v\u00e1 se p\u0159itom na studii z roku 2009 popisuj\u00edc\u00ed jedinou randomizovanou studii k l\u00e9ku, co\u017e je podle VZP m\u00e1lo. Jen\u017ee nap\u0159\u00edklad v roce 2015 vy\u0161la dal\u0161\u00ed studie v jednom z nejpresti\u017en\u011bj\u0161\u00edch sv\u011btov\u00fdch zdravotnick\u00fdch periodik The Lancet.<\/p>\n\n\n\n
\u017d\u00e1dost o \u00fahradu byla na VZP pod\u00e1na 14. \u00fanora 2023, zam\u00edtav\u00e9 stanovisko p\u0159i\u0161lo 29. b\u0159ezna 2023. Trvalo tedy d\u00e9le ne\u017e m\u011bs\u00edc, ne\u017e VZP \u017e\u00e1dost posoudila a \u00fahradu l\u00e9ku zam\u00edtla. V dob\u011b, kdy se hraje o \u010das a o \u017eivot, se proto Stanislav Platil s man\u017eelkou rozhodli vypsat ve\u0159ejnou sb\u00edrku na platform\u011b donio.cz s c\u00edlem z\u00edskat c\u00edlovou \u010d\u00e1stku pro koupi l\u00e9ku. Aby nedo\u0161lo k dal\u0161\u00ed \u010dasov\u00e9 ztr\u00e1t\u011b, pro prvn\u00ed d\u00e1vku si pen\u00edze p\u016fj\u010dili a aktu\u00e1ln\u011b je za\u017e\u00e1d\u00e1no o koupi a dopravu ze \u0160v\u00e9dska. \u201eRakovina m\u011b u\u017e te\u010f nebol\u00ed, ale \u010das se kr\u00e1t\u00ed,\u201c sd\u011blil Standa Platil.<\/p>\n\n\n\n
D\u00e1vek je nutno z\u00edskat alespo\u0148 dev\u011bt, p\u0159i\u010dem\u017e ka\u017ed\u00e1 z nich stoj\u00ed zhruba 40 tis\u00edc korun. P\u0159isp\u011bt m\u016f\u017ee ka\u017ed\u00fd na webov\u00e9m odkazu https:\/\/www.donio.cz\/prostandu. Cel\u00e1 v\u011bnovan\u00e1 \u010d\u00e1stka jde na \u00fahradu l\u00e9ku.<\/p>\n\n\n\n
Trabektedin z bakteri\u00ed<\/p>\n\n\n\n
Biologick\u00e1 l\u00e9\u010dba pat\u0159\u00ed v p\u0159\u00edpad\u011b onkologick\u00fdch onemocn\u011bn\u00ed k jednomu z nejmodern\u011bj\u0161\u00edch zp\u016fsob\u016f l\u00e9\u010dby. L\u00e9k Yondelis m\u00e1 v sob\u011b l\u00e1tku trabektedin, kter\u00e1 se z\u00edsk\u00e1v\u00e1 z bakteri\u00ed symbioticky \u017eij\u00edc\u00edch v mo\u0159sk\u00fdch pl\u00e1\u0161t\u011bnc\u00edch. Trabektedin se um\u00ed nav\u00e1zat na DNA, p\u0159i\u010dem\u017e v m\u00edst\u011b nav\u00e1z\u00e1n\u00ed dojde k rozlomen\u00ed \u0159et\u011bzce deoxyribonukleov\u00e9 kyseliny a bu\u0148ka um\u00edr\u00e1. Nen\u00ed tedy schopn\u00e1 se d\u00e1l d\u011blit a zastavuje se tak zhoubn\u00e9 bujen\u00ed. Pou\u017e\u00edv\u00e1 se k l\u00e9\u010db\u011b sarkomu m\u011bkk\u00fdch tk\u00e1n\u00ed formou infuz\u00ed. Yondelis m\u00e1 ale velmi siln\u00e9 vedlej\u0161\u00ed \u00fa\u010dinky. \u201eLze o\u010dek\u00e1vat, \u017ee u v\u011bt\u0161iny pacient\u016f l\u00e9\u010den\u00fdch p\u0159\u00edpravkem Yondelis se objev\u00ed ne\u017e\u00e1douc\u00ed \u00fa\u010dinky n\u011bjak\u00e9ho stupn\u011b (91 % p\u0159i monoterapii a 99,4 % p\u0159i kombinovan\u00e9 terapii),\u201c ud\u00e1v\u00e1 dokumentace k p\u0159\u00edpravku Yondelis.<\/p>\n\n\n\n
Topi Pigula<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Stanislav Platil (45 let) ze \u0160t\u011bt\u00ed byl mu\u017eem v pln\u00e9 s\u00edle, kdy\u017e se mu v noze objevil nep\u0159\u00edjemn\u00fd tlak. Jako oper\u00e1tor jednoho z p\u0159ev\u00edjec\u00edch stroj\u016f […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":24987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-38929","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38929","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=38929"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38929\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/24987"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=38929"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=38929"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=38929"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}