{"id":39392,"date":"2023-05-04T14:39:41","date_gmt":"2023-05-04T12:39:41","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=39392"},"modified":"2023-05-04T14:39:42","modified_gmt":"2023-05-04T12:39:42","slug":"kdyz-telo-prestava-poslouchat-vzacna-nemoc-oslabuje-svaly","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=39392","title":{"rendered":"Kdy\u017e t\u011blo p\u0159est\u00e1v\u00e1 poslouchat: Vz\u00e1cn\u00e1 nemoc oslabuje svaly"},"content":{"rendered":"\n

Svaly je nebol\u00ed, p\u0159esto n\u00e1hle nezvednou ruku nad hlavu \u010di nedaj\u00ed nohu na obrubn\u00edk. \u0158e\u010d je o pacientech s\u00a0myozitidou, z\u00e1n\u011btliv\u00fdm autoimunitn\u00edm onemocn\u011bn\u00edm, kter\u00e9 napad\u00e1 svalstvo a m\u016f\u017ee p\u016fsobit i hore\u010dky nebo ko\u017en\u00ed vyr\u00e1\u017eky. V\u00a0\u010cesku chorobou trp\u00ed p\u0159ibli\u017en\u011b 2 000 pacient\u016f a p\u0159ibli\u017en\u011b 30 % z\u00a0nich nemoc t\u00e9m\u011b\u0159 \u00fapln\u011b znemo\u017e\u0148uje pohyb. <\/strong><\/p>\n\n\n\n

L\u00e9ka\u0159i upozor\u0148uj\u00ed na to, \u017ee je kl\u00ed\u010dov\u00e1 v\u010dasn\u00e1 diagn\u00f3za \u2013 \u010dasto v\u0161ak nen\u00ed snadn\u00e9 myozitidu rozli\u0161it od dal\u0161\u00edch nemoc\u00ed s\u00a0podobn\u00fdmi projevy. V\u00a0kv\u011btnu na chorobu upozor\u0148uj\u00ed pacienti a\u00a0l\u00e9ka\u0159i u p\u0159\u00edle\u017eitosti M\u011bs\u00edce pov\u011bdom\u00ed o myozitid\u011b.<\/strong><\/p>\n\n\n\n

R\u016fzn\u00e9 druhy autoimunitn\u00edch chorob zp\u016fsobuj\u00ed to, \u017ee imunitn\u00ed syst\u00e9m za\u010dne \u201e\u00fato\u010dit\u201c na vlastn\u00ed t\u011blo a jeho tk\u00e1n\u011b. \u201eV p\u0159\u00edpad\u011b myozitidy se bav\u00edme o p\u0159\u00ed\u010dn\u011b pruhovan\u00e9m svalstvu, ve kter\u00e9m choroba zp\u016fsobuje z\u00e1n\u011bty. Ty pak maj\u00ed za d\u016fsledek svalovou slabost, kv\u016fli n\u00ed\u017e pacient mnohdy ani nezvl\u00e1dne vst\u00e1t z\u00a0postele. Nemoc m\u016f\u017ee doprov\u00e1zet hore\u010dka nebo specifick\u00e1 vyr\u00e1\u017eka, to pak mluv\u00edme o tzv. dermatomyozitid\u011b,\u201c<\/em> \u0159\u00edk\u00e1 prof. MUDr. Ji\u0159\u00ed Vencovsk\u00fd, DrSc., vedouc\u00ed V\u011bdeckov\u00fdzkumn\u00e9ho centra Revmatologick\u00e9ho \u00fastavu v\u00a0Praze. Zat\u00edm se podle n\u011bj nepoda\u0159ilo objevit p\u0159\u00ed\u010dinu choroby, nebo co autoimunitn\u00ed reakci v\u00a0t\u011ble spou\u0161t\u00ed. <\/p>\n\n\n\n

Vzhledem k\u00a0tomu, \u017ee stav pacient\u016f se m\u016f\u017ee i pom\u011brn\u011b rychle zhor\u0161ovat, je d\u016fle\u017eit\u00e9 nasadit l\u00e9\u010dbu co nejd\u0159\u00edve. To se v\u0161ak v\u017edy neda\u0159\u00ed. \u201ePokud se neobjev\u00ed vyr\u00e1\u017eka, je n\u011bkdy extr\u00e9mn\u011b t\u011b\u017ek\u00e9 stanovit spr\u00e1vnou diagn\u00f3zu, proto\u017ee p\u0159\u00edznaky se podobaj\u00ed cel\u00e9 \u0159ad\u011b dal\u0161\u00edch onemocn\u011bn\u00ed, kter\u00e1 v\u0161ak maj\u00ed \u00fapln\u011b jinou povahu. Svalovou slabost \u0159ada lid\u00ed v okol\u00ed pacient\u016f odsoud\u00ed s\u00a0t\u00edm, \u017ee se prost\u011b jen dost nesna\u017e\u00ed a pozornost tomu pak nev\u011bnuj\u00ed ani sami pacienti<\/em>,\u201c vysv\u011btluje prof. Vencovsk\u00fd. Fin\u00e1ln\u00ed verdikt v\u011bt\u0161inou p\u0159inese a\u017e biopsie sval\u016f, tedy odebr\u00e1n\u00ed \u010d\u00e1sti tk\u00e1n\u011b a\u00a0jej\u00ed laboratorn\u00ed rozbor. T\u00edm si pro\u0161la i Olga Dr\u00e1palov\u00e1, p\u0159edsedkyn\u011b pacientsk\u00e9 skupiny Myozitida, kter\u00e1 spad\u00e1 pod organizaci Revma Liga \u010cesk\u00e1 republika. Sama toti\u017e chorobou trp\u00ed. <\/p>\n\n\n\n

\u201eV m\u00e9m p\u0159\u00edpad\u011b m\u011bla nemoc pom\u011brn\u011b rychl\u00fd sp\u00e1d, b\u011bhem n\u011bkolika t\u00fddn\u016f, kdy jsem za\u010dala poprv\u00e9 pozorovat slabost, jsem u\u017e nemohla vystoupit z\u00a0auta nebo si vyfoukat vlasy. Bohu\u017eel cesta k\u00a0diagn\u00f3ze byla dlouh\u00e1. P\u0159es sv\u00e9ho revmatologa jsem se nakonec dostala do Revmatologick\u00e9ho \u00fastavu, kde jsem se po 8 m\u011bs\u00edc\u00edch kone\u010dn\u011b dozv\u011bd\u011bla, co mi je,\u201c<\/em> \u0159\u00edk\u00e1.<\/p>\n\n\n\n

Olga Dr\u00e1palov\u00e1 m\u00e1 nav\u00edc nemoc\u00ed posti\u017een\u00e9 i pl\u00edce, co\u017e je jedna z\u00a0mo\u017en\u00fdch komplikac\u00ed myozitidy. Nasazen\u00e1 l\u00e9\u010dba j\u00ed v\u0161ak podle jej\u00edch slov pomohla vr\u00e1tit se do \u017eivota a nad\u00e1le chodit do pr\u00e1ce \u2013 to se v\u0161ak net\u00fdk\u00e1 v\u0161ech pacient\u016f. \u201eVzhledem k\u00a0povaze nemoci je c\u00edlem l\u00e9\u010dby sni\u017eovat autoimunitn\u00ed reakci organismu a tlumit z\u00e1n\u011bt ve svalov\u00fdch tk\u00e1n\u00edch. To se ve v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f da\u0159\u00ed a pacienti mohou i nad\u00e1le \u017e\u00edt relativn\u011b norm\u00e1ln\u00edm \u017eivotem, p\u0159esto\u017ee maj\u00ed n\u011bjak\u00e1 omezen\u00ed. Bohu\u017eel u \u010d\u00e1sti pacient\u016f i p\u0159es terapii doch\u00e1z\u00ed ke zhor\u0161ov\u00e1n\u00ed projev\u016f a\u017e do t\u00e9 m\u00edry, \u017ee se o sebe nedok\u00e1\u017eou postarat a jsou upout\u00e1ni na l\u016f\u017eko,\u201c<\/em> \u0159\u00edk\u00e1 prof. Vencovsk\u00fd. Podle n\u011bj asi 10 % pacient\u016f na projevy choroby um\u00edr\u00e1, dal\u0161\u00edch 40 % jej\u00ed projevy v\u00fdrazn\u011b omezuj\u00ed. U\u00a010 % se pak poda\u0159\u00ed l\u00e9\u010dbou dostat nemoc pod kontrolu tak, \u017ee u\u017e nemus\u00ed nad\u00e1le u\u017e\u00edvat \u017e\u00e1dn\u00e9 l\u00e9ky. <\/p>\n\n\n\n

Vedle farmakologick\u00e9 l\u00e9\u010dby je ale pro pacienty d\u016fle\u017eit\u00e1 i druhotn\u00e1 terapie \u2013 svaly je podle odborn\u00edk\u016f nutn\u00e9 posilovat a nam\u00e1hat. \u201ePacienti se mus\u00ed nau\u010dit s\u00a0nemoc\u00ed \u017e\u00edt. My je podporujeme v\u00a0tom, aby z\u016fstali aktivn\u00ed, ale z\u00e1rove\u0148 v\u00a0n\u011bjak\u00e9 rozumn\u00e9 m\u00ed\u0159e naslouchali sv\u00e9mu t\u011blu a \u0159\u00eddili se j\u00edm. Sna\u017e\u00edme se tak\u00e9 podporovat vz\u00e1jemnou d\u016fv\u011bru mezi l\u00e9ka\u0159i a\u00a0pacienty, proto\u017ee v\u011b\u0159\u00edme, \u017ee pak m\u016f\u017ee b\u00fdt l\u00e9\u010dba mnohem \u00fasp\u011b\u0161n\u011bj\u0161\u00ed,\u201c<\/em> \u0159\u00edk\u00e1 Olga Dr\u00e1palov\u00e1. <\/p>\n\n\n\n

Pacienti mohou tak\u00e9 nov\u011b vyu\u017e\u00edt slu\u017eeb tzv. Revmaporadny<\/a>, kter\u00e1 se zam\u011b\u0159uje na psychologickou podporu lid\u00ed s\u00a0myozitidou a nab\u00edz\u00ed zdarma pomoc psycholo\u017eky. Ta je k\u00a0dispozici v ordinaci v Praze nebo on-line. Podle Olgy Dr\u00e1palov\u00e9 je tak\u00e9 d\u016fle\u017eit\u00e9, aby se o\u00a0nemoci dozv\u011bd\u011bli i dal\u0161\u00ed odborn\u00edci, nap\u0159\u00edklad z\u00a0oblasti fyzioterapie, proto\u017ee pacienti mnohdy vy\u017eaduj\u00ed speci\u00e1ln\u00ed p\u0159\u00edstup, a m\u00e1lokde se jim ho dost\u00e1v\u00e1.<\/p>\n\n\n\n

O Revma Lize \u010cR<\/strong><\/p>\n\n\n\n

Revma Liga \u010cR je spole\u010dnost lid\u00ed s revmatismem, jejich rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f a p\u0159\u00e1tel. Heslem ligy je: Revma si nevyb\u00edr\u00e1, ale spolu to zvl\u00e1dneme. V\u00edce informac\u00ed na www.revmaliga.cz<\/em>.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Svaly je nebol\u00ed, p\u0159esto n\u00e1hle nezvednou ruku nad hlavu \u010di nedaj\u00ed nohu na obrubn\u00edk. \u0158e\u010d je o pacientech s\u00a0myozitidou, z\u00e1n\u011btliv\u00fdm autoimunitn\u00edm onemocn\u011bn\u00edm, kter\u00e9 napad\u00e1 svalstvo […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21737,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-39392","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39392","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39392"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39392\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21737"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39392"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39392"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39392"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}