Pro mlad\u00e9 rodi\u010de z Plzn\u011b byl Ad\u00e1mek vytou\u017een\u00fdm d\u00edt\u011btem. Byl v\u0161ak n\u00e1ro\u010dn\u00e9 miminko. Hodn\u011b plakal, nespal, vst\u00e1val obvykle okolo druh\u00e9 hodiny r\u00e1no. Rodi\u010de s n\u00edm absolvovali \u0159adu vy\u0161et\u0159en\u00ed, ale diagn\u00f3za \u2013 autismus a t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed posti\u017een\u00ed – mu byla stanovena a\u017e ve t\u0159ech letech, v dob\u011b, kdy rodi\u010de o\u010dek\u00e1vali dal\u0161\u00ed p\u0159\u00edr\u016fstek do rodiny.<\/p>\n\n\n\n
Te\u010f je Ad\u00e1mkovi sedm a st\u00e1le je\u0161t\u011b nemluv\u00ed. Rodi\u010de si mus\u00ed poradit nejen se slo\u017eitou komunikac\u00ed, ale i s t\u00edm, \u017ee chlapec nem\u016f\u017ee j\u00edt jinou cestou, ne\u017e je zvykl\u00fd, \u010di j\u00edst j\u00eddlo, kter\u00e9 nezn\u00e1. I drobn\u00e1 zm\u011bna zab\u011bhl\u00e9ho re\u017eimu u Adama zp\u016fsob\u00ed z\u00e1chvat hn\u011bvu a pl\u00e1\u010de.<\/p>\n\n\n\n
\u201e\u010c\u00edm byl Ad\u00e1mek star\u0161\u00ed, t\u00edm v\u00edc probl\u00e9m\u016f se nabalovalo. Nemluvil, s ni\u010d\u00edm si nehr\u00e1l, necht\u011bl si nechat \u010d\u00edst poh\u00e1dky, byl velmi divok\u00fd a velmi se zlobil, kdy\u017e jsme ne\u0161li tam, kam cht\u011bl on, nebo naopak, kdy\u017e jsme odch\u00e1zeli odn\u011bkud, kde se mu l\u00edbilo,\u201c vzpom\u00edn\u00e1 Ad\u00e1mkova maminka, pan\u00ed Kate\u0159ina.<\/p>\n\n\n\n
Jej\u00ed syn proto absolvoval r\u016fzn\u00e1 odborn\u00e1 vy\u0161et\u0159en\u00ed. \u201eByli jsme na foniatrii, jestli dob\u0159e sly\u0161\u00ed, neurologii, logopedii, nav\u0161t\u00edvili jsme psychologa\u2026 Odborn\u00edci se domn\u00edvali, \u017ee se syn pot\u00fdk\u00e1 s poruchou pozornosti s hyperaktivitou a v\u00fdvojovou dysf\u00e1zi\u00ed, \u010dili obt\u00ed\u017eemi v osvojov\u00e1n\u00ed si \u0159e\u010di, a \u017ee se \u010dasem srovn\u00e1,\u201c vysv\u011btluje pan\u00ed Kate\u0159ina.<\/p>\n\n\n\n
\u0160kolku nezvl\u00e1dal<\/p>\n\n\n\n
Kdy\u017e Ad\u00e1mek dorostl do \u0161kolkov\u00e9ho v\u011bku, zapsali jej proto do speci\u00e1ln\u00ed logopedick\u00e9 \u0161kolky. \u201eTam si bohu\u017eel s jeho hyperaktivitou nev\u011bd\u011bli v\u016fbec rady. Nav\u00edc se jeho stav za\u010dal zhor\u0161ovat. P\u0159est\u00e1val rozum\u011bt i jednoduch\u00fdm pokyn\u016fm, t\u0159eba kdy\u017e jsme po n\u011bm cht\u011bli uk\u00e1zat, kde m\u00e1 nos, nebo aby zatleskal,\u201c l\u00ed\u010d\u00ed pan\u00ed Kate\u0159ina.<\/p>\n\n\n\n
Jeliko\u017e se bl\u00ed\u017eilo narozen\u00ed mal\u00e9ho Mart\u00ednka, sna\u017eili se tehdy rodi\u010de Ad\u00e1mkovi zajistit r\u016fzn\u00e9 podp\u016frn\u00e9 terapie a podpo\u0159it jeho socializaci s jin\u00fdmi d\u011btmi. \u201eZapsali jsme jej do jin\u00e9 \u0161kolky a sehnali mu asistenta. Bohu\u017eel ani zde to nedopadlo dob\u0159e. Na Ad\u00e1mka tam toho bylo moc, byl tam na n\u011bj velk\u00fd hluk. Tehdy u\u017e l\u00e9ka\u0159i za\u010dali uva\u017eovat o tom, \u017ee by se mohl pot\u00fdkat s d\u011btsk\u00fdm autismem,\u201c vzpom\u00edn\u00e1 maminka.<\/p>\n\n\n\n
Aktu\u00e1ln\u011b m\u00e1 Ad\u00e1mek krom\u011b d\u011btsk\u00e9ho autismu diagnostikov\u00e1no i t\u011b\u017ek\u00e9 ment\u00e1ln\u00ed posti\u017een\u00ed a chod\u00ed do speci\u00e1ln\u00ed \u0161koly v Merkl\u00edn\u011b. Bohu\u017eel se i p\u0159es ve\u0161kerou p\u00e9\u010di rodi\u010d\u016f jeho stav nad\u00e1le zhor\u0161uje. \u201eDenn\u011b mus\u00edme dodr\u017eovat zajetou rutinu. Nesm\u00edme j\u00edt jinou trasou, na jin\u00e1 m\u00edsta, nebo j\u00edst jin\u00e1 j\u00eddla, ne\u017e je zvykl\u00fd. Prost\u011b m\u016f\u017eeme d\u011blat jen p\u00e1r v\u011bc\u00ed, kter\u00e9 chce Ad\u00e1mek, jinak se dostane do z\u00e1chvatu, kdy pl\u00e1\u010de, \u0159ve, k\u0159i\u010d\u00ed, sk\u00e1\u010de a ubli\u017euje sob\u011b i n\u00e1m. Bohu\u017eel se n\u00e1m zat\u00edm nepoda\u0159ilo vytvo\u0159it \u017e\u00e1dn\u00fd syst\u00e9m, pomoc\u00ed kter\u00e9ho bychom s n\u00edm mohli komunikovat, nap\u0159\u00edklad pomoc\u00ed gest \u010di obr\u00e1zk\u016f, nerozum\u00ed tomu,\u201c vysv\u011btluje pan\u00ed Kate\u0159ina.<\/p>\n\n\n\n
Rodi\u010de se samoz\u0159ejm\u011b intenzivn\u011b sna\u017e\u00ed budovat vz\u00e1jemn\u00fd vztah Ad\u00e1mka s jeho mlad\u0161\u00edm bratrem. \u201eJe to v\u0161ak velmi t\u011b\u017ek\u00e9, proto\u017ee rytmus cel\u00e9 rodiny je pot\u0159eba p\u0159izp\u016fsobovat Adamovi, aby se p\u0159ede\u0161lo p\u0159\u00edpadn\u00fdm z\u00e1chvat\u016fm. A tak jsou mo\u017enosti n\u00e1s v\u0161ech zna\u010dn\u011b omezen\u00e9,\u201c p\u0159izn\u00e1v\u00e1.<\/p>\n\n\n\n
Snad n\u00e1m jednou \u0159ekne mami a tati<\/p>\n\n\n\n
Rodi\u010de Ad\u00e1mka se pot\u00fdkaj\u00ed nejen s velkou psychickou z\u00e1t\u011b\u017e\u00ed spojenou s jeho onemocn\u011bn\u00edm, ale tak\u00e9 tou finan\u010dn\u00ed. \u201ePo rodi\u010dovsk\u00e9 jsem cht\u011bla nastoupit zp\u00e1tky do zam\u011bstn\u00e1n\u00ed, ale bohu\u017eel to kv\u016fli Ad\u00e1mkovu onemocn\u011bn\u00ed nejde. N\u00e1klady, kter\u00e9 m\u00e1me, jsou v\u0161ak hodn\u011b vysok\u00e9. Speci\u00e1ln\u00ed \u0161kola, kam syn zhruba na p\u016fl dne doch\u00e1z\u00ed, stoj\u00ed osm tis\u00edc korun m\u011bs\u00ed\u010dn\u011b. K tomu absolvuje r\u016fzn\u00e9 terapie, dopl\u00e1c\u00edme za dopl\u0148ky stravy a vitam\u00edny, kter\u00e9 pot\u0159ebuje, a dost n\u00e1s stoj\u00ed i nafta, proto\u017ee hodn\u011b projedeme na cest\u00e1ch k l\u00e9ka\u0159\u016fm a na terapie. Drah\u00e1 je pro n\u00e1s nap\u0159\u00edklad i n\u00e1v\u0161t\u011bva zuba\u0159e \u2013 v\u017edycky n\u00e1s stoj\u00ed tis\u00edce. Ad\u00e1mek mus\u00ed b\u00fdt pod celkovou anestezi\u00ed, jeliko\u017e se mu ned\u00e1 vysv\u011btlit, \u017ee mus\u00ed m\u00edt pusinku otev\u0159enou. Proto jsme opravdu nesm\u00edrn\u011b vd\u011b\u010dn\u00ed za podporu ran\u00e9 p\u00e9\u010de Mot\u00fdl, Ad\u00e1mkovy \u0161koly i Dobr\u00fdch and\u011bl\u016f, bez kter\u00fdch bychom tohle v\u0161e finan\u010dn\u011b neut\u00e1hli. D\u00edky nim i my rodi\u010de m\u016f\u017eeme klidn\u011bji sp\u00e1t a neb\u00e1t se, co bude dal\u0161\u00ed m\u011bs\u00edc,\u201c dod\u00e1v\u00e1 z\u00e1v\u011brem pan\u00ed Kate\u0159ina.<\/p>\n\n\n\n
S man\u017eelem se \u017eena shoduje na tom, \u017ee jejich nejv\u011bt\u0161\u00edm p\u0159\u00e1n\u00edm je, aby se Ad\u00e1mk\u016fv stav zlep\u0161il alespo\u0148 natolik, aby si dok\u00e1zal \u0159\u00edct, co jej bol\u00ed, nebo od n\u011bj jednoho dne sly\u0161eli: \u201eMami, tati.\u201c<\/p>\n\n\n\n
Pom\u00e1hat je snadn\u00e9<\/p>\n\n\n\n
Dob\u0159\u00ed and\u011bl\u00e9 pom\u00e1haj\u00ed pravideln\u00fdmi m\u011bs\u00ed\u010dn\u00edmi p\u0159\u00edsp\u011bvky rodin\u00e1m, v nich\u017e se d\u00edt\u011b nebo rodi\u010d pot\u00fdk\u00e1 s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm. Z t\u00e9to pomoci mohou rodiny hradit b\u011b\u017en\u00e9 pot\u0159eby spojen\u00e9 s l\u00e9\u010dbou, ale nap\u0159\u00edklad i n\u00e1klady na chod dom\u00e1cnosti. To jim d\u00e1v\u00e1 jistotu a klid, kter\u00fd bezesporu k l\u00e9\u010db\u011b pot\u0159ebuj\u00ed. Pokud se chcete st\u00e1t Dobr\u00fdm and\u011blem i vy, je to jednoduch\u00e9. Sta\u010d\u00ed se zaregistrovat na www.dobryandel.cz, zvolit libovolnou v\u00fd\u0161i p\u0159\u00edsp\u011bvku a zadat trval\u00fd p\u0159\u00edkaz. I mal\u00fd dar m\u016f\u017ee hodn\u011b pomoci.<\/p>\n\n\n\n
Zuzana V\u00edtkov\u00e1, Nadace Dobr\u00fd and\u011bl<\/p>\n\n\n\n
Milan Kili\u00e1n<\/p>\n\n\n\n
Den\u00edk.cz<\/p>\n\n\n\n
https:\/\/www.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Pro mlad\u00e9 rodi\u010de z Plzn\u011b byl Ad\u00e1mek vytou\u017een\u00fdm d\u00edt\u011btem. Byl v\u0161ak n\u00e1ro\u010dn\u00e9 miminko. Hodn\u011b plakal, nespal, vst\u00e1val obvykle okolo druh\u00e9 hodiny r\u00e1no. Rodi\u010de s n\u00edm […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18795,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-38987","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38987","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=38987"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/38987\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18795"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=38987"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=38987"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=38987"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}