{"id":39394,"date":"2023-05-04T14:47:40","date_gmt":"2023-05-04T12:47:40","guid":{"rendered":"https:\/\/www.invarena.cz\/?p=39394"},"modified":"2023-05-04T14:47:42","modified_gmt":"2023-05-04T12:47:42","slug":"biologicka-lecba-migreny-funguje-rychlost-nasazeni-ale-vazne","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=39394","title":{"rendered":"Biologick\u00e1 l\u00e9\u010dba migr\u00e9ny funguje, rychlost nasazen\u00ed ale v\u00e1zne"},"content":{"rendered":"\n

N\u00e1sobn\u011b vy\u0161\u0161\u00ed v\u00fdkon v\u00a0pr\u00e1ci i doma, o des\u00edtky procent m\u00e9n\u011b depresivn\u00edch stav\u016f, zkonzumovan\u00fdch \u201epr\u00e1\u0161k\u016f\u201c na bolest, a p\u0159edev\u0161\u00edm pokles po\u010dtu dn\u00ed s\u00a0migr\u00e9nou. To v\u0161e zaznamenal \u010cesk\u00fd registr pacient\u016f s migr\u00e9nou na biologick\u00e9 terapii ReMig pot\u00e9, co letos poprv\u00e9 zve\u0159ejnil souhrnn\u00e1 data za rok 2022. U\u017e po dvou letech fungov\u00e1n\u00ed tak prok\u00e1zal, o kolik m\u016f\u017ee nasazen\u00ed \u00fa\u010dinn\u00e9 l\u00e9\u010dby zlep\u0161it \u017eivoty t\u011bch, kter\u00e9 tr\u00e1p\u00ed nejen \u00faporn\u00e9 bolesti hlavy. Podle odborn\u00edk\u016f ale v \u010cR st\u00e1le v\u00e1zne rychlost diagn\u00f3zy, na ni\u017e mnoz\u00ed pacienti \u010dekaj\u00ed des\u00edtky let, a tak\u00e9 nasazen\u00ed \u00fa\u010dinn\u00e9 l\u00e9\u010dby.<\/strong><\/p>\n\n\n\n

\u201e\u00dakolem registru ReMig, kter\u00fd je jedn\u00edm z\u00a0prvn\u00edch v\u00a0Evrop\u011b, je l\u00e9pe a \u00fa\u010dinn\u011bji bojovat s\u00a0nemoc\u00ed, kterou v\u00a0\u010cesku trp\u00ed odhadem p\u0159es milion lid\u00ed. Dle sv\u011btov\u00fdch studi\u00ed by to dokonce mohlo b\u00fdt 15 % cel\u00e9 populace, nej\u010dast\u011bji \u017een ve v\u011bku mezi 30 a 39 lety.<\/em> \u00dadaje z registru vedou k lep\u0161\u00edmu zmapov\u00e1n\u00ed sou\u010dasn\u00e9 p\u00e9\u010de o pacienty s migr\u00e9nou a k\u00a0jejich \u010dasn\u00e9mu odesl\u00e1n\u00ed do specializovan\u00fdch center,\u201c<\/em> \u0159\u00edk\u00e1 p\u0159edseda spr\u00e1vn\u00ed rady ReMig MUDr. Tom\u00e1\u0161 Ne\u017e\u00e1dal, kter\u00fd je z\u00e1rove\u0148 p\u0159edsedou Sekce pro diagnostiku a l\u00e9\u010dbu bolesti hlavy \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti. Odborn\u00edci odhaduj\u00ed, \u017ee v\u00a0tuzemsku by mohlo dostat biologickou l\u00e9\u010dbu v\u00edce ne\u017e 23 000 lid\u00ed, po\u010det je v\u0161ak pravd\u011bpodobn\u011b vy\u0161\u0161\u00ed vzhledem k d\u0159\u00edv\u011bj\u0161\u00edmu n\u00edzk\u00e9mu u\u017e\u00edv\u00e1n\u00ed profylaktick\u00e9 l\u00e9\u010dby. <\/p>\n\n\n\n

\u201eData n\u00e1m ale ukazuj\u00ed, \u017ee biologickou l\u00e9\u010dbu u\u017e\u00edv\u00e1 m\u00e9n\u011b ne\u017e 10 % z\u00a0nich,\u201c<\/em> komentuje MUDr. Tom\u00e1\u0161 Dole\u017eal, \u0159editel Value Outcomes, poskytuj\u00edc\u00ed anal\u00fdzy z\u00a0oblasti zdravotnictv\u00ed. Zdravotn\u00ed poji\u0161\u0165ovny terapii u\u017e dva roky hrad\u00ed. Registr ReMig uk\u00e1zal, \u017ee pacienti \u010dekali na zah\u00e1jen\u00ed biologick\u00e9 l\u00e9\u010dby v pr\u016fm\u011bru 26,3 let od diagn\u00f3zy. Zat\u00edmco p\u0159ed zah\u00e1jen\u00edm biologick\u00e9 terapie lid\u00e9 v\u00a0registru trp\u011bli migr\u00e9nou pr\u016fm\u011brn\u011b 11,8 dn\u00ed v m\u011bs\u00edci, po roce u\u017e\u00edv\u00e1n\u00ed to u\u017e bylo u\u017e jen 2,9 dn\u016f a po dvou letech l\u00e9\u010dby u\u017e jen 2 dny s\u00a0migr\u00e9nou za m\u011bs\u00edc.<\/p>\n\n\n\n

Podle R\u00fdzy Bla\u017eejovsk\u00e9, zakladatelky pacientsk\u00e9 organizace Migr\u00e9na-help, \u0159ada lid\u00ed za dobu, kdy se p\u00edd\u00ed po \u00falev\u011b od su\u017euj\u00edc\u00edch bolest\u00ed, ztratila d\u016fv\u011bru ve zdravotnick\u00fd syst\u00e9m a sna\u017e\u00ed se pomoci si sama. \u201ePr\u016fzkum, kter\u00fd jsme mezi na\u0161imi \u010dleny provedli, uk\u00e1zal, \u017ee pro 65 % lid\u00ed bylo t\u011b\u017ek\u00e9 se do specializovan\u00e9ho centra pro l\u00e9\u010dbu bolest\u00ed hlavy v\u016fbec dostat. Na p\u0159ijet\u00ed \u010dekali mnoho m\u011bs\u00edc\u016f. Velk\u00e1 \u010d\u00e1st z nich se o existenci specializovan\u00fdch center dozv\u011bd\u011bla a\u017e od n\u00e1s, jejich o\u0161et\u0159uj\u00edc\u00ed l\u00e9ka\u0159 jim o t\u00e9to mo\u017enosti ne\u0159ekl. Biologickou l\u00e9\u010dbu ozna\u010dili na\u0161i \u010dlenov\u00e9 jako nejobt\u00ed\u017en\u011bji dostupnou formu terapie,\u201c<\/em> dopl\u0148uje R\u00fdza Bla\u017eejovsk\u00e1.<\/p>\n\n\n\n

Ke zlep\u0161en\u00ed situace by m\u011bly p\u0159isp\u011bt nov\u00e9 doporu\u010den\u00e9 postupy pro praktick\u00e9 l\u00e9ka\u0159e, kter\u00e9 maj\u00ed vzniknout do konce leto\u0161n\u00edho roku. \u201eS bolestmi hlavy r\u016fzn\u00e9 etiologie se praktik setk\u00e1v\u00e1 v\u00a0ordinaci tak\u0159ka na denn\u00ed b\u00e1zi. Proto je t\u0159eba jasn\u011b ur\u010dit, v\u00a0jak\u00fdch p\u0159\u00edpadech stoj\u00ed za pot\u00ed\u017eemi pacient\u016f migr\u00e9na a kdy je t\u0159eba za\u010d\u00edt spolupracovat se specialistou \u2013 neurologem. \u00da\u010delem postupu bude pacienty racion\u00e1ln\u011b l\u00e9\u010dit, i kv\u016fli tomu, aby zbyte\u010dn\u011b neu\u017e\u00edvali analgetika, kter\u00e1 ve fin\u00e1le jejich pot\u00ed\u017ee a bolesti hlavy pouze zhor\u0161uj\u00ed,\u201c<\/em> \u0159\u00edk\u00e1 p\u0159edseda Spole\u010dnosti v\u0161eobecn\u00e9ho l\u00e9ka\u0159stv\u00ed doc.\u00a0MUDr.\u00a0Svatopluk B\u00fdma. <\/p>\n\n\n\n

Bolest hlavy p\u0159i nadu\u017e\u00edv\u00e1n\u00ed medikace je p\u0159i migr\u00e9n\u011b \u010dast\u00fdm jevem, podle registru ji l\u00e9ka\u0159i v dob\u011b zah\u00e1jen\u00ed biologick\u00e9 l\u00e9\u010dby zaznamenali u 584 pacient\u016f (37,7 %) \u2013 po 2 letech l\u00e9\u010dby u\u017e u \u017e\u00e1dn\u00e9ho. P\u0159i u\u017e\u00edv\u00e1n\u00ed biologick\u00e9 terapie klesl i po\u010det dn\u00ed, ve kter\u00fdch pacienti pot\u0159ebovali analgetika, a to z 10 na 3 dny za m\u011bs\u00edc.<\/p>\n\n\n\n

Data z registru ReMig za rok 2022 tak\u00e9 uk\u00e1zala dramatick\u00e9 zlep\u0161en\u00ed co se produktivity pacient\u016f t\u00fd\u010de. Zat\u00edmco p\u0159ed zah\u00e1jen\u00edm biologick\u00e9 l\u00e9\u010dby \u010dinila ztr\u00e1ta celkov\u00e9 pracovn\u00ed produktivity v pr\u016fm\u011bru 53,2 %, po roce terapie toto \u010d\u00edslo kleslo na 17,3 %. V\u011bt\u0161ina (70,8 %) pacient\u016f pracovala na pln\u00fd a 10,2 % na \u010d\u00e1ste\u010dn\u00fd \u00favazek.<\/p>\n\n\n\n

S migr\u00e9nou se poj\u00ed i p\u0159idru\u017een\u00e1 onemocn\u011bn\u00ed, pat\u0159\u00ed mezi n\u011b deprese a \u00fazkosti. ReMig uk\u00e1zal, \u017ee v dob\u011b zah\u00e1jen\u00ed biologick\u00e9 l\u00e9\u010dby bylo bez deprese pouze 22,7 % pacient\u016f, st\u0159edn\u00ed nebo z\u00e1va\u017enou depresi m\u011blo celkem 23,7 % pacient\u016f. Po roce l\u00e9\u010dby bylo bez deprese u\u017e 54 % pacient\u016f, po\u010det lid\u00ed se st\u0159edn\u00ed nebo z\u00e1va\u017enou depres\u00ed klesl na 8,5 %.<\/p>\n\n\n\n

Registr ReMig na konci roku 2022 sledoval 1 681 pacient\u016f na biologick\u00e9 l\u00e9\u010db\u011b, z toho 1 473 \u017een (87,6 %) a 208 mu\u017e\u016f (12,4 %) ve 27 z celkem 35 st\u00e1vaj\u00edc\u00edch center specializovan\u00fdch na l\u00e9\u010dbu bolest\u00ed hlavy. Pr\u016fm\u011brn\u00fd v\u011bk pacient\u016f v registru je 46,1 let, v dob\u011b diagn\u00f3zy jim bylo v pr\u016fm\u011bru 19,3 let. Nemoc v\u011bt\u0161inou \u201ezd\u011bdili\u201c po sv\u00fdch p\u0159\u00edbuzn\u00fdch \u2013 migr\u00e9na je v rodinn\u00e9 anamn\u00e9ze p\u0159\u00edtomna u 64 % pacient\u016f. P\u0159es 28 % l\u00e9\u010den\u00fdch m\u00e1 chronickou migr\u00e9nu \u2013 kdy bolesti a projevy nemoci prakticky neust\u00e1vaj\u00ed.<\/p>\n\n\n\n

Experti odhaduj\u00ed, \u017ee asi 40 % nemocn\u00fdch v \u010cesku nev\u00ed, \u017ee za jejich pot\u00ed\u017eemi je pr\u00e1v\u011b migr\u00e9na. \u201eLid\u00e9 ji p\u0159ed sv\u00fdm okol\u00edm taj\u00ed \u2013 boj\u00ed se zleh\u010dov\u00e1n\u00ed a posm\u011bchu. Z\u00e1chvat migr\u00e9ny p\u0159itom dok\u00e1\u017ee \u010dlov\u011bka zcela zneschopnit. Nem\u016f\u017ee pracovat, studovat, starat se o b\u011b\u017en\u00e9 v\u011bci, a to n\u011bkdy i n\u011bkolik dn\u016f v kuse,\u201c<\/em> popisuje neurolog MUDr. Ne\u017e\u00e1dal. Jednoduch\u00fd dotazn\u00edk, zji\u0161\u0165uj\u00edc\u00ed, zda \u010dlov\u011bk trp\u00ed migr\u00e9nou lze nal\u00e9zt nap\u0159\u00edklad na odkazu: https:\/\/www.migrena-kompas.cz\/jak-na-migrenu\/104-Chcete-vedet-zda-trpite-migrenou\/<\/a><\/p>\n\n\n\n

Seznam specializovan\u00fdch center je k dispozici na: https:\/\/migrena-kompas.cz\/centra-pro-lecbu\/<\/a><\/p>\n\n\n\n

O l\u00e9\u010db\u011b migr\u00e9ny<\/strong><\/p>\n\n\n\n

V sou\u010dasn\u00e9 dob\u011b je na migr\u00e9nu k dispozici \u00fa\u010dinn\u00e1 l\u00e9\u010dba, kter\u00e1 se d\u011bl\u00ed na akutn\u00ed a preventivn\u00ed. V p\u0159\u00edpad\u011b, \u017ee m\u00e1 pacient jen \u010dty\u0159i dny s migr\u00e9nou (MMD) do m\u011bs\u00edce a pom\u016f\u017ee mu od bolesti tableta l\u00e9ku ze skupiny triptan\u016f, sta\u010d\u00ed akutn\u00ed l\u00e9\u010dba a nen\u00ed t\u0159eba nasazovat l\u00e9\u010dbu preventivn\u00ed. Ov\u0161em p\u0159i vy\u0161\u0161\u00edm po\u010dtu dn\u016f s migr\u00e9nou \u2013 \u010dty\u0159i a v\u00edce do m\u011bs\u00edce \u2013 doch\u00e1z\u00ed k v\u00fdrazn\u00e9mu sn\u00ed\u017een\u00ed kvality \u017eivota pacienta. Zde je vhodn\u00e9 nasadit preventivn\u00ed (tzv. profylaktickou) l\u00e9\u010dbu, jej\u00edm\u017e c\u00edlem je sn\u00ed\u017eit po\u010det a intenzitu z\u00e1chvat\u016f a omezit d\u00e9lku jejich trv\u00e1n\u00ed. V\u00edce o migr\u00e9n\u011b na www.migrena-kompas.cz<\/a><\/p>\n\n\n\n

O registru ReMig<\/strong> Registr ReMig je \u010desk\u00fd registr pacient\u016f s migr\u00e9nou na biologick\u00e9 terapii. Registr byl zalo\u017een v roce 2021 a spr\u00e1vcem je nada\u010dn\u00ed fond Hedalga ve spolupr\u00e1ci s v\u00fdborem Sekce pro diagnostiku a l\u00e9\u010dbu bolest\u00ed hlavy \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti \u010cLS JEP (Czech Headache Society). Provoz registru, technick\u00e9 zabezpe\u010den\u00ed a anal\u00fdzu dat zaji\u0161\u0165uje spole\u010dnost Value Outcomes s.r.o., kter\u00e1 je sou\u010dasn\u011b zpracovatelem osobn\u00edch \u00fadaj\u016f v r\u00e1mci registru. V\u00edce informac\u00ed na https:\/\/remig.cz<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

N\u00e1sobn\u011b vy\u0161\u0161\u00ed v\u00fdkon v\u00a0pr\u00e1ci i doma, o des\u00edtky procent m\u00e9n\u011b depresivn\u00edch stav\u016f, zkonzumovan\u00fdch \u201epr\u00e1\u0161k\u016f\u201c na bolest, a p\u0159edev\u0161\u00edm pokles po\u010dtu dn\u00ed s\u00a0migr\u00e9nou. To v\u0161e zaznamenal […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":18186,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-39394","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39394","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=39394"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/39394\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/18186"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=39394"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=39394"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=39394"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}